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Events from December 5 – April 21, 2025 – National Organization for Rare Disorders
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min-width:100%; max-width:100%; top:auto; left:0 !important; } .ubermenu-responsive.ubermenu-has-border .ubermenu-nav .ubermenu-item .ubermenu-submenu.ubermenu-submenu-drop{ left: -1px !important; /* For borders */ } .ubermenu-responsive .ubermenu-submenu.ubermenu-submenu-type-mega > .ubermenu-item.ubermenu-column{ min-height:0; border-left:none; float:left; /* override left/center/right content alignment */ display:block; } .ubermenu-responsive .ubermenu-item.ubermenu-active > .ubermenu-submenu.ubermenu-submenu-type-mega{ max-height:none; height:auto;/*prevent overflow scrolling since android is still finicky*/ overflow:visible; } .ubermenu-responsive.ubermenu-transition-slide .ubermenu-item.ubermenu-in-transition > .ubermenu-submenu-drop{ max-height:1000px; /* because of slide transition */ } .ubermenu .ubermenu-submenu-type-flyout .ubermenu-submenu-type-mega{ min-height:0; } .ubermenu.ubermenu-responsive .ubermenu-column, .ubermenu.ubermenu-responsive .ubermenu-column-auto{ min-width:50%; } .ubermenu.ubermenu-responsive .ubermenu-autoclear > .ubermenu-column{ clear:none; } .ubermenu.ubermenu-responsive .ubermenu-column:nth-of-type(2n+1){ clear:both; } .ubermenu.ubermenu-responsive .ubermenu-submenu-retractor-top:not(.ubermenu-submenu-retractor-top-2) .ubermenu-column:nth-of-type(2n+1){ clear:none; } .ubermenu.ubermenu-responsive .ubermenu-submenu-retractor-top:not(.ubermenu-submenu-retractor-top-2) .ubermenu-column:nth-of-type(2n+2){ clear:both; } .ubermenu-responsive-single-column-subs .ubermenu-submenu .ubermenu-item { float: none; clear: both; width: 100%; min-width: 100%; } .ubermenu.ubermenu-responsive .ubermenu-tabs, .ubermenu.ubermenu-responsive .ubermenu-tabs-group, .ubermenu.ubermenu-responsive .ubermenu-tab, .ubermenu.ubermenu-responsive .ubermenu-tab-content-panel{ /** TABS SHOULD BE 100% ACCORDION */ width:100%; min-width:100%; max-width:100%; left:0; } .ubermenu.ubermenu-responsive .ubermenu-tabs, .ubermenu.ubermenu-responsive .ubermenu-tab-content-panel{ min-height:0 !important;/* Override Inline Style from JS */ } .ubermenu.ubermenu-responsive .ubermenu-tabs{ z-index:15; } .ubermenu.ubermenu-responsive .ubermenu-tab-content-panel{ z-index:20; } /* Tab Layering */ .ubermenu-responsive .ubermenu-tab{ position:relative; } .ubermenu-responsive .ubermenu-tab.ubermenu-active{ position:relative; z-index:20; } .ubermenu-responsive .ubermenu-tab > .ubermenu-target{ border-width:0 0 1px 0; } .ubermenu-responsive.ubermenu-sub-indicators .ubermenu-tabs > .ubermenu-tabs-group > .ubermenu-tab.ubermenu-has-submenu-drop > .ubermenu-target > .ubermenu-sub-indicator{ transform:rotate(0); right:10px; left:auto; } .ubermenu-responsive .ubermenu-tabs > .ubermenu-tabs-group > .ubermenu-tab > .ubermenu-tab-content-panel{ top:auto; border-width:1px; } .ubermenu-responsive .ubermenu-tab-layout-bottom > .ubermenu-tabs-group{ /*position:relative;*/ } .ubermenu-reponsive .ubermenu-item-level-0 > .ubermenu-submenu-type-stack{ /* Top Level Stack Columns */ position:relative; } .ubermenu-responsive .ubermenu-submenu-type-stack .ubermenu-column, .ubermenu-responsive .ubermenu-submenu-type-stack .ubermenu-column-auto{ /* Stack Columns */ width:100%; max-width:100%; } .ubermenu-responsive .ubermenu-item-mini{ /* Mini items */ min-width:0; width:auto; float:left; clear:none !important; } .ubermenu-responsive .ubermenu-item.ubermenu-item-mini > a.ubermenu-target{ padding-left:20px; padding-right:20px; } .ubermenu-responsive .ubermenu-item.ubermenu-hide-mobile{ /* Hiding items */ display:none !important; } .ubermenu-responsive.ubermenu-hide-bkgs .ubermenu-submenu.ubermenu-submenu-bkg-img{ /** Hide Background Images in Submenu */ background-image:none; } .ubermenu.ubermenu-responsive .ubermenu-item-level-0.ubermenu-item-mini{ min-width:0; width:auto; } .ubermenu-vertical .ubermenu-item.ubermenu-item-level-0{ width:100%; } .ubermenu-vertical.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-item-has-children > .ubermenu-target > .ubermenu-sub-indicator{ right:10px; left:auto; transform:rotate(0); } .ubermenu-vertical .ubermenu-item.ubermenu-item-level-0.ubermenu-relative.ubermenu-active > .ubermenu-submenu-drop.ubermenu-submenu-align-vertical_parent_item{ top:auto; } .ubermenu.ubermenu-responsive .ubermenu-tabs{ position:static; } /* Tabs on Mobile with mouse (but not click) - leave space to hover off */ .ubermenu:not(.ubermenu-is-mobile):not(.ubermenu-submenu-indicator-closes) .ubermenu-submenu .ubermenu-tab[data-ubermenu-trigger="mouseover"] .ubermenu-tab-content-panel, .ubermenu:not(.ubermenu-is-mobile):not(.ubermenu-submenu-indicator-closes) .ubermenu-submenu .ubermenu-tab[data-ubermenu-trigger="hover_intent"] .ubermenu-tab-content-panel{ margin-left:6%; width:94%; min-width:94%; } /* Sub indicator close visibility */ .ubermenu.ubermenu-submenu-indicator-closes .ubermenu-active > .ubermenu-target > .ubermenu-sub-indicator-close{ display:block; display: flex; align-items: center; justify-content: center; } .ubermenu.ubermenu-submenu-indicator-closes .ubermenu-active > .ubermenu-target > .ubermenu-sub-indicator{ display:none; } .ubermenu .ubermenu-tabs .ubermenu-tab-content-panel{ box-shadow: 0 5px 10px rgba(0,0,0,.075); } /* When submenus and items go full width, move items back to appropriate positioning */ .ubermenu .ubermenu-submenu-rtl { direction: ltr; } /* Fixed position mobile menu */ .ubermenu.ubermenu-mobile-modal{ position:fixed; z-index:9999999; opacity:1; top:0; left:0; width:100%; width:100vw; max-width:100%; max-width:100vw; height:100%; height:calc(100vh - calc(100vh - 100%)); height:-webkit-fill-available; max-height:calc(100vh - calc(100vh - 100%)); max-height:-webkit-fill-available; border:none; box-sizing:border-box; display:flex; flex-direction:column; justify-content:flex-start; overflow-y:auto !important; /* for non-accordion mode */ overflow-x:hidden !important; overscroll-behavior: contain; transform:scale(1); transition-duration:.1s; transition-property: all; } .ubermenu.ubermenu-mobile-modal.ubermenu-mobile-accordion.ubermenu-interaction-press{ overflow-y:hidden !important; } .ubermenu.ubermenu-mobile-modal.ubermenu-responsive-collapse{ overflow:hidden !important; opacity:0; transform:scale(.9); visibility:hidden; } .ubermenu.ubermenu-mobile-modal .ubermenu-nav{ flex:1; overflow-y:auto !important; overscroll-behavior: contain; } .ubermenu.ubermenu-mobile-modal .ubermenu-item-level-0{ margin:0; } .ubermenu.ubermenu-mobile-modal .ubermenu-mobile-close-button{ border:none; background:none; border-radius:0; padding:1em; color:inherit; display:inline-block; text-align:center; font-size:14px; } .ubermenu.ubermenu-mobile-modal .ubermenu-mobile-footer .ubermenu-mobile-close-button{ width: 100%; display: flex; align-items: center; justify-content: center; } .ubermenu.ubermenu-mobile-modal .ubermenu-mobile-footer .ubermenu-mobile-close-button .ubermenu-icon-essential, .ubermenu.ubermenu-mobile-modal .ubermenu-mobile-footer .ubermenu-mobile-close-button .fas.fa-times{ margin-right:.2em; } /* Header/Footer Mobile content */ .ubermenu .ubermenu-mobile-header, .ubermenu .ubermenu-mobile-footer{ display:block; text-align:center; color:inherit; } /* Accordion submenus mobile (single column tablet) */ .ubermenu.ubermenu-responsive-single-column.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item > .ubermenu-submenu-drop, .ubermenu.ubermenu-responsive-single-column.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab > .ubermenu-tab-content-panel{ box-sizing:border-box; border-left:none; border-right:none; box-shadow:none; } .ubermenu.ubermenu-responsive-single-column.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item.ubermenu-active > .ubermenu-submenu-drop, .ubermenu.ubermenu-responsive-single-column.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab.ubermenu-active > .ubermenu-tab-content-panel{ position:static; } /* Accordion indented - remove borders and extra spacing from headers */ .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu.ubermenu-submenu-drop, .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-target{ border:none; } .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-submenu-type-stack{ padding-top:0; } /* Accordion dropdown indentation padding */ .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:calc( var(--ubermenu-accordion-indent) * 2 ); } .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:calc( var(--ubermenu-accordion-indent) * 3 ); } .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:calc( var(--ubermenu-accordion-indent) * 4 ); } /* Reverse Accordion dropdown indentation padding */ .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:0; padding-right:calc( var(--ubermenu-accordion-indent) * 2 ); } .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:0; padding-right:calc( var(--ubermenu-accordion-indent) * 3 ); } .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:0; padding-right:calc( var(--ubermenu-accordion-indent) * 4 ); } .ubermenu-responsive-toggle{ display:block; } } @media screen and (max-width: 480px){ .ubermenu.ubermenu-responsive .ubermenu-item-level-0{ width:100%; } .ubermenu.ubermenu-responsive .ubermenu-column, .ubermenu.ubermenu-responsive .ubermenu-column-auto{ min-width:100%; } .ubermenu .ubermenu-autocolumn:not(:first-child), .ubermenu .ubermenu-autocolumn:not(:first-child) .ubermenu-submenu-type-stack{ padding-top:0; } .ubermenu .ubermenu-autocolumn:not(:last-child), .ubermenu .ubermenu-autocolumn:not(:last-child) .ubermenu-submenu-type-stack{ padding-bottom:0; } .ubermenu .ubermenu-autocolumn > .ubermenu-submenu-type-stack > .ubermenu-item-normal:first-child{ margin-top:0; } /* Accordion submenus mobile */ .ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item > .ubermenu-submenu-drop, .ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab > .ubermenu-tab-content-panel{ box-shadow:none; box-sizing:border-box; border-left:none; border-right:none; } .ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item.ubermenu-active > .ubermenu-submenu-drop, .ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab.ubermenu-active > .ubermenu-tab-content-panel{ position:static; } } /** UberMenu Custom Menu Styles (Customizer) **/ /* main */ .ubermenu-main .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target { font-weight:600; } .ubermenu-main .ubermenu-item-level-0 > .ubermenu-target { color:#0f131b; padding-left:12px; padding-right:12px; } .ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target, .ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target, .ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target { color:#fc4c02; } .ubermenu-main.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target:not(.ubermenu-noindicator) { padding-right:27px; } .ubermenu-main.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target.ubermenu-noindicator { padding-right:12px; } .ubermenu-main .ubermenu-item-normal > .ubermenu-target,.ubermenu-main .ubermenu-submenu .ubermenu-target,.ubermenu-main .ubermenu-submenu .ubermenu-nonlink,.ubermenu-main .ubermenu-submenu .ubermenu-widget,.ubermenu-main .ubermenu-submenu .ubermenu-custom-content-padded,.ubermenu-main .ubermenu-submenu .ubermenu-retractor,.ubermenu-main .ubermenu-submenu .ubermenu-colgroup .ubermenu-column,.ubermenu-main .ubermenu-submenu.ubermenu-submenu-type-stack > .ubermenu-item-normal > .ubermenu-target,.ubermenu-main .ubermenu-submenu.ubermenu-submenu-padded { padding:5px; } .ubermenu-main .ubermenu-grid-row { padding-right:5px; } .ubermenu-main .ubermenu-grid-row .ubermenu-target { padding-right:0; } .ubermenu-main.ubermenu-sub-indicators .ubermenu-submenu :not(.ubermenu-tabs-layout-right) .ubermenu-has-submenu-drop > .ubermenu-target { padding-right:25px; } .ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target, .ubermenu-main .ubermenu-tab > .ubermenu-target { font-size:16px; } .ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target { color:#00558c; } .ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target:hover { color:#00558c; } .ubermenu-main .ubermenu-nav .ubermenu-submenu .ubermenu-item-header > .ubermenu-target { font-weight:600; } .ubermenu-main .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-target { border:none; } .ubermenu-main .ubermenu-submenu-type-stack { padding-top:0; } /* premasthead */ .ubermenu-premasthead .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target { font-weight:500; } .ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-target { color:#0f131b; padding-left:8px; padding-right:8px; } .ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target, .ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target, .ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target { color:#fc4c02; } .ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-target, .ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-custom-content.ubermenu-custom-content-padded { padding-top:6px; padding-bottom:6px; } .ubermenu-premasthead.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target:not(.ubermenu-noindicator) { padding-right:23px; } .ubermenu-premasthead.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target.ubermenu-noindicator { padding-right:8px; } .ubermenu.ubermenu-premasthead .ubermenu-item-normal > .ubermenu-target:hover, .ubermenu.ubermenu-premasthead .ubermenu-item-normal.ubermenu-active > .ubermenu-target { color:#0099bc; } .ubermenu-premasthead, .ubermenu-premasthead .ubermenu-target, .ubermenu-premasthead .ubermenu-nav .ubermenu-item-level-0 .ubermenu-target { font:13px Lato, sans-serif; } /* mobheadrmainmenu */ .ubermenu-mobheadrmainmenu .ubermenu-item-level-0 > .ubermenu-target { font-size:20px; text-transform:capitalize; color:#0f131b; border-top:1px solid #979797; } .ubermenu-mobheadrmainmenu .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target { font-weight:400; } .ubermenu.ubermenu-mobheadrmainmenu .ubermenu-item-level-0:hover > .ubermenu-target, .ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-active > .ubermenu-target { color:#0099bc; } .ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target, .ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target, .ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target { color:#0099bc; background:#0099bc; } .ubermenu.ubermenu-mobheadrmainmenu .ubermenu-item-level-0 > .ubermenu-target { background:#ffffff; } .ubermenu-mobheadrmainmenu .ubermenu-item-normal > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-nonlink,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-widget,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-custom-content-padded,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-retractor,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-colgroup .ubermenu-column,.ubermenu-mobheadrmainmenu .ubermenu-submenu.ubermenu-submenu-type-stack > .ubermenu-item-normal > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu.ubermenu-submenu-padded { padding:5px 5px; } .ubermenu-mobheadrmainmenu .ubermenu-grid-row { padding-right:5px 5px; } .ubermenu-mobheadrmainmenu .ubermenu-grid-row .ubermenu-target { padding-right:0; } .ubermenu-mobheadrmainmenu.ubermenu-sub-indicators .ubermenu-submenu :not(.ubermenu-tabs-layout-right) .ubermenu-has-submenu-drop > .ubermenu-target { padding-right:25px; } .ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header > .ubermenu-target, .ubermenu-mobheadrmainmenu .ubermenu-tab > .ubermenu-target { font-size:18px; } .ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header > .ubermenu-target { color:#00558c; } .ubermenu-mobheadrmainmenu .ubermenu-nav .ubermenu-submenu .ubermenu-item-header > .ubermenu-target { font-weight:900; } .ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-target { border:none; } .ubermenu-mobheadrmainmenu .ubermenu-submenu-type-stack { padding-top:0; } /** UberMenu Custom Menu Item Styles (Menu Item Settings) **/ /* 13736 */ .ubermenu .ubermenu-item.ubermenu-item-13736 > .ubermenu-target,.ubermenu .ubermenu-item.ubermenu-item-13736 > .ubermenu-content-block,.ubermenu .ubermenu-item.ubermenu-item-13736.ubermenu-custom-content-padded { padding:12px 5px 37px 5px; } /* 13737 */ .ubermenu .ubermenu-item.ubermenu-item-13737 > .ubermenu-target,.ubermenu .ubermenu-item.ubermenu-item-13737 > .ubermenu-content-block,.ubermenu .ubermenu-item.ubermenu-item-13737.ubermenu-custom-content-padded { padding:12px 5px 52px 5px; 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class=" ubermenu-item ubermenu-item-type-custom ubermenu-item-object-ubermenu-custom ubermenu-item-has-children ubermenu-level-2 ubermenu-item-13697 ubermenu-item-level-2 ubermenu-column ubermenu-column-1-5 ubermenu-has-submenu-stack ubermenu-item-type-column ubermenu-column-id-13697"><ul class="ubermenu-submenu ubermenu-submenu-id-13697 ubermenu-submenu-type-stack" ><li id="menu-item-13698" class="ubermenu-item ubermenu-item-type-custom ubermenu-item-object-custom ubermenu-item-has-children ubermenu-level-3 ubermenu-item-13698 ubermenu-item-header ubermenu-item-level-3 ubermenu-column ubermenu-column-auto ubermenu-has-submenu-stack" ><a class="ubermenu-target ubermenu-item-layout-default ubermenu-item-layout-text_only" href="https://rarediseases.org/advancing-research/resources-for-patients/"><span class="ubermenu-target-title ubermenu-target-text">For clinicians</span></a><ul class="ubermenu-submenu ubermenu-submenu-id-13698 ubermenu-submenu-type-auto ubermenu-submenu-type-stack" 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href="https://rarediseases.org/advancing-research/iamrare-patient-registry-platform/"><span class="ubermenu-target-title ubermenu-target-text">IAMRARE<sup>®</sup> Program Powered by NORD</span></a></li><li id="menu-item-13706" class="ubermenu-item ubermenu-item-type-custom ubermenu-item-object-custom ubermenu-level-4 ubermenu-item-13706 ubermenu-item-auto ubermenu-item-normal ubermenu-item-level-4 ubermenu-column ubermenu-column-auto" ><a class="ubermenu-target ubermenu-item-layout-default ubermenu-item-layout-text_only" href="https://rarediseases.org/rdca-dap/"><span class="ubermenu-target-title ubermenu-target-text">Rare Disease Cures Accelerator (RDCA-DAP)</span></a></li><li id="menu-item-13705" class="ubermenu-item ubermenu-item-type-custom ubermenu-item-object-custom ubermenu-level-4 ubermenu-item-13705 ubermenu-item-auto ubermenu-item-normal ubermenu-item-level-4 ubermenu-column ubermenu-column-auto" ><a class="ubermenu-target ubermenu-item-layout-default 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href="https://rarediseases.org/living-with-a-rare-disease/getting-help-and-support/">Manage your care</a> <ul class="sub-menu"> <li id="menu-item-13819" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13819"><a href="https://rarediseases.org/living-with-a-rare-disease/getting-help-and-support/">Getting Help & Support</a></li> <li id="menu-item-13820" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13820"><a href="https://rarediseases.org/living-with-a-rare-disease/living-with-a-rare-disease/">Managing Your Disease</a></li> </ul> </li> <li id="menu-item-13792" class="mob-header menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children level-1 headline menu-item-13792"><a href="https://rarediseases.org/living-with-a-rare-disease/how-nord-can-help/">We can help</a> <ul class="sub-menu"> <li id="menu-item-13821" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13821"><a