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MarketsandMarkets Orphan Drugs and Rare Diseases Conference – US Edition

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style="background-color: #f7f7f7; margin-top:75px;" id="overviews"> <div class="header-hero"> <div class="hero-content"> <div class="container"> <div class="row"> <div class="col-xl-7 c-width-58 lineheight-reset col-lg-7 col-md-12"> <div class="white font28"> MarketsandMarkets</div> <h1 class="hero-title pink py-4"> Orphan Drugs and Rare Diseases Conference – US Edition </h1> <p><span class="c-white font18 pr-4"><span class="fa fa-calendar mr-3"></span> 17th – 18th October 2024</span></p> <p class="c-white font18"><span class="fa fa-map-marker mr-3"></span> Hilton Boston Logan Airport, One Drive, Boston, MA 02128, USA</span></p> <a href="https://events.marketsandmarkets.com/orphan-drugs-and-rare-diseases-conference-us-edition/register" class="js-scroll-trigger"><button class="btn btn-info btn-lg mb-2">Register Now</button></a> <!--a href="https://events.marketsandmarkets.com/orphan-drugs-and-rare-diseases-conference-us-edition/enquiry" class="js-scroll-trigger"><button class="btn btn-info btn-lg mb-2">Get Your Free Info-Kit</button></a--> </div> <div class="col-xl-5 c-width-37 col-lg-5 col-md-12"> <div class="row bannerRhs"> <div class="col-4"> <a href="https://events.marketsandmarkets.com/orphan-drugs-and-rare-diseases-conference-us-edition/register" class="js-scroll-trigger"><div class="bg-white rounded text-center py-4"> <img src="https://events.marketsandmarkets.com/cncnewdesign/images/CnC-Inner-banner1.jpg" class="mb-4" alt="Avail Your Ticket"> <span> Avail <br> Your Ticket</span> </div></a> </div> <div class="col-4"> <a href="https://events.marketsandmarkets.com/orphan-drugs-and-rare-diseases-conference-us-edition/become-sponsor"> <div class="bg-white rounded text-center py-4"> <img src="https://events.marketsandmarkets.com/cncnewdesign/images/CnC-Inner-banner2.jpg" class="mb-4" alt="Become A Sponsor"> <span>Become <br> A Sponsor</span> </div></a> </div> <div class="col-4"> <a href="https://events.marketsandmarkets.com/orphan-drugs-and-rare-diseases-conference-us-edition/speaker-enquiry" class="js-scroll-trigger"> <div class="bg-white rounded text-center py-4"><img src="https://events.marketsandmarkets.com/cncnewdesign/images/CnC-Inner-banner3.jpg" class="mb-4" alt="Become A Speaker"> <span>Become <br> A Speaker</span> </div> </a> </div> </div> </div> </div> </div> </div> </div> </div> <div class="container pb-4"> <div class="py-4"> <h3 class="e-head0">EVENT OVERVIEW</h3> <h2 class="pageHead pt-2">Empowering Progress: Navigating Orphan Drugs & Rare Diseases from Regulation to Detection & Precision Treatments</h2> <p>Join us at our MarketsandMarkets <strong>Orphan Drugs and Rare Diseases Conference</strong> in<strong> </strong><strong>Hilton Boston Logan Airport, One Drive, Boston, MA 02128, USA</strong> for a groundbreaking exploration of the recent advances in developing life-saving therapies, technologies in diagnosing, and strategies to enhance orphan drug development.