CINXE.COM
Alnylam® Patient Advocacy
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field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-austria">Deutsch</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--124 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Japan</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="https://www.alnylam.jp/">日本語</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--110 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Belgium</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-belgium-dutch"> Nederlands</a></div> <div class="field--item"><a href="/alnylam-belgium-french">Français</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--109 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Luxembourg</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-luxembourg-french">Français</a></div> <div class="field--item"><a href="/alnylam-luxembourg-german"> Deutsch</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--112 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Brazil </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="https://www.alnylam.com.br/">Português</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--111 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Netherlands </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-netherlands">Nederlands</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--114 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Canada </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="https://www.alnylam.ca/fr">Français </a></div> <div class="field--item"><a href="https://www.alnylam.ca/">English</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--113 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Portugal</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-portugal">Português</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--1513 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Czech Republic</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-czech-republic">Čeština</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--115 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Spain </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-espana">Español</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--116 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Denmark </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-denmark">Dansk</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--117 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Sweden</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-sverige">Svenska</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--118 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">France</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="https://www.alnylam.fr/">Français</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--119 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Switzerland</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-switzerland-french">Français</a></div> <div class="field--item"><a href="/alnylam-switzerland-german">Deutsch</a></div> <div class="field--item"><a href="/alnylam-switzerland-italian">Italiano</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--120 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Germany </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="https://www.alnylam.de/">Deutsch</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--121 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Taiwan</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-taiwan">繁體中文</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--1514 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Ireland </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-ireland">English</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--123 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">United Kingdom</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-uk">English</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--122 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Italy</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="https://www.alnylam.it/">Italiano</a></div> </div> </span> </div> </div> </div> </div> </section> </div> </div> </div> </div> </header> <div id="maindiv" class="container-fluid"> <main id="midcontent-area" class="column main-content"> <div id="content"> <div class="region region-content"> <div data-drupal-messages-fallback class="hidden"></div> <article data-history-node-id="276" role="article" about="/patients/patient-advocacy" typeof="schema:WebPage" class="page full clearfix"> <span property="schema:name" content="Patient Advocacy" class="hidden"></span> <div class="content"> <div class="field field--name-field-add-section field--type-entity-reference-revisions field--label-hidden field--items"> <div class="field--item"> <div class="paragraph paragraph--type--sim paragraph-id--542 paragraph--view-mode--default"> <div id="simple-banner-wrapper"> <div class="simple-banner" style=""> <div class="field field--name-field-upload-image field--type-image field--label-hidden field--item"> <img src="/sites/default/files/2021-11/Colin_Living_patient_advocacy_banner.jpg" width="1280" height="384" alt="Patient Advocacy" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div> </div> <div