href="https://rarediseases.org/living-with-a-rare-disease/how-nord-can-help/">How NORD Can Help</a></li> <li id="menu-item-13822" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13822"><a href="https://rarediseases.org/living-with-a-rare-disease/speak-to-someone-at-nord/">Speak To Someone at NORD</a></li> <li id="menu-item-13823" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13823"><a href="https://rarediseases.org/living-with-a-rare-disease/rare-disease-centers-of-excellence/">Rare Disease Center Of Excellence</a></li> <li id="menu-item-13824" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13824"><a href="https://rarediseases.org/patient-assistance-programs/">Patient Assistance Programs</a></li> <li id="menu-item-13825" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13825"><a 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href="https://rarediseases.org/living-with-a-rare-disease/speak-to-someone-at-nord/">Call Center & Information Services</a></li> <li id="menu-item-13834" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13834"><a href="https://rarediseases.org/get-involved/patient-organizations/">Bringing Together Your Community</a></li> </ul> </li> <li id="menu-item-13835" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children level-1 headline menu-item-13835"><a href="https://rarediseases.org/working-together/rarelaunch/">Mentoring organizations</a> <ul class="sub-menu"> <li id="menu-item-107181" class="menu-item menu-item-type-post_type menu-item-object-page level-2 default menu-item-107181"><a href="https://rarediseases.org/nord-member-list/">NORD Member List</a></li> <li id="menu-item-13836" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13836"><a href="https://rarediseases.org/working-together/rarelaunch/">Start a Rare Disease Organization</a></li> <li id="menu-item-13837" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13837"><a href="https://rarediseases.org/living-with-a-rare-disease/about-nord-membership/">Membership Program</a></li> <li id="menu-item-13838" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13838"><a href="https://rarediseases.org/living-with-a-rare-disease/becoming-research-ready/">Becoming Research Ready</a></li> <li id="menu-item-13839" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13839"><a href="https://rarediseases.org/patient-registries-natural-history-studies/">Launching Registries & Natural History Studies</a></li> <li id="menu-item-13840" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13840"><a href="https://rarediseases.org/living-with-a-rare-disease/patient-focused-drug-development/">Patient-Focused Drug Development</a></li> </ul> </li> <li id="menu-item-13841" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children level-1 headline menu-item-13841"><a href="https://rarediseases.org/living-with-a-rare-disease/rare-disease-centers-of-excellence/">Improving clinical care</a> <ul class="sub-menu"> <li id="menu-item-13842" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13842"><a href="https://rarediseases.org/living-with-a-rare-disease/rare-disease-centers-of-excellence/">Rare Disease Centers of Excellence</a></li> <li id="menu-item-13844" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13844"><a href="https://rarediseases.org/living-with-a-rare-disease/continuing-medical-education-cme/">Continuing Medical Education (CME)</a></li> </ul> </li> <li id="menu-item-13845" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children level-1 headline menu-item-13845"><a href="https://rarediseases.org/working-together/corporate-council-members/">Partnering with the community</a> <ul class="sub-menu"> <li id="menu-item-13846" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13846"><a href="https://rarediseases.org/corporate-council/">Corporate Council</a></li> <li id="menu-item-13847" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13847"><a href="https://rarediseases.org/living-with-a-rare-disease/national-partnerships/">National Partnerships</a></li> <li id="menu-item-13848" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13848"><a href="https://rarediseases.org/working-together/global-partnerships/">Global Parnerships</a></li> <li id="menu-item-91830" class="menu-item menu-item-type-post_type 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headline menu-item-13853"><a href="https://rarediseases.org/advancing-research/iamrare-patient-registry-platform/">For patients</a> <ul class="sub-menu"> <li id="menu-item-13854" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13854"><a href="https://rarediseases.org/rare-diseases/">List of Rare Diseases</a></li> <li id="menu-item-13855" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13855"><a href="https://rarediseases.org/gene-therapy/">Gene Therapy for Rare Disease</a></li> <li id="menu-item-13858" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13858"><a href="https://rarediseases.org/living-with-a-rare-disease/explore-clinical-trials/">Find Clinical Trials & Research Studies</a></li> </ul> </li> <li id="menu-item-13794" class="mob-header menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children level-1 headline menu-item-13794"><a 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href="https://rarediseases.org/advancing-research/resources-for-patients/">For clinicians</a> <ul class="sub-menu"> <li id="menu-item-13865" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13865"><a href="https://rarediseases.org/advancing-research/resources-for-patients/">Resources for Patients</a></li> <li id="menu-item-13866" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13866"><a href="https://rarediseases.org/living-with-a-rare-disease/rare-disease-centers-of-excellence/">Find a Rare Disease Care Center</a></li> <li id="menu-item-13867" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13867"><a href="https://rarediseases.org/living-with-a-rare-disease/continuing-medical-education-cme/">Continuing Medical Education (CME)</a></li> </ul> </li> <li id="menu-item-13868" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children level-1 headline menu-item-13868"><a href="https://rarediseases.org/advancing-research/iamrare-patient-registry-platform/">Connect</a> <ul class="sub-menu"> <li id="menu-item-13869" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13869"><a href="https://rarediseases.org/advancing-research/iamrare-patient-registry-platform/">IAMRARE<sup>®</sup> Program Powered by NORD</a></li> <li id="menu-item-13871" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13871"><a href="https://rarediseases.org/rdca-dap/">Rare Disease Cures Accelerator (RDCA-DAP)</a></li> <li id="menu-item-13870" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13870"><a href="https://rarediseases.org/living-with-a-rare-disease/add-your-expertise/">Add Your Expertise</a></li> </ul> </li> <li id="menu-item-13872" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children level-1 headline 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id="menu-item-13877" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13877"><a href="https://rarediseases.org/driving-policy/policy-issues/">Today’s Policy Issues</a></li> <li id="menu-item-13878" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13878"><a href="https://rarediseases.org/driving-policy/policy-statements/">NORD’s Policy Statements</a></li> <li id="menu-item-91831" class="menu-item menu-item-type-post_type menu-item-object-page level-2 default menu-item-91831"><a href="https://rarediseases.org/rare-disease-advisory-councils/">Rare Disease Advisory Councils</a></li> <li id="menu-item-13880" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13880"><a href="https://rarediseases.org/driving-policy/nord-state-report-card/">NORD State Report Card</a></li> </ul> </li> <li id="menu-item-13881" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children level-1 headline menu-item-13881"><a href="https://rarediseases.org/driving-policy/join-the-rareaction-network/">Taking action</a> <ul class="sub-menu"> <li id="menu-item-13882" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13882"><a href="https://rarediseases.org/driving-policy/join-the-rareaction-network/">Join the Rare Action Network®</a></li> <li id="menu-item-13883" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13883"><a href="https://rarediseases.org/driving-policy/policy-taskforce/">Policy & Advocacy Taskforce</a></li> <li id="menu-item-13884" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13884"><a href="https://rarediseases.org/driving-policy/contact-your-representatives/">Contact your Representative</a></li> <li id="menu-item-98725" class="menu-item menu-item-type-post_type menu-item-object-page level-2 default 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menu-item-type-custom menu-item-object-custom menu-item-has-children level-1 headline menu-item-13796"><a href="https://rarediseases.org/get-involved/diy-fundraiser/">Raising awareness and funds with NORD</a> <ul class="sub-menu"> <li id="menu-item-13890" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13890"><a href="https://rarediseases.org/get-involved/diy-fundraiser/">Do-It-Yourself NORD Fundraiser</a></li> <li id="menu-item-13891" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13891"><a href="https://rarediseases.org/living-with-a-rare-disease/student-awareness-fundraising-and-or-students-for-rare/">Students for Rare</a></li> <li id="menu-item-13892" class="menu-item menu-item-type-custom menu-item-object-custom level-2 default menu-item-13892"><a href="https://rarediseases.org/living-with-a-rare-disease/sports-fitness-fundraisers/">Sports & Fitness Fundraisers</a></li> <li id="menu-item-91832" 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Select