DIPG Stats

<!doctype html> <html lang="en" > <head> <meta charset="utf-8"> <meta http-equiv="X-UA-Compatible" content="IE=edge"> <meta name="viewport" content="width=device-width, initial-scale=1"> <meta name="facebook-domain-verification" content="0epqm549tnvewd7cfxil45ao1n9ruo" /> <meta name="facebook-domain-verification" content="8yaukrz7l0xr4etse5ex7dh64i1pd5" /> <link rel="stylesheet" integrity="sha384-+d0P83n9kaQMCwj8F4RJB66tzIwOKmrdb46+porD/OvrJ+37WqIM7UoBtwHO6Nlg" crossorigin="anonymous" href="https://use.fontawesome.com/releases/v5.0.10/css/all.css"> <link rel="stylesheet" href="https://fonts.googleapis.com/css?family=Chivo:400,400i,700,700i"> <link rel="stylesheet" href="/dipg.org/styles/bootstrap.css"> <link rel="stylesheet" href="/dipg.org/styles/bootstrap-theme.css"> <link rel="stylesheet" href="/dipg.org/styles/styles.css?v=1.15"> <link rel="stylesheet" type="text/css" href="//cdn-images.mailchimp.com/embedcode/classic-10_7.css"> <style type="text/css"> #mc_embed_signup{background:#fff; clear:left; font:14px Helvetica,Arial,sans-serif;} #mc_embed_signup form{padding: 0;} #mc_embed_signup .button { display: inline-block; background-color: #f28e07; color: white; border-radius: 5px; margin-bottom: 20px; text-transform: uppercase; text-decoration: none; text-align: center; transition: all 0.1s ease-out 0s; -webkit-transition: all 0.2s ease-out 0s; } </style> <script integrity="sha256-3edrmyuQ0w65f8gfBsqowzjJe2iM6n0nKciPUp8y+7E=" crossorigin="anonymous" src="https://code.jquery.com/jquery-3.3.1.slim.min.js"></script> <script src="/dipg.org/scripts/bootstrap.min.js"></script> <script type="text/javascript"> function googleTranslateElementInit() { new google.translate.TranslateElement({pageLanguage: 'en', layout: google.translate.TranslateElement.InlineLayout.SIMPLE}, 'google_translate_element'); } </script> <script type="text/javascript" src="//translate.google.com/translate_a/element.js?cb=googleTranslateElementInit"></script> <script type="text/javascript"> function changeGoogleStyles() { if(($goog = $('.goog-te-menu-frame').contents().find('body')).length) { var stylesHtml = '<style>'+ '.goog-te-menu2 {'+ 'max-width:100% !important;'+ 'overflow:scroll !important;'+ 'box-sizing:border-box !important;'+ 'height:auto !important;'+ '}'+ '</style>'; $goog.prepend(stylesHtml); } else { setTimeout(changeGoogleStyles, 50); } } changeGoogleStyles(); </script> <link rel="canonical" href="https://dipg.org/statistics/" /> <link rel="apple-touch-icon-precomposed" sizes="57x57" href="/dipg.org/images/favicon/apple-touch-icon-57x57.png" /> <link rel="apple-touch-icon-precomposed" sizes="114x114" href="/dipg.org/images/favicon/apple-touch-icon-114x114.png" /> <link rel="apple-touch-icon-precomposed" sizes="72x72" href="/dipg.org/images/favicon/apple-touch-icon-72x72.png" /> <link rel="apple-touch-icon-precomposed" sizes="144x144" href="/dipg.org/images/favicon/apple-touch-icon-144x144.png" /> <link rel="apple-touch-icon-precomposed" sizes="60x60" href="/dipg.org/images/favicon/apple-touch-icon-60x60.png" /> <link rel="apple-touch-icon-precomposed" sizes="120x120" href="/dipg.org/images/favicon/apple-touch-icon-120x120.png" /> <link rel="apple-touch-icon-precomposed" sizes="76x76" href="/dipg.org/images/favicon/apple-touch-icon-76x76.png" /> <link rel="apple-touch-icon-precomposed" sizes="152x152" href="/dipg.org/images/favicon/apple-touch-icon-152x152.png" /> <link rel="icon" type="image/png" href="/dipg.org/images/favicon/favicon-196x196.png" sizes="196x196" /> <link rel="icon" type="image/png" href="/dipg.org/images/favicon/favicon-96x96.png" sizes="96x96" /> <link rel="icon" type="image/png" href="/dipg.org/images/favicon/favicon-32x32.png" sizes="32x32" /> <link rel="icon" type="image/png" href="/dipg.org/images/favicon/favicon-16x16.png" sizes="16x16" /> <link