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Assisted dying: Terminally-ill people discuss proposed new law
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made': Terminally ill people on assisted dying<!-- --></h1></div><div data-component="byline-block" class="sc-18fde0d6-0 dlWCEZ"><!--$!--><!--/$--></div><figure><div data-component="image-block" class="sc-18fde0d6-0 ejjhCR"><div data-testid="hero-image" class="sc-a34861b-1 jxzoZC"><img src="/bbcx/grey-placeholder.png" class="sc-a34861b-0 cOpVbP hide-when-no-script"/><img sizes="(min-width: 1280px) 50vw, (min-width: 1008px) 66vw, 96vw" srcSet="https://ichef.bbci.co.uk/news/240/cpsprodpb/c9c1/live/dec42db0-a0dd-11ef-a4fe-a3e9a6c5d640.jpg.webp 240w,https://ichef.bbci.co.uk/news/320/cpsprodpb/c9c1/live/dec42db0-a0dd-11ef-a4fe-a3e9a6c5d640.jpg.webp 320w,https://ichef.bbci.co.uk/news/480/cpsprodpb/c9c1/live/dec42db0-a0dd-11ef-a4fe-a3e9a6c5d640.jpg.webp 480w,https://ichef.bbci.co.uk/news/640/cpsprodpb/c9c1/live/dec42db0-a0dd-11ef-a4fe-a3e9a6c5d640.jpg.webp 640w,https://ichef.bbci.co.uk/news/800/cpsprodpb/c9c1/live/dec42db0-a0dd-11ef-a4fe-a3e9a6c5d640.jpg.webp 800w,https://ichef.bbci.co.uk/news/1024/cpsprodpb/c9c1/live/dec42db0-a0dd-11ef-a4fe-a3e9a6c5d640.jpg.webp 1024w,https://ichef.bbci.co.uk/news/1536/cpsprodpb/c9c1/live/dec42db0-a0dd-11ef-a4fe-a3e9a6c5d640.jpg.webp 1536w" src="https://ichef.bbci.co.uk/news/480/cpsprodpb/c9c1/live/dec42db0-a0dd-11ef-a4fe-a3e9a6c5d640.jpg.webp" alt="BBC A smiling Nik Ward looks towards his family who are standing to the left, out of shot. He has a beard and is sitting in a wheelchair with a breathing mask across his face." class="sc-a34861b-0 efFcac"/><span class="sc-a34861b-2 fxQYxK">BBC</span></div></div><div data-component="caption-block" class="sc-18fde0d6-0 bdPeAJ"><figcaption class="sc-8353772e-0 cvNhQw">Nik Ward, who suffers from MND, worries legalising assisted dying could lead to people feeling pressure to end their lives<!-- --></figcaption></div></figure><div data-component="text-block" class="sc-18fde0d6-0 dlWCEZ"><p class="sc-eb7bd5f6-0 fYAfXe">The question of whether terminally ill people should have the right to end their lives is dividing MPs as they consider a proposed law to legalise assisted dying.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">If passed, the landmark bill would <!-- --><a target="_self" href="https://www.bbc.co.uk/news/articles/cx2l7m6r55do" class="sc-c9299ecf-0 bZUiKB">offer this choice to those who are expected to die within six months<!-- --></a> - provided their decision is approved by doctors.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">They would need to be satisfied that a patient's choice has been made without pressure or coercion. <!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">But the debate has raised questions about how terminally ill people could be safeguarded and coercion avoided - with criticism of the proposal coming from both Labour and Conservative politicians.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">BBC News has spoken to two people who have terminal conditions, Elise Burns, who supports assisted dying, and Nik Ward, who hopes the bill does not pass. <!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Nik has motor neurone disease, and says he probably would have chosen assisted dying three years ago if it had been legal.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">The 53-year-old has been told for the past five years that he is terminally ill and knows he could die tomorrow by choking on food or on his own saliva.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">"I prided myself on my health and fitness," says Nik, who now uses a motorised wheelchair and breathing apparatus.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">"Twenty years ago, if you were to say to me that I'd be in a wheelchair, I'd be like 'Nah mate, it's all right. I'd rather go.'"<!