Frequently Asked DIPG Questions

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href="#Survival">Survival</a></li> </ul> </nav> <p><strong>Feeling overwhelmed?</strong><br />Considering signing up at <a href="https://dipgwarrior.org" target="_blank">dipgwarrior.org</a> so we can point you in the right direction.</p> <a class="btn secondary" href="https://dipgwarrior.org" target="_blank" role="button" title="Learn More">Learn more</a> <hr /> <h2>Sign-Up For Updates</h2> <div id="wzKdZeGKlR"> <script type="text/javascript" src="https://default.salsalabs.org/api/widget/template/1381d8b4-1e00-4811-996f-5aec326e3328/?tId=wzKdZeGKlR"></script> </div> </aside> <article class="col-md-9"> <h1>Frequently Asked DIPG Questions</h1> <p>A compiled list of frequently asked DIPG questions are below. If you have a specific question you cannot find the answer to, feel free to <a href="/contact/" title="Contact">contact us</a>.</p> <hr> <p></p> <div class="faq-section"> <a name="General Questions"></a> <h3>General Questions</h3> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">What is DIPG?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p><span>DIPG</span><span>聽is a type of pediatric brain tumor found in an area of the brainstem know as the pons.聽The name diffuse intrinsic pontine glioma describes how the tumor grows, where it is found, and what kinds of cells give rise to the tumor.</span></p> </div> </div> </div> <div class="learnMore"><a href="/facts/what-is-dipg/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">Is DIPG benign or malignant?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>DIPG is a malignant tumor and should be treated immediately upon diagnosis.</p> </div> </div> </div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">Where in the brain is DIPG located?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p><span>DIPG tumors are found in a part of the brainstem called the pons. The pons is responsible for a number of important bodily functions, like breathing, sleeping, bladder control, and balance. Because these functions are vital to survival, the pressure from the growing tumor is very dangerous.</span></p> </div> </div> </div> <div class="learnMore"><a href="/facts/what-is-dipg/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">Do adults get DIPG?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>Although young adults can develop DIPG, this disease is largely pediatric with a median patient age of 6-7 years old.</p> </div> </div> </div> <div class="learnMore"><a href="/statistics/">Learn More »</a></div> </div> <hr /> <div class="faq-section"> <a name="Symptoms"></a> <h3>Symptoms</h3> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">What symptoms does DIPG cause?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>Double vision,聽weakness in the arms and legs, loss of balance, difficulty walking, clumsiness, headaches, nausea/vomiting, fatigue, or聽difficulty in controlling: eye and eyelid movement, facial expression,聽chewing and swallowing,聽speaking, or urinating are all symptoms of DIPG.</p> </div> </div> </div> <div class="learnMore"><a href="/facts/symptoms-of-dipgdmg/">Learn More »</a></div> </div> <hr /> <div class="faq-section"> <a name="Causes"></a> <h3>Causes</h3> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">Why/how did I get DIPG? What causes DIPG?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>Researchers do not yet know what causes DIPG.聽<span>There is no evidence that indicates DIPG is caused by environmental factors or specific inherited genetic variations.</span></p> </div> </div> </div> <div class="learnMore"><a href="/facts/causes-of-dipg/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">Is DIPG genetic?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p><span>There is no evidence that indicates DIPG is caused by specific inherited genetic variations.</span></p> </div> </div> </div> <div class="learnMore"><a href="/facts/causes-of-dipg/">Learn More »</a></div> </div> <hr /> <div class="faq-section"> <a name="Recently Diagnosed"></a> <h3>Recently Diagnosed</h3> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">What should I do after being diagnosed? What are the next steps?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p><span>When you or your child is diagnosed with DIPG, there are a few steps that can provide direction and help with treatment options. You will want to perform several steps such as seeking a second opinion and enrolling into the DIPG Registry.聽</span></p> </div> </div> </div> <div class="learnMore"><a href="/what-to-do-when-diagnosed/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">How do I get a second opinion for a DIPG diagnosis?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p><span>This can be done either directly from the DIPG Registry or through a peer hospital. This is important because each DIPG can appear different on initial scans.