IG Living - Immune Globulin Community Magazine

<!DOCTYPE html>    <html class="" lang="en">  <head> <title>IG Living - Immune Globulin Community Magazine</title>  <meta charset="utf-8"> <meta name="viewport" content="width=device-width, initial-scale=1.0"> <meta http-equiv="X-UA-Compatible" content="IE=edge,chrome=1"> <meta name="description" content="Our mission is to bring together patients, advocates and caregivers in the immune globulin (IG) community. We provide advocacy, resources, and support for those who need immunoglobulin"> <meta name="ad-keywords" content="ivig"> <meta name="author" content="IG Living Staff">  <meta property="og:site_name" content="IG Living"/> <meta property="og:title" content="IG Living - Immune Globulin Community Magazine"/> <meta property="og:description" content="Our mission is to bring together patients, advocates and caregivers in the immune globulin (IG) community. We provide advocacy, resources, and support for those who need immunoglobulin"/> <meta property="og:type" content="website"/> <meta property="og:url" content="https://www.igliving.com"/> <meta property="og:image" content="https://www.igliving.com/assets/img/logo-igl-site-new.png"/> <meta property="article:author" content="https://www.facebook.com/IGLivingMagazine" /> <meta property="article:publisher" content="https://www.facebook.com/IGLivingMagazine" /> <meta property="og:locale" content="en_US"/>  <meta property="fb:app_id" content="365442360212271" /> <script src="https://cdn.cookielaw.org/scripttemplates/otSDKStub.js" type="text/javascript" charset="UTF-8" data-domain-script="b723894f-5ccb-46e8-a0d7-37f507724889"></script> <script type="text/javascript"> function OptanonWrapper() { } </script>   <script>(function(w,d,s,l,i){w[l]=w[l]||[];w[l].push({'gtm.start': new Date().getTime(),event:'gtm.js'});var f=d.getElementsByTagName(s)[0], j=d.createElement(s),dl=l!='dataLayer'?'&l='+l:'';j.async=true;j.src= 'https://www.googletagmanager.com/gtm.js?id='+i+dl;f.parentNode.insertBefore(j,f); })(window,document,'script','dataLayer','GTM-MFH6WRC');</script>   <link rel="shortcut icon" href="//www.igliving.com/favicon.ico"> <link rel="icon" href="//www.igliving.com/favicon.ico" type="image/x-icon">  <link rel="stylesheet" href="/assets/css/bootstrap/bootstrap-3.3.7.min.css?v=3.0.1"> <link rel="stylesheet" href="/assets/css/app.css?v=4.0.3"> <link rel="stylesheet" href="/assets/css/style.css?v=4.0.3"> <link rel="stylesheet" href="/assets/css/accessibility.css?v=3.0.3">  <link rel="stylesheet" href="/assets/plugins/line-icons/line-icons.css"> <link rel="stylesheet" href="/assets/css/font-awesome/font-awesome.min.css">    <link rel="stylesheet" href="/assets/css/section/home.css?v=3.0.3"> <link rel="stylesheet" href="/page.css?v=3.0.3"> <script type="text/javascript"> var siteSection = "home"; </script> </head> <body class="homepage"> <div id="fb-root"></div>  <div class="wrapper">  <noscript><iframe src="https://www.googletagmanager.com/ns.html?id=GTM-MFH6WRC" height="0" width="0" style="display:none;visibility:hidden"></iframe></noscript>    <div id="tagline"> <div class="tagline-text">IMMUNE  GLOBULIN  COMMUNITY</div> </div> <div id="skip-to-content" > <a href="#" tabindex="1">skip to main content</a> </div>    <div class="header header-v4">  <div class="navbar navbar-default" role="navigation"> <div class="container" role="navigation">  <div class="navbar-header"> <button type="button" class="navbar-toggle" data-toggle="collapse" data-target=".navbar-responsive-collapse" aria-expanded="false"> <span class="sr-only">Toggle navigation</span> <span class="fa fa-bars"></span> </button> <a class="navbar-brand" href="/" title="IGL home"> <img id="logo-header" src="/assets/img/logo-igl-site-new.png" alt="Ig Living Magazine Logo"> </a> <div class="utility-links hidden-xs"> <a href="/magazine/learn-about-ig-living.html">Learn About IG Living!