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href="https://designer.mydatahelps.org/?_gl=1*1ro4yc*_ga*MTg5MjE5MDc2OC4xNjc1Mzc4OTg0*_ga_XF7P4K28LX*MTY3ODU0ODU1Ni4yNC4wLjE2Nzg1NDg1NTcuMC4wLjA." target="_blank" class="btn btn-md btn-primary btn-mobile display-md-none inline-flex" id="ga-tag-nav-mdhd-login">Login</a> </div> </div> </div> <button id="searchSite" class="btn-search display-none display-md-flex" type="button" aria-label="Search Site"> <span class="icon-search"></span> </button> <button id="mobileHamburger" class="hamburger hamburger--squeeze display-md-none" type="button" aria-label="Menu"><span class="hamburger-box"><span class="hamburger-inner"></span></span></button> </div> </header> <main id="site-content"> <header class="page-header header-padding header-basic background-midnight-moon "> <div class="container padding-24 padding-md-80 padding-lg-120"> <div class="header-content"> <h2 class="heading-38 heading-md-70 heading-lg-90 header-basic-heading"><h1>Patient Registries & Associations</h1></h2> <p class="body-20 body-md-24 body-lg-38 text-align-center-md margin-top-16 margin-top-24 margin-top-lg-32"><h3>Empower progress by integrating real-world data for patient care and research</h3> </p> </div> </div> </header> <section> <div class="container post-body"> <h2 class="h2 text-block gradient-block"> <p style="font-weight: 600">Enrich patient communities and advance medical research with a digital hub for real-world patient data. </p> </h2> </div> </section> <section class="section section-term-list "> <div class="container no-padding"> <ul class="term-list"> <li class="term-list-item flex-item"> <div> <h3>Transform patient data into action</h3> <div class="wysiwyg-block body-16 body-md-20 body-lg-24"> <p>Offer an informed, proactive approach to disease management:</p> <ul> <li>Tracking and analysis of symptoms and treatment outcomes</li> <li>Personalized reminders and alerts</li> <li>Centralized resource hub</li> </ul> </div> </div> <div class="cta-card-row"> <a href="https://careevolution.com/wp-content/uploads/2024/03/FactSheet-EngageRetain-10-12-23.pdf" target="_blank" class="cta-card btn" rel="noopener" id="ga-tag-industry-FS-EngRecruit"> <div class="cta-card-image-wrap"> <img decoding="async" src="/wp-content/uploads/2024/08/FactSheet-EngageRecruit-TH.png" alt="Engage and Recruit cover image"> </div> <div class="cta-card-copy"> <div class="cta-card-title">Innovate patient engagement</div> <span class="btn-readmore"></span> </div> </a> <a href="https://careevolution.com/mydatahelps/project-example-library-visualizations/" target="_self" class="cta-card btn" rel="noopener" id="ga-tag-industry-Visualizations"> <div class="cta-card-image-wrap"> <img decoding="async" src="/wp-content/uploads/2024/08/Explore-Patient-Facing-Tools-TH.png" alt="Phone and smart watch"> </div> <div class="cta-card-copy"> <div class="cta-card-title">Explore patient facing tools</div> <span class="btn-readmore"></span> </div> </a> </div> </li> <li class="term-list-item flex-item"> <div> <h3>Create opportunities to advance research</h3> <div class="wysiwyg-block body-16 body-md-20 body-lg-24"> <p>With digital tools designed to: </p> <ul> <li>Simplify onboarding and screening</li> <li>Reach a diverse patient demographic</li> <li>Enhance data collection and research impact</li> <li>Accelerate scientific discovery</li> </ul> </div> </div> <div class="cta-card-row"> <a href="https://careevolution.com/wp-content/uploads/2023/03/FactSheet-Surveys-3-23.pdf" target="_blank" class="cta-card btn" rel="noopener" id="ga-tag-industry-FS-Surveys"> <div class="cta-card-image-wrap"> <img decoding="async" src="/wp-content/uploads/2024/08/FactSheet-Surveys-TH.png" alt="Surveys cover image"> </div> <div class="cta-card-copy"> <div class="cta-card-title">Collect PROs & CROs</div> <span class="btn-readmore"></span> </div> </a> <a href="https://careevolution.com/wp-content/uploads/2023/03/FactSheet-Recruitment-eConsent-3-23.pdf" target="_blank" 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src="https://cevolutiondev.wpengine.com/wp-content/uploads/2023/11/solve-me-logo-color.svg" alt="Solve M.E. logo" width="250" style="float: right;"></a></p> <h2>Real World Example Solve Together</h2> <p><a href="https://solvecfs.org/" target="_blank" rel="noopener">The Solve