</p> <p>The conference will focus on the wide scope of orphan drug developments, critical issues of elevated pricing, reimbursement &amp; access to patients, and strategies to enhance access to novel diagnostics and effective therapies for rare to ultra&ndash;rare diseases.</p> <div class="tbottom"> <p>The event will bring together leading pharmaceutical and biotech companies, government and regulatory authorities, patient advocacy groups, payers, investors, and solution providers. It is an unrivalled opportunity to network and exchange invaluable knowledge with the expert leaders in the rare disease community &ndash; patient advocates, policy makers, researchers, clinicians, healthcare professionals, healthcare industry representatives, academics, payers, regulators across the globe.</p> <p>Have a chance to discuss the newest findings in rare diseases and orphan drugs, helping to shape present and upcoming challenges in drug analysis, allowing participants to interact with industry peers and participate in this scientific conference while staying informed about the most recent developments in the study of rare diseases.</p> <p><strong><em>We invite you to join us in pushing the boundaries of innovation, forging collaborative partnerships, and creating a brighter future for the millions living with rare conditions across US and beyond!</em></strong></p> </div> </div> </div> <div class="wte-Wrap"> <div class="container"> <h3 class="e-head0">WHAT TO EXPECT</h3> <!-- >>> --> <div class="tab-teaser"> <div class="tab-menu"> <ul> <li><a href="#" class="active" data-rel="tab-11"> <svg class="mr-2" xmlns="http://www.w3.org/2000/svg" width="40" height="40" fill="currentColor" class="bi bi-card-checklist" viewBox="0 0 16 16"> <path d="M14.5 3a.5.5 0 0 1 .5.5v9a.5.5 0 0 1-.5.5h-13a.5.5 0 0 1-.5-.5v-9a.5.5 0 0 1 .5-.5h13zm-13-1A1.5 1.5 0 0 0 0 3.5v9A1.5 1.5 0 0 0 1.5 14h13a1.5 1.5 0 0 0 1.5-1.5v-9A1.5 1.5 0 0 0 14.5 2h-13z"/> <path d="M7 5.5a.5.5 0 0 1 .5-.5h5a.5.5 0 0 1 0 1h-5a.5.5 0 0 1-.5-.5zm-1.496-.854a.5.5 0 0 1 0 .708l-1.5 1.5a.5.5 0 0 1-.708 0l-.5-.5a.5.5 0 1 1 .708-.708l.146.147 1.146-1.147a.5.5 0 0 1 .708 0zM7 9.5a.5.5 0 0 1 .5-.5h5a.5.5 0 0 1 0 1h-5a.5.5 0 0 1-.5-.5zm-1.496-.854a.5.5 0 0 1 0 .708l-1.5 1.5a.5.5 0 0 1-.708 0l-.5-.5a.5.5 0 0 1 .708-.708l.146.147 1.146-1.147a.5.5 0 0 1 .708 0z"/> </svg> Showcase: Key-Highlights </a></li> <li><a href="#" data-rel="tab-12" class=""><svg class="mr-2" xmlns="http://www.w3.org/2000/svg" width="40" height="40" fill="currentColor" class="bi bi-person-vcard-fill" viewBox="0 0 16 16"> <path d="M0 4a2 2 0 0 1 2-2h12a2 2 0 0 1 2 2v8a2 2 0 0 1-2 2H2a2 2 0 0 1-2-2V4Zm9 1.5a.5.5 0 0 0 .5.5h4a.5.5 0 0 0 0-1h-4a.5.5 0 0 0-.5.5ZM9 8a.5.5 0 0 0 .5.5h4a.5.5 0 0 0 0-1h-4A.5.5 0 0 0 9 8Zm1 2.5a.5.5 0 0 0 .5.5h3a.5.5 0 0 0 0-1h-3a.5.5 0 0 0-.5.5Zm-1 2C9 10.567 7.21 9 5 9c-2.086 0-3.8 1.398-3.984 3.181A1 1 0 0 0 2 