</a> <a href="/advertise/advertise.html">Advertise</a> <a href="https://www.igliving.com/magazine/subscribe.aspx" class="subscribe-btn">Subscribe to IGL</a> </div> </div> </div> <div class="clearfix"></div>  <div class="collapse navbar-collapse navbar-responsive-collapse"> <div class="container"> <ul class="nav navbar-nav">  <li class="dropdown section-magazine"> <a href="#" class="dropdown-toggle" data-toggle="dropdown" data-hover="dropdown" data-delay="75" aria-haspopup="true" aria-expanded="false">MAGAZINE</a> <ul class="dropdown-menu"> <li><a href="https://www.igliving.com/magazine/subscribe.aspx">Subscribe</a></li> <li><a style="color:#406d0c;" href="/magazine/go-green-form.html"><strong>Go Green!</strong> <span class="badge badge-igl">New</span></a></li> <li class="dropdown-submenu"> <a href="#">Current Issue</a> <ul class="dropdown-menu" tabindex="-1"> <li><a href="/magazine/current-issue.html">Download or Read Online</a></li> <li><a href="/magazine/feature-articles.html">Feature Articles</a></li> </ul> </li> <li><a href="/magazine/archive.html">Past Issues Archive</a></li> <li><a href="/magazine/learn-about-ig-living.html">About IG Living</a></li> <li><a href="/magazine/ig-living-team.html">IG Living Team</a></li> </ul> </li>   <li class="dropdown section-life"> <a href="#" class="dropdown-toggle" data-toggle="dropdown" data-hover="dropdown" data-delay="75" aria-haspopup="true" aria-expanded="false">LIFE WITH IG</a> <ul class="dropdown-menu"> <li><a href="/life-with-ig/ig-living-advocate-podcast.html">IGL Advocate Podcast   <span class="badge badge-igl">New</span></a></li> <li><a href="/life-with-ig/ask-the-experts.html">Ask the Experts</a></li> <li><a href="/life-with-ig/patient-advocate.html">Patient Advocate</a></li> <li><a href="/life-with-ig/advocacy-groups.html">Advocacy Groups</a></li> <li><a href="/life-with-ig/take-action.html">Take Action</a></li> <li><a href="/life-with-ig/readers-online-forum.html">Reader Teleconference Archives</a></li> <li><a href="/life-with-ig/share-your-story.html">Share Your Story</a></li> <li class="dropdown-submenu"> <a href="#">Lifestyle</a> <ul class="dropdown-menu"> <li><a href="/life-with-ig/worksheets-logs.html">Worksheets & Logs</a></li> <li><a href="/life-with-ig/nutrition.html">Nutrition</a></li> <li><a href="/life-with-ig/igiveforkids.html">I Give For Kids</a></li> <li><a href="/life-with-ig/ebook-chronicinspirations.html">eBook: Chronic Inspirations</a></li> </ul> </li> </ul> </li>   <li class="dropdown section-resources"> <a href="#" class="dropdown-toggle" data-toggle="dropdown" data-hover="dropdown" data-delay="75" aria-haspopup="true" aria-expanded="false">RESOURCES</a> <ul class="dropdown-menu"> <li class="dropdown-submenu" role="menuitem"> <a href="#">New Patient Care   </a> <ul class="dropdown-menu"> <li><a href="/resources/new-patient-care.html">Overview</a></li> <li><a href="/resources/new-patient-care.html?scrollto=nufactor">Nufactor Patient Resources</a></li> <li><a href="/resources/reimbursement-q-and-a.html">Reimbursement Q&A</a></li> <li><a href="/resources/new-patient-care.html?scrollto=appeal">Write an Effective Appeal Letter</a></li> <li><a href="/resources/connect-patient-support.html">Connect with Patient Support</a></li>  <li><a href="/resources/new-patient-care.html?scrollto=ig">IG Health Tools</a></li> </ul> </li> <li><a href="/resources/products-and-manufacturers.html">Products & Manufacturers</a></li> <li class="dropdown-submenu" role="menuitem"> <a href="#">Education & Studies</a> <ul class="dropdown-menu"> <li><a href="/resources/literature.html">Literature - Books & Articles</a></li> <li><a href="/resources/medical-research-studies.html">Medical Research Studies</a></li> <li><a