class="quote" style="width:1130px; margin:auto;"> <div class="field field--name-field-qutote field--type-text-long field--label-hidden field--item"><p>Colin, living with acute hepatic porphyria</p> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--banner-overlay-html-content paragraph-id--543 paragraph--view-mode--default"> <div class="banner-overlay-html-content-description--component " style="width:1130px; margin:auto;"> <div class="field field--name-field-body field--type-text-with-summary field--label-hidden field--item"><p class="mobile-eyebrow"><span class="our-secondary-dark">Patients</span></p> <h1 class="secondary-dark text-align-center"><strong>PATIENT ADVOCACY</strong></h1> <p class="text-align-center font-20" style="padding: 0px 165px; margin-bottom: 10px !important;">At Alnylam, we believe that patients are experts in their experience. They are at the center of everything we do and every decision we make.</p> <p>We are grateful to work alongside advocacy groups around the world, raising awareness and addressing the needs of the patient communities we serve. Through collaboration and partnership, we provide information, education, and support to empower individuals and their families affected by rare genetic diseases.</p> <p>It is our BELIEF that patients are experts in their experience and key decision makers in their care. It is our MISSION to empower patient communities and champion the patient perspective. It is our VISION that patients are at the center of our decision-making, which is evident in all that we do.</p> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--full-html-content-with-backgroun paragraph-id--547 paragraph--view-mode--default"> <div id="full-html-content-background" class="" style="background-color: #f8f8f8 ;"> <div class="row inner-block" style="width:px; margin:auto;"> <div class="field field--name-field-html-content-bg field--type-entity-reference-revisions field--label-hidden field--items"> <div class="field--item"> <div class="paragraph paragraph--type--body paragraph-id--546 paragraph--view-mode--default"> <div class="description--component" style="width:950px; margin:auto; "> <div class="field field--name-field-body field--type-text-with-summary field--label-hidden field--item"><div class="alnylam-advocacy-imperatives"> <h2 class="text-align-center">Alnylam Advocacy Imperatives</h2> <div class="row"> <div class="col-sm-4"> <p class="text-align-center"><img alt="Actively listen to patients and integrate their perspectives across our business" src="/sites/default/files/inline-images/1.svg" /></p> <p class="text-align-center">Actively listen to patients and integrate their perspectives across our business</p> </div> <div class="col-sm-4"> <p class="text-align-center"><img alt="Engage, empower and inspire advocacy groups to meet the needs of patient communities" src="/sites/default/files/inline-images/3-rd.svg" /></p> <p class="text-align-center">Engage, empower and inspire advocacy groups to meet the needs of patient communities</p> </div> <div class="col-sm-4"> <p class="text-align-center"><img alt="Support and partner on patient education and disease awareness programs" src="/sites/default/files/inline-images/3-rd-copy.svg" /></p> <p class="text-align-center">Support and partner on patient education and disease awareness programs</p> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--body paragraph-id--548 paragraph--view-mode--default"> <div class="description--component" style="width:1170px; margin:auto; "> <div class="field field--name-field-body field--type-text-with-summary field--label-hidden field--item"><div class="patient-advocacy-around"> <h2 class="text-align-center">Patient Advocacy Around the World</h2> <h3 class="text-align-center">Working in more than <strong>20</strong> countries with over <strong>60</strong> Patient Advocacy Groups (PAGs)</h3> <div class="advocacy-group"> <p><strong>ADVOCACY GROUP LEGEND:</strong></p> <div class="legends"> <div class="ref ahp"><span class="outer"><span class="inner"> </span> </span> Acute Hepatic Porphyria</div> <div class="ref hattr"><span class="outer"><span class="inner"> </span> </span> Hereditary ATTR Amyloidosis</div> <div class="ref ph1"><span class="outer"><span class="inner"> </span> </span> Primary Hyperoxaluria Type 1</div> </div> </div> <img alt="map-pins" data-entity-type="file" src="/sites/default/files/inline-images/map-with-pins.svg" /></div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--patient-advocacy-img-grid paragraph-id--561 paragraph--view-mode--default"> <div id="patient-advocacy-alnylam" class="" style="width:1130px; margin:auto;"> <h2 class="text-center"> <div class="field field--name-field-heading-1 field--type-string field--label-hidden field--item">Patient Advocacy at Alnylam</div> </h2> <div class="row"> <div class="img-desc-advocacy"> <div class="field field--name-field-image-description field--type-entity-reference-revisions field--label-hidden field--items"> <div class="field--item"> <div class="paragraph paragraph--type--image-description paragraph-id--555 paragraph--view-mode--default"> <div class="image-desc-fields"> <div class="col-sm-4"> <div class="img"> <div class="field field--name-field-upload-image field--type-image field--label-hidden field--item"> <img