rel="icon" type="image/png" href="/dipg.org/images/favicon/favicon-128.png" sizes="128x128" /> <meta name="application-name" content=" "/> <meta name="msapplication-TileColor" content="#FFFFFF" /> <meta name="msapplication-TileImage" content="/dipg.org/images/favicon/mstile-144x144.png" /> <meta name="msapplication-square70x70logo" content="/dipg.org/images/favicon/mstile-70x70.png" /> <meta name="msapplication-square150x150logo" content="/dipg.org/images/favicon/mstile-150x150.png" /> <meta name="msapplication-wide310x150logo" content="/dipg.org/images/favicon/mstile-310x150.png" /> <meta name="msapplication-square310x310logo" content="/dipg.org/images/favicon/mstile-310x310.png" />  <script async src="https://www.googletagmanager.com/gtag/js?id=G-Q0R8XL81SP"></script> <script> window.dataLayer = window.dataLayer || []; function gtag(){dataLayer.push(arguments);} gtag('js', new Date()); gtag('config', 'G-Q0R8XL81SP'); </script> <title>DIPG Stats</title> <meta property="og:title" content="DIPG Statistics"> <meta property="og:image" content="https://dipg.org/media/2476/dipg_og.jpg"/> <meta property="og:url" content="https://dipg.org/statistics/"> <meta property="og:site_name" content="DIPG.org"/> <meta property="og:description" content="Diffuse intrinsic pontine gliomas (DIPG) are the most common brainstem tumors in children, representing approximately 75-80% of all pediatric brainstem tumors."/> <meta property="og:type" content="website"/> <meta name="description" content=""> <meta name="keywords" content="Diffuse intrinsic pontine gliomas (DIPG) are the most common brainstem tumors in children, representing approximately 75-80% of all pediatric brainstem tumors."> </head> <body class="dIPGorgContentPage DIPG_org">  <script> !function(f,b,e,v,n,t,s) {if(f.fbq)return;n=f.fbq=function(){n.callMethod? n.callMethod.apply(n,arguments):n.queue.push(arguments)}; if(!f._fbq)f._fbq=n;n.push=n;n.loaded=!0;n.version='2.0'; n.queue=[];t=b.createElement(e);t.async=!0; t.src=v;s=b.getElementsByTagName(e)[0]; s.parentNode.insertBefore(t,s)}(window, document,'script', 'https://connect.facebook.net/en_US/fbevents.js'); fbq('init', '3593378404060214'); fbq('track', 'PageView'); </script> <noscript><img height="1" width="1" alt="" style="display:none" src="https://www.facebook.com/tr?id=3593378404060214&ev=PageView&noscript=1" /></noscript>  <header id="masthead"> <div class="wrapper"> <nav> <div class="container"> <div class="pencil-nav"> <a href="/search" class="contact" style="padding-right: 5px;"><i class="fa fa-search" aria-hidden="true"></i></a> <a href="/contact" class="contact"><i class="fas fa-envelope"></i></a>  <a class="btn" href="https://p2p.thecurestartsnow.org/dipg" target="_blank" role="button"><i class="fas fa-heart"></i>  Donate</a> </div> <div class="row"> <div class="col-md-3"> <a href="/"><img class="logo" src="/dipg.org/images/dipg-org-logo.svg" alt="DIPG.org"></a><br> <p class="title">The DIPG / DMG Resource Network</p> <div id="google_translate_element" style="margin-top: 15px;"></div> <button type="button" class="navbar-toggle collapsed" data-toggle="collapse" data-target="#navbar"> <span class="sr-only">Toggle navigation</span> <span class="icon-bar top"></span> <span class="icon-bar middle"></span> <span class="icon-bar bottom"></span> </button> </div> <div class="col-md-9 col-sm-12"> <div id="navbar" class="navbar-collapse collapse"> <a class="btn show-mobile" href="/updates/" role="button"><i class="fas fa-envelope"></i>  Sign-Up for Updates</a> <ul class="nav navbar-nav navbar-right"> <li class="nonselected"><a href="#" class="dropdown-toggle " data-toggle="dropdown" role="button">Facts <span class="caret"></span></a> <ul class="dropdown-menu"> <li class="nonselected"><a