href="/resources/scholarships.html">Scholarships</a></li> </ul> </li> <li><a href="/resources/legislation.html">Legislation</a></li> <li><a href="/resources/disorders-treated-with-ig.html">Disorders Treated with IG</a></li> <li><a href="/resources/insurance.html">Insurance / Financial Assistance</a></li>  </ul> </li>   <li class="dropdown section-media-events"> <a href="#" class="dropdown-toggle" data-toggle="dropdown" data-hover="dropdown" data-delay="75" aria-haspopup="true" aria-expanded="false">MEDIA & EVENTS</a> <ul class="dropdown-menu"> <li><a href="/media-and-events/news.html">News</a></li> <li><a href="/media-and-events/media-releases.html">Media Releases</a></li> <li><a href="/media-and-events/events.html">Events</a></li> </ul> </li>   <li class="dropdown section-blog"> <a href="#" class="dropdown-toggle" data-toggle="dropdown" data-hover="dropdown" data-delay="75" aria-haspopup="true" aria-expanded="false">BLOG</a> <ul class="dropdown-menu" role="menu"> <li><a href="/blogengine/">Blog Home</a></li> <li><a href="/blogengine/archive.aspx">Categories</a></li> <li><a href="/magazine/ig-living-team.html">IG Living Team</a></li> </ul> </li>   <li class="dropdown section-advertise hidden-md hidden-lg"> <a href="/advertise/advertise.html" class="dropdown-toggle" data-toggle="dropdown" data-hover="dropdown" data-delay="75" aria-haspopup="true" aria-expanded="false">ADVERTISE</a> <ul class="dropdown-menu"> <li><a href="/advertise/advertise.html">Advertising Overview</a></li> <li><a href="/advertise/market.html">Market</a></li> <li><a href="/advertise/demographics.html">Demographics</a></li> <li><a href="/advertise/advertising-opportunities.html">Advertising Opportunities</a></li> <li><a href="/advertise/editorial-calendar.html">Editorial Calendar</a></li> </ul> </li>  </ul>  <ul class="nav navbar-nav navbar-right"> <li class="no-border"> <form method="GET" action="/search.aspx" name="search" id="search"> <div class="igl-search"> <div class="input-group" > <span class="input-group-btn"> <input class="btn igl-search-btn" type="submit" value="" alt="Search button" aria-label="Search button"> </span> <input name="zoom_query" class="form-control igl-search-input" placeholder="search" type="text" aria-label='Enter search text'> </div> </div> </form> </li> </ul>  </div> </div> </div>  </div> <div class="nav-bottom-line"></div>   <div class="container content"> <div class="row equal-height-rt-column">  <div class="col-md-9 main-content">  <div class="row"> <div class="carousel slide carousel-v1" id="myCarousel-1" tabindex="0"> <div class="carousel-inner"> <div class="item active"> <a href="/magazine/current-issue.html" title="IG Living Cover, Feb - Mar 2025" tabindex="-1"><img alt="IG Living Cover, Feb - Mar 2025" src="/assets/img/home-slides/igl-2025-02-cover.jpg"></a> </div> <div class="item"> <a href="/magazine/feature-articles.html#article1" title="Feature article - Navigating Your First IVIG Infusion: Preparation, Support and What to Expect" tabindex="-1"><img alt="Feature article - Navigating Your First IVIG Infusion: Preparation, Support and What to Expect" src="/assets/img/home-slides/igl-2025-02-feature-1.jpg"></a> </div> <div class="item"> <a href="/magazine/feature-articles.html#article2" title="Feature article - Managing Difficult Conversations: Telling Others About Your Diagnosis" tabindex="-1"><img alt="Feature article - Managing Difficult Conversations: Telling Others About Your Diagnosis" src="/assets/img/home-slides/igl-2025-02-feature-2.jpg"></a> </div> <div class="item"> <a href="/magazine/feature-articles.html#article3" title="Feature article - Understanding APDS" tabindex="-1"><img alt="Feature article - Understanding APDS" src="/assets/img/home-slides/igl-2025-02-feature-3.jpg"></a> </div> </div> <div class="indicators-block"> <ol class="carousel-indicators" role="tablist"> <li