How Can Patients and Researchers Design Clinical Trials Together?

<!DOCTYPE html> <html lang="en" dir="ltr"> <head> <meta name="viewport" content="width=device-width, initial-scale=1.0"> <meta charset="utf-8" /> <meta name="description" content="Read time: 2 minutes. Traditionally, people associate getting involved in lung cancer research with enrolling in a clinical trial. But most don’t realize they can also partner with researchers behind the scenes and get involved in designing clinical trials. 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Patients and Researchers Design Clinical Trials Together?</span> </h1> <footer class="node__meta"> <article class="profile"> </article> <div class="node__submitted"> Posted on July 10, 2024 </div> </footer> <div class="node__content"> <div class="layout layout--onecol"> <div class="layout__region layout__region--content"> <div class="block block-layout-builder block-extra-field-blocknodearticlelinks"> </div> <div class="block block-layout-builder block-field-blocknodearticlefield-author"> <div class="field field--name-field-author field--type-string field--label-hidden field__item">Juhi Kunde, Director of Science and Research Marketing</div> </div> <div class="block block-layout-builder block-field-blocknodearticlefield-image"> <div class="field field--name-field-image field--type-image field--label-hidden field__item"> <img loading="lazy" src="/sites/default/files/2024-07/How%20Can%20Patients%20and%20Researchers%20Design%20Clinical%20Trials%20Together_Blog_2024_1200x630_18Jun2024.png" width="1200" height="630" alt="Title slide" /> </div> </div> <div class="block block-layout-builder block-field-blocknodearticlebody"> <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><p><em>Read time: 2 minutes</em>.  </p><p>Traditionally, people associate getting involved in lung cancer research with enrolling in a clinical trial. But most don’t realize they can also partner with researchers behind the scenes and get involved in designing clinical trials.  </p><p>In the first of a three-part series, <a href="https://www.risingtide-foundation.org/clinical-cancer-research/">Rising Tide Foundation for Clinical Cancer Research</a> has partnered with LUNGevity to understand the role people with lung cancer can play in developing clinical trials. Through panelist presentations and discussions, this video focuses on patient-centric endpoints, showcases this collaboration from the patient point of view, and shares the researcher perspective.  </p><p>You can watch the entire conversation or use the timestamps below to find specific topics of interest. </p></div> </div> <div class="block block-layout-builder block-field-blocknodearticlefield-video"> <div class="clearfix text-formatted field field--name-field-video field--type-text-long field--label-hidden field__item"><div class="width560"><video controls="" poster="https://www.lungevity.org/sites/default/files/2024-07/How%20Can%20Patients%20and%20Researchers%20Design%20Clinical%20Trials%20Together_Blog_2024_1200x630_18Jun2024.png" width="100%"><source src="https://lungevity.canto.com/direct/video/iug1vsso8p14jffurcau1d497l/5mdM_rSV8HBJLdO9BrCU3LdIECo/play" type="video/mp4"></video></div><h3>Panelist Introductions: 0:00 – 3:59 </h3><ul><li>Dr. Shabbir Alibhai, professor of medicine at the Princess Margaret Cancer Centre and University of Toronto </li><li>Janet Freeman-Daily, co-founder and president of the ROS1ders </li><li>Winston Klaas, past chairman and associate director of Prostate Cancer Support Toronto.  </li></ul><h3>Researcher Insights: 4:00 – 19:50 </h3><p>Dr. Alibhai speaks about how his team has conducted three studies that included patients in clinical trial design. He shares his experiences and learnings from working closely with patients to understand their perspectives. </p><h3>Patient Insights: 19:43 – 31:30 </h3><p>Winston Klaas talks about being a patient and taking part in the clinical trial design process. He shares his tips and key considerations for how researchers can engage with patients successfully.  </p><h3>Discussion: 31:30 – 55:49 </h3><p>In a discussion led by Janet Freeman-Daily, the panelists unearth important details about effective collaboration. Their conversation highlights key skills for researchers and patients to use when successfully collaborating on research studies.  </p><p><a href="https://www.lungevity.org/for-patients-caregivers/navigating-your-diagnosis/treatment-options/clinical-trials"><em>Learn more about clinical trials here.</em></a></p></div> </div> </div> </div> </div> </article> </div> </div> </div> </div> </main> </div> <div class="add-to-any-container"> <span><strong>SHARE</strong></span>  <div class="a2a_kit a2a_kit_size_32 a2a_default_style"> <a class="a2a_button_facebook"></a> <a class="a2a_button_twitter"></a> <a class="a2a_button_email"></a> </div> <script async src="https://static.addtoany.com/menu/page.js"></script>  </div> <footer aria-label="Site footer" class="footer" id="footer" role="contentinfo"> <div class="page-max-width container-fluid py-4"> </div> <div class="bg-primary- page-bottom"> <div class="page-max-width container-fluid py-3"> </div> </div> </footer>  <div class="modal fade" id="modal-link-popup" tabindex="-1" aria-labelledby="" aria-hidden="true"> <div class="modal-dialog modal-lg"> <div class="modal-content rounded-0"> <div class="modal-header border-0 rounded-0"> <button type="button" class="close" data-dismiss="modal" aria-label="Close"> <span aria-hidden="true"><i class="bi bi-x"></i></span> </button> </div> <div class="modal-body"> <iframe frameborder="0" allowfullscreen="" src="" class="modal-link-iframe"></iframe> </div> </div> </div> </div> </div>  <script type='text/javascript'> (function(){var g=function(e,h,f,g){ this.get=function(a){for(var a=a+"=",c=document.cookie.split(";"),b=0,e=c.length;b<e;b++){for(var d=c[b];" "==d.charAt(0);)d=d.substring(1,d.length);if(0==d.indexOf(a))return d.substring(a.length,d.length)}return null}; this.set=function(a,c){var b="",b=new Date;b.setTime(b.getTime()+6048E5);b="; expires="+b.toGMTString();document.cookie=a+"="+c+b+"; path=/; "}; this.check=function(){var a=this.get(f);if(a)a=a.split(":");else if(100!=e)"v"==h&&(e=Math.random()>=e/100?0:100),a=[h,e,0],this.set(f,a.join(":"));else return!0;var c=a[1];if(100==c)return!0;switch(a[0]){case "v":return!1;case "r":return c=a[2]%Math.floor(100/c),a[2]++,this.set(f,a.join(":")),!c}return!0}; this.go=function(){if(this.check()){var a=document.createElement("script");a.type="text/javascript";a.src=g;document.body&&document.body.appendChild(a)}}; this.start=function(){var t=this;"complete"!==document.readyState?window.addEventListener?window.addEventListener("load",function(){t.go()},!1):window.attachEvent&&window.attachEvent("onload",function(){t.go()}):t.go()};}; try{(new g(100,"r","QSI_S_ZN_82kRiYF2KfC6JMi", 'https://zn82kriyf2kfc6jmi-lungevity.siteintercept.qualtrics.com/SIE/?Q_ZID=ZN_82kRiYF2KfC6JMi')).start()}catch(i){}})(); </script><div id='ZN_82kRiYF2KfC6JMi'></div>  <script type="application/json" data-drupal-selector="drupal-settings-json">{"path":{"baseUrl":"\/","pathPrefix":"","currentPath":"node\/501207","currentPathIsAdmin":false,"isFront":false,"currentLanguage":"en"},"pluralDelimiter":"\u0003","suppressDeprecationErrors":true,"data":{"extlink":{"extTarget":true,"extTargetAppendNewWindowLabel":"(opens in a new window)","extTargetNoOverride":true,"extNofollow":false,"extNoreferrer":true,"extFollowNoOverride":false,"extClass":"0","extLabel":"(link is external)","extImgClass":false,"extSubdomains":true,"extExclude":"","extInclude":"","extCssExclude":"","extCssInclude":"","extCssExplicit":"","extAlert":false,"extAlertText":"This link will take you to an external web site. 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How Can Patients and Researchers Design Clinical Trials Together? | Patient Gateway