date. </label> <input type="text" class="tribe-events-c-top-bar__datepicker-input tribe-common-a11y-visual-hide" data-js="tribe-events-top-bar-date" id="tribe-events-top-bar-date" name="tribe-events-views[tribe-bar-date]" value="12/3/2024" tabindex="-1" autocomplete="off" readonly="readonly" /> <div class="tribe-events-c-top-bar__datepicker-container" data-js="tribe-events-top-bar-datepicker-container"></div> <template class="tribe-events-c-top-bar__datepicker-template-prev-icon"> <svg class="tribe-common-c-svgicon tribe-common-c-svgicon--caret-left tribe-events-c-top-bar__datepicker-nav-icon-svg" xmlns="http://www.w3.org/2000/svg" viewBox="0 0 10 16" aria-hidden="true"><path d="M9.7 14.4l-1.5 1.5L.3 8 8.2.1l1.5 1.5L3.3 8l6.4 6.4z"/></svg> </template> <template class="tribe-events-c-top-bar__datepicker-template-next-icon"> <svg class="tribe-common-c-svgicon tribe-common-c-svgicon--caret-right tribe-events-c-top-bar__datepicker-nav-icon-svg" xmlns="http://www.w3.org/2000/svg" viewBox="0 0 10 16" aria-hidden="true"><path d="M.3 1.6L1.8.1 9.7 8l-7.9 7.9-1.5-1.5L6.7 8 .3 1.6z"/></svg> </template> </div> <div class="tribe-events-c-top-bar__actions tribe-common-a11y-hidden"> </div> </div> </header> <div class="tribe-events-calendar-list"> <h2 class="tribe-events-calendar-list__month-separator"> <time class="tribe-events-calendar-list__month-separator-text tribe-common-h7 tribe-common-h6--min-medium tribe-common-h--alt" datetime="2024-12" > December 2024 </time> </h2> <div class="tribe-common-g-row tribe-events-calendar-list__event-row" > <div class="tribe-events-calendar-list__event-date-tag tribe-common-g-col"> <time class="tribe-events-calendar-list__event-date-tag-datetime" datetime="2024-12-05" aria-hidden="true"> <span class="tribe-events-calendar-list__event-date-tag-weekday"> Thu </span> <span class="tribe-events-calendar-list__event-date-tag-daynum tribe-common-h5 tribe-common-h4--min-medium"> 5 </span> </time> </div> <div class="tribe-events-calendar-list__event-wrapper tribe-common-g-col"> <article class="tribe-events-calendar-list__event tribe-common-g-row tribe-common-g-row--gutters post-10000576 tribe_events type-tribe_events status-publish hentry" > <div class="tribe-events-calendar-list__event-details tribe-common-g-col"> <header class="tribe-events-calendar-list__event-header"> <div class="tribe-events-calendar-list__event-datetime-wrapper tribe-common-b2"> <time class="tribe-events-calendar-list__event-datetime" datetime="2024-12-05"> <span class="tribe-event-date-start">December 5</span> </time> </div> <h3 class="tribe-events-calendar-list__event-title tribe-common-h6 tribe-common-h4--min-medium"> <a href="https://rarediseases.org/event/lgs-foundation-a-special-showing-of-its-all-your-fault-tyler-price/" title="LGS Foundation: A Special Showing of It’s All Your Fault, Tyler Price!" rel="bookmark" class="tribe-events-calendar-list__event-title-link tribe-common-anchor-thin" > LGS Foundation: A Special Showing of It’s All Your Fault, Tyler Price! </a> </h3> <style type="text/css"> .tribe-events-calendar-list__event-details .tribe-event-tags > span { display:inline-flex; align-items:center; justify-content:center; background-color:#0092BC; height:32px; padding:2px 15px; color:#fff; margin-right:7px; border-radius: 8px; } .tribe-events-calendar-list__event-details .tribe-event-tags > span.tag-2705 { background-color:#931F61; } </style> </header> <div class="tribe-events-calendar-list__event-description tribe-common-b2 tribe-common-a11y-hidden"> <p>Join the LGS Community on December 5th before AES for a special showing of It’s All Your Fault, Tyler Price! - a new musical from Emmy winner Ben Decter (Lucifer) and Tony nominee Kristin Hanggi (Rock of Ages) raising awareness of #LennoxGastautSyndrome and #Epilepsy! The work will get a world premiere at the Hudson Theatre … </p> <p class="link-more"><a href="https://rarediseases.org/event/lgs-foundation-a-special-showing-of-its-all-your-fault-tyler-price/" class="more-link">Continue reading<span class="screen-reader-text"> "LGS Foundation: A Special Showing of It’s All Your Fault, Tyler Price!"</span></a></p> </div> </div> </article> </div> </div> <div class="tribe-common-g-row tribe-events-calendar-list__event-row" > <div class="tribe-events-calendar-list__event-date-tag tribe-common-g-col"> <time class="tribe-events-calendar-list__event-date-tag-datetime" datetime="2024-12-05" aria-hidden="true"> <span class="tribe-events-calendar-list__event-date-tag-weekday"> Thu </span> <span class="tribe-events-calendar-list__event-date-tag-daynum tribe-common-h5 tribe-common-h4--min-medium"> 5 </span> </time> </div> <div class="tribe-events-calendar-list__event-wrapper tribe-common-g-col"> <article class="tribe-events-calendar-list__event tribe-common-g-row tribe-common-g-row--gutters post-10000575 tribe_events type-tribe_events status-publish hentry" > <div class="tribe-events-calendar-list__event-details tribe-common-g-col"> <header class="tribe-events-calendar-list__event-header"> <div class="tribe-events-calendar-list__event-datetime-wrapper tribe-common-b2"> <time class="tribe-events-calendar-list__event-datetime" datetime="2024-12-05"> <span class="tribe-event-date-start">December 5</span> - <span class="tribe-event-date-end">December 6</span> </time> </div> <h3 class="tribe-events-calendar-list__event-title tribe-common-h6 tribe-common-h4--min-medium"> <a href="https://rarediseases.org/event/slc6a1-connect-2024-international-scientific-symposium-and-family-conference/" title="SLC6A1 Connect 2024 International Scientific Symposium and Family Conference" rel="bookmark" class="tribe-events-calendar-list__event-title-link tribe-common-anchor-thin" > SLC6A1 Connect 2024 International Scientific Symposium and Family Conference </a> </h3> <style type="text/css"> .tribe-events-calendar-list__event-details .tribe-event-tags > span { display:inline-flex; align-items:center; justify-content:center; background-color:#0092BC; height:32px; padding:2px 15px; color:#fff; margin-right:7px; border-radius: 8px; } .tribe-events-calendar-list__event-details .tribe-event-tags > span.tag-2705 { background-color:#931F61; } </style> <address class="tribe-events-calendar-list__event-venue tribe-common-b2"> <span class="tribe-events-calendar-list__event-venue-title tribe-common-b2--bold"> Omni Los Angeles Hotel at California Plaza </span> <span class="tribe-events-calendar-list__event-venue-address"> 251 South Olive Street, Los Angeles, CA, United States </span> </address> </header> <div class="tribe-events-calendar-list__event-description tribe-common-b2 tribe-common-a11y-hidden"> <p>December 5 – 6, 2024 Omni Los Angeles Hotel at California Plaza 251 South Olive Street Los Angeles, California, USA "We hope you will join us for SLC6A1 Connect’s 2024 International Scientific Symposium and Family Conference to be held on December 5-6, 2024 at the Omni Hotel in Los Angeles, CA, prior to the American … </p> <p class="link-more"><a href="https://rarediseases.org/event/slc6a1-connect-2024-international-scientific-symposium-and-family-conference/" class="more-link">Continue reading<span class="screen-reader-text"> "SLC6A1 Connect 2024 International Scientific Symposium and Family Conference"</span></a></p> </div> </div> </article> </div> </div> <div class="tribe-common-g-row tribe-events-calendar-list__event-row" > <div class="tribe-events-calendar-list__event-date-tag tribe-common-g-col"> <time class="tribe-events-calendar-list__event-date-tag-datetime" datetime="2024-12-16" aria-hidden="true"> <span class="tribe-events-calendar-list__event-date-tag-weekday"> Mon </span> <span class="tribe-events-calendar-list__event-date-tag-daynum tribe-common-h5 tribe-common-h4--min-medium"> 16 </span> </time> </div> <div class="tribe-events-calendar-list__event-wrapper tribe-common-g-col"> <article class="tribe-events-calendar-list__event tribe-common-g-row tribe-common-g-row--gutters post-10000568 tribe_events type-tribe_events status-publish hentry tag-rdac tribe_events_cat-rare-disease-advisory-council cat_rare-disease-advisory-council tribe-events-virtual-event" > <div class="tribe-events-calendar-list__event-details tribe-common-g-col"> <header class="tribe-events-calendar-list__event-header"> <div class="tribe-events-calendar-list__event-datetime-wrapper tribe-common-b2"> <time class="tribe-events-calendar-list__event-datetime" datetime="2024-12-16"> <span class="tribe-event-date-start">December 16 @ 6:00 pm</span> - <span class="tribe-event-time">6:45 pm</span> <span class='timezone'> EST </span> </time> </div> <h3 class="tribe-events-calendar-list__event-title tribe-common-h6 tribe-common-h4--min-medium"> <a href="https://rarediseases.org/event/vermont-rare-disease-advisory-council-coalition-meeting-4/" title="Vermont Rare Disease Advisory Council Coalition Meeting" rel="bookmark" class="tribe-events-calendar-list__event-title-link tribe-common-anchor-thin" > Vermont Rare Disease Advisory Council Coalition Meeting </a> </h3> <div class="tribe-event-tags mt-3 mb-3"><strong>Tagged in: </strong> <span class="tag-2573">RDAC</span> </div> <style type="text/css"> .tribe-events-calendar-list__event-details .tribe-event-tags > span { display:inline-flex; align-items:center; justify-content:center; background-color:#0092BC; height:32px; padding:2px 15px; color:#fff; margin-right:7px; border-radius: 8px; } .tribe-events-calendar-list__event-details .tribe-event-tags > span.tag-2705 { background-color:#931F61; } </style> <address class="tribe-events-calendar-list__event-venue tribe-common-b2"> <span class="tribe-events-calendar-list__event-venue-title tribe-common-b2--bold"> Zoom </span> <span class="tribe-events-calendar-list__event-venue-address"> </span> </address> <div class="tribe-common-b2 tribe-common-b2--bold