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Dementia in the minds of characters and readers | ARK - Access Research Knowledge
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readers</h3> <hr> <div class="arkindent"><!--- Start of ark indent --> <h3>Introduction<img alt="Dementia image" class="thumbnail img-responsive align-right" data-entity-type="file" data-entity-uuid="3fb3c9e5-c516-4e3f-9467-f93104ee701d" src="/ARK/sites/default/files/inline-images/Couple_0.jpg" style="max-width:50%" width="725" height="396" loading="lazy"></h3> <p>Paula Devine and Gemma Carney (<a href="https://www.ark.ac.uk/ap/" target="_blank">ARK Ageing Programme)</a> are collaborating with <a href="https://pure.qub.ac.uk/portal/en/persons/jane-lugea(1d3378d8-f594-4cd1-9741-a9ffdfee932b).html" target="_blank">Dr Jane Lugea</a>, a Lecturer in English Language at Queen’s University Belfast to explore the potential of fiction featuring characters with dementia to improve awareness of and empathy towards people living with the condition. The research has been awarded an Arts and Humanities Research Council Early Career Research Grant and runs from May 2020 to October 2021.</p> <p>This project explores the representation of dementia in contemporary fiction, using a cognitive stylistic approach to reveal how the minds of characters with the condition are constructed in language. Extracts from the fiction are then used in Reading Groups with four key stakeholder groups: people in the early stages of dementia, caregivers, trainee social workers and general public. The readers’ responses to the fiction will establish the potential of dementia fiction to facilitate awareness and empathy, as well as feed back into our understanding of the literary language and its cognitive effects.</p> <p>By appointing fiction writer and programmer of older people’s arts projects <a href="https://jancarsonwrites.wordpress.com" target="_blank">Jan Carson</a> as Outreach Officer and by working with dementia charities and the Northern Ireland Museums Council, this project has impact built in to its design and delivery.</p> <p>Find out more on the <strong><a href="https://blogs.qub.ac.uk/dementiafiction/">Dementia Fiction blog</a></strong>, or follow the project on <strong><a href="https://twitter.com/FictionDementia">Twitter</a></strong>.</p> <hr> <p><strong>31 August 2022: Launch of <em>A Little Unsteadily into Light</em></strong></p> <table border="0" cellpadding="1" cellspacing="1" height="288" width="810"> <tbody> <tr> <td style="width: 192px;"><img alt="Cover of a new book called A Little Unsteadily Into Light" data-entity-type="file" data-entity-uuid="c91e9eae-bd24-478c-91a1-abeb318194b1" height="259" src="/ARK/sites/default/files/inline-images/book.jpg" width="167" class="align-left" loading="lazy"></td> <td alight="top" style="width: 605px;"> <p>In this anthology of fourteen new short stories, commissioned and edited by Jan Carson and Jane Lugea, some of the best contemporary writers powerfully and poignantly explore the depths and breadth of the real dementia experience, traversing age, ethnicity, class and gender, sex and consent. </p> <p>Importantly, these pieces of short fiction disrupt the perceived notions of what dementia is and, in their diversity, honesty and authenticity begin to normalise an illness that affects so many and break down the stigma endured by those living with it every day.</p> <p>The book is published by New Island Press, and the contributing authors are Suad Aldarra, Caleb Azumah Nelson, Jan Carson, Elaine Feeney, Oona Frawley, Sinead Gleeson, Anna Jean Hughes, Caleb Klaces, Naomi Kruger, Henrietta McKervey, Paul McVeigh, Mary Morrissy, Nuala O'Connor, and Chris Wright.</p> </td> </tr> </tbody> </table> <hr> <p><strong>15-16 September 2021: Dementia Fiction Festival 2021</strong></p> <p>This festival/conference hybrid brought together a unique mix of academics, writers, organisations, carers and people living with dementia to discuss how we write about dementia with honesty, imagination and integrity. </p> <p>Click <strong><a href="https://blogs.qub.ac.uk/dementiafiction/2021/08/20/dementia-fiction-festival-programme/">here</a></strong> for more information and registration details.