-- --></p></div><div data-component="ad-slot" data-testid="ad-unit" class="sc-d2ebd0a7-0 iayHyW"><div data-testid="dotcom-mid_1" id="dotcom-mid_1" class="dotcom-ad"></div></div><div data-component="links-block" class="sc-18fde0d6-0 jVHuOl"><div class="sc-93223220-0 sc-46222299-0 ctbOlq eluqFz"><div data-testid="links-grid" class="sc-93223220-0 sc-46222299-1 hVPZMe jMSIqG"><div data-testid="chester-card"><div data-testid="anchor-inner-wrapper"><a href="https://www.bbc.co.uk/news/articles/c154pwlv4epo" data-testid="external-anchor" target="_self" class="sc-2e6baa30-0 gILusN"><div data-testid="chester-article" class="sc-417019fc-0 iZGTHs"><div class="sc-8ea7699c-1 hxRodh"><div class="sc-8ea7699c-0 hcpAqY"><h2 data-testid="card-headline" class="sc-8ea7699c-3 dhclWg">Assisted dying bill has strict safeguards, MP says<!-- --></h2></div></div></div></a></div></div><div data-testid="chester-card"><div data-testid="anchor-inner-wrapper"><a href="https://www.bbc.co.uk/news/articles/cx276lwn6n2o" data-testid="external-anchor" target="_self" class="sc-2e6baa30-0 gILusN"><div data-testid="chester-article" class="sc-417019fc-0 iZGTHs"><div class="sc-8ea7699c-1 hxRodh"><div class="sc-8ea7699c-0 hcpAqY"><h2 data-testid="card-headline" class="sc-8ea7699c-3 dhclWg">Assisted dying could lead to coercion - Streeting <!-- --></h2></div></div></div></a></div></div><div data-testid="chester-card"><div data-testid="anchor-inner-wrapper"><a href="https://www.bbc.co.uk/news/uk-47158287" data-testid="external-anchor" target="_self" class="sc-2e6baa30-0 gILusN"><div data-testid="chester-article" class="sc-417019fc-0 iZGTHs"><div class="sc-8ea7699c-1 hxRodh"><div class="sc-8ea7699c-0 hcpAqY"><h2 data-testid="card-headline" class="sc-8ea7699c-3 dhclWg">What is assisted dying and how could the law change?<!-- --></h2></div></div></div></a></div></div></div></div></div><div data-component="text-block" class="sc-18fde0d6-0 dlWCEZ"><p class="sc-eb7bd5f6-0 fYAfXe">Now Nik says his attitude to life - and death - has changed and he is grateful to have seen his children grow up. His eldest daughter is engaged to be married.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Under the proposed law, Nik is concerned that other people suffering terminal illnesses would choose an assisted death and miss out on the joys that more life could bring - even if they are less physically able.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">The private members' bill was put forward by Labour MP Kim Leadbeater but the deeply sensitive nature of this issue has split politicians in all major parties.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Prime Minister Sir Keir Starmer has promised his party will be allowed to vote freely with their conscience.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Many people living with terminal illnesses have said the bill offers them hope that they may not have to experience a painful or prolonged death.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Elise Burns lives in constant pain due to terminal breast cancer that has spread to her bones, lungs and liver. She has been told she might have only two years to live.<!-- --></p></div><div data-component="ad-slot" data-testid="ad-unit" class="sc-d2ebd0a7-0 iayHyW"><div data-testid="dotcom-mid_2" id="dotcom-mid_2" class="dotcom-ad"></div></div><figure><div data-component="image-block" class="sc-18fde0d6-0 jFCfG"><div data-testid="image" class="sc-a34861b-1 jxzoZC"><img src="/bbcx/grey-placeholder.png" class="sc-a34861b-0 cOpVbP hide-when-no-script"/><img sizes="(min-width: 1280px) 50vw, (min-width: 1008px) 66vw, 96vw" srcSet="https://ichef.bbci.co.uk/news/240/cpsprodpb/344f/live/9bf88a50-a0e0-11ef-8ab9-9192db313061.jpg.webp 240w,https://ichef.bbci.co.uk/news/320/cpsprodpb/344f/live/9bf88a50-a0e0-11ef-8ab9-9192db313061.jpg.webp 320w,https://ichef.bbci.co.uk/news/480/cpsprodpb/344f/live/9bf88a50-a0e0-11ef-8ab9-9192db313061.jpg.webp 480w,https://ichef.bbci.co.uk/news/640/cpsprodpb/344f/live/9bf88a50-a0e0-11ef-8ab9-9192db313061.jpg.webp 640w,https://ichef.bbci.co.uk/news/800/cpsprodpb/344f/live/9bf88a50-a0e0-11ef-8ab9-9192db313061.jpg.webp 800w,https://ichef.bbci.co.uk/news/1024/cpsprodpb/344f/live/9bf88a50-a0e0-11ef-8ab9-9192db313061.jpg.webp 1024w,https://ichef.bbci.co.uk/news/1536/cpsprodpb/344f/live/9bf88a50-a0e0-11ef-8ab9-9192db313061.jpg.webp 1536w" src="https://ichef.bbci.co.uk/news/480/cpsprodpb/344f/live/9bf88a50-a0e0-11ef-8ab9-9192db313061.jpg.webp" alt="Elise Burns, who is wearing a denim shirt and has shoulder length hair, faces towards the camera." class="sc-a34861b-0 efFcac"/></div></div><div data-component="caption-block" class="sc-18fde0d6-0 bdPeAJ"><figcaption class="sc-8353772e-0 cvNhQw">Elise Burns, 50, lives in constant pain and wants the choice to end her life before it gets worse<!