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Emotional and cognitive changes - MS International Federation

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aria-haspopup="true" data-toggle="dropdown" tabindex="-1"> <a href="/research/" tabindex="0">Research</a> <div class="dropdown-menu-container" data-level="2" role="menu" aria-hidden="true"> <h3><a href="https://www.msif.org/research/">Research</a></h3> <ul class="dropdown-menu"> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/about-us/who-we-are-and-what-we-do/advocacy/atlas/">AtlasofMS.org</a> </li> <li class="dropdown-submenu" aria-haspopup="true" data-toggle="dropdown" role="menuitem" tabindex="-1"> <a href="https://www.msif.org/research/challenges-of-ms-research/">Key topics in MS research</a> <div class="dropdown-menu-container" data-level="3" role="menu" aria-hidden="true"> <h3><a href="https://www.msif.org/research/challenges-of-ms-research/">Key topics in MS research</a></h3> <ul class="dropdown-menu"> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/challenges-of-ms-research/clinical-trials-and-clinical-developments/">Clinical research and trials</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/epstein-barr-virus-and-ms/">Epstein-Barr virus and MS</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/challenges-of-ms-research/ms-registries-putting-people-with-ms-at-the-heart-of-research/">MS registries</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/proms/">Patient Reported Outcomes for MS</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/challenges-of-ms-research/research-into-ms-and-quality-of-life/">Quality of life research in MS</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/challenges-of-ms-research/progressive-ms/">Research into Progressive MS</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/challenges-of-ms-research/stem-cell-therapy-for-ms/">Stem cell therapy for MS</a></li> </ul> </div> </li> <li class="dropdown-submenu" aria-haspopup="true" data-toggle="dropdown" role="menuitem" tabindex="-1"> <a href="https://www.msif.org/research/awards-grants-and-fellowships/">Awards, grants and fellowships</a> <div class="dropdown-menu-container" data-level="3" role="menu" aria-hidden="true"> <h3><a href="https://www.msif.org/research/awards-grants-and-fellowships/">Awards, grants and fellowships</a></h3> <ul class="dropdown-menu"> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/awards-grants-and-fellowships/du-pre-grants/">Du Pré Grants</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/awards-grants-and-fellowships/mcdonald-fellowships/">McDonald Fellowships</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/awards-grants-and-fellowships/charcot-award/">Charcot Award</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/awards-grants-and-fellowships/young-investigator-award/">Young Investigator Award</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/awards-grants-and-fellowships/global-ms-research-fellowships/">Global MS research fellowships</a></li> </ul> </div> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/catchup-progressivemswebcast/">The Progressive MS Alliance webcasts</a> </li> </ul> </div> </li> <li class=" menu-item menu-item-type-post_type menu-item-object-page menu-item-12347 menu-item-has-children dropdown" aria-haspopup="true" data-toggle="dropdown" tabindex="-1"> <a href="/access-to-ms-healthcare/" tabindex="0">Access & advocacy</a> <div class="dropdown-menu-container" data-level="2" role="menu" aria-hidden="true"> <h3><a href="https://www.msif.org/access-to-ms-healthcare/">Access & advocacy</a></h3> <ul class="dropdown-menu"> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/improve-access-to-ms-treatment/">Improve access to MS treatment</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/improve-ms-diagnosis/">Improve MS diagnosis</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/getting-the-healthcare-i-need/">Getting the healthcare I need</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/get-the-evidence/">Get the evidence</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/how-to-get-started-in-advocacy/">How to get started in advocacy</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/learn-from-others/">Learn from others</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/msifs-work-on-access-to-ms-healthcare/">MSIF work on access</a> </li> </ul> </div> </li> <li class=" menu-item menu-item-type-post_type menu-item-object-page menu-item-8302" tabindex="-1"> <a 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href="https://www.msif.org/about-us/how-we-are-funded/msif-covid-19-response-initiative/">MSIF