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amyloidosis patients.</p> </div> </div> </div> </div> <div class="block-full-width-text block-full-width-text__no-bottom-space"> <div class="container"> <div class="row"> <div class="col-lg-12"> <p>At ARC we are committed to understanding the true challenges patients face and what matters most to them.</p> <p><strong>ARC Surveys</strong> and studies are conducted throughout the year with the goal of understanding the experiences of patients and caregivers. The purpose of the surveys can vary from gaining perspectives on the journey to diagnosis to clinical experiences, evaluating the benefit versus risk that patients are willing to take with treatments, and other insights.</p> <p><strong>Focus Groups & Patient Panels</strong> can provide you with a unique opportunity to give input into shaping research. These forums may review planned research or assess the value of different types of treatments through the eyes of patients. This provides important insights, and can lead to improvements in the research that is being done.</p> <p><strong>Advocacy</strong> is a critical function of our work to improve and extend the lives of those with amyloidosis, and we need your help. We’d love to connect with you if you’re a patient or caregiver willing to be a subject of one of our patient story videos, speak at the Amyloidosis Forum or other amyloidosis events, or help raise awareness about these devastating diseases.</p> <p>If you are willing to participate in our research initiatives, including patient panels, surveys, or other research, please let us know by completing the form below:</p> </div> </div> </div> </div> <div class="block-centre-text block-padding" style="background-color: #fff"> <div class="container"> <div class="row"> <div class="col-lg-8 offset-lg-2 padding-text"> <style>.wForm form{text-align: left;}</style><!-- FORM: HEAD SECTION --> <meta http-equiv="Content-Type" content="text/html; charset=utf-8" /> <meta name="referrer" content="no-referrer-when-downgrade"> <!-- THIS SCRIPT NEEDS TO BE LOADED FIRST BEFORE wforms.js --> <script type="text/javascript" data-for="FA__DOMContentLoadedEventDispatch" 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for="tfa_13">Phone number</label><br><div class="inputWrapper"><input type="text" id="tfa_13" name="tfa_13" value="" autocomplete="tel" min="1111111111" max="9999999999" title="Phone number" class=""></div> </div> </div> <div class="oneField field-container-D " id="tfa_167-D" role="group" aria-labelledby="tfa_167-L" data-tfa-labelledby="-L tfa_167-L"> <label id="tfa_167-L" class="label preField " data-tfa-check-label-for="tfa_167">I'd like to participate in the following as they become available:</label><br><div class="inputWrapper"><span id="tfa_167" class="choices vertical "><span class="oneChoice"><input type="checkbox" value="tfa_173" class="" id="tfa_173" name="tfa_173" aria-labelledby="tfa_173-L" data-tfa-labelledby="tfa_167-L tfa_173-L" data-tfa-parent-id="tfa_167"><label class="label postField" id="tfa_173-L" for="tfa_173"><span class="input-checkbox-faux"></span>ARC Surveys</label></span><span class="oneChoice"><input type="checkbox" value="tfa_169" class="" id="tfa_169" name="tfa_169" aria-labelledby="tfa_169-L" data-tfa-labelledby="tfa_167-L tfa_169-L" data-tfa-parent-id="tfa_167"><label class="label postField" id="tfa_169-L" for="tfa_169"><span class="input-checkbox-faux"></span>Focus Groups & Patient Panels</label></span><span class="oneChoice"><input type="checkbox" value="tfa_170" class="" id="tfa_170" name="tfa_170" aria-labelledby="tfa_170-L" data-tfa-labelledby="tfa_167-L tfa_170-L" data-tfa-parent-id="tfa_167"><label class="label postField" id="tfa_170-L" for="tfa_170"><span