-- --></figcaption></div></figure><div data-component="text-block" class="sc-18fde0d6-0 dlWCEZ"><p class="sc-eb7bd5f6-0 fYAfXe">The 50-year-old relies on two different forms of morphine and a high-strength co-codamol to manage the pain. Some days "they don’t touch the sides", leaving her barely able to move.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">The pain is worst in her thigh, where she had a metal rod inserted after cancer rotted her femur.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Elise says the pain will only get worse as her body becomes more tolerant of painkillers – making them less effective.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">"I'm not scared to die but I am scared of a bad death – a long, drawn-out, brutal, horrific death. That terrifies me."<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">There has been particular concern among critics of the bill about how people who have been left vulnerable by life-threatening illness will be safeguarded.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Some believe the existence of assisted dying legislation could create an implicit pressure on terminally ill people - even if no-one is actively trying to coerce them.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Nik describes this possibility as a "very subtle but very insistent background noise".<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">He thinks people who may feel like a burden to their loved-ones might, for example, choose to "end their lives because they feel like they ought to for their children's sake".<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">"It's the people that are most thoughtful, most considerate – they're the very people that I'm worried about," he adds.<!-- --></p></div><div data-component="ad-slot" data-testid="ad-unit" class="sc-d2ebd0a7-0 iayHyW"><div data-testid="dotcom-mid_3" id="dotcom-mid_3" class="dotcom-ad"></div></div><figure><div data-component="image-block" class="sc-18fde0d6-0 jFCfG"><div data-testid="image" class="sc-a34861b-1 jxzoZC"><img src="/bbcx/grey-placeholder.png" class="sc-a34861b-0 cOpVbP hide-when-no-script"/><img sizes="(min-width: 1280px) 50vw, (min-width: 1008px) 66vw, 96vw" srcSet="https://ichef.bbci.co.uk/news/240/cpsprodpb/d0f2/live/26135930-a0e2-11ef-8ab9-9192db313061.jpg.webp 240w,https://ichef.bbci.co.uk/news/320/cpsprodpb/d0f2/live/26135930-a0e2-11ef-8ab9-9192db313061.jpg.webp 320w,https://ichef.bbci.co.uk/news/480/cpsprodpb/d0f2/live/26135930-a0e2-11ef-8ab9-9192db313061.jpg.webp 480w,https://ichef.bbci.co.uk/news/640/cpsprodpb/d0f2/live/26135930-a0e2-11ef-8ab9-9192db313061.jpg.webp 640w,https://ichef.bbci.co.uk/news/800/cpsprodpb/d0f2/live/26135930-a0e2-11ef-8ab9-9192db313061.jpg.webp 800w,https://ichef.bbci.co.uk/news/1024/cpsprodpb/d0f2/live/26135930-a0e2-11ef-8ab9-9192db313061.jpg.webp 1024w,https://ichef.bbci.co.uk/news/1536/cpsprodpb/d0f2/live/26135930-a0e2-11ef-8ab9-9192db313061.jpg.webp 1536w" src="https://ichef.bbci.co.uk/news/480/cpsprodpb/d0f2/live/26135930-a0e2-11ef-8ab9-9192db313061.jpg.webp" alt="Nik smiles at his family behind the camera as he sits in a motorised wheelchair with a breathing mask across his face" class="sc-a34861b-0 efFcac"/></div></div><div data-component="caption-block" class="sc-18fde0d6-0 bdPeAJ"><figcaption class="sc-8353772e-0 cvNhQw">Nik worries other terminally ill people will feel driven to choose assisted dying if the bill passes<!-- --></figcaption></div></figure><div data-component="text-block" class="sc-18fde0d6-0 dlWCEZ"><p class="sc-eb7bd5f6-0 fYAfXe">But Nik acknowledges that, though MND has robbed him of his active body, he is not enduring constant pain like Elise and some other terminally ill people.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">"I fully respect their position," he says. "I'm living in a fairly privileged situation, in some senses."