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data-react-cache-id="DesktopNav-0"></div> </div> </div> </div> </header> <div data-react-class="AndroidSmartBanner" data-react-props="{"signedIn":false}" data-react-cache-id="AndroidSmartBanner-0"></div> <nav class="sliding-nav header-in-mobile header-mobile-white"> <div data-react-class="SlidingNav" data-react-props="{"homeUrl":"/member_home","isHome":false,"newUser":true,"hideMobileHeaderLogin":null,"signedIn":false,"myHealthNavLink":true,"loggedoutPages":true,"whiteHeader":true,"globalHeaderNotification":true,"showMarketplace":true,"partnerName":null,"newBlogs":true}" data-react-cache-id="SlidingNav-0"></div> <div class="mega-nav"> <div class="mega-nav-items"> <nav class="secondary-nav" role="navigation"> <dl data-widget="accordion_menu"> <dd><a class="nav-item join-link-js" href="/users/sign_up">Join now</a></dd> <dd><a class="nav-item" href="/users/sign_in">Sign in</a></dd> <dt aria-expanded="false" class="panel-toggle conditions closed"><a class="nav-item" data-fn-click="accordion_menu.toggle" href="#">Conditions</a></dt><dd style="display: none" aria-hidden="true"><div class="condition-selector-widget hide-in-main-nav-for-medium-down"> <ul class="js-condition-filter-menu" data-popup-type="menu"> </ul> <div class="nav-item mega-nav-sub-item"> <div class="search-wrapper"> <label class="is-hidden-visually" for="condition_search_input">Search conditions</label> <input type="search" id="" class="has-max-width" placeholder="Look up a condition" maxlength="100" data-fn-autocompleteselect="open_report_page" data-types="["Condition"]" data-widget="omni_picker" data-fn-focusin="omni_picker.initialize" /> </div> </div> </div> </dd><dd><a data-match="/treatments" class="nav-item" href="/treatments">Treatments</a></dd> <dd><a data-match="/symptoms" class="nav-item" href="/symptoms">Symptoms</a></dd> <dd><a class="nav-item" href="/about">About PatientsLikeMe</a></dd> <dd><a class="nav-item" href="http://support.patientslikeme.com/hc/en-us/categories/200085220-Crisis-resources">Crisis</a></dd> </dl> </nav> </div> </div> </nav> <a class="is-hidden-visually" id="startcontent"></a> <div class=" " role="main"> <div class="base-panel scroll-section"> <div class="about-us-wrapper"> <div class="full-width-banner banner-section"> <div class="row align-items-center"> <div class="columns small-24 large-8"> <h1>Empowering Patients Through Community</h1> </div> <div class="columns large-2"></div> <div class="columns small-24 large-14 pt-5 text-center"> <img alt="TOA image" class="" src="https://dy82vckl8b34w.cloudfront.net/assets/about/banner_image-5afcd5c7fd21991cfa7642c9d6ea4ba7bb2e89666f037322ef9dba27082c68ec.png" /> </div> </div> </div> <div class="mission-section"> <div class="row"> <div class="columns small-24"> <h2 class="mb-3">Our mission</h2> </div> <div class="columns small-24 large-17"> We believe in the power of community to improve the lived experience of patients managing complex health conditions. Our purpose is to create a trusted digital platform that empowers patients to navigate their health journeys together through peer support, personalized health insights, tailored digital health services and patient-friendly clinical education. </div> </div> </div> <hr class="seperator"> <div class="core-values-section"> <div class="row"> <div class="columns small-24"> <h2 class="mb-3">Our core values</h2> </div> <div class="columns small-24 large-6"> <h5>Patient driven</h5> <p>In our eyes, the patient is the center of the healthcare universe. We lead with a patient first mentality in all areas of our business.</p> </div> <div class="columns small-24 large-6"> <h5>Committed to Community</h5> <p>Healing is not a solitary journey. By sharing our experiences and providing empathetic support, patients can help other patients take charge of their health.</p> </div> <div class="columns small-24 large-6"> <h5>Integrated health</h5> <p>Physical and mental health should not be managed in isolation. Healing should focus on improving the patient's physical wellbeing and psychosocial needs.</p> </div> <div class="columns small-24 large-6"> <h5>Trust</h5> <p>We honor the trust our members place in us to safeguard their health data. We are committed to acting transparently and with integrity in using our members' data to deliver insights to our community.