COVID-19 Response Initiative</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/get-involved/our-supporter-promise/">Our supporter promise</a> </div> </li> </ul> </div> </div> <div class="mobile-nav-container" id="menu-1502"> <button class="mobile-nav-back" data-goto-menu="menu-24"><span class="mobile-nav-back-content">Back</span></button> <div class="mobile-nav-list-wrapper"> <ul class="mobile-nav-list"> <li class="mobile-nav-item mobile-nav-item-parent"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/governance/">How we are governed</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/governance/our-committees/board-of-trustees/">Board of trustees</a> </div> </li> 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<div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/staff/">Our staff</a> </div> </li> <li class="mobile-nav-item mobile-nav-item-children"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/governance/" data-goto-menu="menu-1502">How we are governed</a> </div> </li> <li class="mobile-nav-item mobile-nav-item-children"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/how-we-are-funded/" data-goto-menu="menu-5824">How we are funded</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/reports-and-resources/">Annual accounts</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/conflicts-impact/">Conflict’s impact on people affected by MS</a> </div> </li> <li 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href="https://www.msif.org/access-to-ms-healthcare/improve-ms-diagnosis/">Improve MS diagnosis</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/access-to-ms-healthcare/getting-the-healthcare-i-need/">Getting the healthcare I need</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/access-to-ms-healthcare/get-the-evidence/">Get the evidence</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/access-to-ms-healthcare/how-to-get-started-in-advocacy/">How to get started in advocacy</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/access-to-ms-healthcare/learn-from-others/">Learn from others</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/access-to-ms-healthcare/msifs-work-on-access-to-ms-healthcare/">MSIF work on access</a> </div> </li> </ul> </div> </div> <div class="mobile-nav-container" id="menu-1488"> <button class="mobile-nav-back" data-goto-menu="menu-1515"><span class="mobile-nav-back-content">Back</span></button> <div class="mobile-nav-list-wrapper"> <ul class="mobile-nav-list"> <li class="mobile-nav-item mobile-nav-item-parent"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/research/awards-grants-and-fellowships/charcot-award/">Charcot Award</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/research/awards-grants-and-fellowships/charcot-award/charcot-award-winners/">Charcot Award winners</a> </div> </li> </ul> </div> </div> <div class="mobile-nav-container" id="menu-1507"> <button 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often its greatest challenges</p> <div class="row"> <div class="col-md-6"> </div> </div> </div> </div> </div> </header> <div class="container"> <div class="row"> <section class="content col-md-9"> <p>Some of the most common but hidden symptoms of MS are the changes people may experience related to cognition and their emotions. These changes can affect the way people feel about themselves and alter their cognitive functions. For many, the emotional and cognitive effects of the disease represent its greatest challenges.</p> <h3>Emotional changes</h3> <p>There are a number of emotional responses that appear to be common as people learn to deal with having MS. Uncertainty, stress and anxiety are the most common, not just during diagnosis, but throughout the course of the disease.</p> <p>A person with MS may grieve for their life before MS and their self-image may take a while to adjust to having MS. Other emotional changes that may occur in MS include clinical depression, bipolar disorder, and mood swings. All of these are more common among people with MS than in the general population. Depression and bipolar disorder require professional attention and the use of effective treatments.</p> <p>Emotional lability appears to be more common, and possibly more severe, in people with MS. This may include frequent mood changes, for example from happy to sad to angry.</p> <p>It is believed that the causes are the extra stress brought on by MS as well as neurological changes.</p> <p>Uncontrollable laughing and crying is a disorder affecting a small proportion of people with MS, and is thought to be caused by MS-related changes in the brain.