<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Elise disagrees that the bill would coerce people into prematurely ending their lives, as this option would only be available to those with six months to live.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">As a safeguard, the person's request to die would need to be approved by two doctors and a judge.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Elise accepts that those opposed to the bill have questions about the effectiveness of these safety measures, and the ethics of assisted dying.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">"It's such a complex issue and I don't have all the answers. What I would say is that everyone should have the choice to do what they wish with their bodies."<!-- --></p></div><div data-component="ad-slot" data-testid="ad-unit" class="sc-d2ebd0a7-0 iayHyW"><div data-testid="dotcom-mid_4" id="dotcom-mid_4" class="dotcom-ad"></div></div><figure><div data-component="image-block" class="sc-18fde0d6-0 jFCfG"><div data-testid="image" class="sc-a34861b-1 jxzoZC"><img src="/bbcx/grey-placeholder.png" class="sc-a34861b-0 cOpVbP hide-when-no-script"/><img sizes="(min-width: 1280px) 50vw, (min-width: 1008px) 66vw, 96vw" srcSet="https://ichef.bbci.co.uk/news/240/cpsprodpb/007b/live/f061e5b0-a0e4-11ef-bdf5-b7cb2fa86e10.png.webp 240w,https://ichef.bbci.co.uk/news/320/cpsprodpb/007b/live/f061e5b0-a0e4-11ef-bdf5-b7cb2fa86e10.png.webp 320w,https://ichef.bbci.co.uk/news/480/cpsprodpb/007b/live/f061e5b0-a0e4-11ef-bdf5-b7cb2fa86e10.png.webp 480w,https://ichef.bbci.co.uk/news/640/cpsprodpb/007b/live/f061e5b0-a0e4-11ef-bdf5-b7cb2fa86e10.png.webp 640w,https://ichef.bbci.co.uk/news/800/cpsprodpb/007b/live/f061e5b0-a0e4-11ef-bdf5-b7cb2fa86e10.png.webp 800w,https://ichef.bbci.co.uk/news/1024/cpsprodpb/007b/live/f061e5b0-a0e4-11ef-bdf5-b7cb2fa86e10.png.webp 1024w,https://ichef.bbci.co.uk/news/1536/cpsprodpb/007b/live/f061e5b0-a0e4-11ef-bdf5-b7cb2fa86e10.png.webp 1536w" src="https://ichef.bbci.co.uk/news/480/cpsprodpb/007b/live/f061e5b0-a0e4-11ef-bdf5-b7cb2fa86e10.png.webp" alt="Elise sits on a sofa as she speaks towards the camera while wearing a denim shirt." class="sc-a34861b-0 efFcac"/></div></div><div data-component="caption-block" class="sc-18fde0d6-0 bdPeAJ"><figcaption class="sc-8353772e-0 cvNhQw">Elise says she will likely be dead before the bill becomes law, if it passes, but hopes it could help others<!-- --></figcaption></div></figure><div data-component="text-block" class="sc-18fde0d6-0 dlWCEZ"><p class="sc-eb7bd5f6-0 fYAfXe">Elise knows she will die soon but says having a choice about when this happens would bring her comfort and reassurance.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">She believes it is likely that, if the bill is approved, it will come too late to help her.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">Instead, she plans to use the assisted dying service offered by the Swiss firm Dignitas.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">She says their process requires a lot of paperwork beforehand and will cost her between £12,000-£15,000.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">She says she is fortunate enough to be able to afford the sum but that the high prices involved are another reason why the law should be changed – so that assisted dying is possible for every terminally ill person who chooses it, not just those who can afford it.<!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">If the bill does pass, Elise wishes she could "be there to see it". <!-- --></p><p class="sc-eb7bd5f6-0 fYAfXe">"It's going to help so many people," she adds.<!-- --></p></div><div data-component="ad-slot" data-testid="ad-unit" class="sc-d2ebd0a7-0 iayHyW"><div data-testid="dotcom-mid_5" id="dotcom-mid_5" class="dotcom-ad"></div></div><!--$!--><!