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} .ubermenu.ubermenu-mobile-modal .ubermenu-item-level-0{ margin:0; } .ubermenu.ubermenu-mobile-modal .ubermenu-mobile-close-button{ border:none; background:none; border-radius:0; padding:1em; color:inherit; display:inline-block; text-align:center; font-size:14px; } .ubermenu.ubermenu-mobile-modal .ubermenu-mobile-footer .ubermenu-mobile-close-button{ width: 100%; display: flex; align-items: center; justify-content: center; } .ubermenu.ubermenu-mobile-modal .ubermenu-mobile-footer .ubermenu-mobile-close-button .ubermenu-icon-essential, .ubermenu.ubermenu-mobile-modal .ubermenu-mobile-footer .ubermenu-mobile-close-button .fas.fa-times{ margin-right:.2em; } /* Header/Footer Mobile content */ .ubermenu .ubermenu-mobile-header, .ubermenu .ubermenu-mobile-footer{ display:block; text-align:center; color:inherit; } /* Accordion submenus mobile (single column tablet) */ .ubermenu.ubermenu-responsive-single-column.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item > .ubermenu-submenu-drop, .ubermenu.ubermenu-responsive-single-column.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab > .ubermenu-tab-content-panel{ box-sizing:border-box; border-left:none; border-right:none; box-shadow:none; } .ubermenu.ubermenu-responsive-single-column.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item.ubermenu-active > .ubermenu-submenu-drop, .ubermenu.ubermenu-responsive-single-column.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab.ubermenu-active > .ubermenu-tab-content-panel{ position:static; } /* Accordion indented - remove borders and extra spacing from headers */ .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu.ubermenu-submenu-drop, .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-target{ border:none; } .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-submenu-type-stack{ padding-top:0; } /* Accordion dropdown indentation padding */ .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:calc( var(--ubermenu-accordion-indent) * 2 ); } .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:calc( var(--ubermenu-accordion-indent) * 3 ); } .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:calc( var(--ubermenu-accordion-indent) * 4 ); } /* Reverse Accordion dropdown indentation padding */ .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:0; padding-right:calc( var(--ubermenu-accordion-indent) * 2 ); } .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:0; padding-right:calc( var(--ubermenu-accordion-indent) * 3 ); } .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-submenu-drop .ubermenu-item > .ubermenu-target, .rtl .ubermenu.ubermenu-mobile-accordion-indent .ubermenu-submenu-drop .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-tab-content-panel .ubermenu-item > .ubermenu-target{ padding-left:0; padding-right:calc( var(--ubermenu-accordion-indent) * 4 ); } .ubermenu-responsive-toggle{ display:block; } } @media screen and (max-width: 480px){ .ubermenu.ubermenu-responsive .ubermenu-item-level-0{ width:100%; } .ubermenu.ubermenu-responsive .ubermenu-column, .ubermenu.ubermenu-responsive .ubermenu-column-auto{ min-width:100%; } .ubermenu .ubermenu-autocolumn:not(:first-child), .ubermenu .ubermenu-autocolumn:not(:first-child) .ubermenu-submenu-type-stack{ padding-top:0; } .ubermenu .ubermenu-autocolumn:not(:last-child), .ubermenu .ubermenu-autocolumn:not(:last-child) .ubermenu-submenu-type-stack{ padding-bottom:0; } .ubermenu .ubermenu-autocolumn > .ubermenu-submenu-type-stack > .ubermenu-item-normal:first-child{ margin-top:0; } /* Accordion submenus mobile */ .ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item > .ubermenu-submenu-drop, .ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab > .ubermenu-tab-content-panel{ box-shadow:none; box-sizing:border-box; border-left:none; border-right:none; } .ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-item.ubermenu-active > .ubermenu-submenu-drop, .ubermenu.ubermenu-responsive.ubermenu-mobile-accordion.ubermenu-interaction-press .ubermenu-tab.ubermenu-active > .ubermenu-tab-content-panel{ position:static; } } /** UberMenu Custom Menu Styles (Customizer) **/ /* main */ .ubermenu-main .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target { font-weight:600; } .ubermenu-main .ubermenu-item-level-0 > .ubermenu-target { color:#0f131b; padding-left:12px; padding-right:12px; } .ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target, .ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target, .ubermenu-main .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target { color:#fc4c02; } .ubermenu-main.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target:not(.ubermenu-noindicator) { padding-right:27px; } .ubermenu-main.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target.ubermenu-noindicator { padding-right:12px; } .ubermenu-main .ubermenu-item-normal > .ubermenu-target,.ubermenu-main .ubermenu-submenu .ubermenu-target,.ubermenu-main .ubermenu-submenu .ubermenu-nonlink,.ubermenu-main .ubermenu-submenu .ubermenu-widget,.ubermenu-main .ubermenu-submenu .ubermenu-custom-content-padded,.ubermenu-main .ubermenu-submenu .ubermenu-retractor,.ubermenu-main .ubermenu-submenu .ubermenu-colgroup .ubermenu-column,.ubermenu-main .ubermenu-submenu.ubermenu-submenu-type-stack > .ubermenu-item-normal > .ubermenu-target,.ubermenu-main .ubermenu-submenu.ubermenu-submenu-padded { padding:5px; } .ubermenu-main .ubermenu-grid-row { padding-right:5px; } .ubermenu-main .ubermenu-grid-row .ubermenu-target { padding-right:0; } .ubermenu-main.ubermenu-sub-indicators .ubermenu-submenu :not(.ubermenu-tabs-layout-right) .ubermenu-has-submenu-drop > .ubermenu-target { padding-right:25px; } .ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target, .ubermenu-main .ubermenu-tab > .ubermenu-target { font-size:16px; } .ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target { color:#00558c; } .ubermenu-main .ubermenu-submenu .ubermenu-item-header > .ubermenu-target:hover { color:#00558c; } .ubermenu-main .ubermenu-nav .ubermenu-submenu .ubermenu-item-header > .ubermenu-target { font-weight:600; } .ubermenu-main .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-target { border:none; } .ubermenu-main .ubermenu-submenu-type-stack { padding-top:0; } /* premasthead */ .ubermenu-premasthead .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target { font-weight:500; } .ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-target { color:#0f131b; padding-left:8px; padding-right:8px; } .ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target, .ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target, .ubermenu-premasthead .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target { color:#fc4c02; } .ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-target, .ubermenu-premasthead .ubermenu-item-level-0 > .ubermenu-custom-content.ubermenu-custom-content-padded { padding-top:6px; padding-bottom:6px; } .ubermenu-premasthead.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target:not(.ubermenu-noindicator) { padding-right:23px; } .ubermenu-premasthead.ubermenu-sub-indicators .ubermenu-item-level-0.ubermenu-has-submenu-drop > .ubermenu-target.ubermenu-noindicator { padding-right:8px; } .ubermenu.ubermenu-premasthead .ubermenu-item-normal > .ubermenu-target:hover, .ubermenu.ubermenu-premasthead .ubermenu-item-normal.ubermenu-active > .ubermenu-target { color:#0099bc; } .ubermenu-premasthead, .ubermenu-premasthead .ubermenu-target, .ubermenu-premasthead .ubermenu-nav .ubermenu-item-level-0 .ubermenu-target { font:13px Lato, sans-serif; } /* mobheadrmainmenu */ .ubermenu-mobheadrmainmenu .ubermenu-item-level-0 > .ubermenu-target { font-size:20px; text-transform:capitalize; color:#0f131b; border-top:1px solid #979797; } .ubermenu-mobheadrmainmenu .ubermenu-nav .ubermenu-item.ubermenu-item-level-0 > .ubermenu-target { font-weight:400; } .ubermenu.ubermenu-mobheadrmainmenu .ubermenu-item-level-0:hover > .ubermenu-target, .ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-active > .ubermenu-target { color:#0099bc; } .ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-item > .ubermenu-target, .ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-parent > .ubermenu-target, .ubermenu-mobheadrmainmenu .ubermenu-item-level-0.ubermenu-current-menu-ancestor > .ubermenu-target { color:#0099bc; background:#0099bc; } .ubermenu.ubermenu-mobheadrmainmenu .ubermenu-item-level-0 > .ubermenu-target { background:#ffffff; } .ubermenu-mobheadrmainmenu .ubermenu-item-normal > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-nonlink,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-widget,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-custom-content-padded,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-retractor,.ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-colgroup .ubermenu-column,.ubermenu-mobheadrmainmenu .ubermenu-submenu.ubermenu-submenu-type-stack > .ubermenu-item-normal > .ubermenu-target,.ubermenu-mobheadrmainmenu .ubermenu-submenu.ubermenu-submenu-padded { padding:5px 5px; } .ubermenu-mobheadrmainmenu .ubermenu-grid-row { padding-right:5px 5px; } .ubermenu-mobheadrmainmenu .ubermenu-grid-row .ubermenu-target { padding-right:0; } .ubermenu-mobheadrmainmenu.ubermenu-sub-indicators .ubermenu-submenu :not(.ubermenu-tabs-layout-right) .ubermenu-has-submenu-drop > .ubermenu-target { padding-right:25px; } .ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header > .ubermenu-target, .ubermenu-mobheadrmainmenu .ubermenu-tab > .ubermenu-target { font-size:18px; } .ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header > .ubermenu-target { color:#00558c; } .ubermenu-mobheadrmainmenu .ubermenu-nav .ubermenu-submenu .ubermenu-item-header > .ubermenu-target { font-weight:900; } .ubermenu-mobheadrmainmenu .ubermenu-submenu .ubermenu-item-header.ubermenu-has-submenu-stack > .ubermenu-target { border:none; } .ubermenu-mobheadrmainmenu .ubermenu-submenu-type-stack { padding-top:0; } /** UberMenu Custom Menu Item Styles (Menu Item Settings) **/ /* 13736 */ .ubermenu .ubermenu-item.ubermenu-item-13736 > .ubermenu-target,.ubermenu .ubermenu-item.ubermenu-item-13736 > .ubermenu-content-block,.ubermenu .ubermenu-item.ubermenu-item-13736.ubermenu-custom-content-padded { padding:12px 5px 37px 5px; } /* 13737 */ .ubermenu .ubermenu-item.ubermenu-item-13737 > .ubermenu-target,.ubermenu .ubermenu-item.ubermenu-item-13737 > .ubermenu-content-block,.ubermenu .ubermenu-item.ubermenu-item-13737.ubermenu-custom-content-padded { padding:12px 5px 52px 5px; 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We are looking for partners, donors, and sponsors to support our work.