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<!DOCTYPE html> <html lang="en-US"> <head> <meta charset="UTF-8" /> <meta http-equiv="X-UA-Compatible" content="IE=edge"> <link rel="pingback" href="https://www.progeriaresearch.org/xmlrpc.php" /> <script type="text/javascript"> document.documentElement.className = 'js'; </script> <link rel="preconnect" href="https://fonts.gstatic.com" crossorigin /><style id="et-builder-googlefonts-cached-inline">/* Original: https://fonts.googleapis.com/css?family=Nunito+Sans:200,200italic,300,300italic,regular,italic,600,600italic,700,700italic,800,800italic,900,900italic|Lato:100,100italic,300,300italic,regular,italic,700,700italic,900,900italic&subset=latin,latin-ext&display=swap *//* User Agent: Mozilla/5.0 (Unknown; Linux x86_64) AppleWebKit/538.1 (KHTML, like Gecko) Safari/538.1 Daum/4.1 */@font-face {font-family: 'Lato';font-style: italic;font-weight: 100;font-display: swap;src: url(https://fonts.gstatic.com/s/lato/v24/S6u-w4BMUTPHjxsIPx-mPCc.ttf) format('truetype');}@font-face {font-family: 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href="https://interland3.donorperfect.net/weblink/weblink.aspx?name=E13407&id=4">Join Our Mailing List</a> </div> </div> </div> <div class="et_pb_fullwidth_header_overlay"></div> <div class="et_pb_fullwidth_header_scroll"></div> </section> </div><div class="et_pb_section et_pb_section_1 et_pb_with_background et_section_regular" > <div class="et_pb_row et_pb_row_0 et_pb_equal_columns et_pb_gutters1"> <div class="et_pb_column et_pb_column_1_2 et_pb_column_0 et_hover_enabled et_pb_css_mix_blend_mode_passthrough"> <div class="et_pb_module et_pb_blurb et_pb_blurb_0 vision-box et_hover_enabled et_pb_section_video_on_hover et_pb_text_align_center et_pb_blurb_position_top et_pb_bg_layout_dark"> <div class="et_pb_blurb_content"> <div class="et_pb_blurb_container"> <h1 class="et_pb_module_header"><span>Vision</span></h1> <div class="et_pb_blurb_description"><p>Our vision is a world in which every child with Progeria is cured.</p></div> </div> </div> </div> </div><div class="et_pb_column et_pb_column_1_2 et_pb_column_1 et_hover_enabled et_pb_css_mix_blend_mode_passthrough et-last-child"> <div class="et_pb_module et_pb_blurb et_pb_blurb_1 mission-box et_hover_enabled et_pb_section_video_on_hover et_pb_text_align_center et_pb_blurb_position_top et_pb_bg_layout_dark"> <div class="et_pb_blurb_content"> <div class="et_pb_blurb_container"> <h1 class="et_pb_module_header"><span>Mission</span></h1> <div class="et_pb_blurb_description"><p>To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.</p></div> </div> </div> </div> </div> </div> </div><div class="et_pb_section et_pb_section_2 et_section_regular" > <div class="et_pb_row et_pb_row_1 et_pb_row_fullwidth et_pb_equal_columns et_pb_gutters1"> <div class="et_pb_column et_pb_column_4_4 et_pb_column_2 et_pb_css_mix_blend_mode_passthrough et-last-child"> <div class="et_pb_module et_pb_blurb et_pb_blurb_2 vision-mobile et_hover_enabled et_pb_section_video_on_hover et_pb_text_align_left et_pb_blurb_position_top et_pb_bg_layout_light"> <div class="et_pb_blurb_content"> <div class="et_pb_blurb_container"> <h4 class="et_pb_module_header"><span>Vision</span></h4> <div class="et_pb_blurb_description"><p>Our vision is a world in which every child with Progeria is cured.</p></div> </div> </div> </div> </div> </div><div class="et_pb_row et_pb_row_2 et_pb_row_fullwidth et_pb_equal_columns et_pb_gutters1"> <div class="et_pb_column et_pb_column_4_4 et_pb_column_3 et_pb_css_mix_blend_mode_passthrough et-last-child"> <div class="et_pb_module et_pb_blurb et_pb_blurb_3 mission-mobile et_hover_enabled et_pb_section_video_on_hover et_pb_text_align_left et_pb_blurb_position_top et_pb_bg_layout_light"> <div class="et_pb_blurb_content"> <div class="et_pb_blurb_container"> <h4 class="et_pb_module_header"><span>Mission</span></h4> <div class="et_pb_blurb_description"><p>To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.