class="input-checkbox-faux"></span>Other Research Opportunities</label></span><span class="oneChoice"><input type="checkbox" value="tfa_168" class="" id="tfa_168" name="tfa_168" aria-labelledby="tfa_168-L" data-tfa-labelledby="tfa_167-L tfa_168-L" data-tfa-parent-id="tfa_167"><label class="label postField" id="tfa_168-L" for="tfa_168"><span class="input-checkbox-faux"></span>Advocacy</label></span></span></div> </div> <div id="tfa_291" class="section group"> <div class="oneField field-container-D " id="tfa_292-D" role="group" aria-labelledby="tfa_292-L" data-tfa-labelledby="-L tfa_292-L"> <label id="tfa_292-L" class="label preField reqMark" data-tfa-check-label-for="tfa_292" aria-label="I am a... required">I am a...</label><br><div class="inputWrapper"><span id="tfa_292" class="choices horizontal required"><span class="oneChoice"><input type="checkbox" value="tfa_293" class="" id="tfa_293" name="tfa_293" data-conditionals="#tfa_305,#tfa_237,#tfa_208" aria-labelledby="tfa_293-L" data-tfa-labelledby="tfa_292-L tfa_293-L" data-tfa-parent-id="tfa_292"><label class="label postField" id="tfa_293-L" for="tfa_293"><span class="input-checkbox-faux"></span>Patient</label></span><span class="oneChoice"><input type="checkbox" value="tfa_294" class="" id="tfa_294" name="tfa_294" data-conditionals="#tfa_305,#tfa_317,#tfa_208" aria-labelledby="tfa_294-L" data-tfa-labelledby="tfa_292-L tfa_294-L" data-tfa-parent-id="tfa_292"><label class="label postField" id="tfa_294-L" for="tfa_294"><span class="input-checkbox-faux"></span>Potential Patient</label></span><span class="oneChoice"><input type="checkbox" value="tfa_295" class="" id="tfa_295" name="tfa_295" data-conditionals="#tfa_305,#tfa_317,#tfa_208" aria-labelledby="tfa_295-L" data-tfa-labelledby="tfa_292-L tfa_295-L" data-tfa-parent-id="tfa_292"><label class="label postField" id="tfa_295-L" for="tfa_295"><span class="input-checkbox-faux"></span>Caregiver</label></span><span class="oneChoice"><input type="checkbox" value="tfa_296" class="" id="tfa_296" name="tfa_296" data-conditionals="#tfa_305,#tfa_317" aria-labelledby="tfa_296-L" data-tfa-labelledby="tfa_292-L tfa_296-L" data-tfa-parent-id="tfa_292"><label class="label postField" id="tfa_296-L" for="tfa_296"><span class="input-checkbox-faux"></span>Patient Family/Friend</label></span><span class="oneChoice"><input type="checkbox" value="tfa_331" class="" id="tfa_331" name="tfa_331" aria-labelledby="tfa_331-L" data-tfa-labelledby="tfa_292-L tfa_331-L" data-tfa-parent-id="tfa_292"><label class="label postField" id="tfa_331-L" for="tfa_331"><span class="input-checkbox-faux"></span>Loved One of Patient Who Passed</label></span><span class="oneChoice"><input type="checkbox" value="tfa_297" class="" id="tfa_297" name="tfa_297" aria-labelledby="tfa_297-L" data-tfa-labelledby="tfa_292-L tfa_297-L" data-tfa-parent-id="tfa_292"><label class="label postField" id="tfa_297-L" for="tfa_297"><span class="input-checkbox-faux"></span>Nurse</label></span><span class="oneChoice"><input type="checkbox" value="tfa_298" class="" id="tfa_298" name="tfa_298" aria-labelledby="tfa_298-L" data-tfa-labelledby="tfa_292-L tfa_298-L" data-tfa-parent-id="tfa_292"><label class="label postField" id="tfa_298-L" for="tfa_298"><span class="input-checkbox-faux"></span>Clinician</label></span><span class="oneChoice"><input type="checkbox" value="tfa_299" class="" id="tfa_299" name="tfa_299" aria-labelledby="tfa_299-L" data-tfa-labelledby="tfa_292-L tfa_299-L" data-tfa-parent-id="tfa_292"><label class="label postField" id="tfa_299-L" for="tfa_299"><span class="input-checkbox-faux"></span>Scientist</label></span><span class="oneChoice"><input type="checkbox" value="tfa_302" class="" id="tfa_302" name="tfa_302" data-conditionals="#tfa_304" aria-labelledby="tfa_302-L" data-tfa-labelledby="tfa_292-L