</p> <h3>Low self-esteem</h3> <p>Having MS can affect self-esteem. There may be times when it&#8217;s difficult to do everything a person is used to doing, or they may have to do things differently. Focusing too much on the negative aspects can feel overwhelming. This one minute infographic gives some confidence boosters and tips for managing low self-esteem and MS. Thanks to the UK MS Society for providing the text for this infographic.</p> <div class="video"> <iframe src="//www.youtube.com/embed/vJasqZ6oUdw" frameborder="0" width="100%" allowfullscreen></iframe> </div> <p>MS organisations around the world have <a href="https://www.msif.org/resource/low-self-esteem-and-ms/">translated the infographic</a> into a range of languages.</p> <ul> <li><a href="https://www.msif.org/about-ms/symptoms-of-ms/cognition-and-emotional-changes/">Low self-esteem and MS</a> (English)</li> <li><a href="https://twitter.com/esclerosiseme/status/1186545256290017280?s=20">Baja autoestima y EM</a> (Spanish)</li> <li><a href="https://www.youtube.com/watch?v=8I9OcJzcbZM">Autoestima e Esclerose Multipla</a> (Portuguese)</li> <li><a href="https://youtu.be/f-l7VlsJISI">التصلب المتعدد وتقديرك لنفسك</a> (Arabic)</li> <li><a href="https://youtu.be/qGMqwfNufIQ">Psychologiczne aspekty SM – samoocena</a> (Polish)</li> <li><a href="https://www.facebook.com/StichtingMSResearch/videos/2434453253543628/?__xts__[0]=68.ARA0AzO22Lj97F42mAKXkgm3C10OAhErSXAeW55l93f3chmG1kJjbNcYqHEF5RXFb7E8qg_xY_zMWcqW585g4w0hC2f2IjU4Q-aY-Mw9V3uNIR73T7Q4-DhDryzLk3xmwpi2URSjmIyMn-IDI73aJli6GRrCq9tO6h-SfA8sC4Zy0lTGv10eA_uxLKLgTw8TOWN6Hbnnz91slNP3YHQS2muaol-woiWxVXKRPEupkC0osJ5EOBmxaDwcXGv4y9B1jiLn_TCFJCiH5ijJ0N3PUxfOJxtVIWpbBrD1ydAuuo1wpIh1yUBql0Owaviv1FBbfPYY_YIyo1r2xcGKN15ZCTo_ff7Yb82TD1w5Ng&amp;__tn__=-R">MS en een laag zelfbeeld</a> (Dutch)</li> <li><a href="https://youtu.be/5LhvrL26XVw">Sclérose en plaques et estime de soi</a> (French)</li> <li><a href="https://youtu.be/gqqQ5tbiIos">טרשת נפוצה והערכה עצמית נמוכה</a> (Hebrew)</li> <li><a href="https://youtu.be/QhJkivWlw0I">Рассеянный склероз и низкая самооценка</a> (Russian)</li> <li><a href="https://youtu.be/WZ5apoL7M3M">MS and low self-esteem</a> (Indonesian)</li> <li><a href="https://youtu.be/mw4Y73bpd0o">एमएस और आत्मसम्मान का अभाव</a> (Hindi)</li> <li><a href="https://youtu.be/D3EmcUrDz8s">ఎం స్ మరియు ఆత్మసమ్మానం లోపించుట</a> (Telugu)</li> <li><a href="https://youtu.be/HMWTYipCov4">ایم ایس اور احساسِ کمتری</a> (Urdu)</li> <li><a href="https://youtu.be/cJ97BW7vJgk">ਐਮ ਐਸ ਤੇ ਘੱਟ ਸਵੈ ਮਾਣ</a>  (Punjabi)</li> <li><a href="https://youtu.be/Skqa1Wo6Sqg">এম এস আর আত্মসম্মান ।</a> (Bengali)</li> </ul> <p>If you&#8217;re interested in translating it into an additional language, contact <a href="mailto:info@msif.org">info@msif.org</a>.</p> <h3>Cognitive changes</h3> <p>Cognition refers to the “higher” brain functions such as memory and reasoning. About half of all people with MS will not experience any cognitive changes, but for others, the most commonly affected aspects of cognition are:</p> <ul> <li>Memory</li> <li>Attention and concentration</li> <li>Word-finding</li> <li>Speed of information processing</li> <li>Abstract reasoning and problem solving</li> <li>Visual spatial abilities</li> <li>Executive functions</li> </ul> <p>Because MS can affect any part of the brain, almost any cognitive function can be impaired, and symptoms can range from having a mild impact on only one or two aspects through to more pervasive changes, which affect a person&#8217;s daily life.</p> <p>Cognitive changes can have a significant impact on a person&#8217;s ability to work and fulfil family responsibilities. Family members may not realise that MS can cause cognitive problems and this misunderstanding can result in anger and confusion.</p> <p>MS is a complex disease with many psychological aspects. Adjusting successfully to MS requires understanding and addressing these changes along with the physical ones. There are many <a href="https://www.msif.org/resource-topic/mental-health-emotional-changes/">resources</a> available for education, evaluation and treatment. By using these resources to the fullest, a person with MS and their family can continue to live their day to day life.