href="/facts/what-is-dipg/">What is DIPG</a> <ul> <li class="nonselected"><a href="/facts/what-is-dipg/function-of-the-pons/">Function of the Pons</a></li> </ul> </li> <li class="nonselected"><a href="/facts/what-is-dmg/">What is DMG</a> </li> <li class="nonselected"><a href="/facts/dipg-vs-dmg/">DIPG vs DMG</a> </li> <li class="nonselected"><a href="/facts/symptoms-of-dipgdmg/">Symptoms of DIPG/DMG</a> </li> <li class="nonselected"><a href="/facts/diagnosis-and-imaging-of-dipg/">Diagnosis and Imaging of DIPG</a> <ul> <li class="nonselected"><a href="/facts/diagnosis-and-imaging-of-dipg/history-of-imaging/">History of Imaging</a></li> <li class="nonselected"><a href="/facts/diagnosis-and-imaging-of-dipg/conventional-imaging/">Conventional Imaging</a></li> <li class="nonselected"><a href="/facts/diagnosis-and-imaging-of-dipg/advanced-imaging/">Advanced Imaging</a></li> <li class="nonselected"><a href="/facts/diagnosis-and-imaging-of-dipg/biopsies/">Biopsies</a></li> </ul> </li> <li class="nonselected"><a href="/facts/clinical-course-for-dipg/">Clinical Course for DIPG</a> </li> <li class="nonselected"><a href="/facts/causes-of-dipg/">Causes of DIPG</a> </li> <li class="nonselected"><a href="/facts/dipg-survival-rate-and-prognosis/">DIPG Survival Rate and Prognosis</a> </li> <li class="nonselected"><a href="/facts/a-cure-for-dipg/">A Cure for DIPG</a> </li> </ul> </li> <li class="selected"><a href="/statistics/">Statistics</a></li> <li class="nonselected"><a href="#" class="dropdown-toggle " data-toggle="dropdown" role="button">Treatment <span class="caret"></span></a> <ul class="dropdown-menu"> <li class="nonselected"><a href="/treatment/overview/">Overview</a> </li> <li class="nonselected"><a href="/treatment/clinical-trials/">Clinical Trials</a> <ul> <li class="nonselected"><a href="/treatment/clinical-trials/active-clinical-trials/">Active Clinical Trials</a></li> <li class="nonselected"><a href="/treatment/clinical-trials/clinical-trial-phases/">Clinical Trial Phases</a></li> <li class="nonselected"><a href="/treatment/clinical-trials/compassionate-use-and-expanded-access/">Compassionate Use and Expanded Access</a></li> <li class="nonselected"><a href="/treatment/clinical-trials/side-effects/">Side Effects</a></li> <li class="nonselected"><a href="/treatment/clinical-trials/consent-and-assent/">Consent and Assent</a></li> <li class="nonselected"><a href="/treatment/clinical-trials/questions-to-ask/">Questions to Ask</a></li> </ul> </li> <li class="nonselected"><a href="/treatment/radiation-therapy/">Radiation Therapy</a> </li> <li class="nonselected"><a href="/treatment/radiosensitizers/">Radiosensitizers</a> </li> <li class="nonselected"><a href="/treatment/surgery/">Surgery</a> <ul> <li class="nonselected"><a href="/treatment/surgery/treating-hydrocephalus/">Treating Hydrocephalus</a></li> </ul> </li> <li class="nonselected"><a href="/treatment/chemotherapy/">Chemotherapy</a> </li> <li class="nonselected"><a href="/treatment/ced/">CED</a> </li> <li class="nonselected"><a href="/treatment/steroids/">Steroids</a> </li> <li class="nonselected"><a href="/treatment/car-t/">CAR-T</a> </li> <li class="nonselected"><a href="/treatment/emerging-treatments/">Emerging Treatments</a> </li> <li class="nonselected"><a href="/treatment/patient-care/">Patient Care</a> <ul> <li class="nonselected"><a href="/treatment/patient-care/health-care-team/">Health Care Team</a></li> <li class="nonselected"><a href="/treatment/patient-care/general-care/">General Care</a></li> <li class="nonselected"><a href="/treatment/patient-care/nutrition-and-feeding/">Nutrition and Feeding</a></li> <li class="nonselected"><a href="/treatment/patient-care/skin-issues/">Skin Issues</a></li> <li class="nonselected"><a