</p> </div> </div> </div> <hr class="seperator"> <div class="our-story-section"> <div class="row"> <div class="columns small-24"> <h2 class="mb-3">Our story</h2> </div> <div class="columns small-24"> <h4 class="highlight-text">PatientsLikeMe started with one patient, and one family's experience with a life-changing condition.</h4> <p>When Stephen Heywood was diagnosed with ALS in 1998 at the age of 29, his brothers Jamie and Ben got to work, trying anything they could to slow Stephen's disease progression. They became citizen scientists, harnessing the power of any and all information they could find. It was a trial-and-error approach. Something was missing and they knew there had to be a better way. What couldn't they find? The aggregated real-world experiences of others living with and fighting to survive ALS.</p> <p>So, they launched PatientsLikeMe (PLM) to connect ALS patients in 2005. It quickly expanded, and since 2011, we have been welcoming people living with any health condition to connect with peers, learn together and take charge of their health.</p> <p>Today, PatientsLikeMe is one of the world’s largest patient community and digital health management platforms. Its growing community of more than 850,000 members with over 2,800 conditions share personal stories and information about their health, symptoms, and treatments, with a goal to improve the lives of all patients through knowledge derived from shared real-world experiences and outcomes. PatientsLikeMe is a digital health platform uniquely designed to empower the patient communities with personal agency, establishing PatientsLikeMe as a clinically robust resource with demonstrated impact, validated by more than 100 studies in peer-reviewed medical and scientific journals.</p> <p>PatientsLikeMe continues to accelerate its ambitious vision of evolving its trusted patient community into an industry leading consumer platform that helps patients navigate their health journey through peer learning and support, personalized health insights, tailored digital health services and patient-friendly clinical education.</p> </div> </div> </div> <div class="member-quote-section full-width-banner pt-5"> <div class="row align-items-center"> <div class="columns small-24 medium-16 large-13"> <h1> <img alt="" class="open-quote" src="https://dy82vckl8b34w.cloudfront.net/assets/about/open_quote-a5b3ea5ddd25ac4a009c65ec82d63479372eabb10edcce77fbc864213d629bf5.svg" /> I don’t believe that we go through things so that we can keep them to ourselves. <img alt="" class="close-quote" src="https://dy82vckl8b34w.cloudfront.net/assets/about/close_quote-c8d0a1a92c240461fdff66c81986b579f4b0e5999da8a9787377118b5510c46a.svg" /> <div class="name-wrapper"> <span class="name">Alyshia</span> <span class="color-slash">//</span> <span class="text-muted">LIVING WITH Lupus</span> </div> <p></p> </h1> </div> <div class="columns medium-2"></div> <div class="columns small-24 medium-8 text-center"> <img alt="Alyshia patient" class="" src="https://dy82vckl8b34w.cloudfront.net/assets/about/alyshia-743480a29046c2548efd55e6b05c78c172d721b8137eb58305ac08cd6aec3333.png" /> </div> </div> </div> <div class="more-about-plm-section"> <div class="row"> <div class="columns small-24"> <h2>More about PatientsLikeMe</h2> </div> <div class="columns small-24 medium-8 large-8 item"> <img alt="TOA" class="" width="391" src="https://dy82vckl8b34w.cloudfront.net/assets/about/team_of_advisors-7adb91fcf5a8c8518488949368bdbe0cacbe18e71865502f41c06d269d2caf3b.jpg" /> <div class="sub-text"> <h5 class="margin-bottom-half"> <a target="_blank" href="/toa">Team of Advisors</a> </h5> <p>Learn how we work directly with members on this patient-only panel.</p> </div> </div> <div class="columns small-24 medium-8 large-8 item"> <img alt="Our partners" class="" src="https://dy82vckl8b34w.cloudfront.net/assets/about/partners-2a4cb7513cc2cce07b26abe6a9eb551a76c0b44194244baf29c733e67b3993e5.png" /> <div class="sub-text"> <h5 class="margin-bottom-half"> <a target="_blank" href="/partners">our partners</a> </h5> <p>PatientsLikeMe has partnered with over 80 biopharmaceutical and healthcare industry innovators to advance our mission.</p> </div> </div> <div class="columns small-24 medium-8 large-8 item"> <img alt="PLM in the news" class="" src="https://dy82vckl8b34w.cloudfront.net/assets/about/news-bf871fa48f0dae0a6540f40cc4b3f39ea1fd3bd67a08e03f60c39b6a51bc0aca.png" /> <div class="sub-text"> <h5 class="margin-bottom-half"> <a target="_blank" href="/press">PLM in the news</a> </h5> <p> See what the press is saying about PatientsLikeMe. 