tfa_302-L" data-tfa-parent-id="tfa_292"><label class="label postField" id="tfa_302-L" for="tfa_302"><span class="input-checkbox-faux"></span>Other</label></span></span></div> </div> <div id="tfa_303" class="section inline group"> <div class="oneField field-container-D " id="tfa_304-D"> <label id="tfa_304-L" class="label preField " for="tfa_304">If other, please describe:</label><br><div class="inputWrapper"><input type="text" id="tfa_304" name="tfa_304" value="" data-condition="`#tfa_302`" title="If other, please describe:" class=""></div> </div> <div class="oneField field-container-D " id="tfa_305-D"> <label id="tfa_305-L" class="label preField reqMark" for="tfa_305">Amyloidosis Type</label><br><div class="inputWrapper"><select aria-required="true" id="tfa_305" autocomplete="off" name="tfa_305" data-condition="`#tfa_293` AND NOT (`#tfa_294`) AND NOT (`#tfa_295`) AND NOT (`#tfa_296`)" title="Amyloidosis Type" class="required"><option value="">Please select...</option> <option value="tfa_306" id="tfa_306" class="">AA</option> <option value="tfa_307" id="tfa_307" class="">AL Amyloidosis</option> <option value="tfa_308" id="tfa_308" class="">AB2M</option> <option value="tfa_309" id="tfa_309" class="">ALect2</option> <option value="tfa_310" id="tfa_310" data-conditionals="#tfa_330" class="">Hereditary ATTR</option> <option value="tfa_311" id="tfa_311" data-conditionals="#tfa_330" class="">Hereditary Non-TTR</option> <option value="tfa_312" id="tfa_312" class="">Hereditary Untyped</option> <option value="tfa_313" id="tfa_313" class="">Localized</option> <option value="tfa_314" id="tfa_314" class="">Wild-Type ATTR</option> <option value="tfa_315" id="tfa_315" class="">Untyped</option> <option value="tfa_316" id="tfa_316" data-conditionals="#tfa_329" class="">Other</option></select></div> </div> <div class="oneField field-container-D " id="tfa_317-D"> <label id="tfa_317-L" class="label preField " for="tfa_317">Amyloidosis Type (if known)</label><br><div class="inputWrapper"><select id="tfa_317" autocomplete="off" name="tfa_317" data-condition="`#tfa_294` OR `#tfa_295` OR `#tfa_296`" title="Amyloidosis Type (if known)" class=""><option value="">Please select...</option> <option value="tfa_318" id="tfa_318" class="">AA</option> <option value="tfa_319" id="tfa_319" class="">AL Amyloidosis</option> <option value="tfa_320" id="tfa_320" class="">AB2M</option> <option value="tfa_321" id="tfa_321" class="">ALect2</option> <option value="tfa_322" id="tfa_322" data-conditionals="#tfa_330" class="">Hereditary ATTR</option> <option value="tfa_323" id="tfa_323" data-conditionals="#tfa_330" class="">Hereditary Non-TTR</option> <option value="tfa_324" id="tfa_324" class="">Hereditary Untyped</option> <option value="tfa_325" id="tfa_325" class="">Localized</option> <option value="tfa_326" id="tfa_326" class="">Wild-Type ATTR</option> <option value="tfa_327" id="tfa_327" class="">Untyped</option> <option value="tfa_328" id="tfa_328" data-conditionals="#tfa_329" class="">Other</option></select></div> </div> <div class="oneField field-container-D " id="tfa_329-D"> <label id="tfa_329-L" class="label preField " for="tfa_329">If other type, please explain:</label><br><div class="inputWrapper"><input type="text" id="tfa_329" name="tfa_329" value="" data-condition="`#tfa_316` OR `#tfa_328`" title="If other type, please explain:" class=""></div> </div> <div class="oneField field-container-D " id="tfa_330-D"> <label id="tfa_330-L" class="label preField " for="tfa_330">Variant (if known)</label><br><div class="inputWrapper"> <input type="text" id="tfa_330" name="tfa_330" value="" autocomplete="off" aria-describedby="tfa_330-HH" data-condition="`#tfa_310` OR `#tfa_322` OR `#tfa_311` OR `#tfa_323`" title="Variant (if known)" class=""><span class="field-hint-inactive" id="tfa_330-H"><span id="tfa_330-HH" class="hint">Should be in the format "Abc12Abc", ex: Val30Met</span></span> </div> </div> </div> </div> <div id="tfa_156" class="section inline group"> <div class="oneField field-container-D " id="tfa_237-D"> <label id="tfa_237-L" class="label preField " for="tfa_237">Year of Diagnosis</label><br><div class="inputWrapper"><input type="text" id="tfa_237" name="tfa_237" value="" maxlength="4" data-condition="`#tfa_293`" title="Year of Diagnosis" class="validate-alphanum"></div> </div> <div class="oneField field-container-D " id="tfa_238-D"> <label id="tfa_238-L" class="label preField " for="tfa_238">Birthday</label><br><div class="inputWrapper"> <input type="text" id="tfa_238" name="tfa_238" value="" autocomplete="bday" aria-describedby="tfa_238-HH" min="1800" max="2023" title="Birthday" class="validate-date calc-birthday"><span class="field-hint-inactive" id="tfa_238-H"><span id="tfa_238-HH" class="hint">(In mm/dd/yyyy format, please.)</span></span> </div> </div> <div class="oneField field-container-D wf-acl-hidden" id="tfa_239-D"> <label id="tfa_239-L" class="label preField " for="tfa_239">Birth Year</label><br><div class="inputWrapper"><input type="text" id="tfa_239" name="tfa_239" value="" readonly title="Birth Year" class="formula=birthday.substring(birthday.length-4); readonly"></div> </div> </div> <div class="oneField field-container-D " id="tfa_431-D"> <label id="tfa_431-L" class="label preField " for="tfa_431">Please list any non-English languages you speak</label><br><div class="inputWrapper"><input type="text" id="tfa_431" name="tfa_431" value="" title="Please list any non-English languages you speak" class=""></div> </div> <div class="oneField field-container-D " id="tfa_208-D" role="group" aria-labelledby="tfa_208-L" data-tfa-labelledby="-L tfa_208-L"> <label id="tfa_208-L" class="label preField " data-tfa-check-label-for="tfa_208">Are any of the following symptoms present:</label><br><div class="inputWrapper"><span id="tfa_208" class="choices vertical " data-condition="`#tfa_293` OR `#tfa_294` OR `#tfa_295`"><span class="oneChoice"><input type="checkbox" value="tfa_209" class="" id="tfa_209" name="tfa_209" aria-labelledby="tfa_209-L" data-tfa-labelledby="tfa_208-L tfa_209-L" data-tfa-parent-id="tfa_208"><label class="label postField" id="tfa_209-L" for="tfa_209"><span class="input-checkbox-faux"></span><span style="color: rgb(32, 33, 36); font-family: Roboto, Arial, sans-serif; font-size: 14.6667px; white-space-collapse: preserve;">Nerve symptoms (neuropathy)</span></label></span><span class="oneChoice"><input type="checkbox" value="tfa_210" class="" id="tfa_210" name="tfa_210" aria-labelledby="tfa_210-L" data-tfa-labelledby="tfa_208-L tfa_210-L" data-tfa-parent-id="tfa_208"><label class="label postField" id="tfa_210-L" for="tfa_210"><span class="input-checkbox-faux"></span><span style="color: rgb(32, 33, 36); font-family: Roboto, Arial, sans-serif; font-size: 14.6667px; white-space-collapse: preserve;">Cardiac symptoms (cardiomyopathy)</span></label></span><span class="oneChoice"><input type="checkbox" value="tfa_211" class="" id="tfa_211" name="tfa_211" aria-labelledby="tfa_211-L" data-tfa-labelledby="tfa_208-L tfa_211-L" data-tfa-parent-id="tfa_208"><label class="label postField" id="tfa_211-L" for="tfa_211"><span class="input-checkbox-faux"></span><span style="color: rgb(32, 33, 36); font-family: Roboto, Arial, sans-serif; font-size: 14.6667px; white-space-collapse: preserve;">Renal (kidney) symptoms</span></label></span><span class="oneChoice"><input type="checkbox" value="tfa_212" class="" id="tfa_212" name="tfa_212" aria-labelledby="tfa_212-L" data-tfa-labelledby="tfa_208-L