data-target="#myCarousel-1" data-slide-to="0" role="tab" id="tab-0-0" aria-controls="tabpanel-0-0" aria-selected="true" tabindex="0" class="active">1</li> <li data-target="#myCarousel-1" data-slide-to="1" role="tab" id="tab-0-1" aria-controls="tabpanel-0-1" aria-selected="false" tabindex="-1">2</li> <li data-target="#myCarousel-1" data-slide-to="2" role="tab" id="tab-0-2" aria-controls="tabpanel-0-2" aria-selected="false" tabindex="-1">3</li> <li data-target="#myCarousel-1" data-slide-to="3" role="tab" id="tab-0-3" aria-controls="tabpanel-0-3" aria-selected="false" tabindex="-1">4</li> </ol> </div> </div> </div>  <div class="row"> <div class="col-md-8 col-md-push-8 ct-col"> <div class="row"> <div class="col-md-12"> <h3><a href="/life-with-ig/ig-living-advocate-podcast.html" tabindex="-1">IG Living Advocate Podcast</a></h3> <p>Every quarter, IG Living will hold a podcast on a topic that affects those with autoimmune and immunodeficiency disorders. Industry experts will share the latest immune globulin (IG) news and information and answer questions from our community.</p> <p>Podcasts will cover topics such as the increased demand for IG products, Medicare, IG side effects, and reimbursement. <span class="bracketed-link"><a href="/life-with-ig/ig-living-advocate-podcast.html">more info</a></span></p> <p>Listen to the episode <a href="/life-with-ig/podcast-episodes/E15-a-patients-story-see-the-difference-maintaining-steady-ig-levels-can-make-in-pi.html">A Patient's Story: See the Difference Maintaining Steady Ig Levels Can Make in PI</a>.</p> <p>To receive notifications about upcoming podcasts, subscribe to IG Living Magazine. <span class="bracketed-link"><a href="https://www.igliving.com/magazine/subscribe.aspx">subscribe now</a></span></p> </div> </div> <div class="large-hor-devider full-width"></div> <div class="row"> <div class="col-sm-4"> <div class="img-container"> <img src="assets/img/hm-sq-article-1.jpg" class="img-responsive" alt="Picture of Ilana Jaqueline"/> </div> </div> <div class="col-sm-8"> <h3 class="sup-head">Columns</h3> <h3>Let's Talk! – Maureen E. Basye, MS</h3> <p>After numerous diagnoses of celiac disease within her immediate family, Maureen Basye understood the travel industry limitations for patients living with severe dietary restrictions. As she reflected on how much she and her family enjoyed cruise ship vacations, in a flash of inspiration, she made the career transition from speech pathologist to celiac travel consultant. Today, as the founder of industry-changing Celiac Cruise, Maureen shares her passion for helping others enjoy safe, carefree adventures while making memories that last a lifetime… <span class="bracketed-link"><a href="/magazine/articles/IGL_2025-02_AR_Lets-Talk-Maureen-E-Basye.pdf" target="_blank" title="Article – Let's Talk! – Maureen E. Basye, MS (pdf document)">full article</a> (pdf)</span></p> </div> </div> <div class="large-hor-devider full-width"></div> <div class="row"> <div class="col-sm-4"> <div class="img-container"> <img src="assets/img/hm-sq-article-2.jpg" class="img-responsive" alt="Product Guide: Gear for Parenting Medically Complex Kids"/> </div> </div> <div class="col-sm-8"> <h3 class="sup-head">Product Guide</h3> <h3>Gear for Parenting Medically Complex Kids</h3> <p>Raising kids is hard. Raising medically complex kids is harder. Activities of daily life that are usually straightforward such as introducing solid foods, playing on the floor or even sending them to school become far more challenging the moment these kids receive a diagnosis. Whether it's a primary immune deficiency, neurological disorder, cancer or any number of rare diseases that require constant care at home, children with special health needs aren't one-size-fits-all, and as such, the gear they need isn't that way either. Knowing what you need and where to start looking can be daunting!