src="/sites/default/files/styles/advocacy_366_366/public/2024-05/img-card-flip-1-2x.png?itok=-jcC75O_" width="366" height="366" alt="Patient Advocacy at Alnylam" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div> </div> <div class="desc" style="display:none;"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><p class="text-align-center">Alnylam Supports Global Rare Disease</p> <p class="text-align-center">Day, 2024</p> </div> </div> <img class="advocacy-open-btn" src="/themes/custom/alnylam/images/buttons-circle-open.svg" alt="+"/> <img class="advocacy-close-btn" src="/themes/custom/alnylam/images/buttons-circle-close.svg" alt="+"/> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--image-description paragraph-id--556 paragraph--view-mode--default"> <div class="image-desc-fields"> <div class="col-sm-4"> <div class="img"> <div class="field field--name-field-upload-image field--type-image field--label-hidden field--item"> <img src="/sites/default/files/styles/advocacy_366_366/public/2024-05/img-card-flip-2-2x.png?itok=VbVQ_Qeb" width="366" height="366" alt="Patient Advocacy at Alnylam" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div> </div> <div class="desc" style="display:none;"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><p class="text-align-center">Alnylam Spain Supporting Global</p> <p class="text-align-center">Porphyria Week, 2023</p> </div> </div> <img class="advocacy-open-btn" src="/themes/custom/alnylam/images/buttons-circle-open.svg" alt="+"/> <img class="advocacy-close-btn" src="/themes/custom/alnylam/images/buttons-circle-close.svg" alt="+"/> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--image-description paragraph-id--557 paragraph--view-mode--default"> <div class="image-desc-fields"> <div class="col-sm-4"> <div class="img"> <div class="field field--name-field-upload-image field--type-image field--label-hidden field--item"> <img src="/sites/default/files/styles/advocacy_366_366/public/2024-05/img-card-flip-3-2x.png?itok=puiDv_ck" width="366" height="366" alt=" Patient Advocacy at Alnylam" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div> </div> <div class="desc" style="display:none;"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><p class="text-align-center">Patient Impact Day at Alnylam</p> <p class="text-align-center">Headquarters, 2023</p> </div> </div> <img class="advocacy-open-btn" src="/themes/custom/alnylam/images/buttons-circle-open.svg" alt="+"/> <img class="advocacy-close-btn" src="/themes/custom/alnylam/images/buttons-circle-close.svg" alt="+"/> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--add-block paragraph-id--609 paragraph--view-mode--default"> <div class="addblock--component" id="cr-in-action" style="width:1100px; margin:auto; "> <div class="field field--name-field-add-block field--type-block-field field--label-hidden field--item"><section class="views-element-container block block-views block-views-blockpatient-advocacy-and-engagement-team-block-1 clearfix" id="block-views-block-patient-advocacy-and-engagement-team-block-1"> <h2 class="block-title">Patient Advocacy and Engagement Team</h2> <div class="form-group"><div class="view view-patient-advocacy-and-engagement-team view-id-patient_advocacy_and_engagement_team view-display-id-block_1 js-view-dom-id-c27c8de08d3eb2e89d3f7a1c1d4b7d299b8f866c6ef7964a16790eb358b4f0be"> <div class="view-header"> <h2 style="text-align:center;">Meet the Patient Advocacy & Engagement Team</h2> </div> <div class="view-content"> <div class="views-view-grid horizontal cols-4 clearfix"> <div class="views-row clearfix row-1"> <div class="views-col col-1" style="width: 25%;"><div class="views-field views-field-field-image"><div class="field-content"> <img src="/sites/default/files/2023-03/headshots-new-guy-4.png" width="144" height="144" alt="" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div></div><div class="views-field views-field-title"><span class="field-content">Greg Robertson</span></div><div class="views-field views-field-body"><div class="field-content"><p>Senior Director,</p> <p>CEMEA Region</p> <p>Maidenhead, UK</p> </div></div></div> <div class="views-col col-2" style="width: 25%;"><div class="views-field views-field-field-image"><div class="field-content"> <img src="/sites/default/files/2021-11/team-fran_0.jpg" width="145" height="144" alt="" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div></div><div class="views-field views-field-title"><span class="field-content">FRAN KOCHMAN</span></div><div class="views-field views-field-body"><div class="field-content"><p>Senior Director,</p> <p>Amyloidosis</p> <p>Cambridge, MA</p> </div></div></div> <div class="views-col col-3" style="width: 25%;"><div class="views-field views-field-field-image"><div class="field-content"> <img src="/sites/default/files/2021-11/team-cara_0.jpg" width="145" height="144" alt="" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div></div><div class="views-field views-field-title"><span class="field-content">CARA HESSE</span></div><div class="views-field views-field-body"><div class="field-content"><p>Director,</p> <p>Primary Hyperoxaluria <span style="white-space: nowrap;">Type 1</span></p> <p>Cambridge, MA</p> </div></div></div> <div class="views-col col-4" style="width: 25%;"><div class="views-field views-field-field-image"><div class="field-content"> <img