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Please log into your account to place a bid.</h4><form class="woocomerce-form woocommerce-form-login login" method="post"><p class="woocommerce-form-row woocommerce-form-row--wide form-row form-row-wide"><label for="username">Username <span class="required">*</span></label><input type="text" class="woocommerce-Input woocommerce-Input--text input-text" name="username" id="username" value="" /></p><p class="woocommerce-form-row woocommerce-form-row--wide form-row form-row-wide"><label for="password">Password <span class="required">*</span></label><input class="woocommerce-Input woocommerce-Input--text input-text" type="password" name="password" id="password" /></p><p class="woocommerce-Button-login form-row"><input type="hidden" id="woocommerce-login-nonce" name="woocommerce-login-nonce" value="8aec49cf4f" /><input type="hidden" name="_wp_http_referer" value="/ctc/" /><input type="submit" class="woocommerce-Button button" name="login" value="Login" /></p><p class="mb-0 woocommerce-LostPassword lost_password text-center"><a href="https://www.emilysentourage.org/?page_id=8118">Register User</a></p><p class="woocommerce-LostPassword lost_password text-center"><a href="https://www.emilysentourage.org/emilyadmin/?action=lostpassword">Forgot your password?</a></p></form><div class="tickets-page-sec"><div class="bottom-style-box p-3"><h3 class="mb-2">Having Technical Difficulties?</h3><p class="mb-0">Please contact us at <a class="tickets-page-sec-link" href="mailto:events@emilysentourage.org">events@emilysentourage.org</a> or call Nick Dinges at <a class="tickets-page-sec-link" href="tel:610-324-1341">610-324-1341</a> for assistance.</p></div></div></div><span class="close_me_for_now" id="close_this_light_box">X</span></div></div><div id="light_box_fade_div" class="common_class_to_close"></div>'); } }); jQuery(document).on("click", ".text-alerts-popup .close_me_for_now, #light_box_fade_div", function(e){ jQuery('.text-alerts-popup, #light_box_fade_div').hide(); }); /* show cell conormation on dashborad and auction single page*/ jQuery('.text-phone-alert, a.save-phone-details').click(function(e) { e.preventDefault(); jQuery('body').prepend('<div class="text-alerts-popup cell-phone-popup save_cc_details_container"><div class="update_phone_number_container update-otp-phone"><h4>Uh oh! 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id="close_this_light_box">X</span></div><div id="light_box_fade_div" class="common_class_to_close"></div>'); }); var total_bid_item = jQuery(".bid-box .bid-box-text-move .bid-box-item").size(); var item_height = jQuery(".bid-box .bid-box-text-move .bid-box-item").outerHeight(); var scroll_container_height = ( ( item_height )* total_bid_item ); jQuery(".bid-box .bid-box-text-move").css("height", scroll_container_height); var item_index = 1; var timer = setInterval( function(){ jQuery(".bid-box .bid-box-text-move").animate({ "margin-top": (-1) * ( (item_height) * item_index)} , 2500); if (item_index != ( total_bid_item - 1 )) { item_index = item_index + 1 ; } else { item_index = 0; } }, 5000); }); </script> </head> <body class="page-template page-template-full-width-template page-template-full-width-template-php page page-id-22904 theme-charityhub woocommerce-no-js translatepress-en_US elementor-default elementor-kit-21184 elementor-page elementor-page-22904">   <div class="body-wrapper 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class="with-sidebar-wrapper"><section id="content-section-1" ><div class="section-container container"><div class="twelve columns" ></div><div class="clear"></div></div></section></div> <div class="main-content-container container gdlr-item-start-content"> <div class="gdlr-item gdlr-main-content"> <div data-elementor-type="wp-page" data-elementor-id="22904" class="elementor elementor-22904" data-elementor-post-type="page"> <div class="elementor-element elementor-element-9822cc0 e-flex e-con-boxed e-con e-parent" data-id="9822cc0" data-element_type="container" data-settings="{"background_background":"classic"}"> <div class="e-con-inner"> <div class="elementor-element elementor-element-d4bfc66 e-con-full bg-color-wrap e-flex e-con e-child" data-id="d4bfc66" data-element_type="container" data-settings="{"background_background":"classic"}"> <div class="elementor-element elementor-element-2ca230b elementor-widget__width-initial text-boxcls elementor-hidden-mobile elementor-widget elementor-widget-heading" data-id="2ca230b" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default"><span class="ee-banner-textwrap