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href="https://www.acco.org/album-over-the-moon/">Album Over the Moon</a></li> <li class="page_item page-item-5932"><a href="https://www.acco.org/album-through-xen/">Album Through Xen</a></li> <li class="page_item page-item-4028"><a href="https://www.acco.org/album-wyatt-warriors/">Album Wyatt’ Warriors</a></li> <li class="page_item page-item-11166"><a href="https://www.acco.org/amazongoesgold/">Amazon Goes Gold®</a></li> <li class="page_item page-item-36038"><a href="https://www.acco.org/amped-electric-games-goes-gold/">Amped Electric Games GOES GOLD®</a></li> <li class="page_item page-item-13435"><a href="https://www.acco.org/andrewsisolation/">Andrew’s Isolation Story</a></li> <li class="page_item page-item-934"><a href="https://www.acco.org/angela-and-roi/">Angela and Roi</a></li> <li class="page_item page-item-14149"><a href="https://www.acco.org/anthonys-survivor-story/">Anthony’s Survivor Story</a></li> <li class="page_item page-item-10706"><a href="https://www.acco.org/arisbears/">Ari’s Bears- MD</a></li> <li class="page_item page-item-14397"><a href="https://www.acco.org/ashleys-survivor-story/">Ashley’s Survivor Story</a></li> <li class="page_item page-item-12"><a href="https://www.acco.org/awareness-advocacy/">Awareness & Advocacy</a></li> <li class="page_item page-item-217"><a href="https://www.acco.org/awareness-tree/">Awareness Tree</a></li> <li class="page_item page-item-7958"><a href="https://www.acco.org/tree-history/">Awareness Tree History</a></li> <li class="page_item page-item-14253"><a href="https://www.acco.org/bake-along-with-acco/">Bake Along with ACCO</a></li> <li class="page_item page-item-239"><a href="https://www.acco.org/become-a-partner/">Become a Partner</a></li> <li class="page_item page-item-121"><a href="https://www.acco.org/bereavement/">Bereavement</a></li> <li class="page_item page-item-418"><a href="https://www.acco.org/blog/">Blog</a></li> <li class="page_item page-item-1750"><a 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href="https://www.acco.org/candlelighters-expands-mission-to-include-research/">Candlelighters Expands Mission To Include Research</a></li> <li class="page_item page-item-22529"><a href="https://www.acco.org/cars-donations/">CARS Donations</a></li> <li class="page_item page-item-14537"><a href="https://www.acco.org/ccam-september-2024/">CCAM – September 2024</a></li> <li class="page_item page-item-14419"><a href="https://www.acco.org/chads-survivor-story/">Chad’s Survivor Story</a></li> <li class="page_item page-item-2388"><a href="https://www.acco.org/cheechas-fresh-healthy/">Cheecha’s Fresh & Healthy</a></li> <li class="page_item page-item-21597"><a href="https://www.acco.org/chemobitessteven/">Chemo Bites with ACCO and Steven the Cancer Crusher</a></li> <li class="page_item page-item-1756"><a href="https://www.acco.org/chemotherapy-drug-administration/">Chemotherapy Drug Administration</a></li> <li class="page_item page-item-3096"><a href="https://www.acco.org/awarenessmap/">Childhood Cancer Awareness Map</a></li> <li class="page_item page-item-226"><a href="https://www.acco.org/childhood-cancer-legislation/">Childhood Cancer Legislation</a></li> <li class="page_item page-item-4707"><a href="https://www.acco.org/childhood-cancer-statistics/">Childhood Cancer Statistics</a></li> <li class="page_item page-item-1328"><a href="https://www.acco.org/childhood-leukemias/">Childhood Leukemias</a></li> <li class="page_item page-item-1344"><a href="https://www.acco.org/childhood-lymphomas/">Childhood Lymphomas</a></li> <li class="page_item page-item-1972"><a href="https://www.acco.org/childrens-oncology-group-cog-new-cooperative-group-created/">Children’s Oncology Group (COG): New Cooperative Group Created</a></li> <li class="page_item page-item-6627"><a href="https://www.acco.org/cbp-gm-2016/">Christmas Boat Parade Grand Marshals 2016</a></li> <li class="page_item page-item-105"><a href="https://www.acco.org/clinical-trials/">Clinical Trials</a></li> <li class="page_item page-item-1975"><a href="https://www.acco.org/clinical-trials-part-i/">Clinical Trials Part I</a></li> <li class="page_item page-item-24025"><a href="https://www.acco.org/cloudsmovie/">Clouds Movie Raises Awareness for Osteosarcoma and Childhood Cancer</a></li> <li class="page_item page-item-89"><a href="https://www.acco.org/cog-treatment-centers/">COG Treatment Centers</a></li> <li class="page_item page-item-14084"><a href="https://www.acco.org/coltons-survivor-story/">Colton’s Survivor Story</a></li> <li class="page_item page-item-568"><a href="https://www.acco.org/comfort-kit/">Comfort Kit</a></li> <li class="page_item page-item-1758"><a href="https://www.acco.org/complementary-and-alternative-medicine/">Complementary and Alternative Medicine</a></li> <li class="page_item page-item-68"><a href="https://www.acco.org/contact/">Contact ACCO</a></li> <li class="page_item page-item-1979"><a href="https://www.acco.org/cord-blood-transplantation/">Cord