src="/sites/default/files/2021-11/team-aiko_0.jpg" width="145" height="144" alt="" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div></div><div class="views-field views-field-title"><span class="field-content">AIKO MIURA</span></div><div class="views-field views-field-body"><div class="field-content"><p>Associate Director,</p> <p>Asia Pacific Region</p> <p>Tokyo, Japan</p> </div></div></div> </div> </div> </div> </div> </div> </section> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--add-block paragraph-id--658 paragraph--view-mode--default"> <div class="addblock--component" id="cr-in-action" style="width:px; margin:auto; "> <div class="field field--name-field-add-block field--type-block-field field--label-hidden field--item"><section class="views-element-container block block-views block-views-blockpatient-advocacy-and-engagement-team-block-2 clearfix" id="block-views-block-patient-advocacy-and-engagement-team-block-2"> <div class="form-group"><div class="view view-patient-advocacy-and-engagement-team view-id-patient_advocacy_and_engagement_team view-display-id-block_2 js-view-dom-id-6313bda4a953d813990aa80c02cf1b09c3e60846d201c8d1b46454e8b32e781d"> <div class="view-header"> <h2 style="text-align:center;">Meet the Patient Advocacy & Engagement Team</h2> </div> <div class="view-content"> <div class="views-row"><div class="views-field views-field-field-image"><div class="field-content"> <img src="/sites/default/files/2023-03/headshots-new-guy-4.png" width="144" height="144" alt="" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div></div><div class="views-field views-field-title"><span class="field-content">Greg Robertson</span></div><div class="views-field views-field-body"><div class="field-content"><p>Senior Director,</p> <p>CEMEA Region</p> <p>Maidenhead, UK</p> </div></div></div> <div class="views-row"><div class="views-field views-field-field-image"><div class="field-content"> <img src="/sites/default/files/2021-11/team-fran_0.jpg" width="145" height="144" alt="" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div></div><div class="views-field views-field-title"><span class="field-content">FRAN KOCHMAN</span></div><div class="views-field views-field-body"><div class="field-content"><p>Senior Director,</p> <p>Amyloidosis</p> <p>Cambridge, MA</p> </div></div></div> <div class="views-row"><div class="views-field views-field-field-image"><div class="field-content"> <img src="/sites/default/files/2021-11/team-cara_0.jpg" width="145" height="144" alt="" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div></div><div class="views-field views-field-title"><span class="field-content">CARA HESSE</span></div><div class="views-field views-field-body"><div class="field-content"><p>Director,</p> <p>Primary Hyperoxaluria <span style="white-space: nowrap;">Type 1</span></p> <p>Cambridge, MA</p> </div></div></div> <div class="views-row"><div class="views-field views-field-field-image"><div class="field-content"> <img src="/sites/default/files/2021-11/team-aiko_0.jpg" width="145" height="144" alt="" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div></div><div class="views-field views-field-title"><span class="field-content">AIKO MIURA</span></div><div class="views-field views-field-body"><div class="field-content"><p>Associate Director,</p> <p>Asia Pacific Region</p> <p>Tokyo, Japan</p> </div></div></div> </div> </div> </div> </section> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--full-html-content-with-backgroun paragraph-id--571 paragraph--view-mode--default"> <div id="full-html-content-background" class="" style="background-color: #00254b ;"> <div class="row inner-block" style="width:px; margin:auto;"> <div class="field field--name-field-html-content-bg field--type-entity-reference-revisions field--label-hidden field--items"> <div class="field--item"> <div class="paragraph paragraph--type--body paragraph-id--570 paragraph--view-mode--default"> <div class="description--component" style="width:970px; margin:auto; "> <div class="field field--name-field-body field--type-text-with-summary field--label-hidden field--item"><div class="row"> <div class="col-sm-3"><img alt="ad" data-entity-type="file" src="/sites/default/files/inline-images/advocacy-for-impact-logo.svg" /></div> <div class="col-sm-6"> <p>A global grant program that empowers patient advocacy groups to develop innovative solutions to address the unmet needs for the communities they serve.</p> </div> <div class="col-sm-3"><a class="button-more" href="/about-alnylam/grants-and-giving/advocacy-for-impact-grants">Learn More ›</a></div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--accordion-2-column-content paragraph-id--620 paragraph--view-mode--default"> <div class="two-column-card-with-left-content custom-title-width" style="background-color:#f8f8f8;"> <div style="width:1130px; margin:auto; "> <div class="whole-accordian-column-content" style="overflow:hidden;"> <div class="heading"></div> <div class="whole-accordian-column-content description"> <div class="field field--name-field-video-desc field--type-text-long field--label-hidden field--item"><h2 class="text-align-center">Additional Alnylam Resources</h2> <p class="text-align-center margin-bottom-64px">We are committed to supporting patients and their families throughout their journey with a wide range of programs and services—from diagnosis to access to treatment and care.