--/$--><figure><div data-component="image-block" class="sc-18fde0d6-0 gfTVSf"><div data-testid="image" class="sc-a34861b-1 jxzoZC"><img src="/bbcx/grey-placeholder.png" class="sc-a34861b-0 cOpVbP hide-when-no-script"/><img sizes="(min-width: 1280px) 50vw, (min-width: 1008px) 66vw, 96vw" srcSet="https://ichef.bbci.co.uk/news/240/cpsprodpb/b30e/live/cfc42d30-a0e5-11ef-a4fe-a3e9a6c5d640.png.webp 240w,https://ichef.bbci.co.uk/news/320/cpsprodpb/b30e/live/cfc42d30-a0e5-11ef-a4fe-a3e9a6c5d640.png.webp 320w,https://ichef.bbci.co.uk/news/480/cpsprodpb/b30e/live/cfc42d30-a0e5-11ef-a4fe-a3e9a6c5d640.png.webp 480w,https://ichef.bbci.co.uk/news/640/cpsprodpb/b30e/live/cfc42d30-a0e5-11ef-a4fe-a3e9a6c5d640.png.webp 640w,https://ichef.bbci.co.uk/news/800/cpsprodpb/b30e/live/cfc42d30-a0e5-11ef-a4fe-a3e9a6c5d640.png.webp 800w,https://ichef.bbci.co.uk/news/1024/cpsprodpb/b30e/live/cfc42d30-a0e5-11ef-a4fe-a3e9a6c5d640.png.webp 1024w,https://ichef.bbci.co.uk/news/1536/cpsprodpb/b30e/live/cfc42d30-a0e5-11ef-a4fe-a3e9a6c5d640.png.webp 1536w" src="https://ichef.bbci.co.uk/news/480/cpsprodpb/b30e/live/cfc42d30-a0e5-11ef-a4fe-a3e9a6c5d640.png.webp" alt="Banner logo for BBC Sounds" class="sc-a34861b-0 efFcac"/></div></div></figure><div data-component="ad-slot" data-testid="ad-unit" class="sc-d2ebd0a7-0 iayHyW"><div data-testid="dotcom-mid_6" id="dotcom-mid_6" class="dotcom-ad"></div></div><div data-component="text-block" class="sc-18fde0d6-0 dlWCEZ"><p class="sc-eb7bd5f6-0 fYAfXe"><a target="_self" href="https://www.bbc.co.uk/sounds/play/p0k4248p" class="sc-c9299ecf-0 bZUiKB">Newscast - The Assisted Dying Bill Explained<!-- --></a></p><p class="sc-eb7bd5f6-0 fYAfXe"><i id="adam-fleming-is-joined-by-the-bbc’s-deputy-political-editor-vicki-young-and-medical-editor-fergus-walsh-to-discuss-the-safeguards-set-out-in-the-bill,-how-leading-politicians-are-saying-they’ll-vote-and-the-concerns-those-who-oppose-the-bill-have-raised." class="sc-7dcfb11b-0 kKcaog">Adam Fleming is joined by the BBC’s deputy political editor Vicki Young and medical editor Fergus Walsh to discuss the safeguards set out in the bill, how leading politicians are saying they’ll vote and the concerns those who oppose the bill have raised.<!-- --></i></p></div><div data-component="links-block" class="sc-18fde0d6-0 jVHuOl"><div class="sc-93223220-0 sc-46222299-0 ctbOlq hmFIuq"><span data-testid="links-title" class="sc-46222299-2 gdGcRT">More on this story</span><div data-testid="links-grid" class="sc-93223220-0 sc-46222299-1 hVPZMe jMSIqG"><div data-testid="chester-card"><div data-testid="anchor-inner-wrapper"><a href="https://www.bbc.co.uk/news/articles/cx2l7m6r55do" 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data-testid="external-anchor" target="_self" class="sc-2e6baa30-0 gILusN"><div data-testid="chester-article" class="sc-417019fc-0 iZGTHs"><div class="sc-8ea7699c-1 hxRodh"><div class="sc-8ea7699c-0 hcpAqY"><h2 data-testid="card-headline" class="sc-8ea7699c-3 dhclWg">Ed Davey 'minded' to vote against assisted dying bill<!-- --></h2></div></div></div></a></div></div></div></div></div><div data-component="tags" class="sc-18fde0d6-0 jVHuOl"><div class="sc-4b0aaa-0 dGavUm"><div data-testid="anchor-inner-wrapper"><a href="/news/health" data-testid="internal-link" class="sc-3df0d64d-0 kMyFYO">Health</a></div><div data-testid="anchor-inner-wrapper"><a href="/news/topics/ckgj73kx384t" data-testid="internal-link" class="sc-3df0d64d-0 kMyFYO">UK Parliament</a></div><div data-testid="anchor-inner-wrapper"><a href="/news/topics/cljev4r3zgxt" data-testid="internal-link" class="sc-3df0d64d-0 kMyFYO">Euthanasia and assisted dying</a></div></div></div></article><aside data-testid="ohio-section-outer-3" 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data-analytics-group="true" data-analytics_group_name="More" data-analytics_group_type="alaska-5" data-analytics_group_position="2" data-analytics_group_item_count="5" data-analytics_group_link="" class="sc-ba42a659-1 GdVOW"><div data-testid="alaska-section" class="sc-ba42a659-2 jqWjKw"><div class="sc-7a382a26-2 lhbHDZ"><div class="sc-7a382a26-1 vyVNI"><hr data-testid="alaska-line" class="sc-7a382a26-0 iphYZF"/></div><div data-testid="section-title-wrapper" class="sc-7a382a26-3 gOPBZn"><div><div class="sc-7a382a26-7 jlJwDB"><span data-testid="alaska-title" class="sc-7a382a26-4 gQxUVz">More<!-- --></span></div></div></div></div><div class="sc-da05643e-0 kbaPPZ"><div data-testid="alaska-grid" class="sc-93223220-0 sc-da05643e-1 fiJvSm djXsFQ"><div data-testid="liverpool-card"><div data-testid="anchor-inner-wrapper"><a href="/news/articles/cdd088r6j28o" data-testid="internal-link" class="sc-2e6baa30-0 gILusN"><div class="sc-ae29827d-4 ypQFr"><div class="sc-ae29827d-1 hAmwyA"><div 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All rights reserved. <!