13h6.96c.026-.163.04-.33.04-.5ZM7 6a2 2 0 1 0-4 0 2 2 0 0 0 4 0Z"/> </svg>Why Attend? Discover Compelling Reasons to Join Us</a></li> <li><a href="#" data-rel="tab-13" class=""><svg class="mr-2" xmlns="http://www.w3.org/2000/svg" width="40" height="40" fill="currentColor" class="bi bi-person-check-fill" viewBox="0 0 16 16"> <path fill-rule="evenodd" d="M15.854 5.146a.5.5 0 0 1 0 .708l-3 3a.5.5 0 0 1-.708 0l-1.5-1.5a.5.5 0 0 1 .708-.708L12.5 7.793l2.646-2.647a.5.5 0 0 1 .708 0z"/> <path d="M1 14s-1 0-1-1 1-4 6-4 6 3 6 4-1 1-1 1H1zm5-6a3 3 0 1 0 0-6 3 3 0 0 0 0 6z"/> </svg> Who should Attend?</a></li> </ul> </div> <style> </style> <div class="tab-main-box"> <div class="tab-box" id="tab-11" style="display:block;"> <div class="row d-flex align-items-center"> <div class="col-12 col-md-9"> <p><ul> <li><strong><em>Overview and Regulatory Updates</em></strong><em>: Current Landscape and Regulatory Developments in US Market.</em></li> <li><strong><em>Emerging Therapies for RDs</em></strong><em>: Recent breakthroughs in CRISPR-Cas9 technology, Cell &amp; Gene Therapies, mRNA therapies &amp; Precision Treatments. </em></li> <li><strong><em>Rare Disease and Genetics: </em></strong><em>Rare Genetic Disease Mechanisms and Therapeutic Targets.</em></li> <li><strong><em>Patient Advocacy, Engagement &amp; Collaboration: </em></strong><em>Critical Role of<strong> </strong>Patient Advocacy and Global Collaboration in Research and Development. </em></li> <li><strong><em>Global Perspectives and Market Access</em></strong><em>: Global market dynamics and market access strategies, sustainable models &amp; roadblocks for orphan drugs.</em></li> <li><strong><em>Drug Discovery &amp; Clinical Trial design: </em></strong><em>Novel drug discoveries and clinical trial implementation &amp; management for rare diseases<strong>&nbsp;</strong>focusing patient perspective<strong>.</strong><strong> </strong></em></li> <li><strong><em>Diagnostics &amp; Care: </em></strong><em>Biomarker Discovery, Digital health/AI applications, Genetic Testing, NGS Technologies for Early Detection and Monitoring. </em></li> <li><strong><em>Pricing, Reimbursement &amp; HTA: </em></strong><em>Health Technology Assessment on decision-making, challenges on high pricing, reimbursement &amp; Commercialization.</em></li> <li><strong><em>OD Manufacturing and Supply Chain: </em></strong><em>Specialized manufacturing and supply chain solutions for orphan drugs.</em></li> <li><strong><em>Rare to Ultra Rare Diseases: </em></strong><em>Emerging Therapies and Distinctive Obstacles in the Identification, Therapy, and Sustained Care of different rare/Ultra Rare diseases in children and adults.