</p> <a href="https://rarediseases.org/contact/" target="" class="link-underline ">Contact NORD to Learn More</a> </div> </div> </div></section><section class="fcl fcl-sidebar-callout theme-grey no-mt no-mr sm-mb no-ml no-pt no-pr no-pb no-pl"><div class="inner"><div class="sidebar-callout"> <div class="content"> <h3 class="headline">Are You a Medical Professional?</h3> <p class="copy">You can make a difference. Join us and our nation of medical providers to help people with rare diseases. Volunteer to lend your expertise.<br /> <ul><li>Learn about research opportunities for your patients, including natural history studies and clinical trials.</li><li>Explore our resources for medical professionals</li></ul><br /> </p> <a href="https://rarediseases.org/living-with-a-rare-disease/add-your-expertise/" target="" class="link-underline ">Add your rare disease expertise</a> </div> </div> </div></section>  <section class="fcl fcl-sidebar-ad theme-default sm-mb sm-mt"> <div class="inner"> <div class="ad-content"><a href="https://learn.rarediseases.org/rare-disease-courses/?utm_source=website_sidebar&utm_medium=sidebar_ad&utm_campaign=rdorg_sidebar_promo&utm_id=Rare+Disease+Drug+Development+Promotions+2024" target="_blank" id="rdd-sidebar-ad" rel="noopener"><img src="https://rarediseases.org/wp-content/uploads/2024/11/rare-disease-drug-development-tile-ad-r02-1024x1024.png" alt="NORD rare disease drug development ad." width="1024" height="1024" class="alignnone size-large wp-image-274180" /></a></div> <div class="ad-content"><a href="https://rarediseases.org/state-resource-center/"><img src="https://rarediseases.org/wp-content/uploads/2024/05/NRD-2326-State-Resource-Center_Sidebar-01.png" alt="NORD State Resource Center Sidebar photo." width="500" height="573" class="aligncenter size-full wp-image-260046" /></a></div> </div> </section> </div> </div> <div class="col-lg-9 col-12 main-content"> <section class="fcl fcl-sidebar-menu hide-left-resp theme-default no-mt no-mr sm-mb no-ml no-pt no-pr no-pb no-pl"><div class="inner"><h4 class="widget-title">Explore More</h4> <div class="sidebar-nav"> <div class="nav-wrapper"> <p class="menu-title js-sub-nav d-lg-none d-block">Section</p> <div class="sidebar-menu-wrapper"><ul id="menu-sidebar-menu-living-with-a-rare-disease-1" class="sidebar-nav-menu"><li class="menu-item menu-item-type-post_type menu-item-object-page level-0 menu-item-91202"><a href="https://rarediseases.org/living-with-a-rare-disease/getting-help-and-support/">Getting Help and Support</a></li> <li class="menu-item menu-item-type-custom menu-item-object-custom level-0 menu-item-48149"><a href="https://rarediseases.org/rare-diseases">Rare Disease Information</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page level-0 menu-item-48146"><a href="https://rarediseases.org/living-with-a-rare-disease/managing-your-disease/">Managing Your Disease</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-48161 current_page_item level-0 menu-item-91203"><a href="https://rarediseases.org/living-with-a-rare-disease/how-nord-can-help/" aria-current="page">How NORD Can Help</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children level-0 menu-item-91227"><a href="https://rarediseases.org/patient-assistance-programs/">Patient & Caregiver Assistance</a> <ul class="sub-menu"> <li class="menu-item menu-item-type-custom menu-item-object-custom level-1 menu-item-254034"><a href="https://rarediseases.org/patient-assistance-programs/financial-assistance/">Financial Assistance</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page level-1 menu-item-91232"><a href="https://rarediseases.org/patient-assistance-programs/caregiver-respite/">Caregiver Aid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page level-1 menu-item-91233"><a href="https://rarediseases.org/living-with-a-rare-disease/caregiver-resources/">Caregiver Resources</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page level-1 menu-item-91235"><a href="https://rarediseases.org/patient-assistance-programs/rare-disease-educational-support/">Educational Support</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children level-0 menu-item-254035"><a href="https://rarediseases.org/rare-disease-centers-of-excellence/">Rare Disease Centers of Excellence</a> <ul class="sub-menu"> <li class="menu-item menu-item-type-post_type menu-item-object-page level-1 menu-item-98637"><a href="https://rarediseases.org/rare-disease-centers-of-excellence/faqs/">Patient & Caregiver FAQs</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page level-1 menu-item-99215"><a href="https://rarediseases.org/rare-disease-centers-of-excellence/faqs-spanish/">Sobre los Centros de Excelencia</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page level-1 menu-item-98636"><a href="https://rarediseases.org/rare-disease-centers-of-excellence/apply/">Apply (Medical Institutions only)</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children level-0 menu-item-91230"><a href="https://rarediseases.org/living-with-a-rare-disease/clinical-trials/">Information on Clinical Trials & Research Studies</a> <ul class="sub-menu"> <li class="menu-item menu-item-type-custom menu-item-object-custom level-1 menu-item-254036"><a href="https://rarediseases.org/living-with-a-rare-disease/find-clinical-trials/">Find Clinical Trials & Research Studies</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page level-0 menu-item-91228"><a href="https://rarediseases.org/patient-organizations/">Finding