-- --><i id="" class="sc-7dcfb11b-0 kKcaog"> <!-- --></i>The<!-- --><i id="bbc" class="sc-7dcfb11b-0 kKcaog"> BBC <!-- --></i>is<!-- --><i id="not-responsible-for-the-content-of-external-sites." class="sc-7dcfb11b-0 kKcaog"> not responsible for the content of external sites.<!-- --></i> <!-- --><a target="_self" href="https://www.bbc.co.uk/editorialguidelines/guidance/feeds-and-links" class="sc-c9299ecf-0 bZUiKB"><b id="read-about-our-approach-to-external-linking." class="sc-7dcfb11b-0 kVRnKf">Read about our approach to external linking.<!-- --></b></a></p><p class="sc-eb7bd5f6-0 fYAfXe"> <!-- --></p></div></footer></div></div><script id="__NEXT_DATA__" type="application/json">{"props":{"pageProps":{"page":{"@\"news\",\"articles\",\"c3vln4pn3gzo\",":{"id":"urn:bbc:optimo:asset:c3vln4pn3gzo","contents":[{"type":"headline","model":{"blocks":[{"type":"text","model":{"blocks":[{"type":"paragraph","model":{"text":"'I might be dead before a decision is made': Terminally ill people on assisted dying","blocks":[{"type":"fragment","model":{"text":"'I might be dead before a decision is made': Terminally ill people on assisted dying","attributes":[]}}]}}]}}]}},{"type":"timestamp","model":{"timestamp":1731433820318}},{"type":"byline","model":{"blocks":[{"type":"contributor","model":{"blocks":[{"type":"name","model":{"blocks":[{"type":"text","model":{"blocks":[{"type":"paragraph","model":{"text":"Fergus Walsh and George Sandeman","blocks":[{"type":"fragment","model":{"text":"Fergus Walsh and George Sandeman","attributes":[]}}]}}]}}]}},{"type":"role","model":{"blocks":[{"type":"text","model":{"blocks":[{"type":"paragraph","model":{"text":"BBC News","blocks":[{"type":"fragment","model":{"text":"BBC News","attributes":[]}}]}}]}}]}}]}},{"type":"timestamp","model":{"timestamp":1731433820318}}]}},{"type":"image","model":{"blocks":[{"type":"caption","model":{"blocks":[{"type":"text","model":{"blocks":[{"type":"paragraph","model":{"text":"Nik Ward, who suffers from MND, worries legalising assisted dying could lead to people feeling pressure to end their lives","blocks":[{"type":"fragment","model":{"text":"Nik Ward, who suffers from MND, worries legalising assisted dying could lead to people feeling pressure to end their lives","attributes":[]}}]}}]}}]}},{"type":"altText","model":{"blocks":[{"type":"text","model":{"blocks":[{"type":"paragraph","model":{"text":"A smiling Nik Ward looks towards his family who are standing to the left, out of shot. 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","blocks":[{"type":"fragment","model":{"text":"They would need to be satisfied that a patient's choice has been made without pressure or coercion. ","attributes":[]}}]}},{"type":"paragraph","model":{"text":"But the debate has raised questions about how terminally ill people could be safeguarded and coercion avoided - with criticism of the proposal coming from both Labour and Conservative politicians.","blocks":[{"type":"fragment","model":{"text":"But the debate has raised questions about how terminally ill people could be safeguarded and coercion avoided - with criticism of the proposal coming from both Labour and Conservative politicians.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"BBC News has spoken to two people who have terminal conditions, Elise Burns, who supports assisted dying, and Nik Ward, who hopes the bill does not pass. 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She has been told she might have only two years to live.","blocks":[{"type":"fragment","model":{"text":"Elise Burns lives in constant pain due to terminal breast cancer that has spread to her bones, lungs and liver. 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Some days \"they don’t touch the sides\", leaving her barely able to move.","blocks":[{"type":"fragment","model":{"text":"The 50-year-old relies on two different forms of morphine and a high-strength co-codamol to manage the pain. 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That terrifies me.\"","blocks":[{"type":"fragment","model":{"text":"\"I'm not scared to die but I am scared of a bad death – a long, drawn-out, brutal, horrific death. That terrifies me.