href="/treatment/patient-care/fatigue/">Fatigue</a></li> <li class="nonselected"><a href="/treatment/patient-care/breathing-issues/">Breathing Issues</a></li> <li class="nonselected"><a href="/treatment/patient-care/seizures/">Seizures</a></li> <li class="nonselected"><a href="/treatment/patient-care/sleeping-issues/">Sleeping Issues</a></li> <li class="nonselected"><a href="/treatment/patient-care/ports-and-catheters/">Ports and Catheters</a></li> <li class="nonselected"><a href="/treatment/patient-care/complementary-and-alternative-medicines/">Complementary and Alternative Medicines</a></li> <li class="nonselected"><a href="/treatment/patient-care/practical-care-issues/">Practical Care Issues</a></li> <li class="nonselected"><a href="/treatment/patient-care/communication-challenges/">Communication Challenges</a></li> <li class="nonselected"><a href="/treatment/patient-care/caring-for-your-children-and-yourselves/">Caring for Your Children and Yourselves</a></li> <li class="nonselected"><a href="/treatment/patient-care/other-helpful-tips/">Other Helpful Tips</a></li> <li class="nonselected"><a href="/treatment/patient-care/making-difficult-decisions/">Making Difficult Decisions</a></li> <li class="nonselected"><a href="/treatment/patient-care/parents-advice-for-other-parents/">Parent's Advice for Other Parents</a></li> </ul> </li> </ul> </li> <li class="nonselected"><a href="#" class="dropdown-toggle " data-toggle="dropdown" role="button">Research <span class="caret"></span></a> <ul class="dropdown-menu"> <li class="nonselected"><a href="/research/overview/">Overview</a> </li> <li class="nonselected"><a href="/research/genomics-and-proteomics/">Genomics and Proteomics</a> </li> <li class="nonselected"><a href="/research/animal-models/">Animal Models</a> </li> <li class="nonselected"><a href="/research/stem-cells/">Stem Cells</a> </li> <li class="nonselected"><a href="/research/dipgdmg-registry/">DIPG/DMG Registry</a> </li> <li class="nonselected"><a href="/research/symposium/">Symposium</a> </li> </ul> </li> <li class="nonselected"><a href="#" class="dropdown-toggle " data-toggle="dropdown" role="button">Support <span class="caret"></span></a> <ul class="dropdown-menu"> <li class="nonselected"><a href="/support/dipg-dmg-support/">DIPG / DMG Support</a> </li> <li class="nonselected"><a href="/support/talking-with-your-child/">Talking With Your Child</a> </li> <li class="nonselected"><a href="/support/sibling-support/">Sibling Support</a> <ul> <li class="nonselected"><a href="/support/sibling-support/coping-support/">Coping Support</a></li> <li class="nonselected"><a href="/support/sibling-support/if-treatment-stops-working/">If Treatment Stops Working</a></li> <li class="nonselected"><a href="/support/sibling-support/grieving/">Grieving</a></li> </ul> </li> </ul> </li> <li class="nonselected"><a href="/blog/">Blog</a></li> <li class="nonselected"><a href="/faq/">FAQ</a></li> <li class="show-mobile"><a class="" href="/search">Search</a></li> <li class="show-mobile"><a class="" href="/contact">Contact</a></li> </ul> <div class="neon show-mobile text-center"><script src="https://thecurestartsnow.app.neoncrm.com/forms/share/UE9QLUZPUk1TSEFSSU5HLUNPREU0Nw=="></script></div> </div> </div> </div> </div> </nav> </div> </header> <main> <div class="container"> <div class="row content"> <article class="col-sm-10 col-sm-offset-1"> <h1>DIPG Statistics</h1> <p class="lead">Brain tumors are now the most common cancer and cause of cancer-related death in children less than 15 years of age. They are the most common solid tumor in children – accounting for approximately 25% of all childhood cancers. Diffuse intrinsic pontine gliomas <strong>(DIPG) are the most common brainstem tumors in children</strong><span>, representing approximately 75-80% of all pediatric brainstem tumors.