tfa_212-L" data-tfa-parent-id="tfa_208"><label class="label postField" id="tfa_212-L" for="tfa_212"><span class="input-checkbox-faux"></span><span style="color: rgb(32, 33, 36); font-family: Roboto, Arial, sans-serif; font-size: 14.6667px; white-space-collapse: preserve;">Gastrointestinal (GI) symptoms</span></label></span></span></div> </div> </div></div></div> <div class="wfPage" id="wfPgIndex-2"><div class="section pageSection" id="tfa_287"> <h4 id="tfa_287-T">Additional Information</h4> <div class="htmlSection" id="tfa_272"><div class="htmlContent" id="tfa_272-HTML"><i>Address details help us build future programs to better fit our community. Your information will not be shared.</i></div></div> <div id="tfa_285" class="section inline group"> <div class="oneField field-container-D " id="tfa_277-D"> <label id="tfa_277-L" class="label preField " for="tfa_277">Address Line 1</label><br><div class="inputWrapper"> <input type="text" id="tfa_277" name="tfa_277" value="" autocomplete="no-address-autocomplete" title="Address Line 1" data-dataset-allow-free-responses="0" data-dataset-clear-cache="" data-dataset-timestamp="1711377926" data-dataset-id="e4ee1856-e9c3-4de1-9ffc-1ea5dd3fa7a1" data-dataset-map="b=tfa_280,c=tfa_283,d=tfa_281,e=tfa_284," data-dataset-type="address-autocomplete" data-dataset-url="https://arci.tfaforms.net/api_v2/datasets" class="wfAutosuggest"><i class="fa fa-spinner fa-pulse fa-fw tt-spinner"></i><i class="fa fa-search tt-search" aria-hidden="true"></i><i class="fa fa-times-circle tt-clear no-input" tabindex="0" aria-label="Clear field" role="button"></i> </div> </div> <div class="oneField field-container-D " id="tfa_278-D"> <label id="tfa_278-L" class="label preField " for="tfa_278">Address Line 2</label><br><div class="inputWrapper"><input type="text" id="tfa_278" name="tfa_278" value="" autocomplete="address-line2" title="Address Line 2" class=""></div> </div> </div> <div id="tfa_279" class="section inline group"> <div class="oneField field-container-D " id="tfa_280-D"> <label id="tfa_280-L" class="label preField " for="tfa_280">City/Town</label><br><div class="inputWrapper"><input type="text" id="tfa_280" name="tfa_280" value="" title="City/Town" class=""></div> </div> <div class="oneField field-container-D " id="tfa_281-D"> <label id="tfa_281-L" class="label preField " for="tfa_281">State/Province</label><br><div class="inputWrapper"><input type="text" id="tfa_281" name="tfa_281" value="" title="State/Province" class=""></div> </div> <div id="tfa_282" class="section inline group"> <div class="oneField field-container-D " id="tfa_283-D"> <label id="tfa_283-L" class="label preField " for="tfa_283">Postal Code</label><br><div class="inputWrapper"><input type="text" id="tfa_283" name="tfa_283" value="" autocomplete="postal-code" title="Postal Code" class="validate-alphanum"></div> </div> <div class="oneField field-container-D " id="tfa_284-D"> <label id="tfa_284-L" class="label preField " for="tfa_284">Country</label><br><div class="inputWrapper"><input type="text" id="tfa_284" name="tfa_284" value="" autocomplete="country-name" title="Country" class=""></div> </div> </div> </div> <div class="oneField field-container-D " id="tfa_267-D"> <label id="tfa_267-L" class="label preField " for="tfa_267">Please provide any additional information you feel might be helpful for us to know (If applicable: treatments received, resources that have been helpful to you, clinical trial experience or interest level, etc.)