ME/CFS Initiative (Solve)</a> is a non-profit organization that aims to advance research into diagnostics and treatments for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other complex post-infection diseases. CareEvolution has partnered with Solve to launch Solve Together, a mobile app which collects and aggregates real-world data, including participant-reported outcomes/surveys, wearable data, and electronic health record (EHR) data. Solve Together connects patients with clinical trials, empowers them to observe their own health patterns, tracks symptoms, and shares reports with their healthcare providers. </p> <div class="cta"><a href="https://careevolution.com/case-studies/solve-together-a-platform-for-me-cfs-and-long-covid-patients/" target="_self" class="btn btn-secondary btn-mobile margin-bottom-16 margin-bottom-md-24 margin-bottom-lg-32" rel="noopener" id="ga-tag-solve-casestudy">Read Case Study</a>     <a href="https://solvecfs.org/" target="_blank" class="btn btn-secondary btn-mobile margin-bottom-16 margin-bottom-md-24 margin-bottom-lg-32" rel="noopener" id="ga-tag-solve-explore">Explore Solve Together</a> </div> </div> </div> <section class="section section-stat-list padding-48 padding-md-80 padding-lg-100 background-alpine-overlook "> <div class="container"> <div class="row grid-row-gap-8"> <div class="col-xs-4 col-md-6"> <h2 class="heading-26 heading-md-38 heading-lg-56"> Proven track record </h2> </div> <div class="col-xs-4 col-md-6"> <ul class="stat-list"> <li> <span class="stat">>85%</span> <span class="caption body-16 body-md-22 body-lg-26">Of all US healthcare data available via CareEvolution EHR connections</span> </li> <li> <span class="stat">200K</span> <span class="caption body-16 body-md-22 body-lg-26">Wearables/devices connected</span> </li> <li> <span class="stat">2.4M</span> <span class="caption body-16 body-md-22 body-lg-26">Patients interacting with CareEvolution’s digital tools</span> </li> <li> <span class="stat">75B</span> <span class="caption body-16 body-md-22 body-lg-26">EHR and claims data elements processed</span> </li> </ul> </div> </div> </div> </section> <section class="section section-aside padding-48 padding-md-80 padding-lg-100 background-cold-front "> <div class="container"> <header> <h2 class="heading-34 heading-md-56 heading-lg-70 weight-strong margin-bottom-16 margin-bottom-md-80 margin-bottom-lg-120 text-align-center-md"> Building or enhancing a patient registry? </h2><p style="text-align: center;"> <a href="https://careevolution.com/contact-us/" target="_self" class="btn btn-primary btn-mobile" rel="noopener" id="ga-tag-contact-us-CTA">Contact us</a></p> </header> </div> </section> <style> .page-header.header-basic .header-content { max-width: 100%; } </style> </main> <footer class="background-black padding-48 padding-md-120 padding-lg-120"> <div class="container"> <div class="row footer-main"> <div class="col-xs-4 col-md-6 footer-form-col"> <h2 class="heading-24 weight-regular heading-md-38 weight-md-regular margin-bottom-8 margin-bottom--md-16">Subscribe to Updates</h2> <p class="body-14 body-md-20 body-lg-24">Join our mailing list and receive the latest news, innovative case studies, and product offerings.</p> <div class="margin-top-16 margin-top-md-32"> <script charset="utf-8" type="text/javascript" src="https://careevolution.com/wp-content/themes/careevolution-2023/assets/js/hubSpotForms.js"></script> <script charset="utf-8" type="text/javascript" src="//js.hsforms.net/forms/embed/v2.js"></script> <script> hbspt.forms.create({ region: "na1", portalId: "20906349", formId: "8f62617c-f0e8-422b-bc9e-c978f1413e18", onFormReady: function($form) { ceHsSetup($form); } }); </script> </div> </div> <div class="col-xs-4 col-md-6 footer-data-col"> <h2 class="footer-dial-header heading-24 heading-md-32 heading-lg-48 margin-bottom-16 margin-bottom-md-32 margin-bottom-lg-48"> <span>Secure</span> <img src="https://careevolution.com/wp-content/themes/careevolution-2023/assets/images/ce-footer-dial.svg" alt="Dial Illustration"> <span>Private</span> </h2> <div class="footer-copy"> <p>CareEvolution<small><sup>®</sup></small> platforms comply with the security and privacy controls defined by NIST 800-53 Rev. 5 at the FISMA Moderate and Privacy baselines. 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