banner-textclr">Emily’s</span> <span class="ee-banner-textwrap banner-textclr">Entourage</span><br> <span class="ee-banner-textwrap">CF Clinical</span> <span class="ee-banner-textwrap">Trial Connect</span></h2> </div> </div> <div class="elementor-element elementor-element-998fa95 elementor-widget__width-initial text-boxcls elementor-hidden-desktop elementor-hidden-tablet elementor-widget elementor-widget-heading" data-id="998fa95" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default"><span class="banner-textclr">Emily’s Entourage</span> CF Clinical Trial Connect</h2> </div> </div> </div> <div class="elementor-element elementor-element-8bd219d e-con-full e-flex e-con e-child" data-id="8bd219d" data-element_type="container"> <div class="elementor-element elementor-element-e4bff44 elementor-widget elementor-widget-image" data-id="e4bff44" data-element_type="widget" data-widget_type="image.default"> <div class="elementor-widget-container"> <img fetchpriority="high" decoding="async" width="1500" height="695" src="https://www.emilysentourage.org/wp-content/uploads/ee-etc-hero-revised.png" class="attachment-full size-full wp-image-23219" alt="" srcset="https://www.emilysentourage.org/wp-content/uploads/ee-etc-hero-revised.png 1500w, https://www.emilysentourage.org/wp-content/uploads/ee-etc-hero-revised-300x139.png 300w, https://www.emilysentourage.org/wp-content/uploads/ee-etc-hero-revised-1024x474.png 1024w, https://www.emilysentourage.org/wp-content/uploads/ee-etc-hero-revised-768x356.png 768w, https://www.emilysentourage.org/wp-content/uploads/ee-etc-hero-revised-18x8.png 18w, https://www.emilysentourage.org/wp-content/uploads/ee-etc-hero-revised-600x278.png 600w" sizes="(max-width: 1500px) 100vw, 1500px" /> </div> </div> </div> </div> </div> <div class="elementor-element elementor-element-7b9cfe6 e-flex e-con-boxed e-con e-parent" data-id="7b9cfe6" data-element_type="container"> <div class="e-con-inner"> <div class="elementor-element elementor-element-55fb608 elementor-widget elementor-widget-heading" data-id="55fb608" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators, including those with: </h2> </div> </div> <div class="elementor-element elementor-element-8dc1a5c elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list" data-id="8dc1a5c" data-element_type="widget" data-widget_type="icon-list.default"> <div class="elementor-widget-container"> <ul class="elementor-icon-list-items"> <li class="elementor-icon-list-item"> <span class="elementor-icon-list-icon"> <svg aria-hidden="true" class="e-font-icon-svg e-fas-circle" viewBox="0 0 512 512" xmlns="http://www.w3.org/2000/svg"><path d="M256 8C119 8 8 119 8 256s111 248 248 248 248-111 248-248S393 8 256 8z"></path></svg> </span> <span class="elementor-icon-list-text">Ineligible genetic mutations</span> </li> <li class="elementor-icon-list-item"> <span class="elementor-icon-list-icon"> <svg aria-hidden="true" class="e-font-icon-svg e-fas-circle" viewBox="0 0 512 512" xmlns="http://www.w3.org/2000/svg"><path d="M256 8C119 8 8 119 8 256s111 248 248 248 248-111 248-248S393 8 256 8z"></path></svg> </span> <span class="elementor-icon-list-text">Side effects from CFTR modulators</span> </li> <li class="elementor-icon-list-item"> <span class="elementor-icon-list-icon"> <svg aria-hidden="true" class="e-font-icon-svg e-fas-circle" viewBox="0 0 512 512" xmlns="http://www.w3.org/2000/svg"><path d="M256 8C119 8 8 119 8 256s111 248 248 248 248-111 248-248S393 8 256 8z"></path></svg> </span> <span class="elementor-icon-list-text">Suboptimal response to CFTR modulators</span> </li> </ul> </div> </div> <div class="elementor-element elementor-element-9c0ecae elementor-widget elementor-widget-text-editor" data-id="9c0ecae" data-element_type="widget" data-widget_type="text-editor.default"> <div class="elementor-widget-container"> By joining CF Clinical Trial Connect, you can help accelerate the development of lifesaving therapies for people with CF. </div> </div> <div class="elementor-element elementor-element-8a0130a elementor-widget elementor-widget-spacer" data-id="8a0130a" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> <div class="elementor-element elementor-element-63d4091 elementor-align-center elementor-widget elementor-widget-button" data-id="63d4091" data-element_type="widget" data-widget_type="button.default"> <div class="elementor-widget-container"> <div class="elementor-button-wrapper"> <a class="elementor-button elementor-button-link elementor-size-sm" href="https://emilysentourage.my.site.com/registry/s/login/" target="_blank"> <span class="elementor-button-content-wrapper"> <span