What is a Cancer Registry?

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href="/registries/">SEER Registries</a> </li><li class="breadcrumb-item" aria-current="page">What is a Cancer Registry?</li></ol> <h1>What is a Cancer Registry?</h1> </div> </div> <div class="container-lg body ps-lg-0 pb-4"><img src="/i/left-body.png" alt="" class="bg-front"> <div class="row">  <div class="col-lg-3"> <div class="leftNav-wrap"> <nav class="subNav leftNav" aria-label="About SEER"> <strong><a href="/about/">About SEER</a></strong> <ul> <li> <a href="/about/overview.html">Program Overview</a> <ul> <li><a href="/about/goals.html">Goals of the SEER Program</a></li> <li><a href="/about/factsheets/">Fact Sheets & Brochures</a></li> <li><a href="/about/organizations.html">Collaborating Organizations</a></li> </ul> </li> <li> <a href="/registries/">SEER Registries</a> <ul> <li><a class="active" href="/registries/cancer_registry/">What is a Cancer Registry?</a> <ul> <li><a href="/registries/cancer_registry/cancer_registry.html">Cancer Registry</a></li> <li><a href="/registries/cancer_registry/data_collection.html">Data Collection, Storage, & Management</a></li> <li><a href="/registries/cancer_registry/dissemination.html">Dissemination</a></li> <li><a href="/registries/cancer_registry/analysis.html">Analysis</a></li> <li><a href="/registries/cancer_registry/research_application.html">Research Application</a></li> <li><a href="/registries/cancer_registry/resources.html">Resources</a></li> </ul> </li> <li><a href="/registries/list.html">List of Registries</a></li> <li><a href="/registries/terms.html">Registry Groupings in SEER Data and Statistics</a></li> <li><a href="/registries/characteristics.html">Population Characteristics</a></li> </ul> </li> <li><a href="/about/activities.html">Research Activities</a> <ul> <li><a href="/biospecimen/">Residual Tissue Repository Program</a> <ul> <li><a href="/biospecimen/resources.html">Pancreatic Tissue Microarray</a></li> <li><a href="/biospecimen/application.html">Applying for Specimens</a></li> <li><a href="/biospecimen/registries.html">Participating Registries</a></li> <li><a href="/biospecimen/regulations.html">Research Regulations</a></li> <li><a href="/biospecimen/publications.html">Accomplishments & Publications</a></li> </ul> </li> <li><a href="/vtr/">SEER-Linked Virtual Tissue Repository (VTR) Program</a> <ul> <li><a href="/vtr/data.html">Data & Biospecimens</a></li> <li><a href="/vtr/request.html">Request Inquiry & Submissions</a></li> <li><a href="/vtr/cost.html">Cost Structure, Fees, & Payments</a></li> <li><a href="/vtr/faq.html">FAQs</a></li> <li><a href="/vtr/study-info-form.html">Study Information Form (F1)</a></li> <li><a href="/vtr/study-request-form.html">Study Request Form (F2)</a></li> <li><a href="/vtr/contact.html">Contact Us</a></li> </ul> </li> </ul> </li> <li> <a href="/qi/">SEER Quality Improvement</a> <ul> <li><a href="/qi/process.html">Quality Improvement Process</a></li> <li><a href="/qi/tools/">Quality Improvement Tools</a></li> <li><a href="/qi/publications.html">Publications</a></li> <li><a href="/qi/education.html">Education & Training</a></li> </ul> </li> </ul> </nav> </div> </div>  <main class="col-lg-9" id="content" role="main"> <a name="skipnav" id="skipnav" tabindex="-1"></a> <h2>Learn more about Cancer Registries by clicking on the different steps below!</h2> <div id="breadcrumbs"> <ol> <li class="inactive"> <div class="tiles tile_slim"> <a href="cancer_registry.html" alt="" class="reg_icon"> <div> <img src="icons/hospital.svg" alt="" class="icon" width="115" height="100"> </div> <div class="section_heads_1"> <span>1. Cancer Registry</span> </div> </a> </div> </li> <li class="inactive"> <div class="tiles tile_wide"> <a href="data_collection.html" alt="" class="reg_icon"> <div> <img src="icons/seer-dms.svg" alt="" class="icon" width="115" height="100"> </div> <div class="section_heads_1"> <span id="two_lines">2. Data Collection & Storage</span> </div> </a> </div> </li> <li