</p> <p>Click <strong><a href="https://www.ark.ac.uk/ARK/sites/default/files/2021-09/Dementia_fiction_fest.pdf">here</a></strong> for the Festival Programme.</p> <p>Click <strong><a href="https://www.youtube.com/channel/UC-wno22Az1Y6X_b1clzmEdw">here</a></strong> to watch videos of the event on YouTube.</p> <hr> <p><strong>27 March 2021: <em>Dementia: feel it through fiction</em></strong></p> <p>This interactive talk with Jane Lugea explored how dementia is represented in fictional language, how readers respond to it, and why.</p> <p>This event was part of the Imagine: The Belfast Festival of Ideas and Politics - click <strong><a href="https://blogs.qub.ac.uk/dementiafiction/2021/04/19/dementia-feel-it-through-fiction-at-imagine-festival/">here</a></strong> to view a video of the event.</p> <hr> <p><strong>17 February 2021:</strong> <strong><em>Somebody I Used To Know with Wendy Mitchell</em> </strong></p> <p>In this online event, Jan Carson and Jane Lugea chatted to Wendy about her experience living with and writing about dementia, alongside Anna Wharton, who helped co-author Wendy’s memoir. The event was part of the Northern Ireland Science Festival.</p> <iframe allow="accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture" allowfullscreen frameborder="0" height="163" src="https://www.youtube.com/embed/KpsiGcVS8hI" width="290"></iframe> <p> </p> <p> </p> </div> <hr></div> </div> </article> </div> </section> <aside class="col-sm-3" role="complementary"> <div class="region region-sidebar-second"> <div class="contextual-region"> </div> <div class="content"> <div class="form-group"><div class="view view-news view-id-news view-display-id-block_2 js-view-dom-id-f3fe56900141dff810e6f57d1f3a40f1a579f14ec5eff073119e5f2eb00e0b29"> <div class="view-header"> <hr> <h2><span class="label label-primary">Latest News</span></h2> </div> <div class="view-content"> <div class="item-list"> <ul> <li><span class="views-field views-field-field-news-title"><span class="field-content">February newsletter</span></span><div class="views-field views-field-field-news-url"><div class="field-content"><a href="https://mailchi.mp/8ac4f6c5709f/february25">More info</a></div></div><div class="views-field views-field-field-news-description"><div class="field-content">In this issue, we feature ARK staff, events, publications and activities, and introduce 25th anniversary events and features.</div></div></li> <li><span class="views-field views-field-field-news-title"><span class="field-content">January newsletter</span></span><div class="views-field views-field-field-news-url"><div class="field-content"><a href="https://mailchi.mp/b64dd2689c31/january25">More info</a></div></div><div class="views-field views-field-field-news-description"><div class="field-content">In this issue, we feature ARK staff, events, publications and activities, and introduce our 25th anniversary branding.</div></div></li> <li><span class="views-field views-field-field-news-title"><span class="field-content">Respect in Northern Ireland: Exploring 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class="views-field views-field-field-news-title"><span class="field-content">Achieving a Just Transition in Northern Ireland</span></span><div class="views-field views-field-field-news-url"><div class="field-content"><a href="https://www.ark.ac.uk/ARK/sites/default/files/2024-12/policybrief33.pdf">More info</a></div></div><div class="views-field views-field-field-news-description"><div class="field-content">ARK's latest Policy Brief assesses the implementation of a Just Transition in Northern Ireland</div></div></li> </ul> </div> </div> <div class="view-footer"> <hr> </div> </div> </div> </div> </div> </aside> </div> </div> <div class="container-fluid ark_footerborder" role="contentinfo"> <div class="ark_bottom container "> <div class="region region-arkbottom"> <section id="block-footermenublock" class="block block-block-content block-block-content0d1936fe-52f7-487f-a52a-f86fe2df37e7 clearfix"> <div class="field field--name-body field--type-text-with-summary field--label-hidden 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