</p></div> </div> </div> </div> </div> </div> </div><div class="et_pb_with_border et_pb_section et_pb_section_3 handprint-bg et_pb_section_parallax et_pb_with_background et_section_regular" > <span class="et_parallax_bg_wrap"><span class="et_parallax_bg et_pb_parallax_css" style="background-image: url(https://www.progeriaresearch.org/wp-content/uploads/2019/04/blue-handprint-only.png);" ></span></span> <div class="et_pb_with_border et_pb_row et_pb_row_3 et_pb_gutters1"> <div class="et_pb_column et_pb_column_4_4 et_pb_column_4 et_pb_css_mix_blend_mode_passthrough et-last-child"> <div class="et_pb_module et_pb_text et_pb_text_0 news-header et_pb_text_align_left et_pb_bg_layout_dark"> <div class="et_pb_text_inner"><p style="text-align: center;">Progeria is an ultra-rare, fatal, “rapid-aging” disease that afflicts children who, without the FDA-approved treatment lonafarnib, die of heart disease at an average age of <strong>14.5 years</strong>. PRF is the only non-profit organization solely dedicated to finding treatments and the cure for Progeria, and is making phenomenal progress toward that goal.</p></div> </div> </div> </div><div class="et_pb_with_border et_pb_row et_pb_row_4 et_pb_gutters1"> <div class="et_pb_column et_pb_column_4_4 et_pb_column_5 et_pb_css_mix_blend_mode_passthrough et-last-child"> <div class="et_pb_module et_pb_text et_pb_text_1 news-header et_pb_text_align_left et_pb_bg_layout_light"> <div class="et_pb_text_inner"><h1 style="text-align: center;">News</h1></div> </div> </div> </div><div class="et_pb_row et_pb_row_5 et_pb_row_fullwidth"> <div class="et_pb_column et_pb_column_3_5 et_pb_column_6 et_pb_css_mix_blend_mode_passthrough"> <div class="et_pb_with_border et_pb_module et_pb_blog_0 et_animated et_pb_posts et_pb_bg_layout_light "> <div class="et_pb_ajax_pagination_container"> <article id="post-19665" class="et_pb_post clearfix et_pb_blog_item_0_0 post-19665 post type-post status-publish format-standard has-post-thumbnail hentry category-events category-homepage-news category-uncategorized"> <a href="https://www.progeriaresearch.org/2024/11/20/chip-foose-supportsprf/" class="entry-featured-image-url"><img fetchpriority="high" decoding="async" src="https://www.progeriaresearch.org/wp-content/uploads/2024/11/Chip-Foose-RealTruck-1200-x-1200-px-1080x675.png" alt="Long-time friend and PRF supporter Chip Foose supports PRF with truck auction!" class="" width="1080" height="675" srcset="https://www.progeriaresearch.org/wp-content/uploads/2024/11/Chip-Foose-RealTruck-1200-x-1200-px-1080x675.png 1080w, https://www.progeriaresearch.org/wp-content/uploads/2024/11/Chip-Foose-RealTruck-1200-x-1200-px-980x980.png 980w, https://www.progeriaresearch.org/wp-content/uploads/2024/11/Chip-Foose-RealTruck-1200-x-1200-px-480x480.png 480w" sizes="(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1080px, 100vw" /></a> <h4 class="entry-title"> <a href="https://www.progeriaresearch.org/2024/11/20/chip-foose-supportsprf/">Long-time friend and PRF supporter Chip Foose supports PRF with truck auction!</a> </h4> <div class="post-content"><div class="post-content-inner"><p>Wow – a HUGE thank you to renowned automotive designer Chip Foose and our friends at RealTruck for a very generous donation to PRF! </p> </div><a href="https://www.progeriaresearch.org/2024/11/20/chip-foose-supportsprf/" class="more-link">read more</a></div> </article> <article id="post-19403" class="et_pb_post clearfix et_pb_blog_item_0_1 post-19403 post type-post status-publish format-standard has-post-thumbnail hentry category-homepage-news category-news category-uncategorized"> <a href="https://www.progeriaresearch.org/2024/10/30/prfnewsletter-2024/" class="entry-featured-image-url"><img loading="lazy" decoding="async" src="https://www.progeriaresearch.org/wp-content/uploads/2024/10/aminaNL-1080x675.png" alt="Hot off the presses: PRF’s 2024 Newsletter!" class="" width="1080" height="675" srcset="https://www.progeriaresearch.org/wp-content/uploads/2024/10/aminaNL-1080x675.png 1080w, https://www.progeriaresearch.org/wp-content/uploads/2024/10/aminaNL-980x1338.png 980w, https://www.progeriaresearch.org/wp-content/uploads/2024/10/aminaNL-480x655.png 480w" sizes="(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1080px, 100vw" /></a> <h4 class="entry-title"> <a href="https://www.progeriaresearch.org/2024/10/30/prfnewsletter-2024/">Hot off the presses: PRF’s 2024 Newsletter!