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I finish school at the beginning of July and would like to go abroad as an au pair for about 10 months, probably to Ireland. So far I have no experience with a longer stay abroad and PKU. What about the amino acid mixture and also foods with little protein in the country? Has anyone had similar experiences in Ireland or other countries and can tell me about them?\u003C\/p\u003E","renderFailed":false,"mentionedByCount":0,"detectedLang":"en"}},{"type":"posts","id":"172","attributes":{"number":1,"createdAt":"2024-08-20T12:43:31+00:00","contentType":"comment","contentHtml":"\n\n","renderFailed":false,"mentionedByCount":0,"detectedLang":"un"}},{"type":"posts","id":"99","attributes":{"number":1,"createdAt":"2024-02-05T20:25:36+00:00","contentType":"comment","contentHtml":"\u003Cp\u003EMy name is Gosia and I am an adult PKUer from Poland. It`s nice to be back after such a long time. \ud83d\ude42\u003C\/p\u003E \n\n\n","renderFailed":false,"mentionedByCount":0,"detectedLang":"en"}},{"type":"posts","id":"153","attributes":{"number":1,"createdAt":"2024-04-22T10:55:11+00:00","contentType":"comment","contentHtml":"\u003Cp\u003EHallo unsere Tochter ist 15 Jahre alt, sie hat seit einem Jahr st\u00e4ndig zu hohe Werte immer so zwischen 20 und 30. Wobei ein Wert von 15 H\u00f6chstgrenze w\u00e4re. Bei der letzten Untersuchung letztes Jahr, wurde ihr vorausgesagt dass ihre Noten abfallen werden und sie sich sonst auch schlechter f\u00fchlen w\u00fcrde. Dem ist aber nicht so, ihre Noten liegen zwischen 1 und 2 und auch sonst geht es ihr gut. Somit will sie momentan an ihrer Lebensweise auch nichts \u00e4ndern.\u003C\/p\u003E\n\n\u003Cp\u003EKennt jemand \u00e4hnliche Probleme?\u003C\/p\u003E\n\n\u003Cp\u003EGru\u00df\u003C\/p\u003E \n\n\u003Cp\u003EJohannes\u003C\/p\u003E ","renderFailed":false,"mentionedByCount":0,"detectedLang":"de"}},{"type":"posts","id":"141","attributes":{"number":1,"createdAt":"2024-03-26T08:01:37+00:00","contentType":"comment","contentHtml":"\u003Cp\u003EHi All,\u003C\/p\u003E\n\n\u003Cp\u003EAre you shy or honest to say to people that I\u0027m a PKU? My son is PKU and only our close relatives know that he is a PKU.\u003C\/p\u003E \n\n\u003Cp\u003EIs anyone in college? How do you cook for yourself? What\u0027s your Phe value for an adult?\u003C\/p\u003E \n\n\u003Cp\u003EThanks for sharing~\u003C\/p\u003E\n\n\n","renderFailed":false,"mentionedByCount":0,"detectedLang":"en"}},{"type":"posts","id":"131","attributes":{"number":1,"createdAt":"2024-02-28T08:55:22+00:00","contentType":"comment","contentHtml":"\u003Cp\u003EHey,\u003C\/p\u003E \n\n\u003Cp\u003EI wonder, which International Cuisine you like best? Especially low-protein-wise?\u003C\/p\u003E \n\n\u003Cp\u003EI love getting to know different ways of cooking and I find there is so much potential especially for us PKUs to find low protein recipes which are delicious.\u003C\/p\u003E \n\n\u003Cp\u003EPersonally, I\u0027m especially fond of Korean food (Kimchi \ud83d\ude03), Thai food (Papaya salad \ud83e\udd70) and just last year I got to know Czech food and find it very delicious too.\u003C\/p\u003E \n\n\u003Cp\u003EI\u0027m excited what you have to tell about this. \u263a\ufe0f\u003C\/p\u003E\n\n\n","renderFailed":false,"mentionedByCount":0,"detectedLang":"en"}},{"type":"posts","id":"107","attributes":{"number":1,"createdAt":"2024-02-17T10:18:46+00:00","contentType":"comment","contentHtml":"\u003Cp\u003ELook at the photo below and tell us which of these two has PKU. A son or a dad?\u003C\/p\u003E\n\n\u003Cp\u003E\u003Cimg src=\u0022https:\/\/www.pkuboard.info\/assets\/files\/2024-02-17\/1708164982-295591-ipkud2024-official-poster.png\u0022 title=\u0022\u0022 alt=\u0022\u0022\u003E\u003C\/p\u003E\n\n\n","renderFailed":false,"mentionedByCount":0,"detectedLang":"en"}},{"type":"posts","id":"136","attributes":{"number":1,"createdAt":"2024-03-18T15:18:09+00:00","contentType":"comment","contentHtml":"\u003Cp\u003EHi! Can you please remind me the years old board was operational? I am writing a letter that is PKU related and I need to mention this \ud83d\ude42\u003C\/p\u003E","renderFailed":false,"mentionedByCount":0,"detectedLang":"en"}},{"type":"posts","id":"135","attributes":{"number":1,"createdAt":"2024-03-15T20:12:20+00:00","contentType":"comment","contentHtml":"\u003Cp\u003EHi! I