Blood Transplantation</a></li> <li class="page_item page-item-13320"><a href="https://www.acco.org/coronavirus-links/">Coronavirus Links</a></li> <li class="page_item page-item-5407"><a href="https://www.acco.org/corporate-events/">Corporate Events</a></li> <li class="page_item page-item-13158"><a href="https://www.acco.org/corporate-partnerships/">Corporate Partnerships</a></li> <li class="page_item page-item-158"><a href="https://www.acco.org/cozy-cares-journal/">Cozy Cares Journal</a></li> <li class="page_item page-item-565"><a href="https://www.acco.org/cozy-cat/">Cozy Cat Stuffed Animal</a></li> <li class="page_item page-item-3733"><a href="https://www.acco.org/cozycoloring/">Cozy Coloring Contest</a></li> <li class="page_item page-item-13614"><a href="https://www.acco.org/cpap-bipap-donation/">CPAP/BiPAP Donation</a></li> <li class="page_item page-item-229"><a href="https://www.acco.org/ongoingadvocacy/">Current and Ongoing Advocacy</a></li> <li class="page_item page-item-14248"><a href="https://www.acco.org/dance-along-with-acco/">Dance Along with ACCO</a></li> <li class="page_item page-item-14006"><a href="https://www.acco.org/devins-isolation-story/">Devin’s Isolation Story</a></li> <li class="page_item page-item-532"><a href="https://www.acco.org/diagnosis/">Diagnosis</a></li> <li class="page_item page-item-10891"><a href="https://www.acco.org/digital-advocacy/">Digital Advocacy</a></li> <li class="page_item page-item-13642"><a href="https://www.acco.org/digital-library/">Digital Library</a></li> <li class="page_item page-item-26536"><a href="https://www.acco.org/dipg/">DIPG</a></li> <li class="page_item page-item-30278"><a href="https://www.acco.org/dipg-es/">DIPG</a></li> <li class="page_item page-item-14020"><a href="https://www.acco.org/dipg-awareness-day/">DIPG Awareness Day</a></li> <li class="page_item page-item-1688"><a href="https://www.acco.org/distribution-re-stock-form/">Distribution Re-stock Form</a></li> <li class="page_item page-item-589"><a href="https://www.acco.org/donate/">Donate Now</a></li> <li class="page_item page-item-590"><a href="https://www.acco.org/donor-rights/">Donor Rights</a></li> <li class="page_item page-item-13710"><a href="https://www.acco.org/draw-alongs-with-acco/">Draw Alongs with ACCO</a></li> <li class="page_item page-item-1762"><a href="https://www.acco.org/drugs-chemotherapy-drugs-and-other-pharmaceuticals/">Drugs: Chemotherapy Drugs and Other Pharmaceuticals</a></li> <li class="page_item page-item-1754"><a href="https://www.acco.org/drugs-how-chemotherapy-works/">Drugs: How Chemotherapy Works</a></li> <li class="page_item page-item-1768"><a href="https://www.acco.org/drugs-side-effects-of-chemotherapy/">Drugs: Side Effects of Chemotherapy</a></li> <li class="page_item page-item-12988"><a href="https://www.acco.org/eagles-treasures-in-heaven-tx/">Eagles Treasures in Heaven- TX</a></li> <li class="page_item page-item-94"><a href="https://www.acco.org/education-issues/">Education Issues</a></li> <li class="page_item page-item-97"><a href="https://www.acco.org/education-scholarships/">Education Scholarships</a></li> <li class="page_item page-item-13662"><a href="https://www.acco.org/elises-isolation-story/">Elise’s Isolation Story</a></li> <li class="page_item page-item-14070"><a href="https://www.acco.org/emmas-survivor-story/">Emma’s Survivor Story</a></li> <li class="page_item page-item-13463"><a href="https://www.acco.org/emotional-communication-kit-online/">Emotional Communication Kit: Online!</a></li> <li class="page_item page-item-12771"><a href="https://www.acco.org/la-roche-posay/">Emotional Communication Kits</a></li> <li class="page_item page-item-5437"><a href="https://www.acco.org/event-registration/">Event Registration</a></li> <li class="page_item page-item-30880"><a href="https://www.acco.org/ewings-sarcoma/">Ewing’s Sarcoma</a></li> <li class="page_item page-item-10889"><a href="https://www.acco.org/federal/">Federal</a></li> <li class="page_item page-item-8300 page_item_has_children"><a href="https://www.acco.org/financial/">Financial</a> <ul class='children'> <li class="page_item page-item-6218"><a href="https://www.acco.org/financial/social-security-disability/">Getting Social Security Benefits For a Child with Cancer</a></li> </ul> </li> <li class="page_item page-item-520"><a href="https://www.acco.org/for-families/">For Families</a></li> <li class="page_item page-item-191"><a href="https://www.acco.org/for-kids/">For Kids</a></li> <li class="page_item page-item-196"><a href="https://www.acco.org/for-siblings/">For Siblings</a></li> <li class="page_item page-item-194"><a href="https://www.acco.org/for-teens/">For Teens</a></li> <li class="page_item page-item-14395"><a href="https://www.acco.org/franciscos-survivor-story/">Francisco’s Survivor Story</a></li> <li class="page_item page-item-11647"><a href="https://www.acco.org/gavinfritts/">Gavin Fritts Shining Star – NC</a></li> <li class="page_item page-item-14174"><a