\"","attributes":[]}}]}},{"type":"paragraph","model":{"text":"There has been particular concern among critics of the bill about how people who have been left vulnerable by life-threatening illness will be safeguarded.","blocks":[{"type":"fragment","model":{"text":"There has been particular concern among critics of the bill about how people who have been left vulnerable by life-threatening illness will be safeguarded.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"Some believe the existence of assisted dying legislation could create an implicit pressure on terminally ill people - even if no-one is actively trying to coerce them.","blocks":[{"type":"fragment","model":{"text":"Some believe the existence of assisted dying legislation could create an implicit pressure on terminally ill people - even if no-one is actively trying to coerce them.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"Nik describes this possibility as a \"very subtle but very insistent background noise\".","blocks":[{"type":"fragment","model":{"text":"Nik describes this possibility as a \"very subtle but very insistent background noise\".","attributes":[]}}]}},{"type":"paragraph","model":{"text":"He thinks people who may feel like a burden to their loved-ones might, for example, choose to \"end their lives because they feel like they ought to for their children's sake\".","blocks":[{"type":"fragment","model":{"text":"He thinks people who may feel like a burden to their loved-ones might, for example, choose to \"end their lives because they feel like they ought to for their children's sake\".","attributes":[]}}]}},{"type":"paragraph","model":{"text":"\"It's the people that are most thoughtful, most considerate – they're the very people that I'm worried about,\" he adds.","blocks":[{"type":"fragment","model":{"text":"\"It's the people that are most thoughtful, most considerate – they're the very people that I'm worried about,\" he adds.","attributes":[]}}]}}]}},{"type":"advertisement","model":{"adType":"horizontal"},"incrementedType":"mid_3"},{"type":"image","model":{"blocks":[{"type":"caption","model":{"blocks":[{"type":"text","model":{"blocks":[{"type":"paragraph","model":{"text":"Nik worries other terminally ill people will feel driven to choose assisted dying if the bill passes","blocks":[{"type":"fragment","model":{"text":"Nik worries other terminally ill people will feel driven to choose assisted dying if the bill passes","attributes":[]}}]}}]}}]}},{"type":"altText","model":{"blocks":[{"type":"text","model":{"blocks":[{"type":"paragraph","model":{"text":"Nik smiles at his family behind the camera as he sits in a motorised wheelchair with a breathing mask across his face","blocks":[{"type":"fragment","model":{"text":"Nik smiles at his family behind the camera as he sits in a motorised wheelchair with a breathing mask across his face","attributes":[]}}]}}]}}]}},{"type":"rawImage","model":{"width":1920,"height":1080,"locator":"d0f2/live/26135930-a0e2-11ef-8ab9-9192db313061.jpg","originCode":"cpsprodpb","copyrightHolder":"BBC","suitableForSyndication":true}}]}},{"type":"text","model":{"suitableForAbridgement":false,"blocks":[{"type":"paragraph","model":{"text":"But Nik acknowledges that, though MND has robbed him of his active body, he is not enduring constant pain like Elise and some other terminally ill people.","blocks":[{"type":"fragment","model":{"text":"But Nik acknowledges that, though MND has robbed him of his active body, he is not enduring constant pain like Elise and some other terminally ill people.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"\"I fully respect their position,\" he says. \"I'm living in a fairly privileged situation, in some senses.\"","blocks":[{"type":"fragment","model":{"text":"\"I fully respect their position,\" he says. \"I'm living in a fairly privileged situation, in some senses.\"","attributes":[]}}]}},{"type":"paragraph","model":{"text":"Elise disagrees that the bill would coerce people into prematurely ending their lives, as this option would only be available to those with six months to live.","blocks":[{"type":"fragment","model":{"text":"Elise disagrees that the bill would coerce people into prematurely ending their lives, as this option would only be available to those with six months to live.