a Support Organization</a></li> <li class="menu-item menu-item-type-custom menu-item-object-custom level-0 menu-item-259431"><a target="_blank" rel="noopener" href="https://learn.rarediseases.org/">RareEdu<sup>®</sup> – Online Learning Platform</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page level-0 menu-item-91204"><a href="https://rarediseases.org/living-with-a-rare-disease/speak-to-someone-at-nord/">Speak to Someone at NORD</a></li> </ul></div> </div> </div> </div></section> <section class="fcl fcl-sb-wysiwyg theme-default no-mt no-mr no-mb no-ml no-pt no-pr no-pb no-pl"><div class="inner"> <div class="content"> <h1>Help with Rare Disease</h1> <p><strong> Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is here. </strong></p> <ul> <li>We provide resources, rare disease information, and ways to get involved.</li> <li>With our network of members, advocates, and partners, we make critical connections and work to make an impact for every person with a rare disease.</li> </ul> </div> </div></section><section class="fcl fcl-sb-wysiwyg theme-grey no-mt no-mr no-mb no-ml sm-pt sm-pr sm-pb sm-pl"><div class="inner"> <div class="content"> <h2>Find Rare Disease Resources Near You</h2> <p>Our State Resource Center contains resources to assist with meeting your needs and answering questions, wherever you are in your journey and no matter where you live. You can search by topic or by state.</p> <p><a class="link-underline" href="https://rarediseases.org/state-resource-center/">Start using NORD’s State Resource Center</a></p> </div> </div></section><section class="fcl fcl-sb-wysiwyg theme-default no-mt no-mr no-mb no-ml sm-pt sm-pr sm-pb sm-pl"><div class="inner"> <div class="content"> <h2>Rare Disease Information</h2> <ul> <li>Giving you accurate, understandable information is one of our top priorities. You can find information on our website and by connecting with our member organizations. If you still have questions, call our helpline. <a href="https://rarediseases.org/get-involved/patient-organizations/">Search for a Rare Disease Organization</a></li> <li>We publish education fact sheets and downloads, white papers, articles, and updates to help patients, families, healthcare professionals, and students. <a href="https://rarediseases.org/resource-library/">Explore NORD’s Resource Library</a></li> <li>Explore NORD’s policy and advocacy updates, research and the latest trends in rare diseases. <a href="https://rarediseases.org/?page_id=82697">Read about NORD’s Policy Statements</a></li> <li>We offer publications specifically for healthcare professionals. <a href="https://rarediseases.org/resource-library/?taxonomy[audience]=medical-professionals">View our latest publications</a></li> </ul> </div> </div></section><section class="fcl fcl-sb-wysiwyg theme-grey no-mt no-mr no-mb no-ml sm-pt sm-pr sm-pb sm-pl"><div class="inner"> <div class="content"> <h2>Events and programs</h2> <p>We provide events and programs to help the more than 30 million people living with rare diseases, as well as their families and caregivers. We help people who are undiagnosed and searching for a medical diagnosis.</p> <p><a class="link-underline" href="https://rarediseases.org/events/"><span class="hotkey-layer "><span class="hotkey-layer preview-overlay is-preview-sidebar-visible">See what rare disease events are coming up near you</span></span></a></p> </div> </div></section><section class="fcl fcl-sb-wysiwyg theme-default no-mt no-mr no-mb no-ml sm-pt sm-pr sm-pb sm-pl"><div class="inner"> <div class="content"> <h2>Financial Support</h2> <p>If you need help paying for your medical bills, NORD may be able to help. If you are traveling to a treatment center or clinical trial, we may be able to assist. We offer support for caregivers through our Caregiver Respite Program.</p> <p><a class="link-underline" href="https://rarediseases.org/living-with-a-rare-disease/patient-assistance-programs/">Find out more about financial assistance</a></p> </div> </div></section> </div> </div></div></section> <script nitro-exclude> document.cookie = 'nitroCachedPage=' + (!window.NITROPACK_STATE ? 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Min. image size 260px X 260px</div><div class='ginput_container ginput_container_fileupload'><div id='gform_multifile_upload_20_12' data-settings='{"runtimes":"html5,flash,html4","browse_button":"gform_browse_button_20_12","container":"gform_multifile_upload_20_12","drop_element":"gform_drag_drop_area_20_12","filelist":"gform_preview_20_12","unique_names":true,"file_data_name":"file","url":"https:\/\/rarediseases.org\/?gf_page=13d885829505677","flash_swf_url":"https:\/\/rarediseases.org\/wp-includes\/js\/plupload\/plupload.flash.swf","silverlight_xap_url":"https:\/\/rarediseases.org\/wp-includes\/js\/plupload\/plupload.silverlight.xap","filters":{"mime_types":[{"title":"Allowed Files","extensions":"*"}],"max_file_size":"5242880b"},"multipart":true,"urlstream_upload":false,"multipart_params":{"form_id":20,"field_id":12},"gf_vars":{"max_files":0,"message_id":"gform_multifile_messages_20_12","disallowed_extensions":["php","asp","aspx","cmd","csh","bat","html","htm","hta","jar","exe","com","js","lnk","htaccess","phtml","ps1","ps2","php3","php4","php5","php6","py","rb","tmp"]}}' class='gform_fileupload_multifile'> <div id='gform_drag_drop_area_20_12' class='gform_drop_area gform-theme-field-control'> <span class='gform_drop_instructions'>Drop files here or </span> <button type='button' id='gform_browse_button_20_12' class='button gform_button_select_files gform-theme-button gform-theme-button--control' aria-describedby="gfield_upload_rules_20_12 gfield_description_20_12" >Select files</button> </div> </div><span class='gfield_description gform_fileupload_rules' id='gfield_upload_rules_20_12'>Max. file size: 5 MB.