href="https://www.acco.org/gavins-survivor-story/">Gavin’s Survivor Story</a></li> <li class="page_item page-item-1982"><a href="https://www.acco.org/genetic-changes-in-cancer-second-of-three-parts/">Genetic Changes in Cancer: Second of Three Parts</a></li> <li class="page_item page-item-1984"><a href="https://www.acco.org/genetics-and-anti-leukemia-therapy-the-tpmt-story/">Genetics and Anti-Leukemia Therapy: The TPMT Story</a></li> <li class="page_item page-item-524"><a href="https://www.acco.org/get-help-from-a-local-division/">Get Help from a Local Division</a></li> <li class="page_item page-item-414"><a href="https://www.acco.org/get-involved/">Get Involved</a></li> <li class="page_item page-item-7728"><a href="https://www.acco.org/maylea/">Giggles of Gold Project</a></li> <li class="page_item page-item-6360"><a href="https://www.acco.org/givingtuesday/">Giving Tuesday</a></li> <li class="page_item page-item-4254"><a href="https://www.acco.org/global-childhood-cancer-event/">Global Childhood Cancer Event</a></li> <li class="page_item page-item-253"><a href="https://www.acco.org/gogold/">Go Gold For Kids With Cancer®</a></li> <li class="page_item page-item-35569"><a href="https://www.acco.org/go-gold-gala/">GO GOLD® Gala</a></li> <li class="page_item page-item-34042"><a href="https://www.acco.org/go-gold-the-run/">GO GOLD® THE RUN</a></li> <li class="page_item page-item-3297"><a href="https://www.acco.org/gold-ribbon-awareness/">Gold Ribbon Awareness</a></li> <li class="page_item page-item-65"><a href="https://www.acco.org/gold-ribbon-heroes/">Gold Ribbon Heroes</a></li> <li class="page_item page-item-13817"><a href="https://www.acco.org/gold-wall-of-gratitude/">Gold Wall of Gratitude</a></li> <li class="page_item page-item-4631"><a href="https://www.acco.org/goldenangels/">Golden Angels – Puerto Rico (PR)</a></li> <li class="page_item page-item-12853"><a href="https://www.acco.org/golden-warriors-of-maine-me/">Golden Warriors of Maine – ME</a></li> <li class="page_item page-item-14066"><a href="https://www.acco.org/graces-survivor-story/">Grace’s Survivor Story</a></li> <li class="page_item page-item-6538"><a href="https://www.acco.org/green-family/">Green Family</a></li> <li class="page_item page-item-23"><a href="https://www.acco.org/groups/">Groups</a></li> <li class="page_item page-item-14098"><a href="https://www.acco.org/hannahs-survivor-story/">Hannah’s Survivor Story</a></li> <li class="page_item page-item-1831"><a href="https://www.acco.org/health-related-outcomes-for-hodgkin-disease-survivors/">Health-Related Outcomes for Hodgkin Disease Survivors</a></li> <li class="page_item page-item-31010"><a href="https://www.acco.org/hepatoblastoma-cancer-de-higado/">Hepatoblastoma (Cáncer de Hígado)</a></li> <li class="page_item page-item-1339"><a href="https://www.acco.org/hepatoblastoma/">Hepatoblastoma (Liver Cancer)</a></li> <li class="page_item page-item-170"><a href="https://www.acco.org/hero-beads/">Hero Beads®</a></li> <li class="page_item page-item-37"><a href="https://www.acco.org/history/">History of ACCO</a></li> <li class="page_item page-item-551"><a href="https://www.acco.org/history-timeline/">History Timeline</a></li> <li class="page_item page-item-2"><a href="https://www.acco.org/">Home</a></li> <li class="page_item page-item-1407"><a href="https://www.acco.org/home-2/">Home</a></li> <li class="page_item page-item-3235"><a href="https://www.acco.org/hope4heroes/">Hope 4 Heroes – CO</a></li> <li class="page_item page-item-34438"><a href="https://www.acco.org/hope-amidst-sorrow/">Hope Amidst Sorrow: A Seminar for Bereaved Parents</a></li> <li class="page_item page-item-5188"><a href="https://www.acco.org/hope4ccf/">Hope4CCF – LA</a></li> <li class="page_item page-item-1760"><a href="https://www.acco.org/hydrocephalus-shunts-and-gamma-knife/">Hydrocephalus, Shunts, and Gamma Knife</a></li> <li class="page_item page-item-13521"><a href="https://www.acco.org/i-feel-afraid/">I feel afraid.</a></li> <li class="page_item page-item-13503"><a href="https://www.acco.org/i-feel-angry/">I feel angry.</a></li> <li class="page_item page-item-13509"><a href="https://www.acco.org/i-feel-bored/">I feel bored.</a></li> <li class="page_item page-item-13525"><a href="https://www.acco.org/i-feel-disgusted/">I feel disgusted.</a></li> <li class="page_item page-item-13490"><a href="https://www.acco.org/i-feel-happy/">I feel happy.</a></li> <li class="page_item page-item-13494"><a href="https://www.acco.org/i-feel-proud/">I feel proud.</a></li> <li class="page_item page-item-13472"><a href="https://www.acco.org/i-feel-sad/">I feel sad.</a></li> <li class="page_item page-item-13498"><a href="https://www.acco.org/i-feel-surprised/">I feel surprised.</a></li> <li class="page_item page-item-13519"><a href="https://www.acco.org/i-feel-tired/">I feel tired.