class="elementor-button-text">SIGN UP HERE</span> </span> </a> </div> </div> </div> <div class="elementor-element elementor-element-8ac61a0 elementor-widget elementor-widget-spacer" data-id="8ac61a0" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> </div> </div> <div class="elementor-element elementor-element-1fc55ea e-flex e-con-boxed e-con e-parent" data-id="1fc55ea" data-element_type="container"> <div class="e-con-inner"> <div class="elementor-element elementor-element-266ba06 e-con-full e-flex e-con e-child" data-id="266ba06" data-element_type="container" data-settings="{"background_background":"classic"}"> <div class="elementor-element elementor-element-1a6b486 e-con-full e-flex e-con e-child" data-id="1a6b486" data-element_type="container"> <div class="elementor-element elementor-element-06d0967 elementor-widget elementor-widget-heading" data-id="06d0967" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">Signing up for CF Clinical Trial Connect is easy.</h2> </div> </div> <div class="elementor-element elementor-element-4a6bfea elementor-widget elementor-widget-spacer" data-id="4a6bfea" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> <div class="elementor-element elementor-element-46f91a1 e-con-full e-grid e-con e-child" data-id="46f91a1" data-element_type="container"> <div class="elementor-element elementor-element-64c6acf e-con-full e-flex e-con e-child" data-id="64c6acf" data-element_type="container"> <div class="elementor-element elementor-element-6970b75 elementor-widget elementor-widget-heading" data-id="6970b75" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">1</h2> </div> </div> <div class="elementor-element elementor-element-5ad2e2a elementor-widget elementor-widget-heading" data-id="5ad2e2a" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">Register today </h2> </div> </div> <div class="elementor-element elementor-element-0d9ff67 elementor-widget elementor-widget-text-editor" data-id="0d9ff67" data-element_type="widget" data-widget_type="text-editor.default"> <div class="elementor-widget-container"> You’ll be asked to share a few details about yourself and your CF. </div> </div> </div> <div class="elementor-element elementor-element-a706d9e e-con-full e-flex e-con e-child" data-id="a706d9e" data-element_type="container"> <div class="elementor-element elementor-element-144a837 elementor-widget elementor-widget-heading" data-id="144a837" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">2</h2> </div> </div> <div class="elementor-element elementor-element-561283c elementor-widget elementor-widget-heading" data-id="561283c" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">Get notified </h2> </div> </div> <div class="elementor-element elementor-element-d032eb2 elementor-widget elementor-widget-text-editor" data-id="d032eb2" data-element_type="widget" data-widget_type="text-editor.default"> <div class="elementor-widget-container"> We’ll email you when there’s a trial that may be relevant for you. </div> </div> </div> <div class="elementor-element elementor-element-b00e4e6 e-con-full e-flex e-con e-child" data-id="b00e4e6" data-element_type="container"> <div class="elementor-element elementor-element-e5ac6d0 elementor-widget elementor-widget-heading" data-id="e5ac6d0" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">3</h2> </div> </div> <div class="elementor-element elementor-element-4b23fa3 elementor-widget elementor-widget-heading" data-id="4b23fa3" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">Take action </h2> </div> </div> <div class="elementor-element elementor-element-bc79ec2 elementor-widget elementor-widget-text-editor" data-id="bc79ec2" data-element_type="widget" data-widget_type="text-editor.default"> <div class="elementor-widget-container"> Get the information you need to learn more about and participate in the latest clinical trials. </div> </div> </div> </div> </div> </div> </div> </div> <div class="elementor-element elementor-element-2df348e e-con-full e-flex e-con e-parent" data-id="2df348e" data-element_type="container" data-settings="{"background_background":"classic"}"> <div class="elementor-element elementor-element-ca8910a e-flex e-con-boxed e-con e-child" data-id="ca8910a" data-element_type="container"> <div class="e-con-inner"> <div class="elementor-element elementor-element-89d079e e-con-full e-flex e-con e-child" data-id="89d079e" data-element_type="container"> <div class="elementor-element elementor-element-3e6af4f elementor-widget elementor-widget-heading" data-id="3e6af4f" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">Why register for CF Clinical Trial Connect?