… <span class="bracketed-link"><a href="/magazine/articles/IGL_2025-02_AR_Gear-for-Parenting-Medically-Compex-Kids.pdf" target="_blank" title="Article – Gear for Parenting Medically Complex Kids (pdf document)">full article</a> (pdf)</span></p> </div> </div> <div class="large-hor-devider full-width"></div> <div class="row"> <div class="col-sm-4"> <div class="img-container"> <img src="assets/img/hm-sq-article-3.jpg" class="img-responsive" alt="Chat conversation word balloons"/> </div> </div> <div class="col-sm-8"> <h3 class="sup-head">Ask the Experts</h3> <p><strong class="begining-label">Reader:</strong> Has the Deadline Been Extended for the IVIG Demonstration Project, and What Are The Eligibility Requirements?</p> <p><strong class="begining-label">Abbie:</strong> The Medicare Intravenous Immune Globulin (IVIG) Demonstration Project was started to assess the benefits of providing payment for items and services necessary for in-home administration of IVIG to treat primary immune deficiency diseases (PI). The project began in October 2014, was extended twice by Congress and was set to end on Dec. 31, 2023. However, as of Jan. 1, 2024, the services and supplies necessary for in-home administration of IVIG became a permanent Medicare benefit for patients with PI. This change means patients can continue to receive their IVIG treatments at home without the need to enroll in the now-concluded demonstration project. The permanent benefit includes coverage for the IVIG medication, supplies and nursing services required for home administration… <span class="bracketed-link"><a href="/magazine/articles/IGL_2025-02_AR_Ask-the-Experts-February-March-2025.pdf" target="_blank" title="Article – Ask the Experts (pdf document)">full article</a> (pdf)</span></p> </div> </div> <div class="break-2x"></div> <div class="section-devider"></div> <h1 class="white-bg-gray-txt">Meet the Staff</h1> <div class="row meet-the-staff"> <div class="col-sm-4"> <a href="/magazine/ig-living-team.html" aria-hidden="true" tabindex="-1" title="Editor Ronale Tucker Rhodes"><img class="img-responsive staff-pic" src="assets/img/hm-bio-ronale-rhoades.jpg" alt="Editor Ronale Tucker Rhodes"/></a> <p> <strong><a href="/magazine/ig-living-team.html" class="alt-color-medium-gray" title="Editor Ronale Tucker Rhodes">Ronale Tucker Rhodes, MS</a></strong><br> <em>Editor</em> </p> </div> <div class="col-sm-4"> <a href="/magazine/ig-living-team.html" aria-hidden="true" tabindex="-1" title="Rachel Maier, MS, Associate Editor"><img class="img-responsive staff-pic" src="assets/img/hm-bio-rachel-maier.jpg" alt="Rachel Maier, MS, Associate Editor"/></a> <p> <strong><a href="/magazine/ig-living-team.html" class="alt-color-medium-gray" title="Rachel Maier, MS, Associate Editor">Rachel Maier, MS</a></strong><br> <em>Associate Editor</em> </p> </div> <div class="col-sm-4"> <a href="/life-with-ig/patient-advocate.html" aria-hidden="true" tabindex="-1" title="Abbie Cornett Patient Advocate"><img class="img-responsive staff-pic" src="assets/img/hm-bio-abbie-cornett.jpg" alt="Abbie Cornett Patient Advocate"/></a> <p> <strong><a href="/life-with-ig/patient-advocate.html" class="alt-color-medium-gray" title="Abbie Cornett Patient Advocate">Abbie Cornett</a></strong><br> <em>Patient Advocate</em> </p> </div> </div> <h2>Advisory Board</h2> <div class="row advisory-board"> <div class="col-md-4"> <p> <strong>Bob Geng, MD, MA</strong><br> <em>Assistant Professor, Division of Allergy & Immunology <br /> University of California, San Diego</em> </p> </div> <div class="col-md-4"> <p><strong>Terry O. Harville,<br> MD, PhD</strong><br> <em>Medical Director Special Immunology Laboratory University of Arkansas for Medical Sciences</em></p> </div> <div