</a></li> <li class="page_item page-item-4697"><a href="https://www.acco.org/iccd/">ICCD</a></li> <li class="page_item page-item-1986"><a href="https://www.acco.org/improving-informed-consent-in-childhood-cancer-trials/">Improving Informed Consent in Childhood Cancer Trials</a></li> <li class="page_item page-item-10881"><a href="https://www.acco.org/international/">International Advocacy</a></li> <li class="page_item page-item-33565"><a href="https://www.acco.org/iccd-2024/">International Childhood Cancer Day – 2024</a></li> <li class="page_item page-item-4711"><a href="https://www.acco.org/international-statistics/">International Statistics</a></li> <li class="page_item page-item-14265"><a href="https://www.acco.org/irenes-survivor-story/">Irene’s Survivor Story</a></li> <li class="page_item page-item-1977"><a href="https://www.acco.org/its-only-a-phase-clinical-trials-part-ii/">It’s only a Phase! Clinical Trials Part II</a></li> <li class="page_item page-item-10615"><a href="https://www.acco.org/jake/">Jake’s Dragon Foundation – PA</a></li> <li class="page_item page-item-14329"><a href="https://www.acco.org/jeffs-survivor-story/">Jeff’s Survivor Story</a></li> <li class="page_item page-item-241"><a href="https://www.acco.org/jelsert/">Jel Sert</a></li> <li class="page_item page-item-14399"><a href="https://www.acco.org/jennifers-survivor-story/">Jennifer’s Survivor Story</a></li> <li class="page_item page-item-14176"><a href="https://www.acco.org/jensens-survivor-story/">Jensen’s Survivor Story</a></li> <li class="page_item page-item-14283"><a href="https://www.acco.org/jillians-survivor-story/">Jillian’s Survivor Story</a></li> <li class="page_item page-item-14286"><a href="https://www.acco.org/juanitas-survivor-story/">Juanita’s Survivor Story</a></li> <li class="page_item page-item-2370"><a href="https://www.acco.org/karis-cause/">Karis’ Cause – OH</a></li> <li class="page_item page-item-13446"><a href="https://www.acco.org/kartersisolation/">Karter’s Isolation Story</a></li> <li class="page_item page-item-14109"><a href="https://www.acco.org/karters-survivor-story/">Karter’s Survivor Story</a></li> <li class="page_item page-item-14178"><a href="https://www.acco.org/kaydences-survivor-story/">Kaydence’s Survivor Story</a></li> <li class="page_item page-item-554"><a href="https://www.acco.org/kemper/">Kemper Foods International</a></li> <li class="page_item page-item-36077"><a href="https://www.acco.org/ks-acco/">Kendra Scott Supports Kids with Cancer</a></li> <li class="page_item page-item-6560"><a href="https://www.acco.org/kovach-family/">Kovach Family</a></li> <li class="page_item page-item-11687"><a href="https://www.acco.org/laborinlovebuildinginhope/">Labor in Love: Building in Hope – OR</a></li> <li class="page_item page-item-99"><a href="https://www.acco.org/late-effects/">Late Effects</a></li> <li class="page_item page-item-30421"><a href="https://www.acco.org/leucemias-infantiles/">Leucemias Infantiles</a></li> <li class="page_item page-item-14427"><a href="https://www.acco.org/lilys-survivor-story/">Lily’s Survivor Story</a></li> <li class="page_item page-item-31268"><a href="https://www.acco.org/linfomas-infantiles/">Linfomas Infantiles</a></li> <li class="page_item page-item-4490"><a href="https://www.acco.org/live-newsfeed/">Live Newsfeed</a></li> <li class="page_item page-item-36912"><a href="https://www.acco.org/lived-experience-of-cancer-a-who-study/">Lived Experience of Cancer: A WHO Study</a></li> <li class="page_item page-item-290"><a href="https://www.acco.org/local-groups/">Local Groups</a></li> <li class="page_item page-item-14401"><a href="https://www.acco.org/logans-survivor-story/">Logan’s Survivor Story</a></li> <li class="page_item page-item-2408"><a href="https://www.acco.org/love-for-zac/">Love for Zac – CA</a></li> <li class="page_item page-item-36370"><a href="https://www.acco.org/make-it-cute/">Make It Cute</a></li> <li class="page_item page-item-13433"><a href="https://www.acco.org/masonsisolation/">Mason’s Isolation Story</a></li> <li class="page_item page-item-24088"><a href="https://www.acco.org/matilda-jane/">Matilda Jane</a></li> <li class="page_item page-item-518"><a href="https://www.acco.org/medical-play-kit/">Medical Play Kit</a></li> <li class="page_item page-item-14243"><a href="https://www.acco.org/mias-isolation-story/">Mia’s Isolation Story</a></li> <li class="page_item page-item-7021"><a href="https://www.acco.org/microsoft/">Microsoft</a></li> <li class="page_item page-item-7085"><a href="https://www.acco.org/mission-of-hope/">Mission of Hope – Sean Swarner Cancer Climber</a></li> <li class="page_item page-item-32"><a href="https://www.acco.org/mission-statement-2/">Mission Statement</a></li> <li class="page_item page-item-14383"><a href="https://www.acco.org/mollys-survivor-story/">Molly’s Survivor Story</a></li> <li class="page_item page-item-36393"><a href="https://www.acco.org/name-shirts-are-back-in-2024/">Name Shirts are Back in 2024!