</span></p> </div> </div> </div> <div class="learnMore"><a href="/what-to-do-when-diagnosed/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">Should I travel to see a DIPG specialist?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>Given the seriousness of the disease, patients often travel to be seen and treated by DIPG specialists. Contact us to get some recommendations that are closest to you.</p> </div> </div> </div> <div class="learnMore"><a href="/contact/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">How do I connect with other families?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>Contact us to be connect to a parent who is willing to provide on-on-one support and connect you with other families.</p> </div> </div> </div> <div class="learnMore"><a href="/contact/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">What kind of support is available for DIPG patients and families?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p><span data-mce-fragment="1">A Diagnosis of DIPG can be devastating, but it is important to know that you don't have to go at it alone.聽</span>Medical, financial, and family support are available.</p> </div> </div> </div> <div class="learnMore"><a href="/support/dipg-dmg-support/">Learn More »</a></div> </div> <hr /> <div class="faq-section"> <a name="Treatment"></a> <h3>Treatment</h3> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">How do you treat DIPG?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p><span>Radiation therapy is the standard treatment for children with diffuse intrinsic pontine gliomas (DIPGs)</span></p> </div> </div> </div> <div class="learnMore"><a href="/treatment/radiation-therapy/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">What are the side effects of radiation treatment for DIPG?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>Radiation to the brain can cause several short-term side effects such as: headaches, hair, hearing or memory loss, nausea/vomiting, seizures or difficulty speaking. Speak with your radiation oncologist about your concerns.</p> </div> </div> </div> <div class="learnMore"><a href="/treatment/radiation-therapy/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">Will my child have long-term effects form DIPG radiation treatment?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>Radiation of the brain can present long-term side effects such as memory loss and decline in neurocognitive聽function. Speak with your radiation oncologist about your concerns and weigh them against the benefits of radiation treatment.</p> </div> </div> </div> <div class="learnMore"><a href="/treatment/radiation-therapy/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">Is chemotherapy an option for DIPG?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>Because of the blood-brain barrier, it can be very difficult to treat DIPG with conventional methods such as chemotherapy.</p> </div> </div> </div> <div class="learnMore"><a href="/treatment/chemotherapy/">Learn More »</a></div> </div> <hr /> <div class="faq-section"> <a name="Survival"></a> <h3>Survival</h3> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">Is DIPG fatal/terminal?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>Unfortunately, DIPG is considered a terminal disease with a median survival range between 8-11 months.</p> </div> </div> </div> <div class="learnMore"><a href="/facts/dipg-survival-rate-and-prognosis/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">How long can you live with DIPG? What is the survival time?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>The median survival range is 8-11 months. The 2-year survival is approximately 10%, while the 5-year survival is approximately 2%.</p> </div> </div> </div> <div class="learnMore"><a href="/facts/dipg-survival-rate-and-prognosis/">Learn More »</a></div> <div class="faq-question" itemscope itemprop="mainEntity" itemtype="https://schema.org/Question"> <h6 itemprop="name">Is there a cure for DIPG?</h6> <div itemscope itemprop="acceptedAnswer" itemtype="https://schema.org/Answer"> <div class="faq-answer" itemprop="text"> <p>There is currently no cure for DIPG, however survival times have nearly doubled since the discovery of the disease.</p> </div> </div> </div> <div class="learnMore"><a href="/facts/a-cure-for-dipg/">Learn More »</a></div> </div> <hr /> </article> </div> </div> </main> <footer id="footer"> DIPG.org is proud to be a part of <strong>The Cure Starts Now Cancer Resource Network</strong>:<br /><a href="https://thecurestartsnow.org" target="_blank">The Cure Starts Now</a> | <a href="https://curecancer.org" target="_blank">CureCancer.org</a> | <a href="https://dipg.org" target="_blank">DIPG.org</a> | <a href="https://medulloblastoma.org" target="_blank">Medulloblastoma.org</a><br /><br />10280 Chester Road, Cincinnati, Ohio 45215 | 513-772-4888<br />Copyright 2022 The Cure Starts Now. 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Frequently Asked DIPG Questions