</p> </div> </div> <div class="accordian-content"> <div style="float:left; width:50%;"> <div class="field field--name-field-accordian-left- field--type-entity-reference-revisions field--label-hidden field--item"> <div class="paragraph paragraph--type--accordion-2-column-fields-left paragraph-id--614 paragraph--view-mode--default"> <div class="left-content" style="display:block;"> <div class="field field--name-field-accordian-left-content field--type-entity-reference-revisions field--label-hidden field--items"> <div class="field--item"> <div class="paragraph paragraph--type--accordion-2-column-fields paragraph-id--610 paragraph--view-mode--default"> <div class="heading"></div> <div class="description"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><div class="accordion accordion-flush" id="accordionFlushExample1"> <div class="accordion-item"> <h2 class="accordion-header" id="flush-headingOne"><button aria-controls="flush-collapseOne" aria-expanded="false" class="accordion-button collapsed" data-bs-target="#flush-collapseOne" data-bs-toggle="collapse" type="button">Patient Services</button></h2> <div aria-labelledby="flush-headingOne" class="accordion-collapse collapse" data-bs-parent="#accordionFlushExample1" id="flush-collapseOne"> <div class="accordion-body"> <p>We offer a range of patient support services to help those impacted by diseases we are focused on.</p> <a href="/patients/patient-services/">Learn More ›</a></div> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--accordion-2-column-fields paragraph-id--611 paragraph--view-mode--default"> <div class="heading"></div> <div class="description"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><div class="accordion accordion-flush" id="accordionFlushExample2"> <div class="accordion-item"> <h2 class="accordion-header" id="flush-heading2"><button aria-controls="flush-collapse2" aria-expanded="false" class="accordion-button collapsed" data-bs-target="#flush-collapse2" data-bs-toggle="collapse" type="button">Patient Access Philosophy</button></h2> <div aria-labelledby="flush-heading2" class="accordion-collapse collapse" data-bs-parent="#accordionFlushExample2" id="flush-collapse2"> <div class="accordion-body"> <p>We believe that people who may benefit from our innovative medicines should be able to access them and this guides the actions we take as a company.</p> <a href="/about-alnylam/patient-access-philosophy">Learn More ›</a></div> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--accordion-2-column-fields paragraph-id--612 paragraph--view-mode--default"> <div class="heading"></div> <div class="description"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><div class="accordion accordion-flush" id="accordionFlushExample3"> <div class="accordion-item"> <h2 class="accordion-header" id="flush-heading3"><button aria-controls="flush-collapse3" aria-expanded="false" class="accordion-button collapsed" data-bs-target="#flush-collapse3" data-bs-toggle="collapse" type="button">The Science of RNAi</button></h2> <div aria-labelledby="flush-heading3" class="accordion-collapse collapse" data-bs-parent="#accordionFlushExample3" id="flush-collapse3"> <div class="accordion-body"> <p>Our medicines, based on RNA interference (RNAi), represent an innovative new approach to treating disease.</p> <a href="/our-science/the-science-of-rnai">Learn More ›</a></div> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--accordion-2-column-fields paragraph-id--613 paragraph--view-mode--default"> <div class="heading"></div> <div class="description"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><div class="accordion accordion-flush" id="accordionFlushExample4"> <div class="accordion-item"> <h2 class="accordion-header" id="flush-heading4"><button aria-controls="flush-collapse4" aria-expanded="false" class="accordion-button collapsed" data-bs-target="#flush-collapse4" data-bs-toggle="collapse" type="button">Hereditary ATTR Amyloidosis</button></h2> <div aria-labelledby="flush-heading4" class="accordion-collapse collapse" data-bs-parent="#accordionFlushExample4" id="flush-collapse4"> <div class="accordion-body"> <p>Hereditary ATTR amyloidosis is a rare, inherited genetic disease caused featuring a wide variety of nervous system, cardiac, and digestive symptoms.</p> <a href="/patients/amyloidosis">Learn More ›</a></div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> <div style="width:50%; float:right;"> <div class="field field--name-field-accordian-right field--type-entity-reference-revisions field--label-hidden field--item"> <div class="paragraph paragraph--type--accordion-2-column-fields-right paragraph-id--619 paragraph--view-mode--default"> <div class="left-content"> <div class="field field--name-field-accordian-right-content field--type-entity-reference-revisions field--label-hidden field--items"> <div class="field--item"> <div class="paragraph paragraph--type--accordion-2-column-fields paragraph-id--615 paragraph--view-mode--default"> <div class="heading"></div> <div class="description"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><div class="accordion accordion-flush" id="accordionFlushExample5"> <div class="accordion-item"> <h2 class="accordion-header" id="flush-heading5"><button aria-controls="flush-collapse5" aria-expanded="false" class="accordion-button collapsed" data-bs-target="#flush-collapse5" data-bs-toggle="collapse" type="button">Early Access Program</button></h2> <div aria-labelledby="flush-heading5" class="accordion-collapse collapse" data-bs-parent="#accordionFlushExample5" id="flush-collapse5"> <div class="accordion-body"> <p>In certain circumstances, we work with physicians to make our investigational therapies available to patients who might not be otherwise eligible for or have access to them.