class="col-md-4"> <p> <strong>Todd Levine, MD</strong><br> <em>Director, Department of Neurophysiology Good Samaritan Hospital, Phoenix <br>Assistant Professor of Clinical Neurology University of Arizona</em> </p> </div> </div> <div class="row advisory-board"> <div class="col-md-4"> <p> <strong>Fred Modell</strong><br> <em>Co-founder of the Jeffrey Modell Foundation</em> </p> </div> <div class="col-md-4"> <p><strong>Marc Riedl, MD, MS</strong><br> <em>Associate Professor of Medicine Division of Rheumatology, Allergy & Immunology University of California, San Diego</em></p> </div> <div class="col-md-4"> </div> </div> <div class="break-2x"></div> </div> <div class="col-md-4 col-md-pull-4 lt-col"> <h1 class="gray-bg-white-txt">Patient Advocate</h1> <div class="patient-advocate"> <a href="/life-with-ig/patient-advocate.html" title="Patient Advocate Abbie Cornett"><img alt="Patient Advocate Abbie Cornett" src="assets/img/hm-patient-advocate.jpg" class="img-responsive head"/></a> <p><a href="/life-with-ig/ask-the-experts.html">Ask the Experts</a> – Get answers from experts about issues related to immune-mediated diseases?</p> <p><a href="/life-with-ig/advocacy-groups.html">Advocacy Groups</a> – Living with a chronic illness? Reach out, seek help and find a community.</p> <p><a href="/life-with-ig/take-action.html">Take Action</a> – Everyone can advocate for healthcare treatment and reimbursement issues.</p> <p><a href="/life-with-ig/share-your-story.html">Share Your Story</a> – Help others by sharing your experience with chronic illness!</p> </div> <h1 class="white-bg-gray-txt">Disease States</h1> <div class="disease-states"> <p><a href="/resources/ig-disorder-ataxia-telangiectasia-a-t.html" class="alt-color-medium-gray">Ataxia Telangiectasia (A-T)</a></p> <p><a href="/resources/ig-disorder-chronic-granulomatous-disease-cgd.html" class="alt-color-medium-gray">Chronic Granulomatous Disease (CGD)</a></p> <p><a href="/resources/ig-disorder-chronic-inflammatory-demyelinating-polyneuropathy-cidp.html" class="alt-color-medium-gray">Chronic Inflammatory Demyelinating <br>Polyneuropathy (CIDP)</a></p> <p><a href="/resources/ig-disorder-common-variable-immunodeficiency-cvid.html" class="alt-color-medium-gray">Common Variable Immunodeficiency (CVID)</a></p> <p><a href="/resources/ig-disorder-digeorge-syndrome.html" class="alt-color-medium-gray">DiGeorge Syndrome</a></p> <p><a href="/resources/ig-disorder-evans-syndrome.html" class="alt-color-medium-gray">Evans Syndrome</a></p> <p><a href="/resources/ig-disorder-guillain-barré-syndrome-gbs.html" class="alt-color-medium-gray">Guillain-Barré Syndrome (GBS)</a></p> <p><a href="/resources/ig-disorder-hereditary-angioedema.html" class="alt-color-medium-gray">Hereditary Angioedema</a></p> <p><a href="/resources/ig-disorder-idiopathic-thrombocytopenic-purpura-ITP.html" class="alt-color-medium-gray">Idiopathic Thrombocytopenic Purpura (ITP)</a></p> <p><a href="/resources/ig-disorder-kawasaki-disease-kd.html" class="alt-color-medium-gray">Kawasaki Disease (KD)</a></p> <p><a href="/resources/ig-disorder-multifocal-motor-neuropathy.html" class="alt-color-medium-gray">Multifocal Motor Neuropathy (MMN)</a></p> <p><a href="/resources/ig-disorder-multiple-sclerosis-ms.html" class="alt-color-medium-gray">Multiple Sclerosis (MS)</a></p> <p><a href="/resources/ig-disorder-myasthenia-gravis-mg.html" class="alt-color-medium-gray">Myasthenia Gravis (MG)</a></p> <p><a href="/resources/ig-disorder-myositis.html" class="alt-color-medium-gray">Myositis</a></p> <p><a href="/resources/ig-disorder-nemo.html" class="alt-color-medium-gray">NEMO</a></p> <p><a href="/resources/ig-disorder-pemphigus-and-pemphigoid.html" class="alt-color-medium-gray">Pemphigus and Pemphigoid</a></p> <p><a href="/resources/ig-disorder-peripheral-neuropathy-pn.html" class="alt-color-medium-gray">Peripheral