tribe-events-virtual-virtual-event"> <em class="tribe-events-virtual-virtual-event__icon" title="Virtual" > <svg class="tribe-common-c-svgicon tribe-common-c-svgicon--virtual tribe-events-virtual-virtual-event__icon-svg" xmlns="http://www.w3.org/2000/svg" viewBox="0 0 26 16"> <title>Virtual Event</title> <defs/> <g fill-rule="evenodd" stroke-linecap="round" stroke-linejoin="round" stroke-width="2" transform="translate(1 1)"> <path d="M18 10.7333333c2.16-2.09999997 2.16-5.44444441 0-7.46666663M21.12 13.7666667c3.84-3.7333334 3.84-9.80000003 0-13.53333337M6 10.7333333C3.84 8.63333333 3.84 5.28888889 6 3.26666667M2.88 13.7666667C-.96 10.0333333-.96 3.96666667 2.88.23333333" class="tribe-common-c-svgicon__svg-stroke"/><ellipse cx="12" cy="7" rx="2.4" ry="2.33333333" class="tribe-common-c-svgicon__svg-stroke"/> </g> </svg> </em> <span class="tribe-events-virtual-virtual-event__text"> Virtual Event </span> </div> </header> <div class="tribe-events-calendar-list__event-description tribe-common-b2 tribe-common-a11y-hidden"> <p>EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Vermont. Meet other rare disease community members in your state. Discuss the unique needs and challenges that the rare … </p> <p class="link-more"><a href="https://rarediseases.org/event/vermont-rare-disease-advisory-council-coalition-meeting-4/" class="more-link">Continue reading<span class="screen-reader-text"> "Vermont Rare Disease Advisory Council Coalition Meeting"</span></a></p> </div> </div> </article> </div> </div> <div class="tribe-common-g-row tribe-events-calendar-list__event-row" > <div class="tribe-events-calendar-list__event-date-tag tribe-common-g-col"> <time class="tribe-events-calendar-list__event-date-tag-datetime" datetime="2024-12-31" aria-hidden="true"> <span class="tribe-events-calendar-list__event-date-tag-weekday"> Tue </span> <span class="tribe-events-calendar-list__event-date-tag-daynum tribe-common-h5 tribe-common-h4--min-medium"> 31 </span> </time> </div> <div class="tribe-events-calendar-list__event-wrapper tribe-common-g-col"> <article class="tribe-events-calendar-list__event tribe-common-g-row tribe-common-g-row--gutters post-10000583 tribe_events type-tribe_events status-publish hentry" > <div class="tribe-events-calendar-list__event-details tribe-common-g-col"> <header class="tribe-events-calendar-list__event-header"> <div class="tribe-events-calendar-list__event-datetime-wrapper tribe-common-b2"> <time class="tribe-events-calendar-list__event-datetime" datetime="2024-12-31"> <span class="tribe-event-date-start">December 31</span> </time> </div> <h3 class="tribe-events-calendar-list__event-title tribe-common-h6 tribe-common-h4--min-medium"> <a href="https://rarediseases.org/event/the-ryr-1-foundations-2025-family-conference-is-now-open-register-by-december-31-2024/" title="The RYR-1 Foundation’s 2025 Family Conference is now open! Register by December 31, 2024" rel="bookmark" class="tribe-events-calendar-list__event-title-link tribe-common-anchor-thin" > The RYR-1 Foundation’s 2025 Family Conference is now open! Register by December 31, 2024 </a> </h3> <style type="text/css"> .tribe-events-calendar-list__event-details .tribe-event-tags > span { display:inline-flex; align-items:center; justify-content:center; background-color:#0092BC; height:32px; padding:2px 15px; color:#fff; margin-right:7px; border-radius: 8px; } .tribe-events-calendar-list__event-details .tribe-event-tags > span.tag-2705 { background-color:#931F61; } </style> </header> <div class="tribe-events-calendar-list__event-description tribe-common-b2 tribe-common-a11y-hidden"> <p>The RYR-1 Foundation is celebrating a decade of supporting individuals and families impacted by RYR-1-Related Diseases (RYR-1-RD). The organization holds International Family Conferences for the RYR-1-RD Community and the fourth Family Conference will be held July 24th - July 27, 2025, at the Hyatt Regency Pittsburgh International Airport, Pittsburgh, PA, U.S. More than 550 individuals … </p> <p class="link-more"><a href="https://rarediseases.org/event/the-ryr-1-foundations-2025-family-conference-is-now-open-register-by-december-31-2024/" class="more-link">Continue reading<span class="screen-reader-text"> "The RYR-1 Foundation’s 2025 Family Conference is now open! Register by December 31, 2024"</span></a></p> </div> </div> </article> </div> </div> <h2 class="tribe-events-calendar-list__month-separator"> <time class="tribe-events-calendar-list__month-separator-text tribe-common-h7 tribe-common-h6--min-medium tribe-common-h--alt" datetime="2025-01" > January 2025 </time> </h2> <div class="tribe-common-g-row tribe-events-calendar-list__event-row" > <div class="tribe-events-calendar-list__event-date-tag tribe-common-g-col"> <time class="tribe-events-calendar-list__event-date-tag-datetime" datetime="2025-01-13" aria-hidden="true"> <span class="tribe-events-calendar-list__event-date-tag-weekday"> Mon </span> <span class="tribe-events-calendar-list__event-date-tag-daynum tribe-common-h5 tribe-common-h4--min-medium"> 13 </span> </time> </div> <div class="tribe-events-calendar-list__event-wrapper tribe-common-g-col"> <article class="tribe-events-calendar-list__event tribe-common-g-row tribe-common-g-row--gutters post-10000569 tribe_events type-tribe_events status-publish hentry tag-rdac tribe_events_cat-rare-disease-advisory-council cat_rare-disease-advisory-council tribe-events-virtual-event" > <div class="tribe-events-calendar-list__event-details tribe-common-g-col"> <header class="tribe-events-calendar-list__event-header"> <div class="tribe-events-calendar-list__event-datetime-wrapper tribe-common-b2"> <time class="tribe-events-calendar-list__event-datetime" datetime="2025-01-13"> <span class="tribe-event-date-start">January 13, 2025 @ 6:00 pm</span> - <span class="tribe-event-time">6:45 pm</span> <span class='timezone'> EST </span> </time> </div> <h3 class="tribe-events-calendar-list__event-title tribe-common-h6 tribe-common-h4--min-medium"> <a href="https://rarediseases.org/event/vermont-rare-disease-advisory-council-coalition-meeting-5/" title="Vermont Rare Disease Advisory Council Coalition Meeting" rel="bookmark" class="tribe-events-calendar-list__event-title-link tribe-common-anchor-thin" > Vermont Rare Disease Advisory Council Coalition Meeting </a> </h3> <div class="tribe-event-tags mt-3 mb-3"><strong>Tagged in: </strong> <span class="tag-2573">RDAC</span> </div> <style type="text/css"> .tribe-events-calendar-list__event-details .tribe-event-tags > span { display:inline-flex; align-items:center; justify-content:center; background-color:#0092BC; height:32px; padding:2px 15px; color:#fff; margin-right:7px; border-radius: 8px; } .tribe-events-calendar-list__event-details .tribe-event-tags > span.tag-2705 { background-color:#931F61; } </style> <address class="tribe-events-calendar-list__event-venue tribe-common-b2"> <span class="tribe-events-calendar-list__event-venue-title tribe-common-b2--bold"> Zoom </span> <span class="tribe-events-calendar-list__event-venue-address"> </span> </address> <div class="tribe-common-b2 tribe-common-b2--bold tribe-events-virtual-virtual-event"> <em class="tribe-events-virtual-virtual-event__icon" title="Virtual" > <svg class="tribe-common-c-svgicon tribe-common-c-svgicon--virtual tribe-events-virtual-virtual-event__icon-svg" xmlns="http://www.w3.org/2000/svg" viewBox="0 0 26 16"> <title>Virtual Event</title> <defs/> <g fill-rule="evenodd" stroke-linecap="round" stroke-linejoin="round" stroke-width="2" transform="translate(1 1)"> <path d="M18 10.7333333c2.16-2.09999997 2.16-5.44444441 0-7.46666663M21.12 13.7666667c3.84-3.7333334 3.84-9.80000003 0-13.53333337M6 10.7333333C3.84 8.63333333 3.84 5.28888889 6 3.26666667M2.88 13.7666667C-.96 10.0333333-.96 3.96666667 2.88.23333333" class="tribe-common-c-svgicon__svg-stroke"/><ellipse cx="12" cy="7" rx="2.4" ry="2.33333333" class="tribe-common-c-svgicon__svg-stroke"/> </g> </svg> </em> <span class="tribe-events-virtual-virtual-event__text"> Virtual Event </span> </div> </header> <div class="tribe-events-calendar-list__event-description tribe-common-b2 tribe-common-a11y-hidden"> <p>EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Vermont. Meet other rare disease community members in your state. Discuss the unique needs and challenges that the rare … </p> <p class="link-more"><a href="https://rarediseases.org/event/vermont-rare-disease-advisory-council-coalition-meeting-5/" class="more-link">Continue reading<span class="screen-reader-text"> "Vermont Rare Disease Advisory Council Coalition Meeting"</span></a></p> </div> </div> </article> </div> </div> <h2 class="tribe-events-calendar-list__month-separator"> <time class="tribe-events-calendar-list__month-separator-text tribe-common-h7 tribe-common-h6--min-medium tribe-common-h--alt" datetime="2025-04" > April 2025 </time> </h2> <div class="tribe-common-g-row tribe-events-calendar-list__event-row" > <div class="tribe-events-calendar-list__event-date-tag tribe-common-g-col"> <time class="tribe-events-calendar-list__event-date-tag-datetime" datetime="2025-04-21" aria-hidden="true"> <span class="tribe-events-calendar-list__event-date-tag-weekday"> Mon </span> <span class="tribe-events-calendar-list__event-date-tag-daynum tribe-common-h5 tribe-common-h4--min-medium"> 21 </span> </time> </div> <div class="tribe-events-calendar-list__event-wrapper tribe-common-g-col"> <article class="tribe-events-calendar-list__event tribe-common-g-row tribe-common-g-row--gutters post-10000512 tribe_events type-tribe_events status-publish hentry tribe_events_cat-running-for-rare cat_running-for-rare" > <div class="tribe-events-calendar-list__event-details tribe-common-g-col"> <header class="tribe-events-calendar-list__event-header"> <div class="tribe-events-calendar-list__event-datetime-wrapper