</a> </h4> <div class="post-content"><div class="post-content-inner"><p>PRF’s 2024 Newsletter is OUT – check it out for details on the launch of the NEW Progeria clinical trial, get exciting updates on the lives of those you’re supporting, and SO MUCH MORE.</p> </div><a href="https://www.progeriaresearch.org/2024/10/30/prfnewsletter-2024/" class="more-link">read more</a></div> </article> <article id="post-19382" class="et_pb_post clearfix et_pb_blog_item_0_2 post-19382 post type-post status-publish format-standard has-post-thumbnail hentry category-events category-homepage-news category-uncategorized"> <a href="https://www.progeriaresearch.org/boston-marathon-2025/" class="entry-featured-image-url"><img loading="lazy" decoding="async" src="https://www.progeriaresearch.org/wp-content/uploads/2024/10/Boston-Marathon-news-post-2025-teaser-image-1080x675.png" alt="PRF is a member of the 2025 Bank of America Boston Marathon Official Charity Program!" class="" width="1080" height="675" srcset="https://www.progeriaresearch.org/wp-content/uploads/2024/10/Boston-Marathon-news-post-2025-teaser-image-980x980.png 980w, https://www.progeriaresearch.org/wp-content/uploads/2024/10/Boston-Marathon-news-post-2025-teaser-image-480x480.png 480w" sizes="(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1080px, 100vw" /></a> <h4 class="entry-title"> <a href="https://www.progeriaresearch.org/boston-marathon-2025/">PRF is a member of the 2025 Bank of America Boston Marathon Official Charity Program!</a> </h4> <div class="post-content"><div class="post-content-inner"><p>PRF is proud to be a part of the 129th Boston Marathon® presented by Bank of America. Our team of 10 runners will hit the streets on April 21, 2025!</p> </div><a href="https://www.progeriaresearch.org/boston-marathon-2025/" class="more-link">read more</a></div> </article> <article id="post-19459" class="et_pb_post clearfix et_pb_blog_item_0_3 post-19459 post type-post status-publish format-standard has-post-thumbnail hentry category-homepage-news category-news category-uncategorized"> <a href="https://www.progeriaresearch.org/2024/10/09/mourning-the-loss-of-prf-ambassador-sammy-basso/" class="entry-featured-image-url"><img loading="lazy" decoding="async" src="https://www.progeriaresearch.org/wp-content/uploads/2024/10/IMG_3634.jpg" alt="Mourning the loss of PRF Ambassador, Sammy Basso" class="" width="1080" height="675" srcset="https://www.progeriaresearch.org/wp-content/uploads/2024/10/IMG_3634.jpg 1080w, https://www.progeriaresearch.org/wp-content/uploads/2024/10/IMG_3634-480x480.jpg 480w" sizes="(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 1080px, 100vw" /></a> <h4 class="entry-title"> <a href="https://www.progeriaresearch.org/2024/10/09/mourning-the-loss-of-prf-ambassador-sammy-basso/">Mourning the loss of PRF Ambassador, Sammy Basso</a> </h4> <div class="post-content"><div class="post-content-inner"><p>The Progeria Research Foundation honors the life of Progeria researcher and advocate, Sammy Basso. Sammy sadly passed away at the age of 28 on October 5, 2024. </p> </div><a href="https://www.progeriaresearch.org/2024/10/09/mourning-the-loss-of-prf-ambassador-sammy-basso/" class="more-link">read more</a></div> </article> <article id="post-19339" class="et_pb_post clearfix et_pb_blog_item_0_4 post-19339 post type-post status-publish format-standard has-post-thumbnail hentry category-homepage-news category-news category-uncategorized"> <a