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<!DOCTYPE html><html lang="de"><head><title>脺berlebenschance bei Di George Syndrom? - paradisi.de</title><meta charset="utf-8"><meta name="viewport" content="width=device-width, initial-scale=1.0"><meta http-equiv="X-UA-Compatible" content="ie=edge"><meta name="description" content="Meine Freundin hat ein sehr krankes Kind auf die Welt gebracht. Schon bei der Geburt gab es Komplikationen. Man stellte bei ihr fest, dass sie die seltene Genmutation das Di George Syndrom hat, d.h. das geistige Alter entspricht nicht ihrem biologischem Alter. 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class="thread__question"> <article itemscope itemtype="https://schema.org/Question" class="post thread__post post--question"> <div class="post__container"> <div class="post__header"> <div title="lizzi (Gast)" class="post__avatar"> <svg role="img" class="avatar avatar--guest" aria-label="Profilbild von lizzi"> <use xlink:href="/images/avatars.svg#avatar2"></use> </svg> </div> <div class="post__head-infos"><div itemprop="author" itemscope itemtype="https://schema.org/Person" class="post__author"><span itemprop="name">lizzi</span></div><div class="post__date"><time itemprop="dateCreated" datetime="2010-09-09T13:35+01:00">09.09.2010 13:35</time></div></div><div class="post__more"><button type="button" value="0" title="Weitere Optionen" class="icon-button icon-button--more icon-button--options" aria-label="Weitere Optionen"> <svg role="img" class="icon"> <use xlink:href="/images/icons.svg#more"></use> </svg> </button> </div> </div> <div class="post__content"> <h1 itemprop="name" class="post__headline">脺berlebenschance bei Di George Syndrom?</h1> <p class="post__text">Meine Freundin hat ein sehr krankes Kind auf die Welt gebracht. Schon bei der Geburt gab es Komplikationen. Man stellte bei ihr fest, dass sie die seltene Genmutation das Di George Syndrom hat, d.h. das geistige Alter entspricht nicht ihrem biologischem Alter. Ich wollte mal hier im Forum fragen, wie die 脺berlebenschancen f眉r das M盲dchen stehen. Kennt sich jemand mit Di George Syndrom aus und kann mir helfen? Oder Ratschl盲ge geben? Erfahrungsberichte oder praktische F盲lle, w盲ren besonders hilfreich.</p> </div> <div class="post__footer"> <button type="button" title="Antwort schreiben" class="button antwort--schreiben">Antwort schreiben</button> <div class="modal more more--post-features"> <ul class="more__list"> <li class="more__item"> <button type="button" value="0" title="Link zum Beitrag kopieren" class="icon-link more__link more__link--link"> <svg role="img" class="icon"> <use xlink:href="/images/icons.svg#link"></use> </svg> <span class="more__linktext">Link zum Beitrag kopieren</span> </button> </li> <li class="more__item"> <button type="button" value="0" title="Missbrauch melden" class="icon-link more__link more__link--abuse"> <svg role="img" class="icon"> <use xlink:href="/images/icons.svg#abuse"></use> </svg> <span class="more__linktext">Missbrauch melden</span> </button> </li> </ul> </div> </div> </div> </article> </section> <section class="tags thread__tags"> <div class="tags__container"> <div class="title tags__title">Themen</div> <ul class="tags__list"> <li class="tags__item"> <a href="https://forum.paradisi.de/themen/baby/" class="link-button tag tags__link">Baby</a> </li> <li class="tags__item"> <a href="https://forum.paradisi.de/themen/entwicklung/" class="link-button tag tags__link">Baby-Entwicklung</a> </li> <li class="tags__item"> <a href="https://forum.paradisi.de/themen/entwicklungsstoerung/" class="link-button tag tags__link">Entwicklungsst枚rung beim Baby</a> </li> <li class="tags__item"> <a href="https://forum.paradisi.de/themen/familie/" class="link-button tag tags__link">Familie</a> </li> </ul> </div> </section> <div id="adcontent1" class="ad ad--content">  <div id="traffective-ad-Content_1" style='display: none;' class="Content_1"></div> </div><div id="admobil2" class="ad ad--mobil">  <div id="traffective-ad-Mobile_Pos2" style='display: none;' class="Mobile_Pos2"></div> </div> <section class="thread__answers"><div class="top-bar thread__top-bar"><div id="alle_antworten" class="title thread__answers-count">Antworten (2)</div><div class="filter thread__filter"><button type="button" title="Sortierung" class="set-button filter__button"><span class="button__text">Sortierung</span><svg role="img" class="icon"><use xlink:href="/images/icons.svg#filter"></use></svg></button><div