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"As a safeguard, the person's request to die would need to be approved by two doctors and a judge.","blocks":[{"type":"fragment","model":{"text":"As a safeguard, the person's request to die would need to be approved by two doctors and a judge.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"Elise accepts that those opposed to the bill have questions about the effectiveness of these safety measures, and the ethics of assisted dying.","blocks":[{"type":"fragment","model":{"text":"Elise accepts that those opposed to the bill have questions about the effectiveness of these safety measures, and the ethics of assisted dying.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"\"It's such a complex issue and I don't have all the answers. What I would say is that everyone should have the choice to do what they wish with their bodies.\"","blocks":[{"type":"fragment","model":{"text":"\"It's such a complex issue and I don't have all the answers. What I would say is that everyone should have the choice to do what they wish with their bodies.\"","attributes":[]}}]}}]}},{"type":"advertisement","model":{"adType":"horizontal"},"incrementedType":"mid_4"},{"type":"image","model":{"blocks":[{"type":"caption","model":{"blocks":[{"type":"text","model":{"blocks":[{"type":"paragraph","model":{"text":"Elise says she will likely be dead before the bill becomes law, if it passes, but hopes it could help others","blocks":[{"type":"fragment","model":{"text":"Elise says she will likely be dead before the bill becomes law, if it passes, but hopes it could help others","attributes":[]}}]}}]}}]}},{"type":"altText","model":{"blocks":[{"type":"text","model":{"blocks":[{"type":"paragraph","model":{"text":"Elise sits on a sofa as she speaks towards the camera while wearing a denim shirt.","blocks":[{"type":"fragment","model":{"text":"Elise sits on a sofa as she speaks towards the camera while wearing a denim shirt.","attributes":[]}}]}}]}}]}},{"type":"rawImage","model":{"width":1920,"height":1080,"locator":"007b/live/f061e5b0-a0e4-11ef-bdf5-b7cb2fa86e10.png","originCode":"cpsprodpb","copyrightHolder":"BBC","suitableForSyndication":true}}]}},{"type":"text","model":{"suitableForAbridgement":false,"blocks":[{"type":"paragraph","model":{"text":"Elise knows she will die soon but says having a choice about when this happens would bring her comfort and reassurance.","blocks":[{"type":"fragment","model":{"text":"Elise knows she will die soon but says having a choice about when this happens would bring her comfort and reassurance.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"She believes it is likely that, if the bill is approved, it will come too late to help her.","blocks":[{"type":"fragment","model":{"text":"She believes it is likely that, if the bill is approved, it will come too late to help her.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"Instead, she plans to use the assisted dying service offered by the Swiss firm Dignitas.","blocks":[{"type":"fragment","model":{"text":"Instead, she plans to use the assisted dying service offered by the Swiss firm Dignitas.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"She says their process requires a lot of paperwork beforehand and will cost her between £12,000-£15,000.","blocks":[{"type":"fragment","model":{"text":"She says their process requires a lot of paperwork beforehand and will cost her between £12,000-£15,000.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"She says she is fortunate enough to be able to afford the sum but that the high prices involved are another reason why the law should be changed – so that assisted dying is possible for every terminally ill person who chooses it, not just those who can afford it.","blocks":[{"type":"fragment","model":{"text":"She says she is fortunate enough to be able to afford the sum but that the high prices involved are another reason why the law should be changed – so that assisted dying is possible for every terminally ill person who chooses it, not just those who can afford it.","attributes":[]}}]}},{"type":"paragraph","model":{"text":"If the bill does pass, Elise wishes she could \"be there to see it\". 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