</span></p> <h2>DIPG Data</h2> <figure class="right col-md-5"><img alt="DIPG patient age at diagnosis" src="/media/umpicdd2/dipg-age-at-diagnosis-chart.png"></figure> <p>Thanks to patient information being collected by the<span> </span><a href="http://www.dipgregistry.org/" target="_blank" rel="noopener">DIPG Registry</a>, we are now better able to view and chart patient attributes to look for correlative data. This data is already being used to influence new research<sup>1</sup>:</p> <ul> <li>Approximately 150-300 patients are diagnosed with DIPG in the USA per year.</li> <li>The median age of patients with DIPG is approximately 6-7 years old.</li> <li>The male/female ratio of DIPG patients is 1:1.</li> </ul> <p><a class="btn primary" href="/facts/dipg-survival-rate-and-prognosis/" role="button" title="DIPG Survival Rates">Get the stats on DIPG survival rates</a></p> <p><strong>Other Statistics</strong>:</p> <ul> <li>Brain tumors are the most common solid tumor in children and comprise approximately 25% of childhood cancers<sup>2</sup></li> <li>Brain tumors are now the most common cancer and cause of cancer-related death in children less than 15 years of age<sup>3</sup></li> <li>The overall incidence rate of all primary brain tumor is 5.8 per 100,000 population in the US for children and adolescents 0-19 years of age<sup>3</sup></li> <li>Diffuse intrinsic pontine gliomas (DIPG) are the most common brainstem tumors in children, representing approximately 75-80% of all pediatric brainstem tumors<sup>4</sup></li> </ul> <footer class="footnotes"> <p><span>1. Special thanks to the DIPG Registry for statistical information, </span><span>*current as of February 7, 2019.</span></p> <p><span>2. </span>Pizzo, P.A., Poplack, D.G., Adamson, P.C., Blaney, S.M. & Helman, L. <em>Principles and practice of pediatric oncology</em>, xxiv, 1296 pages (Wolters Kluwer, Philadelphia, 2016).</p> <p>3. Ostrom, Q.T.<em> et al.</em> CBTRUS Statistical Report: Primary brain and other central nervous system tumors diagnosed in the United States in 2010-2014. <em>Neuro Oncol</em> <strong>19</strong>, v1-v88 (2017).</p> <p>4. Warren, K.E. Diffuse intrinsic pontine glioma: poised for progress. <em>Front Oncol</em> 2, 205 (2012).</p> <p></p> </footer> </article> </div> </div> </main> <footer id="footer"> DIPG.org is proud to be a part of <strong>The Cure Starts Now Cancer Resource Network</strong>:<br /><a href="https://thecurestartsnow.org" target="_blank">The Cure Starts Now</a> | <a href="https://curecancer.org" target="_blank">CureCancer.org</a> | <a href="https://dipg.org" target="_blank">DIPG.org</a> | <a href="https://medulloblastoma.org" target="_blank">Medulloblastoma.org</a><br /><br />10280 Chester Road, Cincinnati, Ohio 45215 | 513-772-4888<br />Copyright 2022 The Cure Starts Now. All Rights Reserved.<br /><br />Special thanks to the <a href="http://dipgregistry.org" target="_blank" rel="noopener">DIPG Registry</a> and <a href="http://dipgcollaborative.org" target="_blank" rel="noopener">DIPG Collaborative</a><br /><br />Image Courtesy the Waneka Family and C. Roese Ramp Photography<br /><br /> </footer>  <script type="text/javascript"> ;(function(o,l,a,r,k,y){if(o.olark)return; r="script";y=l.createElement(r);r=l.getElementsByTagName(r)[0]; y.async=1;y.src="//"+a;r.parentNode.insertBefore(y,r); y=o.olark=function(){k.s.push(arguments);k.t.push(+new Date)}; y.extend=function(i,j){y("extend",i,j)}; y.identify=function(i){y("identify",k.i=i)}; y.configure=function(i,j){y("configure",i,j);k.c[i]=j}; k=y._={s:[],t:[+new Date],c:{},l:a}; })(window,document,"static.olark.com/jsclient/loader.js"); /* Add configuration calls below this comment */ olark.identify('7666-621-10-1019');</script>  </body> </html>

CINXE.COM

DIPG Stats