tribe-common-b2"> <time class="tribe-events-calendar-list__event-datetime" datetime="2025-04-21"> <span class="tribe-event-date-start">April 21, 2025</span> </time> </div> <h3 class="tribe-events-calendar-list__event-title tribe-common-h6 tribe-common-h4--min-medium"> <a href="https://rarediseases.org/event/boston-marathon-2025/" title="Boston Marathon (2025)" rel="bookmark" class="tribe-events-calendar-list__event-title-link 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Min. image size 260px X 260px</div><div class='ginput_container ginput_container_fileupload'><div id='gform_multifile_upload_20_12' data-settings='{"runtimes":"html5,flash,html4","browse_button":"gform_browse_button_20_12","container":"gform_multifile_upload_20_12","drop_element":"gform_drag_drop_area_20_12","filelist":"gform_preview_20_12","unique_names":true,"file_data_name":"file","url":"https:\/\/rarediseases.org\/?gf_page=13d885829505677","flash_swf_url":"https:\/\/rarediseases.org\/wp-includes\/js\/plupload\/plupload.flash.swf","silverlight_xap_url":"https:\/\/rarediseases.org\/wp-includes\/js\/plupload\/plupload.silverlight.xap","filters":{"mime_types":[{"title":"Allowed Files","extensions":"*"}],"max_file_size":"5242880b"},"multipart":true,"urlstream_upload":false,"multipart_params":{"form_id":20,"field_id":12},"gf_vars":{"max_files":0,"message_id":"gform_multifile_messages_20_12","disallowed_extensions":["php","asp","aspx","cmd","csh","bat","html","htm","hta","jar","exe","com","js","lnk","htaccess","phtml","ps1","ps2","php3","php4","php5","php6","py","rb","tmp"]}}' class='gform_fileupload_multifile'> <div id='gform_drag_drop_area_20_12' class='gform_drop_area gform-theme-field-control'> <span class='gform_drop_instructions'>Drop files here or </span> <button type='button' id='gform_browse_button_20_12' class='button gform_button_select_files gform-theme-button gform-theme-button--control' aria-describedby="gfield_upload_rules_20_12 gfield_description_20_12" >Select files</button> </div> </div><span class='gfield_description gform_fileupload_rules' id='gfield_upload_rules_20_12'>Max. file size: 5 MB.</span><ul class='validation_message--hidden-on-empty gform-ul-reset' id='gform_multifile_messages_20_12'></ul> <!-- Leave <ul> empty to support CSS :empty selector. --></div><div id='gform_preview_20_12' class='ginput_preview_list'></div></div><div id="field_20_11" class="gfield gfield--type-post_custom_field gfield--input-type-textarea gfield--width-full gfield_contains_required field_sublabel_below gfield--has-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_20_11" ><label class='gfield_label gform-field-label' for='input_20_11'>Your Message<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></label><div class='gfield_description' id='gfield_description_20_11'>Max. 15 words</div><div class='ginput_container ginput_container_textarea'><textarea name='input_11' id='input_20_11' class='textarea small' aria-describedby="gfield_description_20_11" aria-required="true" aria-invalid="false" rows='10' cols='50'></textarea></div></div><fieldset id="field_20_13" class="gfield gfield--type-consent gfield--type-choice gfield--input-type-consent gfield--width-full gfield_contains_required field_sublabel_below gfield--has-description field_description_below field_validation_below gfield_visibility_visible" data-js-reload="field_20_13" ><legend class='gfield_label gform-field-label gfield_label_before_complex' >Consent<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></legend><div class='ginput_container ginput_container_consent'><input name='input_13.1' id='input_20_13_1' type='checkbox' value='1' aria-describedby="gfield_consent_description_20_13" aria-required="true" aria-invalid="false" /> <label class="gform-field-label gform-field-label--type-inline gfield_consent_label" for='input_20_13_1' >I agree to the terms and conditions</label><input type='hidden' name='input_13.2' value='I agree to the terms and conditions' class='gform_hidden' /><input type='hidden' name='input_13.3' value='5' class='gform_hidden' /></div><div class='gfield_description gfield_consent_description' id='gfield_consent_description_20_13'>In these Standard Terms and Conditions, “Your Content” refers to any audio, video, text, images, or other material you provide or display. By providing “Your Content”, you grant NORD a license to read, use, reproduce, adapt, modify, publish, translate, and distribute the content in our marketing materials and to all media. “Your Content” must be your own and must not invade any third‐party’s rights. When you submit content or information to NORD, you are allowing the public to access and use that information, and to associate it with you. NORD reserves the right to remove “Your Content” at any time, without notice. We take your privacy very seriously. Subject to the Terms and Conditions above, NORD will never sell or disclose your personal information.</div></fieldset><div id="field_20_14" class="gfield gfield--type-honeypot gform_validation_container field_sublabel_below gfield--has-description field_description_below field_validation_below gfield_visibility_visible" data-js-reload="field_20_14" ><label class='gfield_label gform-field-label' for='input_20_14'>Name</label><div class='ginput_container'><input name='input_14' id='input_20_14' type='text' value='' autocomplete='new-password'/></div><div class='gfield_description' id='gfield_description_20_14'>This field is for validation purposes and should be left unchanged.</div></div></div></div> <div class='gform-footer gform_footer top_label'> <input type='submit' id='gform_submit_button_20' class='gform_button button' onclick='gform.submission.handleButtonClick(this)' value='Submit' /> <input type='hidden' name='gform_ajax' value='form_id=20&title=&description=&tabindex=0&theme=gravity-theme' /> <input type='hidden' class='gform_hidden' name='gform_submission_method' data-js='gform_submission_method_20' value='iframe' /> <input type='hidden' class='gform_hidden' name='is_submit_20' value='1' /> <input type='hidden' class='gform_hidden' name='gform_submit' value='20' /> <input type='hidden' class='gform_hidden' name='gform_unique_id' value='' /> <input type='hidden' class='gform_hidden' name='state_20' value='WyJ7XCIxMy4xXCI6XCI0OTMzOGI5MWYxY2Y3ZDJkYTZkODc2M2M4MmYzNTYyZVwiLFwiMTMuMlwiOlwiZmJhNTJmMWMwMDVhMGQ5NmNiZWQyOGI3ZWNlNDZhMWNcIixcIjEzLjNcIjpcIjU2ZmE4YmZjMzQxOGZlZjcwMWRmZGYzNzdhMDFjZTljXCJ9IiwiOTIyNTRkYjZmYTIzZmVmN2I3YWY4NWUwZjNjNjMxODUiXQ==' /> <input type='hidden' autocomplete='off' class='gform_hidden' name='gform_target_page_number_20' id='gform_target_page_number_20' value='0' /> <input type='hidden' autocomplete='off' class='gform_hidden' name='gform_source_page_number_20' id='gform_source_page_number_20' value='1' /> <input type='hidden' name='gform_field_values' value='' /> <input type='hidden' name='gform_uploaded_files' id='gform_uploaded_files_20' value='' /> </div> </form> </div> <iframe style='display:none;width:0px;height:0px;' src='about:blank' name='gform_ajax_frame_20' id='gform_ajax_frame_20' title='This iframe contains the logic required to handle Ajax powered Gravity Forms.'></iframe> <script type="text/javascript"> /* <![CDATA[ */ gform.initializeOnLoaded( function() {gformInitSpinner( 20, 'https://rarediseases.org/wp-content/plugins/gravityforms/images/spinner.svg', true );jQuery('#gform_ajax_frame_20').on('load',function(){var contents = jQuery(this).contents().find('*').html();var is_postback = contents.indexOf('GF_AJAX_POSTBACK') >= 0;if(!is_postback){return;}var form_content = jQuery(this).contents().find('#gform_wrapper_20');var is_confirmation = jQuery(this).contents().find('#gform_confirmation_wrapper_20').length > 0;var is_redirect = contents.indexOf('gformRedirect(){') >= 0;var is_form = form_content.length > 0 && ! is_redirect && ! is_confirmation;var mt = parseInt(jQuery('html').css('margin-top'), 10) + parseInt(jQuery('body').css('margin-top'), 10) + 100;if(is_form){jQuery('#gform_wrapper_20').html(form_content.html());if(form_content.hasClass('gform_validation_error')){jQuery('#gform_wrapper_20').addClass('gform_validation_error');} else {jQuery('#gform_wrapper_20').removeClass('gform_validation_error');}setTimeout( function() { /* delay the scroll by 50 milliseconds to fix a bug in chrome */ jQuery(document).scrollTop(jQuery('#gform_wrapper_20').offset().top - mt); }, 50 );if(window['gformInitDatepicker']) {gformInitDatepicker();}if(window['gformInitPriceFields']) {gformInitPriceFields();}var current_page = jQuery('#gform_source_page_number_20').val();gformInitSpinner( 20, 'https://rarediseases.org/wp-content/plugins/gravityforms/images/spinner.svg', true 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{ grecaptcha.execute("6Lc_CEopAAAAACjj_tyibG1kHMOp5bOEly7_pvZb", {action: "submit"}).then(function(token) { var recaptchaResponse = document.getElementById("g-recaptcha-response"); if (recaptchaResponse) { recaptchaResponse.value = token; } }); }); </script></div> <div class='gform-body gform_body'><div id='gform_fields_35' class='gform_fields top_label form_sublabel_above description_above validation_below'><fieldset id="field_35_1" class="gfield gfield--type-name gfield--input-type-name gfield_contains_required field_sublabel_above gfield--no-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_35_1" ><legend class='gfield_label gform-field-label gfield_label_before_complex' >Name<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></legend><div class='ginput_complex ginput_container ginput_container--name no_prefix has_first_name no_middle_name has_last_name no_suffix 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<div id='gform_drag_drop_area_35_4' class='gform_drop_area gform-theme-field-control'> <span class='gform_drop_instructions'>Drop files here or </span> <button type='button' id='gform_browse_button_35_4' class='button gform_button_select_files gform-theme-button gform-theme-button--control' aria-describedby="gfield_upload_rules_35_4" >Select files</button> </div> </div><span class='gfield_description gform_fileupload_rules' id='gfield_upload_rules_35_4'>Accepted file types: jpeg, png, jpg, Max. file size: 3 MB.