class="modal filter__modal"><form class="form filter__form"><div class="form__checkmark-group"><label for="sort2" class="form__label-checkmark form__label-checkmark--radio">Neueste Antworten zuerst<input type="radio" name="sort" id="sort2" value="2" class="form__checkmark form__checkmark--radio" checked><span class="checkmark"></span></label><label for="sort1" class="form__label-checkmark form__label-checkmark--radio">脛lteste Antworten zuerst<input type="radio" name="sort" id="sort1" value="1" class="form__checkmark form__checkmark--radio"><span class="checkmark"></span></label></div></form></div></div></div><div id="antworten--list"><article id="antwort_459751" itemprop="suggestedAnswer" itemscope itemtype="https://schema.org/Answer" class="post thread__post post--answer"><div class="post__container"><div class="post__header"><div class="post__avatar"><a href="https://nutzer.paradisi.de/profil/angi52004/" title="Angi52004"><svg role="img" class="avatar" aria-label="Profilbild von Angi52004"><use xlink:href="/images/avatars.svg#avatar16"></use></svg></a></div><div class="post__head-infos"><div itemprop="author" itemscope itemtype="https://schema.org/Person" class="post__author"><a href="https://nutzer.paradisi.de/profil/angi52004/" class="post__author-link"><span itemprop="name">Angi52004</span></a></div><div class="post__date"><time itemprop="dateCreated" datetime="2015-08-26T09:12+01:00">26.08.2015 09:12</time></div></div><div class="post__more"><button type="button" value="459751" title="Weitere Optionen" class="icon-button icon-button--more icon-button--options" aria-label="Weitere Optionen"><svg role="img" class="icon"><use xlink:href="/images/icons.svg#more"></use></svg></button></div></div><div class="post__content"><p class="post__text">Vielleicht ist es auch besser, gar nicht zu wissen, wie es um die 脺berlebenschancen so eines Kindes steht. Solange man es hat, soll man dankbar sein und sich 眉ber es freuen.</p></div><div class="post__footer"><div class="rating post__rating"><button type="button" value="459751" title="Antwort als hilfreich bewerten" class="button rating__button rating__button--count rating__button--helpful"><span class="rating__text">Hilfreich</span></button><button type="button" value="459751" title="Antwort als nicht hilfreich bewerten" class="button rating__button rating__button--not-helpful"><span class="rating__text">Nicht hilfreich</span></button></div><div class="modal more more--post-features"><ul class="more__list"><li class="more__item"><button type="button" value="459751" title="Link zur Antwort kopieren" class="icon-link more__link more__link--link"><svg role="img" class="icon"><use xlink:href="/images/icons.svg#link"></use></svg><span class="more__linktext">Link zur Antwort kopieren</span></button></li><li class="more__item"><button type="button" value="459751" title="Missbrauch melden" class="icon-link more__link more__link--abuse"><svg role="img" class="icon"><use xlink:href="/images/icons.svg#abuse"></use></svg><span class="more__linktext">Missbrauch melden</span></button></li></ul></div></div></div></article><article id="antwort_159299" itemprop="suggestedAnswer" itemscope itemtype="https://schema.org/Answer" class="post thread__post post--answer"><div class="post__container"><div class="post__header"><div title="Michael (Gast)" class="post__avatar"><svg role="img" class="avatar avatar--guest" aria-label="Profilbild von Michael"><use xlink:href="/images/avatars.svg#avatar2"></use></svg></div><div class="post__head-infos"><div itemprop="author" itemscope itemtype="https://schema.org/Person" class="post__author"><span itemprop="name">Michael</span></div><div class="post__date"><time itemprop="dateCreated" datetime="2010-10-09T09:06+01:00">09.10.2010 09:06</time></div></div><div class="post__more"><button type="button" value="159299" title="Weitere Optionen" class="icon-button icon-button--more icon-button--options" aria-label="Weitere Optionen"><svg role="img" class="icon"><use xlink:href="/images/icons.svg#more"></use></svg></button></div></div><div class="post__content"><div class="post__title">Di George Syndrom</div><p class="post__text">Hi Lizzi, meine Tochter Julia wurde am 08.02.2006 mit Di George Syndrom geboren. Die Geburt verlief normal und kam gleich ins Herzzentrum nach M眉nchen, wo sie an ihtem kleinen Herzchen operiert wurde. Julia hatte einen Unterbrochenen Aortenbogen, und die Herzkammern waren offen. Julia wurde ca. neun Std. operiert und hatte nach der OP innere Blutungen und Herzstillstand. Den 脛rzten gelang esw wieder, das Herzchen zum schlagen zu bringen. Julia war schon mehrmals in der Uni Ulm, wegen Lungenentz眉ndung, 2mal mu脽te ihr nen Zahn raus operiert werden und andere kleinigkeiten. Das Hauptproblem bei Julia ist, ihr schwaches Immunsystem, sie ist oft krank, (husten, schnupfen, fieber).