</label><br><div class="inputWrapper"><textarea cols="100%" rows="100px" id="tfa_267" name="tfa_267" title="Please provide any additional information you feel might be helpful for us to know (If applicable: treatments received, resources that have been helpful to you, clinical trial experience or interest level, etc.)" class=""></textarea></div> </div> <div id="tfa_414" class="section inline group"> <div class="oneField field-container-D " id="tfa_415-D"> <label id="tfa_415-L" class="label preField " for="tfa_415">How Did You Hear About ARC?</label><br><div class="inputWrapper"><select id="tfa_415" name="tfa_415" title="How Did You Hear About ARC?" class=""><option value="">Please select...</option> <option value="tfa_416" id="tfa_416" class="">Web Search (Google, etc.)</option> <option value="tfa_417" id="tfa_417" data-conditionals="#tfa_429" class="">Referral from Healthcare Provider</option> <option value="tfa_418" id="tfa_418" data-conditionals="#tfa_424" class="">Social Media</option> <option value="tfa_419" id="tfa_419" data-conditionals="#tfa_430" class="">Patient Support Group or Patient Advocate</option> <option value="tfa_420" id="tfa_420" class="">Friend or Family Member</option> <option value="tfa_421" id="tfa_421" class="">Colleague or Employer</option> <option value="tfa_422" id="tfa_422" data-conditionals="#tfa_423" class="">Other</option></select></div> </div> <div class="oneField field-container-D " id="tfa_423-D"> <label id="tfa_423-L" class="label preField " for="tfa_423">Please tell us how you heard about ARC:</label><br><div class="inputWrapper"><input type="text" id="tfa_423" name="tfa_423" value="" autocomplete="off" data-condition="`#tfa_422`" title="Please tell us how you heard about ARC:" class=""></div> </div> <div class="oneField field-container-D " id="tfa_424-D"> <label id="tfa_424-L" class="label preField " for="tfa_424">Please specify which social media site you found us on:</label><br><div class="inputWrapper"> <select id="tfa_424" name="tfa_424" data-condition="`#tfa_418`" title="Please specify which social media site you found us on:" aria-describedby="tfa_424-HH" class=""><option value="">Please select...</option> <option value="tfa_425" id="tfa_425" class="">Facebook</option> <option value="tfa_426" id="tfa_426" class="">LinkedIn</option> <option value="tfa_427" id="tfa_427" class="">Twitter (X)</option> <option value="tfa_428" id="tfa_428" class="">YouTube</option></select><span class="field-hint-inactive" id="tfa_424-H"><span id="tfa_424-HH" class="hint">Knowing which social media site you found us on helps us tailor our efforts and better connect with others.</span></span> </div> </div> <div class="oneField field-container-D " id="tfa_429-D"> <label id="tfa_429-L" class="label preField " for="tfa_429">Please specify the healthcare provider/clinic who referred you (optional):</label><br><div class="inputWrapper"> <input type="text" id="tfa_429" name="tfa_429" value="" autocomplete="off" aria-describedby="tfa_429-HH" data-condition="`#tfa_417`" title="Please specify the healthcare provider/clinic who referred you (optional):" class=""><span class="field-hint-inactive" id="tfa_429-H"><span id="tfa_429-HH" class="hint">If a doctor or clinic helped, please share their name. It helps us track connections and show our appreciation!</span></span> </div> </div> <div class="oneField field-container-D " id="tfa_430-D"> <label id="tfa_430-L" class="label preField " for="tfa_430">Please specify the support group or patient advocate who referred you (optional):</label><br><div class="inputWrapper"> <input type="text" id="tfa_430" name="tfa_430" value="" autocomplete="off" aria-describedby="tfa_430-HH" data-condition="`#tfa_419`" title="Please specify the support group or patient advocate who referred you (optional):" class=""><span class="field-hint-inactive" id="tfa_430-H"><span id="tfa_430-HH" class="hint">If a group or patient advocate helped, please share their name. 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