href="https://www.progeriaresearch.org/2024/09/30/newdrugtrial/" class="entry-featured-image-url"><img loading="lazy" decoding="async" src="https://www.progeriaresearch.org/wp-content/uploads/2024/09/Teaser-PRG-PRF-logo-for-website-home-page-news-post-1080x675.png" alt="BIG NEWS: Announcing the launch of a brand-new clinical drug trial!" class="" width="1080" height="675" srcset="https://www.progeriaresearch.org/wp-content/uploads/2024/09/Teaser-PRG-PRF-logo-for-website-home-page-news-post-980x980.png 980w, https://www.progeriaresearch.org/wp-content/uploads/2024/09/Teaser-PRG-PRF-logo-for-website-home-page-news-post-480x480.png 480w" sizes="(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 1080px, 100vw" /></a> <h4 class="entry-title"> <a href="https://www.progeriaresearch.org/2024/09/30/newdrugtrial/">BIG NEWS: Announcing the launch of a brand-new clinical drug trial!</a> </h4> <div class="post-content"><div class="post-content-inner"><p>We’re back at it! PRF is thrilled to announce the start of a new Progeria clinical trial with a new drug called Progerinin.</p> </div><a href="https://www.progeriaresearch.org/2024/09/30/newdrugtrial/" class="more-link">read more</a></div> </article> </div> </div> <div class="et_pb_button_module_wrapper et_pb_button_0_wrapper et_pb_button_alignment_center et_pb_module "> <a class="et_pb_button et_pb_button_0 et_animated et_pb_bg_layout_dark" href="https://www.progeriaresearch.org/news/">See More</a> </div> </div><div class="et_pb_column et_pb_column_2_5 et_pb_column_7 et_pb_css_mix_blend_mode_passthrough et-last-child"> <div class="et_pb_module et_pb_code et_pb_code_0 et_pb_text_align_right"> <div class="et_pb_code_inner"><iframe loading="lazy" src="https://www.facebook.com/plugins/page.php?href=https%3A%2F%2Fwww.facebook.com%2FProgeriaResearch%2F&tabs=timeline&width=340&height=500&small_header=false&adapt_container_width=true&hide_cover=false&show_facepile=true&appId" width="340" height="500" style="border:none;overflow:hidden" scrolling="no" frameborder="0" allowTransparency="true" allow="encrypted-media"></iframe></div> </div><ul class="et_pb_module et_pb_social_media_follow et_pb_social_media_follow_0 clearfix et_pb_text_align_right et_pb_bg_layout_light"> <li class='et_pb_social_media_follow_network_0 et_pb_social_icon et_pb_social_network_link et-social-facebook'><a href='https://www.facebook.com/ProgeriaResearch/' class='icon et_pb_with_border' title='Follow on Facebook' target="_blank"><span class='et_pb_social_media_follow_network_name' aria-hidden='true' >Follow</span></a></li><li class='et_pb_social_media_follow_network_1 et_pb_social_icon et_pb_social_network_link et-social-twitter'><a href='https://twitter.com/Progeria' class='icon et_pb_with_border' title='Follow on X' target="_blank"><span class='et_pb_social_media_follow_network_name' aria-hidden='true' >Follow</span></a></li><li class='et_pb_social_media_follow_network_2 et_pb_social_icon et_pb_social_network_link et-social-instagram'><a href='https://www.instagram.com/progeriaresearch/' class='icon et_pb_with_border' title='Follow on Instagram' target="_blank"><span class='et_pb_social_media_follow_network_name' aria-hidden='true' >Follow</span></a></li> </ul><div class="et_pb_module et_pb_text et_pb_text_2 et_pb_text_align_left et_pb_bg_layout_light"> </div> </div> </div> </div><div class="et_pb_section et_pb_section_4 et_pb_section_parallax et_section_regular" > <div class="et_pb_row et_pb_row_6"> <div class="et_pb_column et_pb_column_1_3 et_pb_column_8 et_pb_css_mix_blend_mode_passthrough"> <div class="et_pb_module et_pb_blurb et_pb_blurb_4 et_clickable et_pb_text_align_center et_pb_blurb_position_top et_pb_bg_layout_light"> <div class="et_pb_blurb_content"> <div class="et_pb_main_blurb_image"><a href="https://www.progeriaresearch.org/get-involved/"><span class="et_pb_image_wrap et_pb_only_image_mode_wrap"><img loading="lazy" decoding="async" width="728" height="728" src="https://www.progeriaresearch.org/wp-content/uploads/2019/04/1.