</em></li> <li><strong><em>Ethical and Legal Considerations: </em></strong><em>Ethical dilemmas, patient privacy concerns, and legal issues surrounding rare disease research, and data sharing. </em></li> </ul> </p> </div> <div class="col-12 col-md-3"> <svg class="c-grayLight" xmlns="http://www.w3.org/2000/svg" width="200" height="200" fill="currentColor" class="bi bi-card-checklist" viewBox="0 0 16 16"> <path d="M14.5 3a.5.5 0 0 1 .5.5v9a.5.5 0 0 1-.5.5h-13a.5.5 0 0 1-.5-.5v-9a.5.5 0 0 1 .5-.5h13zm-13-1A1.5 1.5 0 0 0 0 3.5v9A1.5 1.5 0 0 0 1.5 14h13a1.5 1.5 0 0 0 1.5-1.5v-9A1.5 1.5 0 0 0 14.5 2h-13z"/> <path d="M7 5.5a.5.5 0 0 1 .5-.5h5a.5.5 0 0 1 0 1h-5a.5.5 0 0 1-.5-.5zm-1.496-.854a.5.5 0 0 1 0 .708l-1.5 1.5a.5.5 0 0 1-.708 0l-.5-.5a.5.5 0 1 1 .708-.708l.146.147 1.146-1.147a.5.5 0 0 1 .708 0zM7 9.5a.5.5 0 0 1 .5-.5h5a.5.5 0 0 1 0 1h-5a.5.5 0 0 1-.5-.5zm-1.496-.854a.5.5 0 0 1 0 .708l-1.5 1.5a.5.5 0 0 1-.708 0l-.5-.5a.5.5 0 0 1 .708-.708l.146.147 1.146-1.147a.5.5 0 0 1 .708 0z"/> </svg> </div> </div> </div> <div class="tab-box" id="tab-12"> <div class="row d-flex align-items-center"> <div class="col-12 col-md-9"> <p><ul> <li>Hear from influential keynote speakers who share their experiences, insights, and visions for the future.</li> <li>Get access to the latest research findings, innovative therapies, and breakthroughs in the field.</li> <li>Platform to exchange insights, discoveries, and best practices in the realm of orphan drugs and rare diseases.</li> <li>Participate in discussions with experts on how to tackle the critical issues shaping the future of orphan drugs.</li> <li>Discover and brainstorm ways to advance orphan drug development and improve access to life-saving therapies.</li> <li>Gain awareness about rare diseases and the challenges associated with developing treatments for these conditions.</li> <li>Collaboration &amp; Networking Opportunities between academia, industry, and advocacy groups, fostering partnerships aimed at accelerating research, drug development, and access to therapies for rare diseases.</li> </ul> </p> </div> <div class="col-12 col-md-3"> <svg class="c-grayLight" xmlns="http://www.w3.org/2000/svg" width="200" height="200" fill="currentColor" class="bi bi-card-checklist" viewBox="0 0 16 16"> <path d="M0 4a2 2 0 0 1 2-2h12a2 2 0 0 1 2 2v8a2 2 0 0 1-2 2H2a2 2 0 0 1-2-2V4Zm9 1.5a.5.5 0 0 0 .5.5h4a.5.5 0 0 0 0-1h-4a.5.5 0 0 0-.5.5ZM9 8a.5.5 0 0 0 .5.5h4a.5.5 0 0 0 0-1h-4A.5.5 0 0 0 9 8Zm1 2.5a.5.5 0 0 0 .5.5h3a.5.5 0 0 0 0-1h-3a.5.5 0 0 0-.5.5Zm-1 2C9 10.567 7.21 9 5 9c-2.086 0-3.8 1.398-3.984 3.181A1 1 0 0 0 2 13h6.96c.026-.163.04-.33.04-.5ZM7 6a2 2 0 1 0-4 0 2 2 0 0 0 4 0Z"/> </svg> </div> </div> </div> <div class="tab-box" id="tab-13"> <div class="row d-flex align-items-center"> <div class="col-12 col-md-9"> <p class="dashed"><p><a name="_Hlk127889961"><strong>Industry</strong></a><strong>:</strong> Pharmaceutical/Therapeutic and Biotechnology Companies</p> <p><strong>Designations:</strong>&nbsp;Chief Executives,&nbsp;President,&nbsp;Vice President,&nbsp;Director, Head of Department,&nbsp;Executive leader,&nbsp;Senior Manager,&nbsp;Manager,&nbsp;Principal Scientist, Scientists.</p> <p><strong>Academic:</strong>&nbsp;Hospitals, Universities, Research institutes &ndash; Professors &amp; Researchers.