Neuropathy (PN)</a></p> <p><a href="/resources/ig-disorder-primary-immune-deficiency-disease-pidd.html" class="alt-color-medium-gray">Primary Immune Deficiency Disease (PIDD)</a></p> <p><a href="/resources/ig-disorder-scleroderma.html" class="alt-color-medium-gray">Scleroderma</a></p> <p><a href="/resources/ig-disorder-scleromyxedema.html" class="alt-color-medium-gray">Scleromyxedema</a></p> <p><a href="/resources/ig-disorder-severe-combined-immunodeficiency.html" class="alt-color-medium-gray">Severe Combined Immunodeficiency</a></p> <p><a href="/resources/ig-disorder-stiff-person-syndrome-sps.html" class="alt-color-medium-gray">Stiff-person Syndrome (SPS)</a></p> <p><a href="/resources/ig-disorder-wiskott-aldrich-syndrome.html" class="alt-color-medium-gray">Wiskott-Aldrich Syndrome</a></p> </div> </div> </div>  </div>  <div class="col-md-3 sidebar home"> <div class="row"> <div class="col-md-12" > <div class="patient-resources"> <h1>New Patient Care</h1> <div class="sub-head-balloon"><a href="resources/new-patient-care.html">Resources for newly diagnosed patients & their caregivers</a></div> <p><a href="/resources/new-patient-care.html?scrollto=nufactor">Patient Resources</a></p> <p><a href="/resources/reimbursement-q-and-a.html">Reimbursement Q&A</a></p> <p><a href="/resources/new-patient-care.html?scrollto=appeal">How to Write an Effective Appeal Letter</a></p> <p><a href="/resources/connect-patient-support.html">Connect with our Patient Support Team</a></p> <p><a href="/resources/new-patient-care.html?scrollto=ig">IG Health Tools</a></p> </div>     <div class="rt-col-divider"></div>  <div class="sidebar-wrapper go-green"> <h2>Help IG Living <span class="go-green emphasis">Go Green</span></h2> <h3>Join our campaign to <span class="nowrap">reduce unnecessary paper</span> consumption!</h3> <div class="img-container"> <a href="/magazine/go-green-form.html" title="Go Green"><img src="/assets/img/go-green-bg-sidebar.jpg" class="img-responsive" alt="Go Green"/></a> </div> </div>  <div class="rt-col-divider"></div>    <div class="sidebar-wrapper blog"> <div class="gray-bg-top"></div> <h3>IG Living Blog</h3> <h4><a href="/BlogEngine/post/making-sense-of-pi-terms.aspx" title="Blog post - Making Sense of PI Terms" style="text-decoration: none">Making Sense of PI Terms</a></h4> <div class="img-container"> <img src="https://site.fffenterprises.com/rs/217-DHG-997/images/IGLBlogImage021325.jpg" class="img-responsive" alt="Blog Img - Making Sense of PI Terms"/> </div> <p>Confession: Before I started working for IG Living, I hadn't heard of primary immune deficiency (PI). I wasn't completely unfamiliar with medical terms related to the immune system: I have an autoimmune disease, two of my kids have an immune disorder and the COVID-19 pandemic made us all familiar with the term "immune compromised." But PI was new to me, so I had a lot to learn. Medical speak can be confusing, especially when first learning about complicated conditions like PI. Doctors say a lot of things; having a solid grasp of what those words mean can make all the difference for really understanding it and managing it well…<span class="bracketed-link"><a href="/BlogEngine/post/making-sense-of-pi-terms.aspx" title="Blog post - Making Sense of PI Terms">full post</a></span></p> <hr> <h4><a href="/BlogEngine/post/building-a-care-team-that-works-for-you.aspx" title="Blog post - Building a Care Team That Works for You" style="text-decoration: none">Building a Care Team That Works for You</a></h4> <div class="img-container"> <img src="https://site.fffenterprises.com/rs/217-DHG-997/images/IGLBlogImage013025.jpg" class="img-responsive" alt="Blog Img - Building a Care Team That Works for You"/> </div> <p>Living with a chronic illness like primary immunodeficiency (PI) requires a strong healthcare