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Click <a target="_blank" href="/about/contact">here</a> to connect. </p> </div> </div> </div> </div> </div> <div class="padding-vertical-half align-right-medium padding-horizontal hide-for-small" id="back-to-top"> <a href="#top"> <span class="arrow-inline arrow-up ">▲</span> Back to top </a> </div> </div> </div> </div> <footer class="padding-top padding-top-md-double site-footer has-new-logo site-footer-white"> <div class="row"> <div class="columns medium-12 medium-push-12 margin-bottom plm-logo-footer"> <div class="is-hidden-visually"> PatientsLikeMe ® </div> <div data-react-class="PlmLogoComponent" data-react-props="{"title":"","classNames":"large-plm-logo"}" data-react-cache-id="PlmLogoComponent-0"></div> </div> <div class="columns medium-4 medium-pull-12 small-12 margin-bottom-half padding-bottom"> <h6 class="helptext margin-bottom-quarter">Company</h6> <ul class="no-bullets site-footer-links"> <li class="padding-vertical-quarter"><a class="margin-vertical-quarter" href="/about">About us</a></li> <li class="padding-vertical-quarter"><a class="margin-vertical-quarter" href="/about/privacy">Privacy and Security</a></li> <li class="padding-vertical-quarter"><a class="margin-vertical-md-quarter" href="https://www.patientslikeme.com/press">Press</a></li> <li class="padding-vertical-quarter"><a class="margin-vertical-md-quarter" href="/blog">Blog</a></li> <li class="padding-vertical-quarter"><a class="margin-vertical-md-quarter" href="http://support.patientslikeme.com/hc/en-us/articles/201245750">Funding</a></li> <li class="padding-vertical-quarter"><a class="margin-vertical-md-quarter" href="/about/careers">Careers</a></li> <li class="padding-vertical-quarter"><a class="margin-vertical-md-quarter" href="/toa">Team of Advisors</a></li> </ul> </div> <div class="columns medium-4 medium-pull-12 small-12"> <h6 class="helptext margin-bottom-quarter">Work with us</h6> <ul class="no-bullets site-footer-links"> <li class="padding-vertical-quarter"><a class="margin-vertical-quarter" href="https://www.patientslikeme.com/partners">Our partners</a></li> <li class="padding-vertical-quarter"><a class="margin-vertical-quarter" href="/research/publications">Research Publications</a></li> </ul> </div> <div class="columns medium-4 small-12 end medium-pull-12 margin-bottom-md-double"> <h6 class="helptext margin-bottom-quarter">Support</h6> <ul class="no-bullets site-footer-links"> <li class="padding-vertical-quarter"><a class="margin-vertical-quarter" href="/about/contact">Contact us</a></li> <li class="padding-vertical-quarter"><a class="margin-vertical-quarter" href="http://support.patientslikeme.com/hc/en-us/categories/200085220-Crisis-resources">Crisis Resources</a></li> <li class="padding-vertical-quarter"><a class="margin-vertical-quarter" href="http://support.patientslikeme.com/">Help Center</a></li> <li class="padding-vertical-quarter"><a class="margin-vertical-quarter" href="/about/user_agreement">User Agreement</a></li> </ul> </div> <div class="columns medium-12 medium-offset-12 footer-social padding-left margin-bottom-md small-offset-1 padding-top"> <div class="clearfix"></div> <a class="icon icon-blog" href="/blog"><span class="is-hidden-visually">/blog</span> </a><a class="icon icon-fb-v2" href="https://www.facebook.com/PatientsLikeMe"><span class="is-hidden-visually">https://www.facebook.com/PatientsLikeMe/</span> </a><a class="icon icon-x" href="https://twitter.com/patientslikeme"><span class="is-hidden-visually">https://twitter.com/patientslikeme</span> </a><a class="icon icon-linkedin-v2" href="https://www.linkedin.com/company/patientslikeme"><span class="is-hidden-visually">https://www.linkedin.com/company/patientslikeme</span> </a><a class="icon icon-youtube-gray-v2" href="https://www.youtube.com/PatientsLikeMe"><span class="is-hidden-visually">https://www.youtube.com/PatientsLikeMe</span> </a><a class="icon icon-instagram-v2 mb-4" href="https://www.instagram.com/patientslikemeinc/"><span class="is-hidden-visually">https://www.instagram.com/patientslikemeinc/</span> </a><br> <div data-react-class="CCPA" data-react-props="{}" data-react-cache-id="CCPA-0"></div> <p class="margin-top padding-top-20"> (c) 2005-2024 PatientsLikeMe. 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