</p> <p><strong>Departments:</strong></p> <ul> <li><a name="_Hlk132793702">Research and Development</a></li> <li>Pricing and Reimbursement</li> <li>Commercial Development</li> <li>Clinical Development</li> <li>Cell and Gene Therapy</li> <li>Genomics &amp; Genetics</li> <li>Epidemiology</li> <li>Digital Health &amp; Artificial Intelligence</li> <li>Rare Oncology &amp; Neurology</li> <li>Personalized &amp; Innovative Medicine</li> <li>External R&amp;D Innovation</li> <li>Regenerative Medicine</li> <li>Rare and Ultra-Rare Diseases</li> <li>Public,&nbsp;Regulatory,&nbsp;Medical &nbsp; Affairs</li> <li>Patient Engagement</li> <li>Therapeutic Are Lead</li> <li>Market Access/Value Access</li> <li><a name="_Hlk132378291">Patient Advocacy and Supply Chain</a></li> <li>Program Management</li> <li>Health Economics Outcomes Research</li> <li>Investments and Funding</li> <li>Specialty Pharmacies</li> </ul> <p><strong>Others:</strong></p> <p>Payers, Patient Advocates, Regulators and HTA</p> </p> </div> <div class="col-12 col-md-3"> <svg class="c-grayLight" xmlns="http://www.w3.org/2000/svg" width="200" height="200" fill="currentColor" class="bi bi-card-checklist" viewBox="0 0 16 16"> <path fill-rule="evenodd" d="M15.854 5.146a.5.5 0 0 1 0 .708l-3 3a.5.5 0 0 1-.708 0l-1.5-1.5a.5.5 0 0 1 .708-.708L12.5 7.793l2.646-2.647a.5.5 0 0 1 .708 0z"/> <path d="M1 14s-1 0-1-1 1-4 6-4 6 3 6 4-1 1-1 1H1zm5-6a3 3 0 1 0 0-6 3 3 0 0 0 0 6z"/> </svg> </div> </div> </div> </div> </div> <!-- /// --> </div> </div> <div class="py-5"> <div class="container" id="agenda"> <h3 class="e-head1">CONFERENCE AGENDA</h3> <!-- >>> --> <div class="tab-teaser"> <div class="tab-menu"> <ul> <li><a href="#" class="active" data-rel="tab-1"> <svg class="mr-2" xmlns="http://www.w3.org/2000/svg" width="40" height="40" fill="currentColor" class="bi bi-calendar2-week-fill" viewBox="0 0 16 16"> <path d="M3.5 0a.5.5 0 0 1 .5.5V1h8V.5a.5.5 0 0 1 1 0V1h1a2 2 0 0 1 2 2v11a2 2 0 0 1-2 2H2a2 2 0 0 1-2-2V3a2 2 0 0 1 2-2h1V.5a.5.5 0 0 1 .5-.5zm9.954 3H2.545c-.3 0-.545.224-.545.5v1c0 .276.244.5.545.5h10.91c.3 0 .545-.224.545-.5v-1c0-.276-.244-.5-.546-.5zM8.5 7a.5.5 0 0 0-.5.5v1a.5.5 0 0 0 .5.5h1a.5.5 0 0 0 .5-.5v-1a.5.5 0 0 0-.5-.5h-1zm3 0a.5.5 0 0 0-.5.5v1a.5.5 0 0 0 .5.5h1a.5.5 0 0 0 .5-.5v-1a.5.5 0 0 0-.5-.5h-1zM3 10.5v1a.5.5 0 0 0 .5.5h1a.5.5 0 0 0 .5-.5v-1a.5.5 0 0 0-.5-.5h-1a.5.5 0 0 0-.5.5zm3.5-.5a.5.5 0 0 0-.5.5v1a.5.5 0 0 0 .5.5h1a.5.5 0 0 0 .5-.5v-1a.5.5 0 0 0-.5-.5h-1z"/> </svg> Day 1 Thu, 17-Oct-2024</a></li> <li><a href="#" data-rel="tab-2" class=""><svg class="mr-2" xmlns="http://www.w3.org/2000/svg" width="40" height="40" fill="currentColor" class="bi bi-calendar2-week-fill" viewBox="0 0 16 16"> <path d="M3.5 0a.5.5 0 0 1 .5.5V1h8V.5a.5.5 0 0 1 1 0V1h1a2 2 0 0 1 2 2v11a2 2 0 0 1-2 2H2a2 2 0 0 1-2-2V3a2 2 0 0 1 2-2h1V.5a.5.5 0 0 1 .5-.5zm9.954 3H2.545c-.3 0-.545.224-.545.5v1c0 .276.244.5.545.5h10.91c.3 0 .545-.224.545-.5v-1c0-.276-.244-.5-.546-.5zM8.5 7a.5.5 0 0 0-.5.5v1a.5.5 0 0 0 .5.5h1a.5.5 0 0 0 .5-.5v-1a.5.5 0 0 0-.5-.5h-1zm3 0a.5.5 0 0 0-.5.5v1a.5.5 0 0 0 .5.5h1a.5.5 0 0 0 .5-.5v-1a.5.5 0 0 0-.5-.5h-1zM3 10.5v1a.5.5 0 0 0 .5.5h1a.5.5 0 0 0 .5-.5v-1a.5.5 0 0 0-.5-.5h-1a.5.5 0 0 0-.5.5zm3.5-.5a.5.5 0 0 0-.5.5v1a.5.5 0 0 0 .5.5h1a.5.5 0 0 0 .5-.5v-1a.5.5 0 0 0-.5-.5h-1z"/> </svg>Day 2 Fri, 18-Oct-2024 </a></li> </ul> </div> <style> </style> <div class="tab-main-box"> <div class="tab-box" id="tab-1" style="display:block;"> <div class="row"> <table class="table table-striped custom-table"> <!