</h2> </div> </div> <div class="elementor-element elementor-element-b7d4080 elementor-widget elementor-widget-spacer" data-id="b7d4080" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> </div> <div class="elementor-element elementor-element-718499f e-con-full e-grid e-con e-child" data-id="718499f" data-element_type="container"> <div class="elementor-element elementor-element-31356fe e-con-full e-flex e-con e-child" data-id="31356fe" data-element_type="container"> <div class="elementor-element elementor-element-e184d8b elementor-widget elementor-widget-image" data-id="e184d8b" data-element_type="widget" data-widget_type="image.default"> <div class="elementor-widget-container"> <img decoding="async" width="174" height="174" src="https://www.emilysentourage.org/wp-content/uploads/ee-clock.svg" class="attachment-large size-large wp-image-23177" alt="" /> </div> </div> <div class="elementor-element elementor-element-a20fae2 elementor-widget elementor-widget-spacer" data-id="a20fae2" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> <div class="elementor-element elementor-element-170d172 elementor-widget elementor-widget-heading" data-id="170d172" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h3 class="elementor-heading-title elementor-size-default">Gain early access to information about clinical trials</h3> </div> </div> <div class="elementor-element elementor-element-71a575b elementor-widget elementor-widget-spacer" data-id="71a575b" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> <div class="elementor-element elementor-element-5ae5e1f elementor-widget elementor-widget-text-editor" data-id="5ae5e1f" data-element_type="widget" data-widget_type="text-editor.default"> <div class="elementor-widget-container"> <p>Join CF Clinical Trial Connect for early access to the latest, relevant clinical trial opportunities — delivered straight to your inbox.</p> </div> </div> <div class="elementor-element elementor-element-9424fc3 elementor-widget elementor-widget-spacer" data-id="9424fc3" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> <div class="elementor-element elementor-element-7d50af5 elementor-widget elementor-widget-spacer" data-id="7d50af5" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> </div> <div class="elementor-element elementor-element-1d07345 e-con-full e-flex e-con e-child" data-id="1d07345" data-element_type="container"> <div class="elementor-element elementor-element-563bde4 elementor-widget elementor-widget-image" data-id="563bde4" data-element_type="widget" data-widget_type="image.default"> <div class="elementor-widget-container"> <img loading="lazy" decoding="async" width="174" height="174" src="https://www.emilysentourage.org/wp-content/uploads/ee-people.svg" class="attachment-large size-large wp-image-23179" alt="" /> </div> </div> <div class="elementor-element elementor-element-b5835cd elementor-widget elementor-widget-spacer" data-id="b5835cd" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> <div class="elementor-element elementor-element-b74577f elementor-widget elementor-widget-heading" data-id="b74577f" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">Advance treatment for 100% of people with CF </h2> </div> </div> <div class="elementor-element elementor-element-81cb6ce elementor-widget elementor-widget-spacer" data-id="81cb6ce" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> <div class="elementor-element elementor-element-6970af1 elementor-widget elementor-widget-text-editor" data-id="6970af1" data-element_type="widget" data-widget_type="text-editor.default"> <div class="elementor-widget-container"> <p>Enrolling in a clinical trial helps speed drug development for those left behind by current CFTR modulators.</p> </div> </div> </div> <div class="elementor-element elementor-element-efbc12c e-con-full e-flex e-con e-child" data-id="efbc12c" data-element_type="container"> <div class="elementor-element elementor-element-0325b3b elementor-widget elementor-widget-image" data-id="0325b3b" data-element_type="widget" data-widget_type="image.default"> <div class="elementor-widget-container"> <img loading="lazy" decoding="async" width="174" height="174" src="https://www.emilysentourage.org/wp-content/uploads/ee-lock.svg" class="attachment-large size-large wp-image-23178" alt="" /> </div> </div> <div class="elementor-element elementor-element-eb9de40 elementor-widget elementor-widget-spacer" data-id="eb9de40" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> <div class="elementor-element elementor-element-ac76f48 elementor-widget