-Progeria-FAQs-square.jpg" alt="" srcset="https://www.progeriaresearch.org/wp-content/uploads/2019/04/1.-Progeria-FAQs-square.jpg 728w, https://www.progeriaresearch.org/wp-content/uploads/2019/04/1.-Progeria-FAQs-square-150x150.jpg 150w, https://www.progeriaresearch.org/wp-content/uploads/2019/04/1.-Progeria-FAQs-square-300x300.jpg 300w" sizes="(max-width: 728px) 100vw, 728px" class="et-waypoint et_pb_animation_top et_pb_animation_top_tablet et_pb_animation_top_phone wp-image-169" /></span></a></div> <div class="et_pb_blurb_container"> <h1 class="et_pb_module_header"><a href="https://www.progeriaresearch.org/get-involved/">Get Involved</a></h1> <div class="et_pb_blurb_description"><p>Our lonafarnib clinical trials enrolled 107 children from 42 different countries to test this now-FDA-approved treatment. Because of your support, these children and young adults are living longer, healthier lives.</p></div> </div> </div> </div> </div><div class="et_pb_column et_pb_column_1_3 et_pb_column_9 et_pb_css_mix_blend_mode_passthrough"> <div class="et_pb_module et_pb_blurb et_pb_blurb_5 et_clickable et_pb_text_align_center et_pb_blurb_position_top et_pb_bg_layout_light"> <div class="et_pb_blurb_content"> <div class="et_pb_main_blurb_image"><a href="https://www.progeriaresearch.org/about-us/"><span class="et_pb_image_wrap et_pb_only_image_mode_wrap"><img loading="lazy" decoding="async" width="404" height="404" src="https://www.progeriaresearch.org/wp-content/uploads/2019/04/Alessandro-and-Beandri-hugging3-12.2016-square.jpg" alt="" srcset="https://www.progeriaresearch.org/wp-content/uploads/2019/04/Alessandro-and-Beandri-hugging3-12.2016-square.jpg 404w, https://www.progeriaresearch.org/wp-content/uploads/2019/04/Alessandro-and-Beandri-hugging3-12.2016-square-150x150.jpg 150w, https://www.progeriaresearch.org/wp-content/uploads/2019/04/Alessandro-and-Beandri-hugging3-12.2016-square-300x300.jpg 300w" sizes="(max-width: 404px) 100vw, 404px" class="et-waypoint et_pb_animation_top et_pb_animation_top_tablet et_pb_animation_top_phone wp-image-5729" /></span></a></div> <div class="et_pb_blurb_container"> <h1 class="et_pb_module_header"><a href="https://www.progeriaresearch.org/about-us/">About PRF</a></h1> <div class="et_pb_blurb_description"><p><span>Your donation helps The Progeria Research Foundation </span><strong><em>treat</em></strong><span> children with Progeria today, and <em><strong>cure</strong></em> them in the future.</span></p></div> </div> </div> </div> </div><div class="et_pb_column et_pb_column_1_3 et_pb_column_10 et_pb_css_mix_blend_mode_passthrough et-last-child"> <div class="et_pb_module et_pb_blurb et_pb_blurb_6 et_clickable et_pb_text_align_center et_pb_blurb_position_top et_pb_bg_layout_light"> <div class="et_pb_blurb_content"> <div 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class="et_pb_blurb_description"><p><span>We hope their stories inspire you to support PRF, so those dreams can come true.</span></p></div> </div> </div> </div> </div> </div> </div><div class="et_pb_section et_pb_section_5 handprint-orange-bg et_pb_section_parallax et_pb_with_background et_section_regular" > <span class="et_parallax_bg_wrap"><span class="et_parallax_bg et_pb_parallax_css" style="background-image: url(https://www.progeriaresearch.org/wp-content/uploads/2019/04/orange-handprint.png);" ></span></span> <div class="et_pb_with_border et_pb_row et_pb_row_7"> <div class="et_pb_column et_pb_column_4_4 et_pb_column_11 et_pb_css_mix_blend_mode_passthrough et-last-child"> <div class="et_pb_module et_pb_text et_pb_text_3 events-header et_pb_text_align_left et_pb_bg_layout_light"> <div class="et_pb_text_inner"><h1 style="text-align: center;">Events</h1></div> </div> </div> </div><div class="et_pb_row et_pb_row_8 et_pb_row_fullwidth"> <div class="et_pb_column et_pb_column_1_3 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