-- <thead> <tr> <th scope="col" width="90%">Registration</th> <th scope="col">08:15 - 08:55</th> </tr> </thead> --> <tbody> <tr> <td width="83%"> <p>Registration </p> </td> <td>08:15 - 08:50</td> </tr> <tr> <td width="83%"> <p>Welcome note from MarketsandMarkets </p> </td> <td>08:50 - 08:55</td> </tr> <tr> <td width="83%"> <p>Opening Remarks from the Chairperson </p> </td> <td>08:55 - 09:00</td> </tr> <tr> <td colspan="2"><h3 class="chatHead py-2">Forging Ahead: Latest Regulatory Insights into Early Access Programs</p></td> </tr> <tr> <td width="83%"> <p>Keynote Presentation-Regulatory Pathways for Orphan Drug Approval: Requirements & Considerations </p> </td> <td>09:00 - 09:30</td> </tr> <tr> <td width="83%"> <p>Early Access Programs: Facilitating Timely Access to Orphan drugs for Patients in Need</p> </td> <td>09:30 - 10:00</td> </tr> <tr> <td width="83%"> <p>Reserved for Sponsor Presentation</p> </td> <td>10:00 - 10:30</td> </tr> <tr> <td width="83%"> <p>Morning Refreshments | One-to-One Networking Meetings </p> </td> <td>10:30 - 11:15</td> </tr> <tr> <td colspan="2"><h3 class="chatHead py-2">Rare Disease Perspectives: Patient Centricity, Pricing Models & Advocacy Efforts</p></td> </tr> <tr> <td width="83%"> <p>Patient-Centric Care: Integrating Patient Advocacy and Support Programs into Clinical Decision Making</p> </td> <td>11:15 - 11:45</td> </tr> <tr> <td width="83%"> <p>Reserved for Sponsor Presentation</p> </td> <td>11:45 - 12:15</td> </tr> <tr> <td width="83%"> <p>Panel Discussion: What strategies/models should be implemented to ensure the long-term sustainability of orphan drug development and access programs</p> </td> <td>12:15 - 12:45</td> </tr> <tr> <td width="83%"> <p>Towards greater health equity – new insights for measuring disease burden and patient diversity in rare diseases.</p> <div class="row"> <div class="col-12 col-md-6 pb-3"> <div class="row d-flex align-items-center"> <div class="col-12 col-md-2"> <img src="https://events.marketsandmarkets.com/imagesdata/speakers/1432131068-1Adrian-Kielhorn.jpg" class="w-100 rounded-circle " alt="Adrian Kielhorn"> </div> <div class="col-12 col-md-10 pl-0"> <p><b> Adrian Kielhorn,</b> Senior Director, Global HEOR Neurology, Alexion Pharmaceuticals, Inc</p> </div> </div> </div> </div> </td> <td>12:45 - 13:15</td> </tr> <tr> <td width="83%"> <p>Lunch | One-to-One Networking Meetings </p> </td> <td>13:15 - 14:15</td> </tr> <tr> <td colspan="2"><h3 class="chatHead py-2">Unveiling Challenges in Orphan Drug Discovery & Disease Management </p></td> </tr> <tr> <td width="83%"> <p>Market