</span><ul class='validation_message--hidden-on-empty gform-ul-reset' id='gform_multifile_messages_35_4'></ul> <!-- Leave <ul> empty to support CSS :empty selector. --></div><div id='gform_preview_35_4' class='ginput_preview_list'></div></div><div id="field_35_3" class="gfield gfield--type-textarea gfield--input-type-textarea gfield_contains_required field_sublabel_above gfield--has-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_35_3" ><label class='gfield_label gform-field-label' for='input_35_3'>Comments<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></label><div class='gfield_description' id='gfield_description_35_3'>Please let us know what's on your mind. 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Ask away.</div><div class='ginput_container ginput_container_textarea'><textarea name='input_3' id='input_35_3' class='textarea medium' aria-describedby="gfield_description_35_3" maxlength='600' aria-required="true" aria-invalid="false" rows='10' cols='50'></textarea></div></div><div id="field_35_5" class="gfield gfield--type-honeypot gform_validation_container field_sublabel_above gfield--has-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_35_5" ><label class='gfield_label gform-field-label' for='input_35_5'>Email</label><div class='gfield_description' id='gfield_description_35_5'>This field is for validation purposes and should be left unchanged.</div><div class='ginput_container'><input name='input_5' id='input_35_5' type='text' value='' autocomplete='new-password'/></div></div></div></div> <div class='gform-footer gform_footer top_label'> <input type='submit' id='gform_submit_button_35' class='gform_button button' onclick='gform.submission.handleButtonClick(this)' value='Submit' /> <input type='hidden' name='gform_ajax' value='form_id=35&title=&description=&tabindex=0&theme=gravity-theme' /> <input type='hidden' class='gform_hidden' name='gform_submission_method' data-js='gform_submission_method_35' value='iframe' /> <input type='hidden' class='gform_hidden' name='is_submit_35' value='1' /> <input type='hidden' class='gform_hidden' name='gform_submit' value='35' /> <input type='hidden' class='gform_hidden' name='gform_unique_id' value='' /> <input type='hidden' class='gform_hidden' name='state_35' value='WyJbXSIsImRhODZkOTEyM2FhMDJkZTQxODJmNzc4MDBlYmM3NWVkIl0=' /> <input type='hidden' autocomplete='off' class='gform_hidden' name='gform_target_page_number_35' id='gform_target_page_number_35' value='0' /> <input type='hidden' autocomplete='off' class='gform_hidden' name='gform_source_page_number_35' id='gform_source_page_number_35' value='1' /> <input type='hidden' name='gform_field_values' value='' /> <input type='hidden' name='gform_uploaded_files' id='gform_uploaded_files_35' value='' /> </div> </form> </div> <iframe style='display:none;width:0px;height:0px;' src='about:blank' name='gform_ajax_frame_35' id='gform_ajax_frame_35' title='This iframe contains the logic required to handle Ajax powered Gravity Forms.'></iframe> <script type="text/javascript"> /* <![CDATA[ */ gform.initializeOnLoaded( function() {gformInitSpinner( 35, 'https://rarediseases.org/wp-content/plugins/gravityforms/images/spinner.svg', true );jQuery('#gform_ajax_frame_35').on('load',function(){var contents = jQuery(this).contents().find('*').html();var is_postback = contents.indexOf('GF_AJAX_POSTBACK') >= 0;if(!is_postback){return;}var form_content = jQuery(this).contents().find('#gform_wrapper_35');var is_confirmation = jQuery(this).contents().find('#gform_confirmation_wrapper_35').length > 0;var is_redirect = contents.indexOf('gformRedirect(){') >= 0;var is_form = form_content.length > 0 && ! is_redirect && ! is_confirmation;var mt = parseInt(jQuery('html').css('margin-top'), 10) + parseInt(jQuery('body').css('margin-top'), 10) + 100;if(is_form){jQuery('#gform_wrapper_35').html(form_content.html());if(form_content.hasClass('gform_validation_error')){jQuery('#gform_wrapper_35').addClass('gform_validation_error');} else {jQuery('#gform_wrapper_35').removeClass('gform_validation_error');}setTimeout( function() { /* delay the scroll by 50 milliseconds to fix a bug in chrome */ jQuery(document).scrollTop(jQuery('#gform_wrapper_35').offset().top - mt); }, 50 );if(window['gformInitDatepicker']) {gformInitDatepicker();}if(window['gformInitPriceFields']) {gformInitPriceFields();}var current_page = jQuery('#gform_source_page_number_35').val();gformInitSpinner( 35, 'https://rarediseases.org/wp-content/plugins/gravityforms/images/spinner.svg', true );jQuery(document).trigger('gform_page_loaded', [35, current_page]);window['gf_submitting_35'] = false;}else if(!is_redirect){var confirmation_content = jQuery(this).contents().find('.GF_AJAX_POSTBACK').html();if(!confirmation_content){confirmation_content = contents;}jQuery('#gform_wrapper_35').replaceWith(confirmation_content);jQuery(document).scrollTop(jQuery('#gf_35').offset().top - mt);jQuery(document).trigger('gform_confirmation_loaded', [35]);window['gf_submitting_35'] = false;wp.a11y.speak(jQuery('#gform_confirmation_message_35').text());}else{jQuery('#gform_35').append(contents);if(window['gformRedirect']) {gformRedirect();}}jQuery(document).trigger("gform_pre_post_render", [{ formId: "35", currentPage: "current_page", abort: function() { this.preventDefault(); } }]); if (event && event.defaultPrevented) { return; } const gformWrapperDiv = document.getElementById( "gform_wrapper_35" ); if ( gformWrapperDiv ) { const visibilitySpan = document.createElement( "span" ); visibilitySpan.id = "gform_visibility_test_35"; gformWrapperDiv.insertAdjacentElement( "afterend", visibilitySpan ); } const visibilityTestDiv = document.getElementById( "gform_visibility_test_35" ); let postRenderFired = false; function triggerPostRender() { if ( postRenderFired ) { return; } postRenderFired = true; jQuery( document ).trigger( 'gform_post_render', [35, current_page] ); gform.utils.trigger( { event: 'gform/postRender', native: false, data: { formId: 35, currentPage: current_page } } ); gform.utils.trigger( { event: 'gform/post_render', native: false, data: { formId: 35, currentPage: current_page } } ); if ( visibilityTestDiv ) { visibilityTestDiv.parentNode.removeChild( visibilityTestDiv ); } } function debounce( func, wait, immediate ) { var timeout; return function() { var context = this, args = arguments; var later = function() { timeout = null; if ( !immediate ) func.apply( context, args ); }; var callNow = immediate && !timeout; clearTimeout( timeout ); timeout = setTimeout( later, wait ); if ( callNow ) func.apply( context, args ); }; } const debouncedTriggerPostRender = debounce( function() { triggerPostRender(); }, 200 ); if ( visibilityTestDiv && visibilityTestDiv.offsetParent === null ) { const observer = new MutationObserver( ( mutations ) => { mutations.forEach( ( mutation ) => { if ( mutation.type === 'attributes' && visibilityTestDiv.offsetParent !== null ) { debouncedTriggerPostRender(); observer.disconnect(); } }); }); observer.observe( document.body, { attributes: true, childList: false, subtree: true, attributeFilter: [ 'style', 'class' ], }); } else { triggerPostRender(); } } );} ); /* ]]> */ </script> </div> <button type="button" class="pum-close popmake-close" aria-label="Close"> × </button> </div> </div> <div id="pum-257856" role="dialog" aria-modal="false" class="pum pum-overlay pum-theme-11442 pum-theme-content-only popmake-overlay click_open" data-popmake="{"id":257856,"slug":"rdd-sponsorship-inquiries","theme_id":11442,"cookies":[],"triggers":[{"type":"click_open","settings":{"cookie_name":"","extra_selectors":""}}],"mobile_disabled":null,"tablet_disabled":null,"meta":{"display":{"stackable":false,"overlay_disabled":false,"scrollable_content":false,"disable_reposition":false,"size":"medium","responsive_min_width":"0%","responsive_min_width_unit":false,"responsive_max_width":"100%","responsive_max_width_unit":false,"custom_width":"640px","custom_width_unit":false,"custom_height":"380px","custom_height_unit":false,"custom_height_auto":false,"location":"center","position_from_trigger":false,"position_top":"100","position_left":"0","position_bottom":"0","position_right":"0","position_fixed":false,"animation_type":"fade","animation_speed":"350","animation_origin":"center top","overlay_zindex":false,"zindex":"1999999999"},"close":{"text":"","button_delay":"0","overlay_click":false,"esc_press":false,"f4_press":false},"click_open":[]}}"> <div id="popmake-257856" class="pum-container popmake theme-11442 pum-responsive pum-responsive-medium responsive size-medium"> <div class="pum-content popmake-content" tabindex="0"> <div class='gf_browser_ie gf_browser_ie7 gform_wrapper gravity-theme gform-theme--no-framework' data-form-theme='gravity-theme' data-form-index='0' id='gform_wrapper_33' ><div id='gf_33' class='gform_anchor' tabindex='-1'></div><form method='post' enctype='multipart/form-data' target='gform_ajax_frame_33' id='gform_33' action='/events/#gf_33' data-formid='33' novalidate><div class="nitro-exclude"><input type="hidden" id="g-recaptcha-response" name="g-recaptcha-response" /><script nitro-exclude> <input type='hidden' class='gforms-pum' value='{"closepopup":false,"closedelay":0,"openpopup":false,"openpopup_id":0}' /> grecaptcha.ready(function() { grecaptcha.execute("6Lc_CEopAAAAACjj_tyibG1kHMOp5bOEly7_pvZb", {action: "submit"}).then(function(token) { var recaptchaResponse = document.getElementById("g-recaptcha-response"); if (recaptchaResponse) { recaptchaResponse.value = token; } }); }); </script></div> <div class='gform-body gform_body'><div id='gform_fields_33' class='gform_fields top_label form_sublabel_above description_above validation_below'><fieldset id="field_33_1" class="gfield gfield--type-name gfield--input-type-name gfield_contains_required field_sublabel_above gfield--no-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_33_1" ><legend class='gfield_label gform-field-label gfield_label_before_complex' >Name<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></legend><div class='ginput_complex ginput_container ginput_container--name no_prefix has_first_name no_middle_name has_last_name no_suffix gf_name_has_2 ginput_container_name gform-grid-row' id='input_33_1'> <span id='input_33_1_3_container' class='name_first gform-grid-col gform-grid-col--size-auto' > <label for='input_33_1_3' class='gform-field-label gform-field-label--type-sub '>First</label> <input type='text' name='input_1.3' id='input_33_1_3' value='' aria-required='true' autocomplete="given-name" /> </span> <span id='input_33_1_6_container' class='name_last gform-grid-col gform-grid-col--size-auto' > <label for='input_33_1_6' class='gform-field-label gform-field-label--type-sub '>Last</label> <input type='text' name='input_1.6' id='input_33_1_6' value='' aria-required='true' autocomplete="family-name" /> </span> </div></fieldset><fieldset id="field_33_2" class="gfield gfield--type-email gfield--input-type-email gfield_contains_required field_sublabel_above gfield--no-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_33_2" ><legend class='gfield_label gform-field-label gfield_label_before_complex' >Email<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></legend><div class='ginput_complex ginput_container ginput_container_email gform-grid-row' id='input_33_2_container'> <span id='input_33_2_1_container' class='ginput_left gform-grid-col gform-grid-col--size-auto'> <label for='input_33_2' class='gform-field-label gform-field-label--type-sub '>Enter Email</label> <input class='' type='email' name='input_2' id='input_33_2' value='' aria-required="true" aria-invalid="false" autocomplete="email"/> </span> <span id='input_33_2_2_container' class='ginput_right gform-grid-col gform-grid-col--size-auto'> <label for='input_33_2_2' class='gform-field-label gform-field-label--type-sub '>Confirm Email</label> <input class='' type='email' name='input_2_2' id='input_33_2_2' value='' aria-required="true" aria-invalid="false" autocomplete="email"/> </span> <div class='gf_clear gf_clear_complex'></div> </div></fieldset><div id="field_33_3" class="gfield gfield--type-textarea gfield--input-type-textarea gfield_contains_required field_sublabel_above gfield--has-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_33_3" ><label class='gfield_label gform-field-label' for='input_33_3'>Comments<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></label><div class='gfield_description' id='gfield_description_33_3'>Please let us know what's on your mind. 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/* ]]> */ </script> <script type="text/javascript"> /* <![CDATA[ */ gform.initializeOnLoaded( function() {jQuery(document).trigger("gform_pre_post_render", [{ formId: "35", currentPage: "1", abort: function() { this.preventDefault(); } }]); if (event && event.defaultPrevented) { return; } const gformWrapperDiv = document.getElementById( "gform_wrapper_35" ); if ( gformWrapperDiv ) { const visibilitySpan = document.createElement( "span" ); visibilitySpan.id = "gform_visibility_test_35"; gformWrapperDiv.insertAdjacentElement( "afterend", visibilitySpan ); } const visibilityTestDiv = document.getElementById( "gform_visibility_test_35" ); let postRenderFired = false; function triggerPostRender() { if ( postRenderFired ) { return; } postRenderFired = true; jQuery( document ).trigger( 'gform_post_render', [35, 1] ); gform.utils.trigger( { event: 'gform/postRender', native: false, data: { formId: 35, currentPage: 1 } } ); gform.utils.trigger( { event: 'gform/post_render', native: false, data: { formId: 35, currentPage: 1 } } ); if ( visibilityTestDiv ) { visibilityTestDiv.parentNode.removeChild( visibilityTestDiv ); } } function debounce( func, wait, immediate ) { var timeout; return function() { var context = this, args = arguments; var later = function() { timeout = null; if ( !immediate ) func.apply( context, args ); }; var callNow = immediate && !timeout; clearTimeout( timeout ); timeout = setTimeout( later, wait ); if ( callNow ) func.apply( context, args ); }; } const debouncedTriggerPostRender = debounce( function() { triggerPostRender(); }, 200 ); if ( visibilityTestDiv && visibilityTestDiv.offsetParent === null ) { const observer = new MutationObserver( ( mutations ) => { mutations.forEach( ( mutation ) => { if ( mutation.type === 'attributes' && visibilityTestDiv.offsetParent !== null ) { debouncedTriggerPostRender(); observer.disconnect(); } }); }); observer.observe( document.body, { attributes: true, childList: false, subtree: true, attributeFilter: [ 'style', 'class' ], }); } else { triggerPostRender(); } } ); /* ]]> */ </script> <script type="text/javascript"> /* <![CDATA[ */ gform.initializeOnLoaded( function() { jQuery(document).on('gform_post_render', function(event, formId, currentPage){if(formId == 33) {if(!jQuery('#input_33_3+.ginput_counter').length){jQuery('#input_33_3').textareaCount( {'maxCharacterSize': 600, 'originalStyle': 'ginput_counter gfield_description', 'truncate': true, 'errorStyle' : '', 'displayFormat' : '#input of #max max characters' });jQuery('#input_33_3').next('.ginput_counter').attr('aria-live','polite');}} } );jQuery(document).on('gform_post_conditional_logic', function(event, formId, fields, isInit){} ) } ); /* ]]> */ </script> <script type="text/javascript"> /* <![CDATA[ */ gform.initializeOnLoaded( function() {jQuery(document).trigger("gform_pre_post_render", [{ formId: "33", currentPage: "1", abort: function() { this.preventDefault(); } }]); if (event && event.defaultPrevented) { return; } const gformWrapperDiv = document.getElementById( "gform_wrapper_33" ); if ( gformWrapperDiv ) { const visibilitySpan = document.createElement( "span" ); visibilitySpan.id = "gform_visibility_test_33"; gformWrapperDiv.insertAdjacentElement( "afterend", visibilitySpan ); } const visibilityTestDiv = document.getElementById( "gform_visibility_test_33" ); let postRenderFired = false; function triggerPostRender() { if ( postRenderFired ) { return; } postRenderFired = true; jQuery( document ).trigger( 'gform_post_render', [33, 1] ); gform.utils.trigger( { event: 'gform/postRender', native: false, data: { formId: 33, currentPage: 1 } } ); gform.utils.trigger( { event: 'gform/post_render', native: false, data: { formId: 33, currentPage: 1 } } ); if ( visibilityTestDiv ) { visibilityTestDiv.parentNode.removeChild( visibilityTestDiv ); } } function debounce( func, wait, immediate ) { var timeout; return function() { var context = this, args = arguments; var later = function() { timeout = null; if ( !immediate ) func.apply( context, args ); }; var callNow = immediate && !timeout; clearTimeout( timeout ); timeout = setTimeout( later, wait ); if ( callNow ) func.apply( context, args ); }; } const debouncedTriggerPostRender = debounce( function() { triggerPostRender(); }, 200 ); if ( visibilityTestDiv && visibilityTestDiv.offsetParent === null ) { const observer = new MutationObserver( ( mutations ) => { mutations.forEach( ( mutation ) => { if ( mutation.type === 'attributes' && visibilityTestDiv.offsetParent !== null ) { debouncedTriggerPostRender(); observer.disconnect(); } }); }); observer.observe( document.body, { attributes: true, childList: false, subtree: true, attributeFilter: [ 'style', 'class' ], }); } else { triggerPostRender(); } } ); /* ]]> */ </script> <!-- Magnific Popup core JS file --> <!-- recaptcha after consent click --> <script type="text/javascript"> document.addEventListener("cookieyes-consent-update", function() { console.log('cookie consent done'); if (CookieYes.isAllowed("analytics")) { // Adjust the category as needed var script = document.createElement("script"); script.src = "https://www.google.com/recaptcha/api.js?render=6Lc_CEopAAAAACjj_tyibG1kHMOp5bOEly7_pvZb"; document.head.appendChild(script); } }); </script> <!-- Donate Button --> <script> let donateButton = document.querySelector('.js-donate-button-redirect'); if ( donateButton ) { ;(function (win) { win.egProps = { campaigns: [ { campaignId: `446007`, donation: { modal: { urlParams: { amount: 50 }, elementSelector: '.js-donate-button-redirect' }, // Add ABANDON cart NUDGE Code Here to enable } } ] } win.document.body.appendChild(makeEGScript()) /** * Create the embed script */ function makeEGScript() { var egScript = win.document.createElement('script') egScript.setAttribute('type', 'text/javascript') egScript.setAttribute('async', 'true') egScript.setAttribute('src', 'https://sdk.classy.org/embedded-giving.js') return egScript } /** * Read URL Params from your website. This could potentially * be included in the embed snippet */ function readURLParams() { const searchParams = new URLSearchParams(location.search) const validUrlParams = ['c_src', 'c_src2'] return validUrlParams.reduce(function toURLParamsMap(urlParamsSoFar, validKey) { const value = searchParams.get(validKey) return value === null ? urlParamsSoFar : { ...urlParamsSoFar, [validKey]: value } }, {}) } })(window) } </script> <!-- END Donate Button --><script src="https://cdnjs.cloudflare.com/ajax/libs/magnific-popup.js/1.1.0/jquery.magnific-popup.min.js"></script> <script src="https://cdn.jsdelivr.net/npm/select2@4.1.0-rc.0/dist/js/select2.min.js"></script> </body> </html>