have found this video on one of Facebook PKU groups and I think it\u0027s so reliable. Some of these statements comply with my experiences and I still go to pediatric doctor. \u003Ca href=\u0022https:\/\/www.instagram.com\/reel\/C4bfWUzvsm1\/?igsh=dHNhanZuNXhkZHM5\u0022 rel=\u0022ugc noopener nofollow\u0022 target=\u0022_blank\u0022 rel=\u0022ugc noopener nofollow\u0022 target=\u0022_blank\u0022 title=\u0022I have PKU \u0022\u003Ehttps:\/\/www.instagram.com\/reel\/C4bfWUzvsm1\/?igsh=dHNhanZuNXhkZHM5\u003C\/a\u003E\u003C\/p\u003E","renderFailed":false,"mentionedByCount":0,"detectedLang":"en"}},{"type":"posts","id":"118","attributes":{"number":1,"createdAt":"2024-02-19T15:09:23+00:00","contentType":"comment","contentHtml":"\u003Cp\u003EThis year\u0027s ESPKU Conference will be held in Porto in Portugal on 24th-27th October. We\u0027d be great to see you all there! \ud83d\ude42\u003C\/p\u003E\n\n\u003Cp\u003E\u003Cimg src=\u0022https:\/\/www.pkuboard.info\/assets\/files\/2024-02-19\/1708355285-232658-fb-img-1708355225050.jpg\u0022 title=\u0022\u0022 alt=\u0022\u0022\u003E\u003C\/p\u003E","renderFailed":false,"mentionedByCount":0,"detectedLang":"en"}},{"type":"posts","id":"127","attributes":{"number":1,"createdAt":"2024-02-26T08:29:56+00:00","contentType":"comment","contentHtml":"\u003Cp\u003EHi everyone,\u003C\/p\u003E \n\n\u003Cp\u003ELast week, I just learned from my PKU-friend from the US, that there is a study \/ trial ongoing with a medication which helps PKUs absorbing the phe over urine.\u003C\/p\u003E \n\n\u003Cp\u003EIf you are interested, you can find more information about it here:\u003C\/p\u003E \n\n\u003Cp\u003E\u003Ca href=\u0022https:\/\/pubmed.ncbi.nlm.nih.gov\/30046012\/\u0022 rel=\u0022ugc noopener nofollow\u0022 target=\u0022_blank\u0022 rel=\u0022ugc noopener nofollow\u0022 target=\u0022_blank\u0022\u003Ehttps:\/\/pubmed.ncbi.nlm.nih.gov\/30046012\/\u003C\/a\u003E\u003C\/p\u003E\n\n\u003Cp\u003EI find it very promissing and I\u0027m excited about the first results with PKU patients!\u003C\/p\u003E \n\n\u003Cp\u003E\ud83e\udd17\u003C\/p\u003E","renderFailed":false,"mentionedByCount":0,"detectedLang":"en"}},{"type":"posts","id":"101","attributes":{"number":1,"createdAt":"2024-02-14T20:43:12+00:00","contentType":"comment","contentHtml":"\u003Cp\u003EHello everyone,\u003C\/p\u003E\n\n\u003Cp\u003EThis is a new - and more modern - take on PKUBoard. Reviving a long-lasted community with many people very engaged with PKU. You will see this much more competitive with social media - while offering many advantages of a message board.\u003C\/p\u003E \n\n\u003Cp\u003EYou can install this forum as an application on your \u003Ca href=\u0022https:\/\/support.google.com\/chrome\/answer\/9658361?hl=en\u0026amp;co=GENIE.Platform%3DAndroid\u0026amp;sjid=14817645326493797576-EU\u0022 rel=\u0022ugc noopener nofollow\u0022 target=\u0022_blank\u0022 rel=\u0022ugc noopener nofollow\u0022 target=\u0022_blank\u0022\u003EAndroid\u003C\/a\u003E and \u003Ca href=\u0022https:\/\/support.google.com\/chrome\/answer\/9658361?hl=en\u0026amp;co=GENIE.Platform%3DiOS\u0022 rel=\u0022ugc noopener nofollow\u0022 target=\u0022_blank\u0022 rel=\u0022ugc noopener nofollow\u0022 target=\u0022_blank\u0022\u003EApple\u003C\/a\u003E device. If enabled within your \u003Ca href=\u0022https:\/\/www.pkuboard.info\/settings\u0022 rel=\u0022ugc noopener\u0022 target=\u0022_self\u0022 rel=\u0022ugc noopener\u0022 target=\u0022_self\u0022\u003Esettings\u003C\/a\u003E you can even receive push notifications.\u003C\/p\u003E\n\n\u003Cp\u003EWe also added the feature to easily add your blood levels and view them as a graph.\u003Cbr\u003E\nFeel free to ask questions on how to use this revived PKUBoard!\u003C\/p\u003E\n\n\u003Cp\u003ECheers\u003C\/p\u003E\n","renderFailed":false,"mentionedByCount":0,"detectedLang":"en"}}]}}</script> <script> const data = JSON.parse(document.getElementById('flarum-json-payload').textContent); document.getElementById('flarum-loading').style.display = 'none'; try { flarum.core.app.load(data); flarum.core.app.bootExtensions(flarum.extensions); flarum.core.app.boot(); } catch (e) { var error = document.getElementById('flarum-loading-error'); error.innerHTML += document.getElementById('flarum-content').textContent; error.style.display = 'block'; throw e; } </script> </body> </html>