elementor-widget-heading" data-id="ac76f48" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h2 class="elementor-heading-title elementor-size-default">Be part of the solution </h2> </div> </div> <div class="elementor-element elementor-element-4980b47 elementor-widget elementor-widget-spacer" data-id="4980b47" data-element_type="widget" data-widget_type="spacer.default"> <div class="elementor-widget-container"> <div class="elementor-spacer"> <div class="elementor-spacer-inner"></div> </div> </div> </div> <div class="elementor-element elementor-element-4d68e9c elementor-widget elementor-widget-text-editor" data-id="4d68e9c" data-element_type="widget" data-widget_type="text-editor.default"> <div class="elementor-widget-container"> <p>Clinical trial participation is critical to speed drug development for those that do not benefit from CFTR modulators. By joining the CTC, you’re helping to create a future where nobody is left behind.</p> </div> </div> </div> </div> </div> </div> </div> <div class="elementor-element elementor-element-1c0d5d6 e-flex e-con-boxed e-con e-parent" data-id="1c0d5d6" data-element_type="container"> <div class="e-con-inner"> <div class="elementor-element elementor-element-2647534 ee-acco-wrap elementor-widget elementor-widget-accordion" data-id="2647534" data-element_type="widget" data-widget_type="accordion.default"> <div class="elementor-widget-container"> <div class="elementor-accordion"> <div class="elementor-accordion-item"> <div id="elementor-tab-title-4011" class="elementor-tab-title" data-tab="1" role="button" aria-controls="elementor-tab-content-4011" aria-expanded="false"> <span class="elementor-accordion-icon elementor-accordion-icon-left" aria-hidden="true"> <span class="elementor-accordion-icon-closed"><svg class="e-font-icon-svg e-fas-plus" viewBox="0 0 448 512" xmlns="http://www.w3.org/2000/svg"><path d="M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z"></path></svg></span> <span class="elementor-accordion-icon-opened"><svg class="e-font-icon-svg e-fas-minus" viewBox="0 0 448 512" xmlns="http://www.w3.org/2000/svg"><path d="M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z"></path></svg></span> </span> <a class="elementor-accordion-title" tabindex="0">Who can participate? </a> </div> <div id="elementor-tab-content-4011" class="elementor-tab-content elementor-clearfix" data-tab="1" role="region" aria-labelledby="elementor-tab-title-4011"><p>The CF Clinical Trial Connect database is open to people with CF from around the world who are unable to benefit from CFTR modulators, including those with:</p><ul><li>Ineligible genetic mutations</li><li>Side effects from CFTR modulators</li><li>Suboptimal response to CFTR modulators</li></ul><p>If you are under the age of 18, a parent or guardian can register on your behalf.</p></div> </div> <div class="elementor-accordion-item"> <div id="elementor-tab-title-4012" class="elementor-tab-title" data-tab="2" role="button" aria-controls="elementor-tab-content-4012" aria-expanded="false"> <span class="elementor-accordion-icon elementor-accordion-icon-left" aria-hidden="true"> <span class="elementor-accordion-icon-closed"><svg class="e-font-icon-svg e-fas-plus" viewBox="0 0 448 512" xmlns="http://www.w3.org/2000/svg"><path d="M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z"></path></svg></span> <span class="elementor-accordion-icon-opened"><svg class="e-font-icon-svg e-fas-minus" viewBox="0 0 448 512" xmlns="http://www.w3.org/2000/svg"><path d="M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z"></path></svg></span> </span> <a class="elementor-accordion-title" tabindex="0">How does CF Clinical Trial Connect work?</a> </div> <div id="elementor-tab-content-4012" class="elementor-tab-content elementor-clearfix" data-tab="2" role="region" aria-labelledby="elementor-tab-title-4012"><p>Joining CF Clinical Trial Connect only takes a few minutes. You will be asked for basic information, including your contact details, demographics, genetic mutation, and microbiology. You can register for yourself, or for an eligible loved one if you are the parent or guardian of a child under 18 years old.</p><p>Once you have joined, you will be added to our database. We will contact you about clinical trials that you might qualify for based on the information you provided. You can log in at any time to update your profile and to see current trials that Emily’s Entourage is supporting recruitment for.