Access Challenges for Orphan Drugs: Regulatory Hurdles and Reimbursement Policies</p> </td> <td>14:15 - 14:45</td> </tr> <tr> <td width="83%"> <p>Reserved for Sponsor Presentation</p> </td> <td>14:45 - 15:15</td> </tr> <tr> <td width="83%"> <p>Clinical Trial Design and Patient Recruitment: Addressing Strategies & Challenges</p> </td> <td>15:15 - 15:45</td> </tr> <tr> <td width="83%"> <p>Evening Refreshments | One-to-One Networking Meetings </p> </td> <td>15:45 - 16:30</td> </tr> <tr> <td width="83%"> <p>Addressing Unmet Medical Needs of Pediatric RDs Patients: Pediatric Trials and Ethical Considerations</p> </td> <td>16:30 - 17:00</td> </tr> <tr> <td width="83%"> <p>Palliative Care & Symptom Management: Enhancing Quality of Life of Patients</p> </td> <td>17:00 - 17:30</td> </tr> <tr> <td width="83%"> <p>Case Studies: Clinical Presentations & Management Strategies for Selected Rare Diseases. </p> </td> <td>17:30 - 18:00</td> </tr> <tr> <td width="83%"> <p>Closing Remarks from the Chairperson</p> </td> <td>18:00 - 18:00</td> </tr> <tr> <td colspan="2"><h3 class="chatHead py-2">Drinks Reception & Networking </p></td> </tr> <tr> <td width="83%"> <p>End of Day 1 </p> </td> <td>18:00 - 18:00</td> </tr> </tbody> </table> </div> </div> <!-- Day 1 End --> <div class="tab-box" id="tab-2"> <div class="row"> <table class="table table-striped custom-table"> <!-- <thead> <tr> <th scope="col" width="90%">Registration</th> <th scope="col">08:15 - 08:55</th> </tr> </thead> --> <tbody> <tr> <td width="83%"> <p>Registration </p> </td> <td>08:15 - 08:50</td> </tr> <tr> <td width="83%"> <p>Welcome note from MarketsandMarkets </p> </td> <td>08:50 - 08:55</td> </tr> <tr> <td width="83%"> <p>Opening Remarks from the Chairperson </p> </td> <td>08:55 - 09:00</td> </tr> <tr> <td colspan="2"><h3 class="chatHead py-2">Enhancing Care for Rare Conditions: Approaches for Improving Diagnosis and Tailored Treatments</p></td> </tr> <tr> <td width="83%"> <p>Keynote Presentation – Five headwinds facing rare cancer drug developers (and what to do about it)</p> <div class="row"> <div class="col-12 col-md-6 pb-3"> <div class="row d-flex align-items-center"> <div class="col-12 col-md-2"> <img src="https://events.marketsandmarkets.com/imagesdata/speakers/speaker_default.jpg" class="w-100 rounded-circle " alt="Benjamin Brown"> </div> <div class="col-12 col-md-10 pl-0"> <p><b> Benjamin Brown,</b> Co-Founder & Executive Director, American Society of Pharmacovigilance</p> </div> </div> </div> </div> </td> <td>09:00 - 09:30</td> </tr> <tr> <td width="83%"> <p>Cell and Gene Therapies: Exploring potential and challenges in clinical practice</p> </td> <td>09:30 - 10:00</td> </tr> <tr> <td width="83%"> <p>Reserved for Sponsor Presentation</p> </td> <td>10:00 - 10:30</td> </tr> <tr> <td width="83%"> <p>Morning Refreshments | One-to-One Networking Meetings </p> </td> <td>10:30 - 11:15</td> </tr> <tr> <td width="83%"> <p>The Promise of Individualized Medicines for Uniquely Rare Diseases</p> <div class="row"> <div class="col-12 col-md-6 pb-3"> <div class="row d-flex align-items-center"> <div class="col-12 col-md-2"> <img src="https://events.marketsandmarkets.com/imagesdata/speakers/360372889-Irina-Antonijevic.png" class="w-100 rounded-circle " alt="Irina Antonijevic"> </div> <div class="col-12 col-md-10 pl-0"> <p><b> Irina Antonijevic,</b> Chief Medical Officer, EveryONE Medicines Inc.