</p> <div class="image-blocks image-block-2 clearfix"> <div class="image-block"> <img src="data:image/svg+xml;base64,PHN2ZyB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciIHZpZXdCb3g9IjAgMCAxMDI0IDY4MyIgd2lkdGg9IjEwMjQiIGhlaWdodD0iNjgzIiBkYXRhLXU9Imh0dHBzJTNBJTJGJTJGd3d3Lm1zaWYub3JnJTJGd3AtY29udGVudCUyRnVwbG9hZHMlMkYyMDE0JTJGMTAlMkZCZWxhcnVzLTdscjIuanBnIiBkYXRhLXc9IjEwMjQiIGRhdGEtaD0iNjgzIiBkYXRhLWJpcD0iIj48L3N2Zz4=" data-spai="1" alt="Woman feeds her husband, who has MS, in his bed"> <p class="image-caption">Minsk, Belarus, 10/2011. Alena Kleshchanka (51) has spent most of the past seven years organising her days around Nicolai’s needs. Blind and virtually paralysed from the neck down, Nicolai is mentally sharp. While the physical burden of care is heavy for Alena, the couple continue to share a loving relationship. Credit: Walter Astrada. Published on this website by kind permission of the European Multiple Sclerosis Platform.</p> </div> <div class="image-block"> <img src="data:image/svg+xml;base64,PHN2ZyB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciIHZpZXdCb3g9IjAgMCAxMDI0IDY4MyIgd2lkdGg9IjEwMjQiIGhlaWdodD0iNjgzIiBkYXRhLXU9Imh0dHBzJTNBJTJGJTJGd3d3Lm1zaWYub3JnJTJGd3AtY29udGVudCUyRnVwbG9hZHMlMkYyMDE0JTJGMTAlMkZJY2VsYW5kLTMtbHIyLmpwZyIgZGF0YS13PSIxMDI0IiBkYXRhLWg9IjY4MyIgZGF0YS1iaXA9IiI+PC9zdmc+" data-spai="1" alt="A man with MS in Iceland, sitting, with a car park behind him"> <p class="image-caption">10/2011, Akureyri, Iceland. In 2008, a severe attack all but paralysed Haukur Dur’s legs, leaving him no choice but to use a wheelchair. It was a difficult period for an active man with a wife and three young kids. For now, a switch to Tysabri seems to have reversed the course of his MS. Haukur recalls being told the drug carried risks, but doesn’t remember exactly what the risk is – only that given his condition at the time, he felt any risk was worth taking. Credit: Fernando Moleres. Published on this website by kind permission of the European Multiple Sclerosis Platform.</p> </div> </div> <div class="page-tags clearfix"> <h4>Page Tags:</h4> <ul class="clearfix"> <li><a href="https://www.msif.org/tag/cognition">cognition</a></li> <li><a href="https://www.msif.org/tag/mental-health">mental health</a></li> <li><a href="https://www.msif.org/tag/emotions">emotions</a></li> </ul> </div> </section> <section class="sidebar col-md-3"> <div> <section class="widget widget-links"> <header> <h3>Helpful info</h3> </header> <ul class="links"> <li><a href="https://www.msif.org/news/2016/03/18/new-online-conitive-behavioural-therapy/">Shift.MS launches tool to give online Cognitive Behavioural Therapy</a></li> <li><a href="https://www.msif.org/news/2016/02/07/investigating-cognition-fully-assess-ms-progression/">Investigating cognition to fully assess MS progression</a></li> <li><a href="https://www.msif.org/resources/">Resources</a></li> <li><a href="http://www.msif.org/resource-topic/mental-health-emotional-changes/">Resources on Mental Health and Emotional Changes</a></li> <li><a href="http://www.mssociety.org.uk/care-and-support/resources-and-publications/publications-search/ms-and-your-emotions-booklet">MS and your emotions: understanding and dealing with your feelings (UK MS Society)</a></li> <li><a href="http://www.arsep.org/library/media/other/Publications/CR%20congres%20patients%202018/Atelier-Estime-de-soi-depression-Congres-2018.pdf">Self-esteem and depression (ARSEP - in French)</a></li> <li><a href="http://www.underpressureproject.eu/web/">European Multiple Sclerosis Platform's Under Pressure project</a></li> </ul> </section> </div> <a href="https://www.msif.org/news/2014/11/17/cognitive-rehabilitation-ms/" class="bg-secondary-deep-blue block block-simple widget" data-gtm-event="banner"> <div class="block-inner"> <h2>Cognitive rehabilitation in MS</h2> <footer> <span class="btn btn-primary">Learn more</span> </footer> </div> </a> </section> </div> </div> </main> <div id="root-footer"></div> </div> <footer class="footer" id="footer" role="contentinfo"> <div class="footer-top"> <div class="container"> <div class="row"> <div class="col-md-4"> <div class="footer-heading"><a href="/contact-us">Contact us</a></div> <p>MS International Federation<br> Canopi<br> Unit A, Arc House<br> 82 Tanner Street<br> London SE1 3GN<br> United Kingdom</p> </div> <div class="col-md-4"> <div class="footer-heading">Follow us</div> <p class="hidden-xs">Keep in touch with our work on Twitter, Facebook and YouTube.</p> <ul class="social-links"> <li class="twitter"><a href="https://twitter.com/MSIntFederation" title="Follow us on Twitter">Twitter</a></li> <li class="facebook"><a href="https://www.facebook.com/pages/Multiple-Sclerosis-International-Federation/110033075774139" title="Like us on Facebook">Facebook</a></li> <li class="youtube"><a href="https://www.youtube.com/user/MSIFmedia" title="Subscribe to our YouTube channel">YouTube</a></li> </ul> </div> <div class="col-md-4"> <div class="footer-heading">Translate this site</div> <p>Parts of this site are available in Arabic and Spanish. 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