</span><ul class='validation_message--hidden-on-empty gform-ul-reset' id='gform_multifile_messages_20_12'></ul> </div><div id='gform_preview_20_12' class='ginput_preview_list'></div></div><div id="field_20_11" class="gfield gfield--type-post_custom_field gfield--input-type-textarea gfield--width-full gfield_contains_required field_sublabel_below gfield--has-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_20_11" ><label class='gfield_label gform-field-label' for='input_20_11'>Your Message<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></label><div class='gfield_description' id='gfield_description_20_11'>Max. 15 words</div><div class='ginput_container ginput_container_textarea'><textarea name='input_11' id='input_20_11' class='textarea small' aria-describedby="gfield_description_20_11" aria-required="true" aria-invalid="false" rows='10' cols='50'></textarea></div></div><fieldset id="field_20_13" class="gfield gfield--type-consent gfield--type-choice gfield--input-type-consent gfield--width-full gfield_contains_required field_sublabel_below gfield--has-description field_description_below field_validation_below gfield_visibility_visible" data-js-reload="field_20_13" ><legend class='gfield_label gform-field-label gfield_label_before_complex' >Consent<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></legend><div class='ginput_container ginput_container_consent'><input name='input_13.1' id='input_20_13_1' type='checkbox' value='1' aria-describedby="gfield_consent_description_20_13" aria-required="true" aria-invalid="false" /> <label class="gform-field-label gform-field-label--type-inline gfield_consent_label" for='input_20_13_1' >I agree to the terms and conditions</label><input type='hidden' name='input_13.2' value='I agree to the terms and conditions' class='gform_hidden' /><input type='hidden' name='input_13.3' value='5' class='gform_hidden' /></div><div class='gfield_description gfield_consent_description' id='gfield_consent_description_20_13'>In these Standard Terms and Conditions, “Your Content” refers to any audio, video, text, images, or other material you provide or display. By providing “Your Content”, you grant NORD a license to read, use, reproduce, adapt, modify, publish, translate, and distribute the content in our marketing materials and to all media. “Your Content” must be your own and must not invade any third‐party’s rights. When you submit content or information to NORD, you are allowing the public to access and use that information, and to associate it with you. NORD reserves the right to remove “Your Content” at any time, without notice. We take your privacy very seriously. 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value='form_id=20&title=&description=&tabindex=0&theme=gravity-theme' /> <input type='hidden' class='gform_hidden' name='gform_submission_method' data-js='gform_submission_method_20' value='iframe' /> <input type='hidden' class='gform_hidden' name='is_submit_20' value='1' /> <input type='hidden' class='gform_hidden' name='gform_submit' value='20' /> <input type='hidden' class='gform_hidden' name='gform_unique_id' value='' /> <input type='hidden' class='gform_hidden' name='state_20' value='WyJ7XCIxMy4xXCI6XCI0OTMzOGI5MWYxY2Y3ZDJkYTZkODc2M2M4MmYzNTYyZVwiLFwiMTMuMlwiOlwiZmJhNTJmMWMwMDVhMGQ5NmNiZWQyOGI3ZWNlNDZhMWNcIixcIjEzLjNcIjpcIjU2ZmE4YmZjMzQxOGZlZjcwMWRmZGYzNzdhMDFjZTljXCJ9IiwiOTIyNTRkYjZmYTIzZmVmN2I3YWY4NWUwZjNjNjMxODUiXQ==' /> <input type='hidden' autocomplete='off' class='gform_hidden' name='gform_target_page_number_20' id='gform_target_page_number_20' value='0' /> <input type='hidden' autocomplete='off' class='gform_hidden' name='gform_source_page_number_20' id='gform_source_page_number_20' value='1' /> <input type='hidden' name='gform_field_values' value='' /> <input type='hidden' name='gform_uploaded_files' id='gform_uploaded_files_20' value='' /> </div> </form> </div> <iframe style='display:none;width:0px;height:0px;' src='about:blank' name='gform_ajax_frame_20' id='gform_ajax_frame_20' title='This iframe contains the logic required to handle Ajax powered Gravity Forms.'></iframe> <script type="text/javascript"> /* <![CDATA[ */ gform.initializeOnLoaded( function() {gformInitSpinner( 20, 'https://rarediseases.org/wp-content/plugins/gravityforms/images/spinner.svg', true );jQuery('#gform_ajax_frame_20').on('load',function(){var contents = jQuery(this).contents().find('*').html();var is_postback = contents.indexOf('GF_AJAX_POSTBACK') >= 0;if(!is_postback){return;}var form_content = jQuery(this).contents().find('#gform_wrapper_20');var is_confirmation = jQuery(this).contents().find('#gform_confirmation_wrapper_20').length > 0;var is_redirect = contents.indexOf('gformRedirect(){') >= 0;var is_form = form_content.length > 0 && ! is_redirect && ! is_confirmation;var mt = parseInt(jQuery('html').css('margin-top'), 10) + parseInt(jQuery('body').css('margin-top'), 10) + 