team to make managing your health easier and improve your quality of life. Here are some tips to help you build a reliable care team and communicate effectively with your providers…<span class="bracketed-link"><a href="/BlogEngine/post/building-a-care-team-that-works-for-you.aspx" title="Blog post - Building a Care Team That Works for You">full post</a></span></p> <hr> <h4><a href="/life-with-ig/igiveforkids.html" title="iGiveForKids">iGiveForKids</a></h4> <div class="img-container"> <a href="/life-with-ig/igiveforkids.html" title="iGiveForKids"><img src="/assets/img/blog/blog-block-img-igive.jpg" class="img-responsive" alt="iGiveForKids Banner"/></a> </div> <p>Supporting communities and families impacted by childhood diseases.</p> </div>  <div class="rt-col-divider"></div> </div> </div> </div>  </div> </div>   <div class="footer-v2"> <div class="footer"></div> <div class="copyright"> <div class="container"> <div class="col-md-9" style="text-align: center;"> <p style="margin-bottom: 35px;"> <a href="/index.html">Home</a> | <a href="/magazine/learn-about-ig-living.html">About</a> | <a href="https://www.igliving.com/magazine/subscribe.aspx">Subscribe</a> | <a href="/advertise/advertise.html">Advertise</a> | <a href="/site/subscriber-services.html">Contact</a> | <a href="/site/privacy-statement.html">Privacy Statement</a> | <a href="/site/terms-of-use.html">Terms of Service</a> | <a href="/site/consumer-health-data-privacy-policy.html">Consumer Health Data Privacy Policy</a> |  <button id="ot-sdk-btn" class="ot-sdk-show-settings do-not-sell-link">Do Not Sell My Personal Information</button><img src="/assets/img/privacyoptions29x14.png" alt="California Consumer Privacy Act (CCPA) Opt-Out Icon" style="display: inline-block; margin-left: 6px; margin-top: -2px;">  <br><sup class="copyright">©</sup><script>document.write(new Date().getFullYear())</script> FFF Enterprises, Inc. <a style="margin-bottom: -15px;" href="https://www.facebook.com/IGLivingMagazine/" target="_blank" class="btn" title="IGL Facebook page" aria-label="IGL Facebook page"> <i class="fa fa-facebook" aria-hidden="true" aria-label="IGL Facebook page" title="IGL Facebook page"></i> </a> </p> </div> <div class="col-md-3"><p><a href="/"><img src="/assets/img/logo-igl-site-new.png" class="footer-logo" alt="IG Living!"/></a></p></div> </div> </div> </div>  </div>  <script type="text/javascript" src="/assets/js/jquery/jquery-3.6.0.min.js"></script> <script type="text/javascript" src="/assets/js/jquery/jquery-migrate-3.3.2.min.js"></script> <script type="text/javascript" src="/assets/js/bootstrap/bootstrap-3.3.7.min.js"></script> <script type="text/javascript" src="/assets/js/bootstrap/bootstrap-accessibility.min.js"></script> <script type="text/javascript" src="/assets/js/track-focus.min.js"></script> <script type="text/javascript" src="/assets/js/bootstrap/bootstrap-hover-dropdown.min.js"></script> <script type="text/javascript" src="/assets/js/back-to-top.js"></script>  <script type="text/javascript" src="/assets/js/app.js?v=2.0.1"></script>    <script src="/assets/plugins/readmore.min.js"></script> <script> $('.disease-states').readmore({ moreLink: '<span class="bracketed-link"><a href="#" style="color" tabindex="-1" class="disease-state">more disease states</a></span>', lessLink: '<span class="bracketed-link"><a href="#">close</a></span>', speed: 500, maxHeight: 520, afterToggle: function(trigger, element, expanded) { if(! expanded) { $('html, body').animate( { scrollTop: element.offset().top - 75 }, {duration: 500 } ); } } }); </script> <script src="/assets/plugins/carousel-swipe.js"></script> <script> $("#myCarousel-1").carousel({ swipe: 50 // percent-per-second, default is 50. Pass false to disable swipe }); </script> </body> </html>

CINXE.COM

IG Living - Immune Globulin Community Magazine