</a></li> <li class="page_item page-item-13167"><a href="https://www.acco.org/national-pajama-day/">National Pajama Day</a></li> <li class="page_item page-item-1349"><a href="https://www.acco.org/neuroblastoma/">Neuroblastoma</a></li> <li class="page_item page-item-32359"><a href="https://www.acco.org/neuroblastoma-2/">Neuroblastoma</a></li> <li class="page_item page-item-1988"><a href="https://www.acco.org/neuropsychological-testing-an-excerpt-from-educating-the-child/">Neuropsychological Testing: An Excerpt from Educating the Child</a></li> <li class="page_item page-item-1990"><a href="https://www.acco.org/new-approaches-for-resistant-brain-tumors/">New Approaches for Resistant Brain Tumors</a></li> <li class="page_item page-item-40"><a href="https://www.acco.org/news-and-press/">News and Press</a></li> <li class="page_item page-item-4365"><a href="https://www.acco.org/newsfeed-test/">Newsfeed Test</a></li> <li class="page_item page-item-11391"><a href="https://www.acco.org/nickys-heart-of-gold-pa/">Nicky’s Heart of Gold – PA</a></li> <li class="page_item page-item-13438"><a href="https://www.acco.org/noahsisolation/">Noah’s Isolation Story</a></li> <li class="page_item page-item-11076"><a href="https://www.acco.org/orangeribbon/">Orange Ribbon Foundation</a></li> <li class="page_item page-item-1746"><a href="https://www.acco.org/osteonecrosis-a-source-of-bone-pain-and-loss-of-function/">Osteonecrosis: A Source of Bone Pain and Loss of Function</a></li> <li class="page_item page-item-7340"><a href="https://www.acco.org/goodwillchill/">Otter Pop Vibes Tour #GoodWillChill</a></li> <li class="page_item page-item-186"><a href="https://www.acco.org/outside-resources/">Outside Resources</a></li> <li class="page_item page-item-1992"><a href="https://www.acco.org/palliative-or-hospice-care-does-my-child-need-this-service/">Palliative or Hospice Care: Does my child need this service?</a></li> <li class="page_item page-item-246"><a href="https://www.acco.org/palmco/">Palmco</a></li> <li class="page_item page-item-10142"><a href="https://www.acco.org/pwap/">Paranormal With a Purpose – FL</a></li> <li class="page_item page-item-2438"><a href="https://www.acco.org/paulandthedragon/">Paul and the Dragon</a></li> <li class="page_item page-item-166"><a href="https://www.acco.org/paul-and-the-dragon-dvd/">Paul and the Dragon Video</a></li> <li class="page_item page-item-13424"><a href="https://www.acco.org/paxtonsisolation/">Paxton’s Isolation Story</a></li> <li class="page_item page-item-34857"><a href="https://www.acco.org/pediatric-cancer-teaching-resources-for-professionals-educators/">Pediatric Cancer Teaching Resources For Professionals & Educators</a></li> <li class="page_item page-item-396"><a href="https://www.acco.org/pjammin/">PJammin® For Kids with Cancer</a></li> <li class="page_item page-item-7315"><a href="https://www.acco.org/pjamminfaq/">PJammin® Frequently Asked Questions</a></li> <li class="page_item page-item-1764"><a href="https://www.acco.org/ports-and-central-lines/">Ports and Central Lines</a></li> <li class="page_item page-item-1994"><a href="https://www.acco.org/practical-genetics-in-cancer-the-human-genetic-code/">Practical Genetics in Cancer: The Human Genetic Code</a></li> <li class="page_item page-item-35046"><a href="https://www.acco.org/preventing-hearing-loss-from-chemo/">Preventing Hearing Loss from Chemo</a></li> <li class="page_item page-item-13222"><a href="https://www.acco.org/print-at-home-coloring-pages/">Print-at-Home Coloring Pages</a></li> <li class="page_item page-item-10883"><a href="https://www.acco.org/proclamations/">Proclamation Language</a></li> <li class="page_item page-item-14447"><a href="https://www.acco.org/quick-links/">Quick Links</a></li> <li class="page_item page-item-404"><a href="https://www.acco.org/raise-awareness-2/">Raise Awareness</a></li> <li class="page_item page-item-1141"><a href="https://www.acco.org/raise-awareness/">Raise Awareness</a></li> <li class="page_item page-item-530"><a href="https://www.acco.org/read-about-it-acco-publications/">Read About It: ACCO Publications</a></li> <li class="page_item page-item-13870"><a href="https://www.acco.org/read-alongs-with-acco/">Read Alongs with ACCO</a></li> <li class="page_item page-item-1996"><a href="https://www.acco.org/relapsed-all-chemotherapy-vs-transplant/">Relapsed ALL: Chemotherapy vs Transplant</a></li> <li class="page_item page-item-1998"><a href="https://www.acco.org/relapsed-all-questions-for-parents-to-ask/">Relapsed ALL: Questions for Parents to Ask</a></li> <li class="page_item page-item-10"><a href="https://www.acco.org/research/">Research</a></li> <li class="page_item page-item-208"><a href="https://www.acco.org/research-articles/">Research Articles</a></li> <li class="page_item page-item-1766"><a href="https://www.acco.org/researching-the-medical-literature/">Researching the Medical Literature</a></li> <li class="page_item page-item-1352"><a href="https://www.acco.org/retinoblastoma/">Retinoblastoma</a></li> <li class="page_item page-item-1355"><a href="https://www.acco.org/rhabdoid-tumors/">Rhabdoid Tumors</a></li> <li class="page_item page-item-5985"><a href="https://www.acco.org/ribbons-of-gold/">Ribbons