100;if(is_form){jQuery('#gform_wrapper_20').html(form_content.html());if(form_content.hasClass('gform_validation_error')){jQuery('#gform_wrapper_20').addClass('gform_validation_error');} else {jQuery('#gform_wrapper_20').removeClass('gform_validation_error');}setTimeout( function() { /* delay the scroll by 50 milliseconds to fix a bug in chrome */ jQuery(document).scrollTop(jQuery('#gform_wrapper_20').offset().top - mt); }, 50 );if(window['gformInitDatepicker']) {gformInitDatepicker();}if(window['gformInitPriceFields']) {gformInitPriceFields();}var current_page = jQuery('#gform_source_page_number_20').val();gformInitSpinner( 20, 'https://rarediseases.org/wp-content/plugins/gravityforms/images/spinner.svg', true 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data-popmake="{"id":257855,"slug":"rdd-community-stripes","theme_id":11442,"cookies":[],"triggers":[{"type":"click_open","settings":{"cookie_name":"","extra_selectors":""}}],"mobile_disabled":null,"tablet_disabled":null,"meta":{"display":{"stackable":false,"overlay_disabled":false,"scrollable_content":false,"disable_reposition":false,"size":"medium","responsive_min_width":"0%","responsive_min_width_unit":false,"responsive_max_width":"70%","responsive_max_width_unit":false,"custom_width":"640px","custom_width_unit":false,"custom_height":"380px","custom_height_unit":false,"custom_height_auto":false,"location":"center","position_from_trigger":false,"position_top":"100","position_left":"0","position_bottom":"0","position_right":"0","position_fixed":false,"animation_type":"fade","animation_speed":"350","animation_origin":"center 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value='{"closepopup":false,"closedelay":0,"openpopup":false,"openpopup_id":0}' /> grecaptcha.ready(function() { grecaptcha.execute("6Lc_CEopAAAAACjj_tyibG1kHMOp5bOEly7_pvZb", {action: "submit"}).then(function(token) { var recaptchaResponse = document.getElementById("g-recaptcha-response"); if (recaptchaResponse) { recaptchaResponse.value = token; } }); }); </script></div> <div class='gform-body gform_body'><div id='gform_fields_35' class='gform_fields top_label form_sublabel_above description_above validation_below'><fieldset id="field_35_1" class="gfield gfield--type-name gfield--input-type-name gfield_contains_required field_sublabel_above gfield--no-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_35_1" ><legend class='gfield_label gform-field-label gfield_label_before_complex' >Name<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></legend><div class='ginput_complex 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aria-required="true" aria-invalid="false" autocomplete="email"/> </span> <div class='gf_clear gf_clear_complex'></div> </div></fieldset><div id="field_35_4" class="gfield gfield--type-fileupload gfield--input-type-fileupload gfield--width-full field_sublabel_above gfield--no-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_35_4" ><label class='gfield_label gform-field-label' for='gform_browse_button_35_4'>Photos</label><div class='ginput_container ginput_container_fileupload'><div id='gform_multifile_upload_35_4' 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<div id='gform_drag_drop_area_35_4' class='gform_drop_area gform-theme-field-control'> <span class='gform_drop_instructions'>Drop files here or </span> <button type='button' id='gform_browse_button_35_4' class='button gform_button_select_files gform-theme-button gform-theme-button--control' aria-describedby="gfield_upload_rules_35_4" >Select files</button> </div> </div><span class='gfield_description gform_fileupload_rules' id='gfield_upload_rules_35_4'>Accepted file types: jpeg, png, jpg, Max. file size: 3 MB.</span><ul class='validation_message--hidden-on-empty gform-ul-reset' id='gform_multifile_messages_35_4'></ul> </div><div id='gform_preview_35_4' class='ginput_preview_list'></div></div><div id="field_35_3" class="gfield gfield--type-textarea gfield--input-type-textarea gfield_contains_required field_sublabel_above gfield--has-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_35_3" ><label class='gfield_label gform-field-label' for='input_35_3'>Comments<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></label><div class='gfield_description' id='gfield_description_35_3'>Please let us know what's on your mind. Have a question for us? Ask away.</div><div class='ginput_container ginput_container_textarea'><textarea name='input_3' id='input_35_3' class='textarea medium' aria-describedby="gfield_description_35_3" maxlength='600' aria-required="true" aria-invalid="false" rows='10' cols='50'></textarea></div></div><div id="field_35_5" class="gfield gfield--type-honeypot gform_validation_container field_sublabel_above gfield--has-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_35_5" ><label class='gfield_label gform-field-label' for='input_35_5'>Phone</label><div class='gfield_description' id='gfield_description_35_5'>This field is for validation purposes and should be left unchanged.