<br /> Die 脛rzte sagten, da脽 Julia ein normales Leben f眉hren kann, sie geht in den KiGa und spielt mit ihren Freundinnen. Um so 盲lter sie wird, desto weniger wird sie krank, was uns nat眉rlich sehr freut, da das Immunsystem (irgendwie verw盲chst). Geistig ist Julia voll auf der h枚he und spricht nicht nur fliesend deutsch, sondern auch russisch.<br /> Bei fragen stehe ich dir gern zu verf眉gung.<br /> LG, Michael</p></div><div class="post__footer"><div class="rating post__rating"><button type="button" value="159299" title="Antwort als hilfreich bewerten" class="button rating__button rating__button--count rating__button--helpful"><span class="rating__text">Hilfreich</span></button><button type="button" value="159299" title="Antwort als nicht hilfreich bewerten" class="button rating__button rating__button--not-helpful"><span class="rating__text">Nicht hilfreich</span></button></div><div class="modal more more--post-features"><ul class="more__list"><li class="more__item"><button type="button" value="159299" title="Link zur Antwort kopieren" class="icon-link more__link more__link--link"><svg role="img" class="icon"><use xlink:href="/images/icons.svg#link"></use></svg><span class="more__linktext">Link zur Antwort kopieren</span></button></li><li class="more__item"><button type="button" value="159299" title="Missbrauch melden" class="icon-link more__link more__link--abuse"><svg role="img" class="icon"><use xlink:href="/images/icons.svg#abuse"></use></svg><span class="more__linktext">Missbrauch melden</span></button></li></ul></div></div></div></article><div id="adcontent2" class="ad ad--content">  <div id="traffective-ad-Content_2" style='display: none;' class="Content_2"></div> </div><div id="admobil3" class="ad ad--mobil">  <div id="traffective-ad-Mobile_Pos3" style='display: none;' class="Mobile_Pos3"></div> </div></div></section> <div id="antworten" class="write-post write-post--answer"> <form method="post" action="./" class="form write-post__form"> <div class="title form__title">Antwort schreiben</div> <p class="write-post__guest-note">Du schreibst diese Antwort nur als Gast. <a href="https://nutzer.paradisi.de/">Melde dich an</a>, wenn du bereits ein Profil hast oder werde jetzt Mitglied der <span class="brand">paradisi</span>-Community: <a href="https://nutzer.paradisi.de/registrieren/" rel="nofollow">Kostenlos registrieren</a></p> <div class="form__field form__field--size-m"> <label for="" class="form__label">Name</label> <input type="text" id="name" name="name" value="" class="form__input" required> </div> <div class="form__field form__field--textarea"> <label for="" class="form__label">Antwort</label> <textarea id="beitrag" name="beitrag" class="form__textarea form__textarea--size-l" required></textarea> </div> <div class="form__checkmark-group"> <label for="nutzungsbestimmung" class="form__label-checkmark form__label-checkmark--checkbox"> Ich akzeptiere die <a href="https://nutzer.paradisi.de/agb/" rel="nofollow">Allgemeinen Gesch盲ftsbedingungen</a> und habe die <a href="https://www.paradisi.de/datenschutz.php" rel="nofollow">Datenschutzhinweise</a> gelesen <input type="checkbox" name="nutzungsbedingungen" id="nutzungsbestimmung" value="1" class="form__checkmark form__checkmark--checkbox" required> <input type="hidden" name="abschicken" value="7kimx0ci1beZkWW+bq1OpA=="> <span class="checkmark"></span> </label> </div> <div class="form__button-group"> <button type="submit" class="button form__button form__button--submit">Absenden</button> </div> </form> </div> <div class="modal modal--center modal--closable modal--abuse"> <div class="modal__container"> <form class="form modal__form"> <div class="title form__title">Missbrauch melden</div> <div class="modal__content modal__content--main"> <p class="form__text">Zur Gew盲hrleistung eines respektvollen Miteinanders und zum Schutz unserer Nutzer ist uns die Einhaltung der <a href="https://nutzer.paradisi.de/regeln/" rel="nofollow" target="_new">Forenregeln</a> sehr wichtig. 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