</p> </div> </div> </div> </div> </td> <td>11:15 - 11:45</td> </tr> <tr> <td width="83%"> <p>Diagnostic Approaches: Genetic Testing Technology, Biomarkers and Differential Diagnosis</p> </td> <td>11:45 - 12:15</td> </tr> <tr> <td width="83%"> <p>MRNA Therapies for Rare Genetic Metabolic Disorders</p> </td> <td>12:15 - 12:45</td> </tr> <tr> <td width="83%"> <p>Telemedicine & Remote Monitoring: AI & ML Applications in RDs Diagnosis and Treatment</p> </td> <td>12:45 - 13:15</td> </tr> <tr> <td width="83%"> <p>Lunch | One-to-One Networking Meetings </p> </td> <td>13:15 - 14:15</td> </tr> <tr> <td colspan="2"><h3 class="chatHead py-2">Global Collaboration & Monitoring Safety</p></td> </tr> <tr> <td width="83%"> <p>National Center for Advancing Translational Sciences: Opportunities to Move Your Rare Disease Research Forward</p> <div class="row"> <div class="col-12 col-md-6 pb-3"> <div class="row d-flex align-items-center"> <div class="col-12 col-md-2"> <img src="https://events.marketsandmarkets.com/imagesdata/speakers/1735702784-Karlie-Sharma.png" class="w-100 rounded-circle " alt="Karlie Sharma"> </div> <div class="col-12 col-md-10 pl-0"> <p><b> Karlie Sharma,</b> Program Director, National Center for Advancing Translational Sciences, National Institutes of Health (NIH/NCATS)</p> </div> </div> </div> </div> </td> <td>14:15 - 14:45</td> </tr> <tr> <td width="83%"> <p>Reserved for Sponsor Presentation</p> </td> <td>14:45 - 15:15</td> </tr> <tr> <td width="83%"> <p>Panel Discussion Session: Collaborative Approaches to Rare Disease Research and Clinical Development: Industry-Academia Partnerships, Patient Registries, and Data Sharing Initiatives</p> </td> <td>15:15 - 15:45</td> </tr> <tr> <td width="83%"> <p>Pharmacovigilance and Monitoring of Rare Disease Patients: Ensuring Safety </p> </td> <td>15:45 - 16:15</td> </tr> <tr> <td width="83%"> <p>Closing remarks from the Chairperson</p> </td> <td>16:15 - 16:20</td> </tr> <tr> <td width="83%"> <p><b>....End of the conference....</b></p> </td> <td>16:20 - 16:20</td> </tr> </tbody> </table> </div> <!-- Day 2 End --> </div> <div class="tab-box" id="tab-3"> <div class="row"> <table class="table table-striped custom-table"> <tbody> </tbody> </table> </div> <!-- Day 3 End --> </div> <div class="tab-box" id="tab-4"> <div class="row"> <table class="table table-striped custom-table"> <tbody> </tbody> </table> </div> <!-- Day 4 End --> </div> <button class="btn btn-primary my-3 btngreen" data-toggle="modal" data-target="#modalForm"><svg class="mr-1" xmlns="http://www.w3.org/2000/svg" width="16" 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