</div><div class='ginput_container'><input name='input_5' id='input_35_5' type='text' value='' autocomplete='new-password'/></div></div></div></div> <div class='gform-footer gform_footer top_label'> <input type='submit' id='gform_submit_button_35' class='gform_button button' onclick='gform.submission.handleButtonClick(this)' value='Submit' /> <input type='hidden' name='gform_ajax' value='form_id=35&title=&description=&tabindex=0&theme=gravity-theme' /> <input type='hidden' class='gform_hidden' name='gform_submission_method' data-js='gform_submission_method_35' value='iframe' /> <input type='hidden' class='gform_hidden' name='is_submit_35' value='1' /> <input type='hidden' class='gform_hidden' name='gform_submit' value='35' /> <input type='hidden' class='gform_hidden' name='gform_unique_id' value='' /> <input type='hidden' class='gform_hidden' name='state_35' value='WyJbXSIsImRhODZkOTEyM2FhMDJkZTQxODJmNzc4MDBlYmM3NWVkIl0=' /> <input type='hidden' autocomplete='off' class='gform_hidden' name='gform_target_page_number_35' id='gform_target_page_number_35' value='0' /> <input type='hidden' autocomplete='off' class='gform_hidden' name='gform_source_page_number_35' id='gform_source_page_number_35' value='1' /> <input type='hidden' name='gform_field_values' value='' /> <input type='hidden' name='gform_uploaded_files' id='gform_uploaded_files_35' value='' /> </div> </form> </div> <iframe style='display:none;width:0px;height:0px;' src='about:blank' name='gform_ajax_frame_35' id='gform_ajax_frame_35' title='This iframe contains the logic required to handle Ajax powered Gravity Forms.'></iframe> <script type="text/javascript"> /* <![CDATA[ */ gform.initializeOnLoaded( function() {gformInitSpinner( 35, 'https://rarediseases.org/wp-content/plugins/gravityforms/images/spinner.svg', true );jQuery('#gform_ajax_frame_35').on('load',function(){var contents = jQuery(this).contents().find('*').html();var is_postback = contents.indexOf('GF_AJAX_POSTBACK') >= 0;if(!is_postback){return;}var form_content = jQuery(this).contents().find('#gform_wrapper_35');var is_confirmation = jQuery(this).contents().find('#gform_confirmation_wrapper_35').length > 0;var is_redirect = contents.indexOf('gformRedirect(){') >= 0;var is_form = form_content.length > 0 && ! is_redirect && ! is_confirmation;var mt = parseInt(jQuery('html').css('margin-top'), 10) + parseInt(jQuery('body').css('margin-top'), 10) + 100;if(is_form){jQuery('#gform_wrapper_35').html(form_content.html());if(form_content.hasClass('gform_validation_error')){jQuery('#gform_wrapper_35').addClass('gform_validation_error');} else {jQuery('#gform_wrapper_35').removeClass('gform_validation_error');}setTimeout( function() { /* delay the scroll by 50 milliseconds to fix a bug in chrome */ jQuery(document).scrollTop(jQuery('#gform_wrapper_35').offset().top - mt); }, 50 );if(window['gformInitDatepicker']) {gformInitDatepicker();}if(window['gformInitPriceFields']) {gformInitPriceFields();}var current_page = jQuery('#gform_source_page_number_35').val();gformInitSpinner( 35, 'https://rarediseases.org/wp-content/plugins/gravityforms/images/spinner.svg', true );jQuery(document).trigger('gform_page_loaded', [35, current_page]);window['gf_submitting_35'] = false;}else if(!is_redirect){var confirmation_content = jQuery(this).contents().find('.GF_AJAX_POSTBACK').html();if(!confirmation_content){confirmation_content = contents;}jQuery('#gform_wrapper_35').replaceWith(confirmation_content);jQuery(document).scrollTop(jQuery('#gf_35').offset().top - mt);jQuery(document).trigger('gform_confirmation_loaded', [35]);window['gf_submitting_35'] = false;wp.a11y.speak(jQuery('#gform_confirmation_message_35').text());}else{jQuery('#gform_35').append(contents);if(window['gformRedirect']) {gformRedirect();}}jQuery(document).trigger("gform_pre_post_render", [{ formId: "35", currentPage: "current_page", abort: function() { this.preventDefault(); } }]); if (event && event.defaultPrevented) { return; } const gformWrapperDiv = document.getElementById( "gform_wrapper_35" ); if ( gformWrapperDiv ) { const visibilitySpan = document.createElement( "span" ); visibilitySpan.id = "gform_visibility_test_35"; gformWrapperDiv.insertAdjacentElement( "afterend", visibilitySpan ); } const visibilityTestDiv = document.getElementById( "gform_visibility_test_35" ); let postRenderFired = false; function triggerPostRender() { if ( postRenderFired ) { return; } postRenderFired = true; jQuery( document ).trigger( 'gform_post_render', [35, current_page] ); gform.utils.trigger( { event: 'gform/postRender', native: false, data: { formId: 35, currentPage: current_page } } ); gform.utils.trigger( { event: 'gform/post_render', native: false, data: { formId: 35, currentPage: current_page } } ); if ( visibilityTestDiv ) { visibilityTestDiv.parentNode.removeChild( visibilityTestDiv ); } } function debounce( func, wait, immediate ) { var timeout; return function() { var context = this, args = arguments; var later = function() { timeout = null; if ( !immediate ) func.apply( context, args ); }; var callNow = immediate && !timeout; clearTimeout( timeout ); timeout = setTimeout( later, wait ); if ( callNow ) func.apply( context, args ); }; } const debouncedTriggerPostRender = debounce( function() { triggerPostRender(); }, 200 ); if ( visibilityTestDiv && visibilityTestDiv.offsetParent === null ) { const observer = new MutationObserver( ( mutations ) => { mutations.forEach( ( mutation ) => { if ( mutation.type === 'attributes' && visibilityTestDiv.offsetParent !