</p><p>CF Clinical Trial Connect also uses aggregated geographical data from registrants to help inform clinical trial site selection. </p></div> </div> <div class="elementor-accordion-item"> <div id="elementor-tab-title-4013" class="elementor-tab-title" data-tab="3" role="button" aria-controls="elementor-tab-content-4013" aria-expanded="false"> <span class="elementor-accordion-icon elementor-accordion-icon-left" aria-hidden="true"> <span class="elementor-accordion-icon-closed"><svg class="e-font-icon-svg e-fas-plus" viewBox="0 0 448 512" xmlns="http://www.w3.org/2000/svg"><path d="M416 208H272V64c0-17.67-14.33-32-32-32h-32c-17.67 0-32 14.33-32 32v144H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h144v144c0 17.67 14.33 32 32 32h32c17.67 0 32-14.33 32-32V304h144c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z"></path></svg></span> <span class="elementor-accordion-icon-opened"><svg class="e-font-icon-svg e-fas-minus" viewBox="0 0 448 512" xmlns="http://www.w3.org/2000/svg"><path d="M416 208H32c-17.67 0-32 14.33-32 32v32c0 17.67 14.33 32 32 32h384c17.67 0 32-14.33 32-32v-32c0-17.67-14.33-32-32-32z"></path></svg></span> </span> <a class="elementor-accordion-title" tabindex="0">How are my data and privacy protected? </a> </div> <div id="elementor-tab-content-4013" class="elementor-tab-content elementor-clearfix" data-tab="3" role="region" aria-labelledby="elementor-tab-title-4013"><p>CF Clinical Trial Connect meets compliance requirements for the communities Emily’s Entourage serves, including General Data Protection Regulation (GDPR) requirements for the United Kingdom and the European Union.</p><p>Your data privacy and protection is important to us. Read the <a href="https://www.emilysentourage.org/wp-content/uploads/2.-EE_Privacy_Notice_REVISED-Revised-Sept-2024.docx.pdf">privacy policy for CF Clinical Trial Connect.</a></p></div> </div> </div> </div> </div> </div> </div> </div> </div> </div>  </div> <div class="clear" ></div> </div> <footer class="footer-wrapper donate_footer" > <div class="footer-container container row text-center"> <div class="footer-column col-md-3" id="footer-widget-1"><div id="custom_html-5" class="widget_text widget widget_custom_html gdlr-item gdlr-widget"><div class="textwidget custom-html-widget"><ul class="footer_end_logo"><li class="guide-star-logo"><a href="https://www.guidestar.org/profile/45-3768161" target="_blank" rel="noopener"><img src="https://www.emilysentourage.org/wp-content/uploads/profile-PLATINUMS2024-seal.jpeg" scale="0"></a></li> <li> <script type="text/javascript"> gnp_request = {"slug" : "emilys-entourage", "color-set" : 1 , "campaign" : 62}; </script> <style> div.gnp_trb { 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else { jQuery('.vip_newsletter_list').removeClass('selected'); jQuery('.vip_newsletter_list').find('input').prop('checked', false); } } //preventing users to submit the sorm if they have not selected atleast one reson for the connection to CF jQuery("#submit_interaction").prop("disabled", true); jQuery(".connection_to_cyctic").on("change", function(){ if (jQuery('.connection_to_cyctic.selected').length != 0) { jQuery("#submit_interaction").prop("disabled", false); jQuery("#cyctc_msg").text(""); }else{ jQuery("#submit_interaction").prop("disabled", true); jQuery("#cyctc_msg").text("Please select at least one Connection to Cystic Fibrosis"); } }); }); })(jQuery); </script> <template id="tp-language" data-tp-language="en_US"></template> <button type="button" aria-controls="rmp-container-16555" aria-label="Menu Trigger" id="rmp_menu_trigger-16555" class="rmp_menu_trigger rmp-menu-trigger-boring"> <span class="rmp-trigger-box"> <span class="responsive-menu-pro-inner"></span> </span> 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Investments</a></li><li id="rmp-menu-item-19024" class=" menu-item menu-item-type-post_type menu-item-object-page rmp-menu-item rmp-menu-sub-level-item" role="none"><a href="https://www.emilysentourage.org/collaborative-grants/" class="rmp-menu-item-link" role="menuitem" >Collaborative Grants</a></li><li id="rmp-menu-item-19025" class=" menu-item menu-item-type-post_type menu-item-object-page rmp-menu-item rmp-menu-sub-level-item" role="none"><a href="https://www.emilysentourage.org/translational-grants/" class="rmp-menu-item-link" role="menuitem" >Translational Grants</a></li></ul></li><li id="rmp-menu-item-23237" class=" menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-22904 current_page_item rmp-menu-item rmp-menu-current-item rmp-menu-sub-level-item" role="none"><a href="https://www.emilysentourage.org/ctc/" class="rmp-menu-item-link" role="menuitem" >CF Clinical Trial Connect</a></li><li id="rmp-menu-item-17446" class=" menu-item 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