</p> <a href="/medical-professional-resources/early-access-program">Learn More ›</a></div> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--accordion-2-column-fields paragraph-id--616 paragraph--view-mode--default"> <div class="heading"></div> <div class="description"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><div class="accordion accordion-flush" id="accordionFlushExample6"> <div class="accordion-item"> <h2 class="accordion-header" id="flush-heading6"><button aria-controls="flush-collapse6" aria-expanded="false" class="accordion-button collapsed" data-bs-target="#flush-collapse6" data-bs-toggle="collapse" type="button">Clinical Trials</button></h2> <div aria-labelledby="flush-heading6" class="accordion-collapse collapse" data-bs-parent="#accordionFlushExample6" id="flush-collapse6"> <div class="accordion-body"> <p>We are currently running several different clinical trials for diseases across multiple therapeutic areas.</p> <a href="/alnylam-rnai-pipeline/clinical-trials">Learn More ›</a></div> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--accordion-2-column-fields paragraph-id--617 paragraph--view-mode--default"> <div class="heading"></div> <div class="description"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><div class="accordion accordion-flush" id="accordionFlushExample7"> <div class="accordion-item"> <h2 class="accordion-header" id="flush-heading7"><button aria-controls="flush-collapse7" aria-expanded="false" class="accordion-button collapsed" data-bs-target="#flush-collapse7" data-bs-toggle="collapse" type="button">Acute Hepatic Porphyria</button></h2> <div aria-labelledby="flush-heading7" class="accordion-collapse collapse" data-bs-parent="#accordionFlushExample7" id="flush-collapse7"> <div class="accordion-body"> <p>Acute hepatic porphyria (AHP) refers to a family of ultra-rare, genetic diseases characterized by potentially life-threatening attacks and, for some patients, chronic manifestations.</p> <a href="/patients/porphyria">Learn More ›</a></div> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--accordion-2-column-fields paragraph-id--618 paragraph--view-mode--default"> <div class="heading"></div> <div class="description"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><div class="accordion accordion-flush" id="accordionFlushExample8"> <div class="accordion-item"> <h2 class="accordion-header" id="flush-heading8"><button aria-controls="flush-collapse8" aria-expanded="false" class="accordion-button collapsed" data-bs-target="#flush-collapse8" data-bs-toggle="collapse" type="button">Primary Hyperoxaluria Type 1</button></h2> <div aria-labelledby="flush-heading8" class="accordion-collapse collapse" data-bs-parent="#accordionFlushExample8" id="flush-collapse8"> <div class="accordion-body"> <p>Primary hyperoxaluria type 1 (PH1) is an ultra-rare genetic disease that leads to frequent kidney stones, progressive kidney disease, and multi-organ dysfunction.</p> <a href="/patients/primary-hyperoxaluria/">Learn More ›</a></div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> <div class="contact-link"> <div class="field field--name-field-qutote field--type-text-long field--label-hidden field--item"><p class="text-align-center">Get in touch with us at: <a href="mailto:patientadvocacy@alnylam.com" rel="noopener noreferrer" target="_blank">patientadvocacy@alnylam.com</a></p> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--body paragraph-id--621 paragraph--view-mode--default"> <div class="description--component" style="width:950px; margin:auto; "> <div class="field field--name-field-body field--type-text-with-summary field--label-hidden field--item"><h2 class="text-align-center">Understanding RNAi</h2> <p class="text-align-center">RNA interference (RNAi) is the core discovery that forms the therapies Alnylam is developing. It is recognized as a major scientific breakthrough—but how does it work, exactly?</p> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--video-popup paragraph-id--581 paragraph--view-mode--default"> <div class="video-popup-content" style="width:850px; margin:auto;"> <a data-colorbox-inline=".video-box-581" style="width: 571px; height:326px;"> <div class="three-column-image-box"> <div class="field field--name-field-upload-image field--type-image field--label-hidden field--item"> <img src="/sites/default/files/2021-11/For-patients_Understanding-RNAi%20%281%29.jpg" width="850" height="480" alt="" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div> <div class="three-column-video-play-button"></div> </div> <div class="video-box-581" style="display: none;"> <div class="field field--name-field-embed-video field--type-video-embed-field field--label-hidden field--item"><div class="video-embed-field-provider-youtube 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