of Gold – WI</a></li> <li class="page_item page-item-6423"><a href="https://www.acco.org/rock-bottom/">Rock Bottom</a></li> <li class="page_item page-item-6566"><a href="https://www.acco.org/rbfamilies2016/">Rock Bottom Holiday Families</a></li> <li class="page_item page-item-1406"><a href="https://www.acco.org/sample-page-2/">Sample Page</a></li> <li class="page_item page-item-14530"><a href="https://www.acco.org/sarcoma-awareness-month/">Sarcoma Awareness Month</a></li> <li class="page_item page-item-1358"><a href="https://www.acco.org/sarcomas/">Sarcomas</a></li> <li class="page_item page-item-32674"><a href="https://www.acco.org/sarcomas-2/">Sarcomas</a></li> <li class="page_item page-item-6585"><a href="https://www.acco.org/scherff-family/">Scherff Family</a></li> <li class="page_item page-item-13384"><a href="https://www.acco.org/sew-to-save-lives/">Sew to Save Lives</a></li> <li class="page_item page-item-14250"><a href="https://www.acco.org/sing-along-with-acco/">Sing Along with ACCO</a></li> <li class="page_item page-item-391"><a href="https://www.acco.org/sitemap/">Sitemap</a></li> <li class="page_item page-item-13309"><a href="https://www.acco.org/social-isolation-stories/">Social Isolation Stories</a></li> <li class="page_item page-item-13045"><a href="https://www.acco.org/stamp/">Stamp Out Childhood Cancer</a></li> <li class="page_item page-item-123"><a href="https://www.acco.org/start-a-division/">Start a Division or Group</a></li> <li class="page_item page-item-7261"><a href="https://www.acco.org/state/">State</a></li> <li class="page_item page-item-12073"><a href="https://www.acco.org/state-comprehensive-cancer-control-plan/">State Comprehensive Cancer Control Plan</a></li> <li class="page_item page-item-13667"><a href="https://www.acco.org/stevens-isolation-story/">Steven’s Isolation Story</a></li> <li class="page_item page-item-1730 current_page_item"><a href="https://www.acco.org/stories-from-adult-and-child-survivors/" aria-current="page">Stories from Adult and Child Survivors</a></li> <li class="page_item page-item-7210"><a href="https://www.acco.org/kobie/">Strength to Survive Childhood Cancer Foundation – HI</a></li> <li class="page_item page-item-1725"><a href="https://www.acco.org/suicidal-thoughts-and-attempts-in-adult-survivors/">Suicidal Thoughts and Attempts in Adult Survivors</a></li> <li class="page_item page-item-6552"><a href="https://www.acco.org/sullivan-family/">Sullivan Family</a></li> <li class="page_item page-item-13972"><a href="https://www.acco.org/survivor-stories/">Survivor Stories</a></li> <li class="page_item page-item-30176"><a href="https://www.acco.org/survivor-stories-alec/">Survivor Stories: Alec</a></li> <li class="page_item page-item-30156"><a href="https://www.acco.org/survivor-stories-alex/">Survivor Stories: Alex</a></li> <li class="page_item page-item-30124"><a href="https://www.acco.org/survivor-stories-ashley/">Survivor Stories: Ashley</a></li> <li class="page_item page-item-30164"><a href="https://www.acco.org/survivor-stories-cara/">Survivor Stories: Cara</a></li> <li class="page_item page-item-30168"><a href="https://www.acco.org/survivor-stories-jordan/">Survivor Stories: Jordan</a></li> <li class="page_item page-item-30239"><a href="https://www.acco.org/survivor-stories-meg/">Survivor Stories: Meg</a></li> <li class="page_item page-item-30679"><a href="https://www.acco.org/survivor-stories-payal/">Survivor Stories: Payal</a></li> <li class="page_item page-item-30161"><a href="https://www.acco.org/survivor-stories-ronald/">Survivor Stories: Ronald</a></li> <li class="page_item page-item-30174"><a href="https://www.acco.org/survivor-stories-taylor/">Survivor Stories: Taylor</a></li> <li class="page_item page-item-30127"><a href="https://www.acco.org/survivor-stories-tj/">Survivor Stories: TJ</a></li> <li class="page_item page-item-30171"><a href="https://www.acco.org/survivor-stories-victoria/">Survivor Stories: Victoria</a></li> <li class="page_item page-item-198"><a href="https://www.acco.org/targeted-therapeutics/">Targeted Therapeutics</a></li> <li class="page_item page-item-2000"><a href="https://www.acco.org/targeted-therapeutics-workshop-at-international-cancer-congress/">Targeted Therapeutics Workshop at International Cancer Congress</a></li> <li class="page_item page-item-2002"><a href="https://www.acco.org/targeting-cancer-in-the-21st-century/">Targeting Cancer In The 21st Century</a></li> <li class="page_item page-item-5405"><a href="https://www.acco.org/team-go-gold/">Team Go Gold</a></li> <li class="page_item page-item-526"><a href="https://www.acco.org/teen-journal/">Teen Journal</a></li> <li class="page_item page-item-6357"><a href="https://www.acco.org/thank-you/">Thank you</a></li> <li class="page_item page-item-1852"><a href="https://www.acco.org/thank-you-for-ordering/">Thank You For Ordering</a></li> <li class="page_item page-item-16373"><a href="https://www.acco.org/brain-tumor-charter-of-rights/">The Brain