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She has a long professional background in social work and disability rights/services in both the voluntary and statutory sector in the UK and New Zealand. She now works on Information Coordination at SMA UK – a patient group/charity that has been providing information and support and funding and supporting research-related initiatives since 1985. The charity actively advocates tor access to treatments and better health and social care with and for the SMA community. </p> </div> </div> </header> <div class="author-posts"> <article class="post js-equalheight"> <h2><a href="https://www.england.nhs.uk/blog/why-working-with-patient-groups-is-critical-for-providing-effective-treatments-and-services/">Why working with patient groups is critical for providing effective treatments and services</a></h2> <div class="entry-meta group"> <time class="post-meta" datetime="2022-08-22"> <svg xmlns="http://www.w3.org/2000/svg" viewBox="0 0 16 16"><path class="icon" d="M15.47 3v11.61a.8.8 0 0 1-.63.78A36 36 0 0 1 8 16a36 36 0 0 1-6.83-.6.8.8 0 0 1-.63-.78V3a.8.8 0 0 1 .63-.78c.05 0 .6-.12 1.5-.23v.72A1.35 1.35 0 0 0 4.09 4a1.08 1.08 0 0 1-.35-.8V1.07a1.07 1.07 0 1 1 2.13 0v.58h3.2v1.02A1.35 1.35 0 0 0 10.49 4a1.08 1.08 0 0 1-.35-.8V1.07a1.07 1.07 0 1 1 2.13 0v.75c1.53.17 2.48.35 2.57.37a.8.8 0 0 1 .63.81zm-1.6 11V6.4H2.14V14a36.28 36.28 0 0 0 5.86.48 36.28 36.28 0 0 0 5.87-.48zM3.74 12.8v-2.14h2.13v2.14zm5.33-3.2H6.94V7.46h2.13zm-2.13 3.2v-2.14h2.13v2.14zm5.33-3.2h-2.13V7.46h2.13zm-2.13 3.2v-2.14h2.13v2.14z"/></svg> 22 August 2022 </time> <p class="post-author"> <svg xmlns="http://www.w3.org/2000/svg" viewBox="0 0 16 16"><path class="icon" d="M3.74 11.2A24.31 24.31 0 0 1 .39 11a.43.43 0 0 1-.3-.2.38.38 0 0 1-.09-.34c.22-.95.17-1.27 1.07-1.9s1.8-1 2.12-1.37A.78.78 0 0 0 3.27 6a3.17 3.17 0 0 1-.78-3.58A2.48 2.48 0 0 1 4.8 1.07a2.48 2.48 0 0 1 2.32 1.36 3 3 0 0 1 .27 1.2 3.56 3.56 0 0 0-2.82 2 4.32 4.32 0 0 0 .72 4.6c-.15.1-.33.2-.5.3-.34.22-.7.42-1.05.67zm-.15 3.55a.43.43 0 0 1-.3-.2.38.38 0 0 1-.07-.35c.22-.95.17-1.27 1.07-1.9s1.8-1 2.12-1.37a.78.78 0 0 0 .07-1.18 3.17 3.17 0 0 1-.78-3.58A2.48 2.48 0 0 1 8 4.8a2.48 2.48 0 0 1 2.32 1.37 3.17 3.17 0 0 1-.78 3.58.78.78 0 0 0 .07 1.18c.32.35 1.32.8 2.12 1.37s.85.95 1.07 1.9a.44.44 0 0 1-.07.35.43.43 0 0 1-.3.2 31.21 31.21 0 0 1-4.43.18 30.9 30.9 0 0 1-4.41-.18zm12.33-3.93a.43.43 0 0 1-.3.2 24.67 24.67 0 0 1-3.35.18c-.35-.25-.72-.45-1-.65a5.21 5.21 0 0 1-.52-.3 4.27 4.27 0 0 0 .7-4.6 3.52 3.52 0 0 0-2.8-2 3 3 0 0 1 .27-1.2 2.48 2.48 0 0 1 2.28-1.38 2.48 2.48 0 0 1 2.32 1.37A3.17 3.17 0 0 1 12.74 6a.78.78 0 0 0 .06 1.2c.32.35 1.32.8 2.12 1.37s.85.95 1.07 1.9a.44.44 0 0 1-.07.34z"/></svg> <a href="https://www.england.nhs.uk/author/fiona-marley/" title="Posts by Fiona Marley" class="author url fn" rel="author">Fiona Marley</a> and <a href="https://www.england.nhs.uk/author/liz-ryburn/" title="Posts by Liz Ryburn" class="author url fn" rel="author">Liz Ryburn</a> </p> <ul class="topics"> <li><a href="https://www.england.nhs.uk/blog/?filter-category=cyp" rel="tag">Children and young people</a></li><li><a href="https://www.england.nhs.uk/blog/?filter-category=comm" rel="tag">Commissioning</a></li><li><a href="https://www.england.nhs.uk/blog/?filter-category=get-involved" rel="tag">Get involved</a></li><li><a href="https://www.england.nhs.uk/blog/?filter-category=ltc" 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