== null ) { debouncedTriggerPostRender(); observer.disconnect(); } }); }); observer.observe( document.body, { attributes: true, childList: false, subtree: true, attributeFilter: [ 'style', 'class' ], }); } else { triggerPostRender(); } } );} ); /* ]]> */ </script> </div> <button type="button" class="pum-close popmake-close" aria-label="Close"> × </button> </div> </div> <div id="pum-257856" role="dialog" aria-modal="false" class="pum pum-overlay pum-theme-11442 pum-theme-content-only popmake-overlay click_open" data-popmake="{"id":257856,"slug":"rdd-sponsorship-inquiries","theme_id":11442,"cookies":[],"triggers":[{"type":"click_open","settings":{"cookie_name":"","extra_selectors":""}}],"mobile_disabled":null,"tablet_disabled":null,"meta":{"display":{"stackable":false,"overlay_disabled":false,"scrollable_content":false,"disable_reposition":false,"size":"medium","responsive_min_width":"0%","responsive_min_width_unit":false,"responsive_max_width":"100%","responsive_max_width_unit":false,"custom_width":"640px","custom_width_unit":false,"custom_height":"380px","custom_height_unit":false,"custom_height_auto":false,"location":"center","position_from_trigger":false,"position_top":"100","position_left":"0","position_bottom":"0","position_right":"0","position_fixed":false,"animation_type":"fade","animation_speed":"350","animation_origin":"center top","overlay_zindex":false,"zindex":"1999999999"},"close":{"text":"","button_delay":"0","overlay_click":false,"esc_press":false,"f4_press":false},"click_open":[]}}"> <div id="popmake-257856" class="pum-container popmake theme-11442 pum-responsive pum-responsive-medium responsive size-medium"> <div class="pum-content popmake-content" tabindex="0"> <div class='gf_browser_ie gf_browser_ie7 gform_wrapper gravity-theme gform-theme--no-framework' data-form-theme='gravity-theme' data-form-index='0' id='gform_wrapper_33' ><div id='gf_33' class='gform_anchor' tabindex='-1'></div><form method='post' enctype='multipart/form-data' target='gform_ajax_frame_33' id='gform_33' action='/living-with-a-rare-disease/how-nord-can-help/#gf_33' data-formid='33' novalidate><div class="nitro-exclude"><input type="hidden" id="g-recaptcha-response" name="g-recaptcha-response" /><script nitro-exclude> <input type='hidden' class='gforms-pum' value='{"closepopup":false,"closedelay":0,"openpopup":false,"openpopup_id":0}' /> grecaptcha.ready(function() { grecaptcha.execute("6Lc_CEopAAAAACjj_tyibG1kHMOp5bOEly7_pvZb", {action: "submit"}).then(function(token) { var recaptchaResponse = document.getElementById("g-recaptcha-response"); if (recaptchaResponse) { recaptchaResponse.value = token; } }); }); </script></div> <div class='gform-body gform_body'><div id='gform_fields_33' class='gform_fields top_label form_sublabel_above description_above validation_below'><fieldset id="field_33_1" class="gfield gfield--type-name gfield--input-type-name gfield_contains_required field_sublabel_above gfield--no-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_33_1" ><legend class='gfield_label gform-field-label gfield_label_before_complex' >Name<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></legend><div class='ginput_complex ginput_container ginput_container--name no_prefix has_first_name no_middle_name has_last_name no_suffix gf_name_has_2 ginput_container_name gform-grid-row' id='input_33_1'> <span id='input_33_1_3_container' class='name_first gform-grid-col gform-grid-col--size-auto' > <label for='input_33_1_3' class='gform-field-label gform-field-label--type-sub '>First</label> <input type='text' name='input_1.3' id='input_33_1_3' value='' aria-required='true' autocomplete="given-name" /> </span> <span id='input_33_1_6_container' class='name_last gform-grid-col gform-grid-col--size-auto' > <label for='input_33_1_6' class='gform-field-label gform-field-label--type-sub '>Last</label> <input type='text' name='input_1.6' id='input_33_1_6' value='' aria-required='true' autocomplete="family-name" /> </span> </div></fieldset><fieldset id="field_33_2" class="gfield gfield--type-email gfield--input-type-email gfield_contains_required field_sublabel_above gfield--no-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_33_2" ><legend class='gfield_label gform-field-label gfield_label_before_complex' >Email<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></legend><div class='ginput_complex ginput_container ginput_container_email gform-grid-row' id='input_33_2_container'> <span id='input_33_2_1_container' class='ginput_left gform-grid-col gform-grid-col--size-auto'> <label for='input_33_2' class='gform-field-label gform-field-label--type-sub '>Enter Email</label> <input class='' type='email' name='input_2' id='input_33_2' value='' aria-required="true" aria-invalid="false" autocomplete="email"/> </span> <span id='input_33_2_2_container' class='ginput_right gform-grid-col gform-grid-col--size-auto'> <label for='input_33_2_2' class='gform-field-label gform-field-label--type-sub '>Confirm Email</label> <input class='' type='email' name='input_2_2' id='input_33_2_2' value='' aria-required="true" aria-invalid="false" autocomplete="email"/> </span> <div class='gf_clear gf_clear_complex'></div> </div></fieldset><div id="field_33_3" class="gfield gfield--type-textarea gfield--input-type-textarea gfield_contains_required field_sublabel_above gfield--has-description field_description_above field_validation_below gfield_visibility_visible" data-js-reload="field_33_3" ><label class='gfield_label gform-field-label' for='input_33_3'>Comments<span class="gfield_required"><span class="gfield_required gfield_required_text">(Required)</span></span></label><div class='gfield_description' id='gfield_description_33_3'>Please let us know what's on your mind. 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