Tumour Patients’ Charter of Rights</a></li> <li class="page_item page-item-4129"><a href="https://www.acco.org/madison/">The Miracle of Madison – MD</a></li> <li class="page_item page-item-1732"><a href="https://www.acco.org/the-problem-of-pain-in-childhood-cancer-survivors/">The Problem of Pain in Childhood Cancer Survivors</a></li> <li class="page_item page-item-5922"><a href="https://www.acco.org/xen/">Through Xen – CT</a></li> <li class="page_item page-item-1582"><a href="https://www.acco.org/timeline/">Timeline</a></li> <li class="page_item page-item-27985"><a href="https://www.acco.org/tipos-de-cancer-infantil/">Tipos de Cáncer Infantil</a></li> <li class="page_item page-item-2004"><a href="https://www.acco.org/treating-high-risk-neuroblastoma-at-the-turn-of-the-century/">Treating High-Risk Neuroblastoma at the Turn of the Century</a></li> <li class="page_item page-item-1770"><a href="https://www.acco.org/treatment-centers-for-childhood-cancers/">Treatment Centers for Childhood Cancers</a></li> <li class="page_item page-item-86"><a href="https://www.acco.org/treatment-2/">Treatment Options</a></li> <li class="page_item page-item-2745"><a href="https://www.acco.org/triderma/">TriDerma Supports ACCO!</a></li> <li class="page_item page-item-32712"><a href="https://www.acco.org/tumor-de-wilms-y-otros-tumores-renales-infantiles/">Tumor de Wilms y Otros Tumores Renales Infantiles</a></li> <li class="page_item page-item-32701"><a href="https://www.acco.org/tumores-de-la-medula-espinal/">Tumores de la Médula Espinal</a></li> <li class="page_item page-item-32667"><a href="https://www.acco.org/tumores-rabdoides/">Tumores Rabdoides</a></li> <li class="page_item page-item-73"><a href="https://www.acco.org/types-of-childhood-cancer/">Types of Childhood Cancer</a></li> <li class="page_item page-item-77"><a href="https://www.acco.org/us-childhood-cancer-statistics/">US Childhood Cancer Statistics</a></li> <li class="page_item page-item-14635"><a href="https://www.acco.org/virtual-advocacy/">Virtual Advocacy</a></li> <li class="page_item page-item-36325"><a href="https://www.acco.org/voyageur-outward-bound-school/">Voyageur Outward Bound School</a></li> <li class="page_item page-item-21662"><a href="https://www.acco.org/wacco/">WACCO</a></li> <li class="page_item page-item-6544"><a href="https://www.acco.org/walsh-family/">Walsh Family</a></li> <li class="page_item page-item-27552"><a 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class="bg-overlay"><div class="container"><h1 class="entry-title">Stories from Adult and Child Survivors</h1></div></div></div> </div> </div> <div id="one-column"> <div class="container"> <div class="row"> <div id="primary" class="col-md-12"> <div class="content-wrapper"> <article id="post-1730" class="post-1730 page type-page status-publish hentry"> <div class="entry-content"> <table width="100%"> <tbody> <tr> <td> <table width="100%"> <tbody> <tr> <td> <h4><strong>STORIES FROM ADULT AND CHILD SURVIVORS WHO HAVE SUFFERED WITH CHRONIC PAIN</strong></h4> <p>Source: Fall 2005 CCCF Newsletter</p> <p>At least once a month someone new signs onto the childhood cancer long-term survivors’ discussion listserv and in their brief introductory letter they usually write something about chronic pain or discomfort. One of the interesting things is they don’t call it pain and they frequently don’t associate it to prior treatment. There are many euphemisms applied to this state, things like “I have a delicate stomach, or a weak neck, or my body is lopsided.” The euphemisms describe the state but not necessarily the visceral experience. After many years of adjusting to discomfort and chronic pain, many survivors of childhood or adolescent cancer no longer recognize their experience as pain, although this often limits their pleasure and enjoyment of life.</p> <p>These pain states may have developed during treatment or not long after treatment was finished, or even many years later. But as everyone was most concerned with eliminating the cancer, things like pain were and are frequently discounted, and if the pain develops long after treatment has finished, many survivors and physicians do not have the skills or knowledge necessary to associate the pain with past cancer treatment(s). More than one survivor who has tried to describe their pain state has been met with the response “but your cancer was cured, you should be so grateful.” Or the survivor feels they are complaining unnecessarily about a treatment that saved his or her life. All of this contributes to a situation where physician and survivor live in a state of denial about chronic pain in survivors, and survivors are often under-treated for chronic pain.