class="inactive"> <div class="tiles"> <a href="dissemination.html" alt="" class="reg_icon"> <div> <img src="icons/medicalreport.svg" alt="" class="icon" width="115" height="100"> </div> <div class="section_heads_1"> <span>3. Dissemination</span> </div> </a> </div> </li> <li class="inactive"> <div class="tiles tile_slim"> <a href="analysis.html" alt="" class="reg_icon"> <div> <img src="icons/seer-stat.svg" alt="" class="icon" width="115" height="100"> </div> <div class="section_heads_1"> <span>4. Analysis</span> </div> </a> </div> </li> <li class="inactive" id="last"> <div class="tiles tile_last"> <a href="research_application.html" alt="" class="reg_icon"> <div> <img src="icons/downward_trend.svg" alt="" class="icon" width="115" height="100"> </div> <div class="section_heads_1"> <span>5. Research Application</span> </div> </a> </div> </li> </ol> </div> <p>A <strong>cancer registry</strong> is an information system designed for the collection, storage, and management of data on persons with cancer.</p> <p>Registries play a critical role in cancer surveillance, which tells us where we are in the efforts to reduce the cancer burden. Surveillance data may also serve as a foundation for cancer research and are used to plan and evaluate cancer prevention and control interventions.</p> <p>For example, health officials, researchers, and others use cancer surveillance data to answer questions like, “Are more or fewer people getting colorectal cancer this year compared to last year?” or “Which groups of people are most likely to get skin cancer?” </p> <p>The <strong>Surveillance, Epidemiology, and End Results (SEER) Program</strong> is the main program that the National Cancer Institute (NCI) uses to support cancer surveillance activities. It is an authoritative source of information on cancer incidence and survival in the United States. The SEER Program currently collects and publishes cancer incidence and survival data from population-based cancer registries covering approximately 48 percent of the U.S. population. The SEER Program is part of the NCI’s Surveillance Research Program, which provides national leadership in the science of cancer surveillance as well as analytical tools and methodological expertise in collecting, analyzing, interpreting, and disseminating reliable population-based statistics. The SEER program also supports multiple types of research related to cancer by: helping connect patients with clinical trials that evaluate the effectiveness of new treatments, supporting studies that work with patients to answer specific questions about their cancer care and outcomes, and supporting other types of epidemiologic studies.</p> <p class="text-end"><a href="cancer_registry.html"><strong>Next Section: Cancer Registry</strong> <svg xmlns="http://www.w3.org/2000/svg" viewBox="0 0 512 512" class="inline-icon" aria-hidden="true"><path d="M256 8c137 0 248 111 248 248S393 504 256 504 8 393 8 256 119 8 256 8zm-28.9 143.6l75.5 72.4H120c-13.3 0-24 10.7-24 24v16c0 13.3 10.7 24 24 24h182.6l-75.5 72.4c-9.7 9.3-9.9 24.8-.4 34.3l11 10.9c9.4 9.4 24.6 9.4 33.9 0L404.3 273c9.4-9.4 9.4-24.6 0-33.9L271.6 106.3c-9.4-9.4-24.6-9.4-33.9 0l-11 10.9c-9.5 9.6-9.3 25.1.4 34.4z"/></svg></strong></a></p> </main> </div> <img src="/i/right-body.png" alt="" class="bg-back"></div> <div class="wrapper"> <meta http-equiv="last_modified" content="Thu, 02 Mar 2023 13:48:46 -0500" /> </div> </div>  <footer class="footer" role="contentinfo"> <a class="returntop" href="#content" style="display: inline;"><span>Return to Top</span></a> <div class="container-lg"> <div class="row justify-content-around"> <div class="col-lg-9"> <p class="seer-logo">SEER is supported by the <a href="https://surveillance.cancer.gov/">Surveillance Research Program (SRP)</a> in NCI's <a href="https://cancercontrol.cancer.gov/">Division of Cancer Control and Population Sciences (DCCPS)</a>. 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What is a Cancer Registry?