</p> <p>Margie is a typical example. She was treated for Hodgkin’s Disease in her late teens back in the 1970’s. Her treatment, state of the art at the time, included high dose radiation to an area described as the Mantle, which includes a field that extends from the base of the skull down to the top of the diaphragm. Margie, like lots of other HD survivors treated with this protocol, has a very thin neck. When she first signed onto the list she described the embarrassment she felt about her weak neck, too weak to lift from a hair salon shampoo basin unassisted. Margie can’t sit for long in a typical dining room chair because in order to be comfortable she needs a back rest that holds her upper back and neck. At home she finds she is most comfortable in her lounge chair with a heating pad draped over the back, but this does not take care of all the pain she has. And although Margie makes great adjustments and accommodations for her neck and upper back, she never thought to call this chronic pain or to seek help for it.</p> <p>When Margie assessed her life, she realized that chronic pain was shaping what she did and how she did it. She was reluctant to accept dinner invitations because of the pain associated with sitting in a straight backed chair; she realized her life was more and more about accommodating pain than living and enjoying. The search for help was long and difficult, as it is for many survivors. Her first questions about the state of her neck and back were met with flat denials. And finally when she did find a physician who admitted there was muscle atrophy, this physician did not refer Margie to a pain specialist. It was only after the help and support of other survivors that Margie finally made contact with a pain specialist who began to work with her.</p> <p>Margie’s case is not unusual. The long term survivor of child and adolescent cancer faces many types of pain related to prior treatment. Although most of those with chronic pain were treated with radiation, there are other survivors who have neuropathies (nerve pain) associated most frequently with chemotherapy agents like Vincristine. Although the nerve pain associated with Vincristine usually disappears over time there are some survivors who don’t return to baseline and even a few who many years after treatment once again find themselves with neuropathies associated with prior treatment. These burning, tingling, even throbbing sensations can range from mildly irritating to incapacitating. Mark is a long term survivor who had Vincristine as part of his protocol. At the time of treatment he was 15 and during treatment he knew that some of the problems he had, like foot drop, were caused by his chemotherapy drugs. Yet, when he developed burning throbbing pains in his feet at age 35, he did not associate this new problem with prior treatment. Again, like many survivors his attitude initially was one of stoicism – this was something to be borne rather than diagnosed and treated. Only when his problem threatened his livelihood, as he found it harder and harder to sit at his desk to work, did he seek help and, like Margie, found that seeking help was a long and roundabout and frequently frustrating experience. Eventually Mark found someone who recognized his foot problem for what it was and, with a combination of medications, he has found relief.</p> <p>There are many more stories like Mark and Margie that elaborate and illustrate the many points Dr. Zeltzer makes in this essay. Chronic pain does exist in long term survivors of childhood cancer. There are many causes of this pain and all treatment protocols for childhood cancer potentially can produce pain either during treatment or many years later. Chronic pain is under recognized by both survivors and physician and under treated. Survivors don’t have to “bear their pain” and Dr. Zeltzer’s article here and her book offer many helpful ideas about intervention and treatment, comprehensively assessing and treating the pain of long term survivors. Survivors don’t have to accept chronic pain as the price of survival. As Dr.Zeltzer so compassionately illustrates, there are ways to intervene and help.</p> <p><em>by Linda Goettina (Zame)</em></p> <p> </td> <td></td> </tr> </tbody> </table> </td> </tr> <tr> <td> <table width="100%"> <tbody> <tr> <td></td> <td width="5"></td> <td> <table width="100%"> <tbody> <tr> <td></td> </tr> </tbody> </table> </td> </tr> </tbody> </table> </td> </tr> </tbody> </table> <p> </p> </div> <footer class="entry-meta"> </footer> </article> <div id="comments"> </div> </div> </div> </div> </div> </div> </div> <footer id="footer"> <div id="footer-info"> <div class="bottom"> <div class="container wow fadeIn" data-wow-duration="1.75s" data-wow-offset="100"> <div class="row py-4"> <div id="footer-1" class="col-12 my-1 d-none d-md-block"> <div class="row"> <div class="col-md-2"> <img class="img-fluid d-block mx-auto" src="https://www.acco.org/wp-content/themes/acco-new/img/logo-footer.png" /> </div> <div class="col-md-10"> <p class="mt-4">The American Childhood Cancer Organization is a 501(c)(3) public charity, whose programs and services are funded entirely by private donations, foundation grants, and corporate contributions. 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